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Hair loss, scanxiety, help!!

alexinlv's picture
Posts: 194
Joined: Jul 2010

Hello and happy New Year! My husband is losing hair rapidly on his thighs and calves in big patches.   he hasn't had chemo for over 6 months.  Has anyone had this happen? Also his hair growth is slowing elsewhere on his body.   Also, Monday is pet scan day and tues will be the appt with onc.  Pet was ordered after something suspicious on his liver showed up on ct scan last month.  If there is something there, it will be his 3rd liver reccurance.   He has been experiences lots of abdominal pain lately.  Well, I am about to jump out of my skin with anxiety.  whaaaaaa! After four years, it only gets harder.  Thanks for listening and any help on the hair loss would be appreciated! Love to you all. 

Sundanceh's picture
Posts: 4408
Joined: Jun 2009

sitting at 9.5 years now and harder than ever with 4th recurrence....multiple met liver and pleurea involvement for 3rd time.

have had hair fall out but during not that many months after.  could be recuurence, alex......stay the course.....whatever is....already is...,.once you find out, the anxiety should subside and you get  back to  business.,

cancer is so hard to get up on...I'vefound that out myself,.

best wishes for good pet.....or at least a plan of attack...stay strong.


alexinlv's picture
Posts: 194
Joined: Jul 2010

Thanks, Craig.  I love that line, "whatever it is, it already is."   So true.  The hair loss being a  possible reccurance is so strange.  I've tried to find something about it and there isn't much.  take care and wishing you a pain free day today.  

thxmiker's picture
Posts: 1282
Joined: Oct 2010

We are sending our thoughts and prayers for a positive result.    


We all need to adjust to our health once we have had cancer.  Cancer is a new way of liife and not what defines us.  We must adjust.   My hair thinned on top during chemo, not that ship had already left dock for me. lol   I also gained the fast growing black hair on the bridge of my nose.  Since I am blonde, the franken hair brings my wife some amusement.  (We figure it is better to laugh, since we have already cried to much.) 


Cancer has brought changes to our lives. We imporved our diet, we lost weight, we walk a lot and have several neighbors that walk with us, we communicate more positive knowing that is the memory we want to continue, we juice, we have lost weight, and we have learned to keep happy and spread that joy.  


One of our friends just got diagnosed with colon cancer.  They asked us, with all that you have gone through, how do you stay so positive?  We told them, "imagine how difficut this journey would be if we were sad all the time."   Seriously, we have a better chance of getting run over on the road then we have of sucumbing to cancer.  (Kind of sad thought.)   We have learned that when ever we are spereated to tell each other, I Love You.   It does seem simple when we think about it.  This may be the last tme we see our loved ones.


With all of the stress, expense, and disability of cancer, we have improved our selves.   This is your opportunity, to remind each other what is really important and to live for todays, and plan for tomorows, because yesterdays and what once was, are past.


Best Always,  mike

alexinlv's picture
Posts: 194
Joined: Jul 2010

Thank you, Mike! You are so right.  It seems like you and your wife make a great team.  My husband's hair fell out last spring and he's blonde too.  It came back dark also and not as grey.  I cant understand why he is losing it in huge patches now.  I hope you have a good day today and I will remember your advice to ease the anxiety.   Take care. 

Posts: 93
Joined: Nov 2011

Here's a couple articles on post chemo hair loss, it could be recurrence but that doesn't

seem as likely as other explanations.

  I hate the phrase "it is what it is" but when you know what it is you'll jump in and

start dealing...just like Craig said.  I just have a feeling that this is a sucky side affect off treatment.




annalexandria's picture
Posts: 2573
Joined: Oct 2011

is pretty unbelievable, isn't it?  I always have to laugh when I read stuff about reducing your stress as a way to defeat cancer...way easier said than done!

I'll be thinking of you guys on Monday, and hoping for good test results.  I'm glad you at least don't have to wait too long to find out what's going on.  I don't know if it's any consolation, but it took me four recurrences and five surgeries to get to NED, where I have been for two years now.  Even if it turns out to be more cancer to deal with, as hard as that it is to face, there is still hope.

Hugs to you both~AA

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