First day of chemo over!!

Jeff148
Jeff148 Member Posts: 184
edited May 2014 in Lymphoma (Hodgkin and Non-Hodgkin) #1

First day went ok. I was in a bed which was nice since the session lasted over 9 hours. I had some minor alergic reactions that were dealt with and a little nausea that night. But I'm at work today!! Thanks for all the thoughts and prayers. They work!! I have a prayer list too. If any of you need prayer, send me a message. I know I'm at the bottom of a mountain, and it will be brutal, but I have super support. It's like when u go for a run and there is a big hill and u charge at the bottom and it's tough even after u get to the top. You just can't stop. The best is when u are half way up and someone yells support. You actually pick up the pace and mentally feel better. That's how I feel when I hear support from all of u. I hope to do the same!! I put more on my blog which is at www.olympiajeff148.blogspot.com

Comments

  • Rocquie
    Rocquie Member Posts: 869 Member
    #2
    Yay!

    First chemo. Done. 

    And now you no longer have that nagging fear of the unknown. You did it and everything turned out fine. Way to go!!

    I'm sure you have been told about your Nadir--the low point in your blood counts, which comes in a week or two, depending on the particular drugs. Please make sure to protect yourself from infections by mindful hand washing and avoiding anyone who seems sick (sneezing or coughing, etc.) especially since you are back at work. Pay attention to your body, especially elevated temperatures, and report to your doctor as advised. 

    I am following your blog through my reader. Smile

    Big hugs to you. . .

    Rocquie

     

  • Jeff148
    Jeff148 Member Posts: 184
    #3
    Rocquie said:

    Yay!

    First chemo. Done. 

    And now you no longer have that nagging fear of the unknown. You did it and everything turned out fine. Way to go!!

    I'm sure you have been told about your Nadir--the low point in your blood counts, which comes in a week or two, depending on the particular drugs. Please make sure to protect yourself from infections by mindful hand washing and avoiding anyone who seems sick (sneezing or coughing, etc.) especially since you are back at work. Pay attention to your body, especially elevated temperatures, and report to your doctor as advised. 

    I am following your blog through my reader. Smile

    Big hugs to you. . .

    Rocquie

     

    Thanks

    Thanks for the hugs and awesome advice. I'll be super careful!

  • illead
    illead Member Posts: 884 Member
    #4
    Jeff148 said:

    Thanks

    Thanks for the hugs and awesome advice. I'll be super careful!

    Cgrts

    Good for you.  Like Roquie says, now that you conquered your first chemo, you won't have as much anxiety.  I'm keeping up with your blog also and am jealous you got lunch and dinner.  Bill only gets lunch and one time we were there over 10 hours.  I had to go out for Jimboys tacos, it was the healthiest thing I could think of Laughing.  You've got a great attitude, you will do fine, I'm sure.  Looks like you have a sweet caregiver.

    Becky

     

  • ThisisLife
    ThisisLife Member Posts: 101 Member
    #5
    Way to Go!

    Way to go Jeff!  Having that first one under your belt is great.  I always found that I felt a bit more tired on the third and fourth day after chemo. Like the others said, lots of hand washing (carry hand sanitizer with you) and try to avoid people who are sick.  I continued to work too and never experienced any illnesses, even though my white counts were poor.

    You have an awesome attitude and that will be a huge help if the going gets tough!!! I'm going to check out your blog and follow it too!  I'm glad that you have some awesome support!

    Sharlene

  • Jeff148
    Jeff148 Member Posts: 184
    #6
    ThisisLife said:

    Way to Go!

    Way to go Jeff!  Having that first one under your belt is great.  I always found that I felt a bit more tired on the third and fourth day after chemo. Like the others said, lots of hand washing (carry hand sanitizer with you) and try to avoid people who are sick.  I continued to work too and never experienced any illnesses, even though my white counts were poor.

    You have an awesome attitude and that will be a huge help if the going gets tough!!! I'm going to check out your blog and follow it too!  I'm glad that you have some awesome support!

    Sharlene

    Thanks!

    What chemo did you do so well on? It's good to hear succes stories.

  • Jeff148
    Jeff148 Member Posts: 184
    #7
    illead said:

    Cgrts

    Good for you.  Like Roquie says, now that you conquered your first chemo, you won't have as much anxiety.  I'm keeping up with your blog also and am jealous you got lunch and dinner.  Bill only gets lunch and one time we were there over 10 hours.  I had to go out for Jimboys tacos, it was the healthiest thing I could think of Laughing.  You've got a great attitude, you will do fine, I'm sure.  Looks like you have a sweet caregiver.

    Becky

     

    I love tacos!

    Normally I love all food. Not so sure after chemo. It could ruin tacos for me. Thanks for the kind words!!! Hope all is well with you and Bill.

  • ThisisLife
    ThisisLife Member Posts: 101 Member
    #8
    Jeff148 said:

    Thanks!

    What chemo did you do so well on? It's good to hear succes stories.

    I did six cycles of ABVD (12

    I did six cycles of ABVD (12 treatments). 


    One other piece of advice. . . . they recommend that you don't eat your favourite foods around the time of treatment as sometimes you can be put off of them.   My first treatment I had a big bowl of ramen noodles when I got home thinking it would be nice and soothing on my stomach.  I can still taste the funky taste when I think about it and I still haven't been able to eat them.  That was almost two years ago. Laughing

     

    I was diagnosed with Nodular Sclerosing Hodgkins Lymphoma - Stage 3B in June 2012

  • jimwins
    jimwins Member Posts: 2,107
    #9
    Hi Jeff

    Hi Jeff.  Been out of town so I'm late in responding but congratulations on completing your first cycle! 

     

    Puppy Shaking His Head

  • Aaron
    Aaron Member Posts: 237
    #10
    Hi Jeff

    First ones always the worst, you have nlphl? If so what course of treatment are you getting? Is that safeco field your at in your pic ?

  • Jeff148
    Jeff148 Member Posts: 184
    #11
    Aaron said:

    Hi Jeff

    First ones always the worst, you have nlphl? If so what course of treatment are you getting? Is that safeco field your at in your pic ?

    Nlphl is what I have. The

    Nlphl is what I have. Four treatment of r-abvd. Every other week for 16 weeks.  The picture is from quest field at a sounders game. Safeco is next door. 

  • tall floridian
    tall floridian Member Posts: 95
    #12
    Way to go Jeff

    I agree with you 100% that prayer works- I was diagnosed with 4th stage lymphoma in 2011 and almost immediately my church started prayer for my recovery. It was not an easy journey, having a terrible staph infection complicated by 16 days in the hospital for c-diff,and blood clots in both legs,but praise God I'm now two years in remission having only blood tests every three months and blood thinner for the clots. Attitude means so much in fighting this disease and having faith that God's in control. Take each day as it comes,always taking precaution's at work-keeping healthy by eating nothing but good foods and following your doctor's advice. You will overcome,just trust and travel your journey with God by your side- He will never leave nor forsake you. God bless my brother- Steve

  • Aaron
    Aaron Member Posts: 237
    #13
    Jeff148 said:

    Nlphl is what I have. The

    Nlphl is what I have. Four treatment of r-abvd. Every other week for 16 weeks.  The picture is from quest field at a sounders game. Safeco is next door. 

    Small world

    Another nlphl in seattle what are the odds. I live in kent, where are you getting your treatment?

  • Jeff148
    Jeff148 Member Posts: 184
    #14
    Aaron said:

    Small world

    Another nlphl in seattle what are the odds. I live in kent, where are you getting your treatment?

    Seattle cancer care alliance.

    Seattle cancer care alliance. What about you... Where and what treatment?

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,812 Member
    #15
    Jeff148 said:

    Nlphl is what I have. The

    Nlphl is what I have. Four treatment of r-abvd. Every other week for 16 weeks.  The picture is from quest field at a sounders game. Safeco is next door. 

    "4"

    Jeff,

    You must be Stage 1 or 2 if you are getting 4 infusions  -- a good thing.  Aaron, Bill-NC, Sur, and I were all Stage 3, which requires 12 infusions.

    You will knock it out in no time, and since side-effects are usually linked to dose, hopefully you will have few of them. You will be back at Taco Bell before you know it !

    max

    .

  • Aaron
    Aaron Member Posts: 237
    #16
    Scca

    I got my second opinion at scca and received 6 cycles of r-abvd at group health in Tacoma 

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #17
    First treatment...

    Hi Jeff,

     Sorry for the late reply, but we've been making a big move to the river, so it's been kind of hectic. I'm so happy your first time is behind you and all went fairly well. Chemo is no walk in the park, but it is doable! You hang in there and share back how you are doing as your treatments progress. Chemo(all types) have a cumulative effect, so as each treatment passes you may feel more run down. Just listen to your body. Best wishes...Sue

    (FollicularNHL-stg3-grd2-typA-Dx 6/10-age 63) Relapsed April 2014

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