no surgery

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Comments

  • janderson1964
    janderson1964 Member Posts: 2,215

    I had a couple of set backs

    I had a couple of set backs last night after I posted. The clinical trial in Colorado and UC Sandiego both contacted me and said to go on systemic chemo to hopefully stablize the disease before they would operate. Samething my surgeon said. So it is not a no but three hospitals are saying chemo first. I start chemo next Wednesday. and I still have the appointment with Dr. Kato at Columbia U.

    I heard back from Georgetown

    I heard back from Georgetown University. They said they can do Cyberknife on ALL of the spots so I have an appointment with them on the 17th.

    I did a consult with a local hsopital for radiation. They have a different machine call Synergy S. He said he could zap all of the spots but could only do 2 to 3 at a time and then would have to wait due to radiation exposure before he could do more. The other good thing is it won't interupt chemo which i start next Wednesday. I am going to see if Georgetown U can set up an appointment for me to see an inverventional radiologis when I am there on the 17th to discuss RFA as well.

  • janderson1964
    janderson1964 Member Posts: 2,215

    I heard back from Georgetown

    I heard back from Georgetown University. They said they can do Cyberknife on ALL of the spots so I have an appointment with them on the 17th.

    I did a consult with a local hsopital for radiation. They have a different machine call Synergy S. He said he could zap all of the spots but could only do 2 to 3 at a time and then would have to wait due to radiation exposure before he could do more. The other good thing is it won't interupt chemo which i start next Wednesday. I am going to see if Georgetown U can set up an appointment for me to see an inverventional radiologis when I am there on the 17th to discuss RFA as well.

    I changed the appointment at

    I changed the appointment at Georgetown until the 18th. This way I can see the radiologist and interventional radiologist on the same day to discuss a combination of RFA and SBRT. I start chemo on Wednesday.  Xeliri plus Erbitux.

  • maglets
    maglets Member Posts: 2,576

    I changed the appointment at

    I changed the appointment at Georgetown until the 18th. This way I can see the radiologist and interventional radiologist on the same day to discuss a combination of RFA and SBRT. I start chemo on Wednesday.  Xeliri plus Erbitux.

    good

    sounds good friend.....well done......you go.....all best luck with the chemo

    mags

  • annalexandria
    annalexandria Member Posts: 2,571

    I changed the appointment at

    I changed the appointment at Georgetown until the 18th. This way I can see the radiologist and interventional radiologist on the same day to discuss a combination of RFA and SBRT. I start chemo on Wednesday.  Xeliri plus Erbitux.

    Thinking about you today, Jeff.

    How did chemo go?  

  • janderson1964
    janderson1964 Member Posts: 2,215

    Thinking about you today, Jeff.

    How did chemo go?  

    I was supposed to do xeliri

    I was supposed to do xeliri plus vctibix. I didnt get insurance approval for vectibix until after I was done with infusion so will do next time. Xelox pills didnt come in yet either. I did get the irinotecan which knocked me off my feet like it usually does.

  • annalexandria
    annalexandria Member Posts: 2,571

    I was supposed to do xeliri

    I was supposed to do xeliri plus vctibix. I didnt get insurance approval for vectibix until after I was done with infusion so will do next time. Xelox pills didnt come in yet either. I did get the irinotecan which knocked me off my feet like it usually does.

    Chemo is such awful stuff

    Frown.

    I'm always shocked when I hear about people who get through it with minimal side effects.  Seems like most of us get hammered.  Hope you can get through this crap soon and move on to your surgical options ASAP!

  • YoVita
    YoVita Member Posts: 590
    I'm following your plan

    So impressed with your fight.  I hope you find the solution that helps you and doctors willing to help with your fight.  

  • janderson1964
    janderson1964 Member Posts: 2,215

    Chemo is such awful stuff

    Frown.

    I'm always shocked when I hear about people who get through it with minimal side effects.  Seems like most of us get hammered.  Hope you can get through this crap soon and move on to your surgical options ASAP!

    I am amazed when people get

    I am amazed when people get through treatments relatively easy as well. It is just aweful for me.

  • BusterBrown
    BusterBrown Member Posts: 221
     
    Jeff, sorry to hear this

     

    Jeff, sorry to hear this news. Some of us old timers are being taken to task! So that's the plan moving forward?  Think about you and sending some prayers your way. Peace.

    Buster...