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What do bone mets feel like?

Septemberzoe
Posts: 49
Joined: Sep 2013

Can anyone describe what the pain from bone mets feels like? Having dull pain in my rib area that feels muscular but it has come and go over 5 or 6 weeks now...trying to figure out if I should contact my dr and get it checked out? The pain is not severe and if I hadn't had kidney cancer I wouldn't have thought so much about it but I'm concerned about spread to the bone...what does that feel like? Any help would be great...thanks

Txgrl
Posts: 31
Joined: Apr 2014

My dad has bone mets. Very painful. He takes morphine for the pain.

icemantoo's picture
icemantoo
Posts: 3260
Joined: Jan 2010

Zoe,

 

Any unusual pain should be shared with your doctor. I would be very surprised given your initial diagnosis that you now have bone mets.

 

But that what doctors are for.

 

Icemantoo

Srashedb
Posts: 482
Joined: Dec 2013

I think the type of pain with bone mets varies; my husband initially thought it was a slight sprain as did his gp.

a year after taking Advil (took care of pain but needed to take it) and physical therapy not helping it all, he had MRI which showed mass in kidney as well as nearly fractured vertabrae.

sarah

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

I've felt bone mets a couple ways. When it started in my pelvis, I thought it was an old muscle injury acting up. I had pain there years before. But it increased and became constant. Needed percocets to move around the house. My ribs ended up breaking from the tumors. I could pass out with coughs or sneezes. I had to move in slow motion. They hurt the most. My spine felt like ruptured discs. It would take my breath away. I guess I should just say they hurt a lot. It sure is nice that they have healed.

Septemberzoe
Posts: 49
Joined: Sep 2013

Thanks everyone for the info...right now my pain comes and goes and almost seems to move from my back to the front of my ribs...not painful enough to take anything for it...think I'll give it a little while and see how I feel...sometimes my mind drives me crazy  with aches and pains....thanks again... Xoxo

a_oaklee
Posts: 520
Joined: Nov 2013

My husband had severe back pain that took him to the doctor.  He thought he must have injured his back doing some outdoor work.  It was persistent. He couldn't get in and out of bed without help.  started sleeping in a chair with a heating pad.  Tylenol did not help.  The doc prescribed narcotics and that didn't help either.  anyway, long story shortened here.  He was diagnosed at stage 4 with mets to bones.  He says it's the worse pain he's ever felt.  The pain from the nephrectomy and back surgery pales in comparison.  It is constant.  Narcotics dull the pain.  He chose to have radiation to his hip, shoulder and spine for pain control.  That was effective.  A quality of life decision.  He now has no evidence of metabolic disease and his aches are less debilitating.  This isn't like arthritic pain.  It doesn't change with what time of day, positioning, or physical activity.  This is how my husband explains it, perhaps others feel differently.  

annie

twinthings's picture
twinthings
Posts: 409
Joined: Jun 2013

I've had left side rib pain for the past 3-4 months.  It's one tiny spot, does not feel muscular, is not a dull ache rather a sharp pain.  I keep feeling like if I sit up straighter or stand straighter it will feel better but, it doesn't.  I haven't mentioned to doctor because I highly doubt there's any relation.  It's not bad enough to take meds for but, I tend to wait till I'm a 8ish on a pain scale before I take anything and it's far from that...maybe a 4.  I have had ct's so, if I had bone mets I'd surely know from the ct's. right?

Like you, tho, if I hadn't had kidney cancer, I wouldn't give it a second thought...except that it's hard to forget about when it constantly hurts Undecided!

Hope yours gets to feeling better real soon!!

NanoSecond's picture
NanoSecond
Posts: 653
Joined: Oct 2012

I am afraid not, Twinthings.  CT-scans can certainly miss bone mets.  The best kind of imaging is with a full body nuclear bone scan or an MRI.

twinthings's picture
twinthings
Posts: 409
Joined: Jun 2013

Good to know, Neil.  If it's still bugging me in another 6 months or so, I'll mention it to doc. 

I know I told you before that I've cut back on sugar, but, I don't think I've told you, as of today, I am 25 days clean.  Well, mostly.  I have not had so much as a bite, lick or taste of any kind of dessert, icecream, cookie, cake, brownie...nothing...other than the sugar I get from what's hidden in the food I eat.  I went cold turkey!!  I'm so proud of me!

 

NanoSecond's picture
NanoSecond
Posts: 653
Joined: Oct 2012

Wow.  I am very proud of you too.  Guess what? If you keep it up you are going to discover how little "sweetness" you need.  That is, if you happen to eat a sugar-laden sweet at some point in the future you may likely find it too sweet for your taste.  Plus, you will begin to discover subtle tastes that you had not noticed before.  Enjoy!

a_oaklee
Posts: 520
Joined: Nov 2013

Very True.  I wouldn't have believed it, if it didn't happen to me.  I had a bite of my all time favorite cooky, and I actually had to spit it out....too sickening sweet.  (after a month of no sugar).

Faith33
Posts: 1
Joined: Jul 2010

I'm impressed, Faith!  I'm 51 and one year post chemo for stage 3 colon cancer, so I feel it's especially important to get away from sugar.  Are you still avoiding it?  I see this post is a few years old. 

soul-mate's picture
soul-mate
Posts: 82
Joined: Feb 2014

I have to agree with nanosecond's reply. My wife has bone mets in most bones and only felt pain when she had a pathological break in her arm . That's how we found out she had cancer. Her Dr's do not rely on ct scan as they do not give a clear indication of lytic lesions. Bone scan and mri is the tools they use to monitor if cancer is progressing. My point is mets could be painful or not,everybody is different so do not put off any indicator longer than you have too. If it's nothing at least you have peace of mind.Best wishes to all !!

SOUL-MATE

a_oaklee
Posts: 520
Joined: Nov 2013

Interesting to know.  I have never read of anyone with bone mets not experiencing some level of pain.  While I am very happy that your wife does not feel discomfort, I am also now realizing that pain may not be our indicator that something is happening with my husband.   While I am trying to grasp some explanation for this, perhaps it has to do with the size of the tumor?  I would imagine that would be a factor. 

Are there other people out there that have not had pain with bone mets?

Thankyou for posting.  Appreciate it.  I am truly happy for you and your wife that the mets do not cause her pain. 

Annie

NanoSecond's picture
NanoSecond
Posts: 653
Joined: Oct 2012

I think it may be a function of where they are located.  My left femur (thigh/hip) lesions were extremely painful - but also located right under or near the Bursa.  In fact for months I was diagnosed with "Bursitis".  However, my sacrum (base of spine) lesions were not painful at all.

soul-mate's picture
soul-mate
Posts: 82
Joined: Feb 2014

Annie, I posted to say pain was not an issue till the break but the palliative care that she has now controls pain and chemo is to slow the cancer from progressing. The hydromorphone contin slow release twice a day and 1 or 2 2mg hydromorphone breakthrough makes her day painless and does not impair her thinking or limited mobility . Quality of life is the most important thing to make it through this journey and we enjoy one day at a time. Mets can be lytic or blastic and everyone is different. I wish everyone the best on their journey.

SOUL-mate

twinthings's picture
twinthings
Posts: 409
Joined: Jun 2013

soul-mate, thanks so much for the good info! 

Sounds like your wife has had a pretty rough road.  I'm glad to hear her pain is well managed, thankfully.  I don't know how you caretakers do it, honestly.  I pray I never find out.  Other than feeling like a huge financial burden, racking up all the medical bills, I would rather be where I am than where you are.  Watching someone you love, suffer has to be the hardest thing a person can go thru. 

I have never heard either of those words, lytic or blastic, but will google them and see what I learn.  And, I will mention the rib pain to my doc, if only for peace of mind...Thank you!

I wish you and your wife the best!

a_oaklee
Posts: 520
Joined: Nov 2013

Soul-mate:  Thanks for the explanation.  My husband takes the same drugs that your wife is on.  He currently doesn't need the break-through one, because the time-release ones work really well.  Almost all of his pain is in his back where he had a vertebrae completely removed and 9 vertebrae had plates and screws put in.  That surgery was 2 years ago.  I truly hope that your wife continues to do well. 

Have you encountered some pharmacy staff acting very strange and making inappropriate comments when you buy those drugs?  We have repeatedly.  It makes me annoyed.  My husband is obviously ill, and we certainly don't look like drug dealers. 

soul-mate's picture
soul-mate
Posts: 82
Joined: Feb 2014

Annie, To the look's I can't say they react to the prescription order, but that may be part of proper etiquette. Where we are located all prescriptions are on central database and monitored so abuse is controlled. A written prescription is required for hm. and can't be called ln like other drugs. If you don't fill the prescription within 3 days it has to be prescribed again. This drug is our friend to enjoy life for what our new normal is. Best Wishes to all !!

SOUL-MATE

Jojo61's picture
Jojo61
Posts: 1310
Joined: Oct 2013

Cold turkey! Wow!

I am so proud of you, Sindy! You are an inspiration to us all!

Way to go!

 

Hugs

Jojo

twinthings's picture
twinthings
Posts: 409
Joined: Jun 2013

Thank you, Jojo!  I expected to lose weight by eliminating sweets entirely, but I've actually gained weight.  Not sure whats up with that. 

For the first time in my adult life, I am making myself eat breakfast. 

Normally, I don't eat till lunch.  Since the day I started my sweet retreat, I usually eat a piece of whole wheat whole grain peanut butter toast with a glass of 2% milk for breakfast.  I almost always do fast food for lunch, due to work, but I never get fries or sides and I try to have a salad or something light for supper.  Yet, I've still gained weight...like 12 lbs.  It seems no matter how hard I try, I can't shake this last 20 lbs I'm trying to lose.  Make that 32 now Cry I've cut out white bread too, for all the good it's doing.  I better start seeing results soon or I won't have to worry about falling off the wagon...I'll jump off.  On an lighter note, hubby says I'm way less moody since cutting out sweets.  I doubt one thing has to do with the other, but I'll let him think so.

Karen0074
Posts: 64
Joined: Apr 2014

It could be a vitamin D deficiency, this is what sent me to my dr with left rib pain. A simple blood test could diagnose this or try taking vitamin d3 daily to see if it improves. As Fox and others have said bone mets are vv painful so if it's a bearable pain it can be fixed. I have googled vitamin D deficiency and it does seem to have a link to rcc.

 

Karen x

 

twinthings's picture
twinthings
Posts: 409
Joined: Jun 2013

Karen, not long before my RCC diagnosis,  lab work indicated I have a B-12 deficiency, so much so that Dr wanted me to give myself injections once a week for 2 months, then bi-weekly for 2 months.  After doing so, my numbers looked better on paper but it didn't make me feel any better, so I stopped.  I am also anemic, but not too bad, she recommended an iron vitamin.  I don't do that either.  Same with calcium.  I don't remember about vit D, so, it must not have been an issue.  Good to know tho!

I'm not too hip on taking anything, more so now that I only have one kidney.  If it's a medicine I need, I will take it but, not so much with vitamins.

NanoSecond's picture
NanoSecond
Posts: 653
Joined: Oct 2012

Consider a breakfast of eggs and (nitrate-free) bacon.  Seriously.  No bread though.  It's the grains and cereals that put on the pounds.

a_oaklee
Posts: 520
Joined: Nov 2013

Worked for me.  I started eating 2 softboiled eggs every morning.  Surprisingly after 4 months, my cholesterol dropped, blood pressure went down and don't need meds, and I lost 25 pounds that I had been struggling with forever.  My calorie count was the same.  It was what I ate, not the calories. 

twinthings's picture
twinthings
Posts: 409
Joined: Jun 2013

You mean, after I finally learn to like whole wheat whole grain bread vs the enriched white bread I've so dearly loved all my life, now you say no bread...period.  Seems harsh, Neil Yell

Here I thought I was doing so good!  How's a person to eat a sandwich without bread?  I've been on a tuna-salad or egg-salad sandwich kick, for a while now.  aye aye aye!!

Just this week, I switched to 2% milk.  Neil, I've never been a milk drinker...EVER.  Since giving up sweets, I'm craving milk.  It's the damndest thing.  I'm drinking it at least twice a day, for the past month now.  Whole milk!  After weighing at Dr office and seeing that I've gained 12 lbs, I immediately stopped at Braum's and bought 2%.  I can't tell one bit of difference.  Wish I'd started with it a month ago.  Hubby is a milk lover and couldn't tell difference either.

I am beginning to think I am one odd duck!

 

NanoSecond's picture
NanoSecond
Posts: 653
Joined: Oct 2012

Twinthings.  Eating fat does NOT make you fat.  Eating carbohydrates makes you fat.  And eating carbohydrates with fat makes you even fatter.

I realize it is difficult to give up on habits we all have followed for decades. Regardless, consuming whole grains is a relatively "new" invention in mankind's diet (it is only about 10,000 years old).  As such many of us do not have all of the enzymes necessary to deal with digesting them fully.  For some that can mean Celiac Disease.  For others, a Gluten intolerance.  But for the vast majority - just an overall drag on their systems.

Initially I found it "challenging" to find substitues for those slices of bread in sandwiches, etc.  But there are some clever alternatives that can allow you to enjoy a sandwich without any wheat products.

Finally, I didn't make up these "rules".  I only try to explain how and why they might work.  And they do work for thousands and thousands of people.

 

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