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Comments

  • Joemory21
    Joemory21 Member Posts: 41
    unknown said:

    Not so good

    As much as I'd love to whip on the board and spread the good word, I can't. The stem cell transplant was a failure, and my mass has grown since.

     

    There's not quite a game plan yet, as he's going to contact some people and present my case at a conference. Some of the possibilities are radiotherapy, chemoembolization, or Y-90 radioembolization.

     

    Anyone here have these things done to your liver? It makes me feel jaundiced just thinking about doing these things. I hope to spare my liver this kind of damage.

    Sorry

    That really sucks. I was sending all the good mojo I had your way. Next time I'll just run down the street naked screaming this is for hiccup. Best of luck with the next steps. 

    Jonathan

  • allmost60
    allmost60 Member Posts: 3,178 Member
    cathyp said:

    Nathan,
    I'm sorry for your

    Nathan,

    I'm sorry for your news and was hoping you didn't mind that I added a reply.  You mentioned your liver and it reminds me of my friend who had Hodgkins Lymphoma, Recently she has been dx'd with Breast cancer and a Gastric Leiomyosarcoma  from her treatments for Hodgkins.  The leiomyosarcoma has spread to her liver.  Now most times I get defensive when someone suggests some diet change but she went plant based to give her liver a rest for all the chemos being thrown at it. I started the same aout 6 weeks ago and feel better than I have in a long time.  Your head must be spinning and I don't want to add to your distress.  The inflammation in my body has dramatically decreased and my blood work is remarkable. 

    It is hopeful that your doctors have several alternatives for you.  Hang in there and I wish you the best.

    Cathy

    HD 1989- RADS     HD 1994 - ABVD     IDC  2007 - DBL MX

    So sorry...

    Hi Nathan,

     Dang, dang, dang and dang again!!!!! I'm so sorry you are going through this after you fought so hard to get through the SCT. I'm at a loss for words. Please don't lose faith and remember nothing is black and white....there WILL be something else to try. We are here for you buddy...just tell us what you need. Love...Sue

    (FNHL-2-3a-6/10-age62)

  • girliefighter
    girliefighter Member Posts: 232
    unknown said:

    Not so good

    As much as I'd love to whip on the board and spread the good word, I can't. The stem cell transplant was a failure, and my mass has grown since.

     

    There's not quite a game plan yet, as he's going to contact some people and present my case at a conference. Some of the possibilities are radiotherapy, chemoembolization, or Y-90 radioembolization.

     

    Anyone here have these things done to your liver? It makes me feel jaundiced just thinking about doing these things. I hope to spare my liver this kind of damage.

    hmmmm

    I too am at a loss for words right now....al i got is that this sucks major elephant balls (i dont even know if elephants have giant balls)...jus sayin

    I will summon up some major mojo for u buddy.....

    XXX

    Carie

  • anliperez915
    anliperez915 Member Posts: 770
    unknown said:

    Not so good

    As much as I'd love to whip on the board and spread the good word, I can't. The stem cell transplant was a failure, and my mass has grown since.

     

    There's not quite a game plan yet, as he's going to contact some people and present my case at a conference. Some of the possibilities are radiotherapy, chemoembolization, or Y-90 radioembolization.

     

    Anyone here have these things done to your liver? It makes me feel jaundiced just thinking about doing these things. I hope to spare my liver this kind of damage.

     

     

    I'm really really sorry Nathan! This really sucks you know what!!! Man, I don't know what to say...just know that I'll be sending a special prayer for you...there has to be something else that will get you to remission. Take care and keep us posted we're here for you!!! (((Hugs)))

    Sincerely,

    Liz