Neuropathy

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  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #22
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    Chelsea71 said:

    Hi Cynthia,
    Yes, the first
    Hi Cynthia,

    Yes, the first one went very smoothly. The only side effect he noticed was the hiccups which we all know is from the 5fu. Maybe the Glutamine powder helped (we call it "Ann's drink").

    When we went to the home care office on Sat for disconnection, I brought along 12 boxes of supplies and spill kits. I couldn't help but point out to them that it would save some tax dollars to simply call ahead and inquire about supplies before automatically shipping them. Oh well.

    I started on folfox too,

    I started on folfox too, switched from Folfiri,  I have the cold sensitivity, it's a good thing it's summer,  if it were winter I don't think I could tolerate this drug.   The cold sensitivity wasn't too bad first infusion,  I had more of a cramping in my arms,  following infusions it got worse.   Nausea was worse,  but this last treatment I got everything seemed to have settled down, except the cold sensitivity, it's lasting days longer and I notice the tingling when I'm grocery shopping.   Had some strawberries and shrimp the other night when we went out for dinner and my fingertips were tingling.      Hope all goes well for him.   Westie who used to post on this site was on folforinox for her gall bladder cancer,  she's also in Ontario,  but she paid out of pocket for this combo. as it was not approve/covered.

  • coloCan
    coloCan Member Posts: 1,944 Member
    #23
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    smokeyjoe said:

    I started on folfox too,

    I started on folfox too, switched from Folfiri,  I have the cold sensitivity, it's a good thing it's summer,  if it were winter I don't think I could tolerate this drug.   The cold sensitivity wasn't too bad first infusion,  I had more of a cramping in my arms,  following infusions it got worse.   Nausea was worse,  but this last treatment I got everything seemed to have settled down, except the cold sensitivity, it's lasting days longer and I notice the tingling when I'm grocery shopping.   Had some strawberries and shrimp the other night when we went out for dinner and my fingertips were tingling.      Hope all goes well for him.   Westie who used to post on this site was on folforinox for her gall bladder cancer,  she's also in Ontario,  but she paid out of pocket for this combo. as it was not approve/covered.

    for what its worth:

    www.helio.com/hematology-oncology/highlights-from-asco-2013/calcium-magnesium-ineffective-in-preventing-or-decreasing-neuropathy-in-colorectal-cancer

     or

    http://fightcolorectalcancer.org/tag/neuropathy

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #24
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    Chelsea71 said:

    Hi Cynthia,
    Yes, the first
    Hi Cynthia,

    Yes, the first one went very smoothly. The only side effect he noticed was the hiccups which we all know is from the 5fu. Maybe the Glutamine powder helped (we call it "Ann's drink").

    When we went to the home care office on Sat for disconnection, I brought along 12 boxes of supplies and spill kits. I couldn't help but point out to them that it would save some tax dollars to simply call ahead and inquire about supplies before automatically shipping them. Oh well.

    I feel compelled to note...

    that, technically, in order to be called "Ann's drink", it should include gin.  Vodka is acceptable in a pinch.*

     

    *in all seriousness, I really hope it helps!

  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #25
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    annalexandria said:

    I feel compelled to note...

    that, technically, in order to be called "Ann's drink", it should include gin.  Vodka is acceptable in a pinch.*

     

    *in all seriousness, I really hope it helps!

    Ha ha. He already asked me
    Ha ha. He already asked me if it would still "work" if he mixed it with beer. I told him I'd ask you.

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