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Jun 01, 2013 - 11:23 am
Daddy just diagnosed
Hi everyone, I have spent a few hours on these threads and have found some encouragment and hope here, thank you all very much. Never thought I would be saying this but sadly my daddy has been Dx with APC (advanced prostate cancer) We have only just found it has spread outside the prostate, one can imagine, we are all sscrambling for information and hope that we are approaching this the right way - if there is a right way We are absolutely besides ourselves. I myself have only just had the courage to read all about my daddy's cndition so at present have little information. What I do know is that my daddy's Gleason count was 8,2 in Feb, it is now down to 0.04 he is currently on HT treatment - sadly the monster has travelled to his bones. I am really not very familiar with all the terms and am taking it upon myself to find as much info as I can and I am looking for hope. I live in Europe my daddy in Africa - so its really really hard on us all. My daddy is 73years old, usually very fit and healthy Gleason count was 8,2 down to 0.04 30 May 2013 He is on Lucrin and Casodex Bone scan Monday |
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Jun 01, 2013 - 2:06 pm
Kay I am sorry for the news about your dad. Hopefully he gets a grip on the matter and manages to control any progress of the disease. Your terminology is in fact erroneous. I think that you were referring to the PSA results that were down from 8.2 ng/ml in February to 0.04 in May. The decrease indicates that the hormonal treatment is doing well. The drop is significant and the cancer is responding to the drugs. Can you share more info about the symptoms/results of any other test that have diagnosed your dad’s case as Advanced? How did he found out about prostate cancer? How many cores were taken in the biopsy? How many were with cancer? What is the Gleason score? Did the doctor give him a clinical stage? What about image studies (CT, MRI, Bone scintigraphy, etc.)? Can you share details of the HT protocol recommended by his doctor? Here is a book that may be of interest to your dad as reference to HT treatments. You can get copies at Amazon site and deliver to your dad directly; “Beating Prostate Cancer: Hormonal Therapy & Diet” by Dr. Charles “Snuffy” Myers; which informs on diagnosis and treatments for advanced cases. Here is a “compendium on Prostate cancer and care”; http://prostate-cancer.org/decision-aide/where-to-start/prostate-basics/
We are not doctors but many survivors in this forum like to share their views and experiences which will be helpful for you to understand the facts and the status of your father. I recommend you to read and do research in the net about his treatment and the side effects. Wishing your dad luck in his journey.
VGama
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Jun 01, 2013 - 2:26 pm
I have hormone resistant prostate cancer, the docs are now suggesting Zytiga.....Ive heard there is another drug besides prednizone that it can be taken with that doesnt hurt the immune system the way prednisone does........Im brand new to this network and still finding my way around so any help you can offer would be appreciated..... thanks so much TYTD |
Jun 01, 2013 - 3:04 pm
WELCOME to the forum - in my thoughts and prayers |
Jun 01, 2013 - 5:28 pm
TYTD, Ralph has been taking Zytiga for about a year now. Shoot him a message and ask him. Seems like it works. Good luck, Mile |
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Jun 02, 2013 - 7:10 am
TooYoungToDie I have posted my response to you in the following link; http://csn.cancer.org/node/253675#comment-1375670 I repeat that you should only substitute prednisone with a drug prescribed by your care giver. Best wishes. VG |
Jun 01, 2013 - 2:34 pm
Hi VGama
Thank you for the information, with regards to the information needed I will get this as soon as possible. I got this information from my sister and have only asked about PSA and Gleason as they "seemed the most important" - thank you for the link - will be checking this out. My sister has purchased my dad a book on APC and he has just has the courage to start reading it.
Will send info Thanks again |
Jun 02, 2013 - 6:52 am
Hello, here is the information requested, I hope it suffices, if there is anything else you need please let me know As you can imagine, we are in an absolte state and in a way am scared to know what all these figures mean, however I realise being educated on this is paramount, I really appreciate your advice. Thank you
4/3/2011 psa 4.65 26/11/2012 psa 8.71 Bone scan and ct scan done on 6th December. Sugar ok. END |
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Jun 02, 2013 - 9:14 am
Kay From the info you shared here I see the “baddy” in the metastases at spine and shoulder. Probably his clinical stage is T3NxM1b. The Gleason pattern 4 is also not good but the cancer is responding well to the hormonal treatment. Does your dad trust the doctors and the hospital where he is consulting? So far the procedures he has followed by his doctor are correct in my view. The only problem would be if his doctor got the proper tools to deliver the best treatment.
Unfortunately all treatments for prostate cancer have risks and cause side effects. It is the duty of the patient (and the family) to decide on a preference that is acceptable. Older patients sometimes are recommended palliative therapies so that they avoid the risks of radicals (surgery and radiation) with regards to the Quality of Life. 75 years old is usually the limit for radicals as recommended by NCCN guidelines. Your dad is a younger 73 full of energy and healthy. As you commented he feels OK and is ready for the challenge. Brackytherapy is a treatment for localized diagnosis. This will care for the prostate gland alone. IMRT is wider and it includes the gland and close peripherals. Metastases at the spine and shoulder should also be included which turns the localized therapy inconclusive. Surely this way of treating is also feasible. It extends life but at a cost of quality living. In such cases the radiologist should take into consideration QoL when deciding on the field to radiate. “Zipping” the most out without much destruction and no cure in the scope. This is why proper image studies are important in the decision process. I recommend your dad to try getting the best scan he can afford.
Advanced prostate cancer patients are usually recommended to hormonal and chemo therapies. These do not provide cure but it can pin down the cancer for long periods of time (years). One starts with a first-line HT (your dad’s case) with leuprolide acetate (Lucrin, Lupron, Eligard, etc) RHLH agonists plus antiandrogens (Casodex, Cyproterone, etc) and then moves to a second line HT when the drugs become ineffective. Before chemo there are still immunological treatments which overall extends the life of a patient considerably. Many reach the 15 year mark. I think that your dad is taking Flomax and Valdoxane to counter the effects from hypogonadism. HT is not free of symptoms either, but they may be more amiable than problems of incontinence, bowel colitis or fistulas. Your dad will need a series of other tests to control the progress of his case. Testosterone is very important in HT and so it is a dexa scan to look for osteopenia/osteoporosis (induced by HT and cancer). He may need taking a bisphosphonate. ECG for heart health should also make part of the routine as well as any other image study. The lipids need to be checked to look for diabetes and to verify for interaction of the medications. Care with Anemia. Being active and changes in diet and in the way we do things may become required to counter the effects too. Here is a booklet for your reference; http://cancer.ucsf.edu/_docs/crc/nutrition_prostate.pdf
I like to see you so involved in his care. You are wonderful and he his very fortunate for having such daugthers. Best wishes in his journey. VGama
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Jun 02, 2013 - 9:39 am
Hello, Thanks again for your response, I am going to forward this information onto my sister and dad. Dad will be having his bone scan tomorrow - we are all holding thumbs. If you dont mind I would like to send the results to you - your recommendation and advice is most welcome. I scanned down your article quickly to find the words "years" I found it and that will give us encouragement especially knowing that my dad id a REAL fighter and will fight the monster. My older sister is "mother hen" so she will ensure that every step is followed in terms of vitamins - diet etc etc, - we have a strong support group and I personnally have found some support and encouragment on this site as I am on the other side of the world. Thank you for your kind words. We are three girls one boy - all love our dad to pieces so we will certainly be following any advice. I will forward more information to you once I have it. I cant say thank you enough Kay
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Jun 03, 2013 - 10:35 am
Hello again,
Forgot to mention - 2nd opinion same result He is a patient at Flora Clinic in SA a Dr George Bell UPDATË: My dad went for his bone scan today, the "baddy's" havent moved in hip - spine and shoulder, small urological op in July - New PSA tests in September
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