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Anyone else have Mucoepidermoid carcenoma "MEC" as primary lung?

Hi, My name is Abe and im one of the new kids on the block..

im two weeks post op from a lobectomy and resection of my rt lung..   I know mucoepidermoid carcenoma is ultra rare as primary lung but im wondering if anyone else is a survivor of it?

Comments

  • dennycee
    dennycee Member Posts: 842
    Was hoping that someone would

    Was hoping that someone would check in.  Perhaps you could contact other patients through the website at cancergrace.org

  • FreightTrain
    FreightTrain Member Posts: 3
    dennycee said:

    Was hoping that someone would

    Was hoping that someone would check in.  Perhaps you could contact other patients through the website at cancergrace.org

    thanks

     i think im asking for too much with under 200 documented cases...    ill just keep reading and also visit the other site everyone seems to talk about.

     

    Thanks!

  • gravelroad
    gravelroad Member Posts: 50

    thanks

     i think im asking for too much with under 200 documented cases...    ill just keep reading and also visit the other site everyone seems to talk about.

     

    Thanks!

    Advice

    Take the advice and ask all the questions ( one at a time of course) over at cancergrace.org , they have a cancer Dr that answers your question , so it is not someone guessing an answer and it is FREE, so ask till you truly understand the answer you get , Dennycee told me to go there and I am very happy I did !!! Let us all know what you learn as this is a journey that we can all learn from each other !! Sending WARM  AND POSITIVE THOUGHTS YOUR WAY , MAY YOU GET THE ANSWERS YOU NEED!!! HUGS