Yep, another person is/has or is thinking of leaving this forum...

13

Comments

  • devotion10
    devotion10 Member Posts: 623 Member
    Everybody please go to their respective corners ...

    Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile

    This is sort of turning into a gang-type mentality.

    Tomorrow is a new day.  

    Get some good restorative sleep.  

    Go hug somebody you love.  

    Really you can just let this go?

    Pretty please?

    With sugar on top?

    Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile

     

  • mrsdw48
    mrsdw48 Member Posts: 5

    Everybody please go to their respective corners ...

    Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile

    This is sort of turning into a gang-type mentality.

    Tomorrow is a new day.  

    Get some good restorative sleep.  

    Go hug somebody you love.  

    Really you can just let this go?

    Pretty please?

    With sugar on top?

    Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile

     

    first time posting

    First time posting so not sure if I am doing it right..........Just read the entire thread and all I can say is WOW

  • manwithnoname
    manwithnoname Member Posts: 402

    Let's see, the doctor tells

    Let's see, the doctor tells you you have stage 4 cc, spread to your liver. You ask if there is a cure. The doctor says no, you have a few months to maybe a couple of years, with standard treatment. Basically, you have a doctor telling you you have at the most a couple of years. My fiance was told 1.5 years at the most with chemo. He looked for an alternative and found one. We both use it. I am not promoting it. But I also should not be put down, nor anyone else be put down, for trying alternatives if they wish. It is working for both of us (we both feel better than we have in years; my fiance only feels sick when he increases one pill up from the half dose chemo pills he taking now in the a.m. and p.m.; he then goes back to half dose and he is fine). I have stated on my profile that my fiance didn't know, personally, a couple of people where he works that this worked on, I would not use it myself. I agree with manwithnoname, especially when your doctor tells you there is no cure, u are terminal, u have x amount of months left. We both have the same oncologist who just cannot believe how well we are both doing. He is especially amazed that I have tolerated the chemo tx so well. I will have my 8th folfox Friday, take the pump home over the weekend. I have had minimal side-effects, thank God. I am back at school, full of more energy than I had before I got this dx in November. My liver has shrunk to the point I now have to lift my head up so he can feel it. I will have my colostomy reversed in June. The surgeon who told me I had two years was shocked when I walked into his office last Thursday to discuss the reversal. Our oncologist says, "Keep doing what you are doing;" he knows about the alternative. I'm not going to to on about drug companies and such. I guess I don't understand why they do trials and such with the chemicals, but they won't do trials with the alternative stuff that is out there. That's a debate I don't want to get into, but if people are told, "This is going to kill you in 3 months" I think I'd be checking into some other things.

    Judy

    Well Judy

    glad to hear this supplement is working, just to let you (and everyone) know you are free to talk about anything you want here that doesn't break CSN T.O.S.

     What you are not allowed to do is  be "rude, demeaning, crass, insulting, indecent, pornographic, obscene, objectionable or offensive,"

     


    In future if you believe someone is breaking any terms do NOT bother with a moderator or flag a post, write to the CSN webmaster;    
    webmaster@acscsn.org.  

    Some examples of what is expected.

    Don’t give medical advice or tell others what they should or shouldn’t think, feel, or do.

    Don't bully.

    Don’t ‘interrogate’ or harass anyone. It is not your place to ascertain whether someone is "really" a cancer survivor or cancer caregiver. If you have any suspicions about someone, report them.

    Don’t investigate other CSN members. If you have a concern about someone, report it

    ACS reserves the right to inactivate your account for failure to adhere to the above guidelines or for any other behavior that is deemed to be detrimental to the welfare of the CSN community.

  • wawaju04976
    wawaju04976 Member Posts: 316 Member

    Judy

    Since I only PM those that I have a close relationship with, I can tell you that your statement about bully PM's are in fact a lie.  

    I was ignoring your post (someone PMed me and told me about your vicious mean spirited post and said you were referring to me) until this out outright lie was posted.

    the only PM that ever went to someone I disagreed with was to manwithnoname and ONLY because he PMed me asking me why I hated him.  My response was "why would you think I hate you? Hate infers I care about you, and since I do not, I cannot hate you".  That has been the extent of any PM with anyone I never agreed with.  There has been none other, ever.  Please do not post lies, and if you want to say "others" told you that, why not ask them for those PMs?

    Winter Marie

    Thank you, because if I got

    Thank you, because if I got one from you , Winter, I'd copy and post it here. Someone mentioned gang mentallity. It seems if someone stands up to you, you have a small group that comes to your side. That's fine. But if I was saying things that were so hurtful that people started thinking I hated them, I'd feel very bad about myself. My hope for you is that you think before you post about how it comes across. I'm wondering why your friends figured out it was you I was referring to? I was hoping you would figure it out and maybe tone down a bit. Accusing someone about knowing someone before, making it sound like some kind of conspiracy, was something. Watching you do this to people is sad. Again, people should be able to post without attacks. I hope you find some peace within yourself so maybe you can stop this nonsense. I'm sure those ladies are probably going to have something to say to me, or flag me, or whatever. I'm reminded about "cliques." In my years of teaching I've seen this happen as young as first grade. It's really too bad to be watching it here...

    Judy

     

     

  • devotion10
    devotion10 Member Posts: 623 Member

    Thank you, because if I got

    Thank you, because if I got one from you , Winter, I'd copy and post it here. Someone mentioned gang mentallity. It seems if someone stands up to you, you have a small group that comes to your side. That's fine. But if I was saying things that were so hurtful that people started thinking I hated them, I'd feel very bad about myself. My hope for you is that you think before you post about how it comes across. I'm wondering why your friends figured out it was you I was referring to? I was hoping you would figure it out and maybe tone down a bit. Accusing someone about knowing someone before, making it sound like some kind of conspiracy, was something. Watching you do this to people is sad. Again, people should be able to post without attacks. I hope you find some peace within yourself so maybe you can stop this nonsense. I'm sure those ladies are probably going to have something to say to me, or flag me, or whatever. I'm reminded about "cliques." In my years of teaching I've seen this happen as young as first grade. It's really too bad to be watching it here...

    Judy

     

     

    Judy: I bet you can help us here with the skills you have

    learned working with children as it seems you may teach elementary-age school children.

    If it is anything like being a parent ... I imagine that you have to have a great deal of patience and some ever-ready tricks up your sleeve to help de-escalate tense situations.  

    Think of the board as a big classroom full of often sensitive, sometimes ill-behaved and unruly children ... help us calm the tense situations with your personal skills.

    And please, please, do not respond to this post with a negative one.  I am reaching out to you as respectfully as I can.  Please hear me. -- Cynthia

     

  • John23
    John23 Member Posts: 2,122 Member
    mrsdw48 said:

    first time posting

    First time posting so not sure if I am doing it right..........Just read the entire thread and all I can say is WOW

    Mrsdw48 –

     

    Did you know, that “wow” spelled backwards is “wow”? My friend Otto told me that…

     

    Welcome to the board, by the way. You’ll find that being here is much safer than being an Italian in an Irish bar on Saint Patty’s day.

     

    It’s not always this bad; it sort of morphs into a calm state and ebbs into the tides of hell periodically, but nothing that lasts more than a few weeks (at a time)… (maybe longer).. (mostly longer)..

     

    You’ll have fun here! If you ever get bored, just tell someone that what they’re doing to fight cancer won’t work…. And that…. Will make things interesting again!

     

    Best wishes,

     

    John

     

     

     

  • wawaju04976
    wawaju04976 Member Posts: 316 Member

    Everybody please go to their respective corners ...

    Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile

    This is sort of turning into a gang-type mentality.

    Tomorrow is a new day.  

    Get some good restorative sleep.  

    Go hug somebody you love.  

    Really you can just let this go?

    Pretty please?

    With sugar on top?

    Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile Smile

     

    Cynthia, you are a

    Cynthia, you are a sweetheart. Yes, I am going to try to be positive and ignore the negative...

    Judy

  • PhillieG
    PhillieG Member Posts: 4,866 Member
    John23 said:

    Mrsdw48 –

     

    Did you know, that “wow” spelled backwards is “wow”? My friend Otto told me that…

     

    Welcome to the board, by the way. You’ll find that being here is much safer than being an Italian in an Irish bar on Saint Patty’s day.

     

    It’s not always this bad; it sort of morphs into a calm state and ebbs into the tides of hell periodically, but nothing that lasts more than a few weeks (at a time)… (maybe longer).. (mostly longer)..

     

    You’ll have fun here! If you ever get bored, just tell someone that what they’re doing to fight cancer won’t work…. And that…. Will make things interesting again!

     

    Best wishes,

     

    John

     

     

     

    And...

    Wow upside down is Mom (or Mom upside down is WOW)
    Now that these posts are on my radar I'll follow this closer.

    You're looking more normal to me lately John... I'm very concerned
    Surprised

    Mrsdw48, if you haven't started a fracas you may be doing something wrong...
    We have to remember that this site is only a medium for us.
    Fights are not rare and they're seldom well-done.

    Overall, it's a great site. We're family and like most families we have crazy relatives.
    It puts the fun in dysfunctional

     

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    PhillieG said:

    And...

    Wow upside down is Mom (or Mom upside down is WOW)
    Now that these posts are on my radar I'll follow this closer.

    You're looking more normal to me lately John... I'm very concerned
    Surprised

    Mrsdw48, if you haven't started a fracas you may be doing something wrong...
    We have to remember that this site is only a medium for us.
    Fights are not rare and they're seldom well-done.

    Overall, it's a great site. We're family and like most families we have crazy relatives.
    It puts the fun in dysfunctional

     

    Now I am going to go stand on my head to see if that's true...

    hang on a sec.  Amazing.  It is 100% accurate.  Transformed by a headstand from "mom" to "wow".  But now I'm...stuck.  Help?  Anyone?

  • jen2012
    jen2012 Member Posts: 1,607 Member

    Now I am going to go stand on my head to see if that's true...

    hang on a sec.  Amazing.  It is 100% accurate.  Transformed by a headstand from "mom" to "wow".  But now I'm...stuck.  Help?  Anyone?

    Funny funny....the fighting
    Funny funny....the fighting bothered me in the beginning...but now its kind of making me feel good about my kids. I just said to them at dinner last night that theyve been getting along so nicely lately. I guess relatively speaking....
  • stkitt
    stkitt Member Posts: 4

    Cynthia, you are a

    Cynthia, you are a sweetheart. Yes, I am going to try to be positive and ignore the negative...

    Judy

    1st day posting on the board but...........

    Are there no moderators covering the boards to intervene when inappropriate posts appear and discussions trigger serious confrontations ?

     

    Kindly,

    Kitt

  • mrsdw48
    mrsdw48 Member Posts: 5
    stkitt said:

    1st day posting on the board but...........

    Are there no moderators covering the boards to intervene when inappropriate posts appear and discussions trigger serious confrontations ?

     

    Kindly,

    Kitt

    was kinda hoping the "wow"

    was kinda hoping the "wow" comment would throw the conversaton into another direction,,,,,,,,,exit stage left.........hoping I am posting correctly?

     

  • mrsdw48
    mrsdw48 Member Posts: 5
    stkitt said:

    1st day posting on the board but...........

    Are there no moderators covering the boards to intervene when inappropriate posts appear and discussions trigger serious confrontations ?

     

    Kindly,

    Kitt

    was kinda hoping the "wow"

    was kinda hoping the "wow" comment would throw the conversaton into another direction,,,,,,,,,exit stage left.........hoping I am posting correctly?

     

  • mrsdw48
    mrsdw48 Member Posts: 5
    mrsdw48 said:

    was kinda hoping the "wow"

    was kinda hoping the "wow" comment would throw the conversaton into another direction,,,,,,,,,exit stage left.........hoping I am posting correctly?

     

    except for the fact I did it

    except for the fact I did it twice, ha!

  • manwithnoname
    manwithnoname Member Posts: 402
    stkitt said:

    1st day posting on the board but...........

    Are there no moderators covering the boards to intervene when inappropriate posts appear and discussions trigger serious confrontations ?

     

    Kindly,

    Kitt

    If you find

    a Mod. you win a goldfish.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
    mrsdw48 said:

    except for the fact I did it

    except for the fact I did it twice, ha!

    Darn it!

    I replied to you WOW post. Guess it got eaten by gremlins.

    I hope you and stkitt are not going to be put off by a few negative posts. 

    This wonderful site is full of strenght and informatoon. No better place when you have ben diagnosed or someone you love and are caring for, I would say. 

    I don't mind this negative thread, as long as it just stays in this one thread and we don't get several negative threads about the same subject. 

    Just my two pennies worth. 

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Oh My Goodness

    Wow being gone for a break from here and everyone is fighting over a post about alternative medicine and an objection.  Well I'm still loving everybody and miss you all very much (or wait was that a misstatment ;) )  I'm doing fine and just want to say I'll be back soon.  Miss the board and all of you and hopefully by the time I'm back things will have calmed down.  Still praying for everyone.

    Update:  Just found out that my son is in emergency tonight with chest pains.  If you pray or think to a higher power or give good vibes, please think of him. All this infighting to me seems small.

    Still love you all

    Kim

  • devotion10
    devotion10 Member Posts: 623 Member

    Oh My Goodness

    Wow being gone for a break from here and everyone is fighting over a post about alternative medicine and an objection.  Well I'm still loving everybody and miss you all very much (or wait was that a misstatment ;) )  I'm doing fine and just want to say I'll be back soon.  Miss the board and all of you and hopefully by the time I'm back things will have calmed down.  Still praying for everyone.

    Update:  Just found out that my son is in emergency tonight with chest pains.  If you pray or think to a higher power or give good vibes, please think of him. All this infighting to me seems small.

    Still love you all

    Kim

    Best of wishes to you Kim

    I hope you son will be ok -- Cynthia

  • devotion10
    devotion10 Member Posts: 623 Member
    Can we start a new thread and leave this one be?

    seems like everything has settled down here.  

  • Trubrit
    Trubrit Member Posts: 5,796 Member

    Oh My Goodness

    Wow being gone for a break from here and everyone is fighting over a post about alternative medicine and an objection.  Well I'm still loving everybody and miss you all very much (or wait was that a misstatment ;) )  I'm doing fine and just want to say I'll be back soon.  Miss the board and all of you and hopefully by the time I'm back things will have calmed down.  Still praying for everyone.

    Update:  Just found out that my son is in emergency tonight with chest pains.  If you pray or think to a higher power or give good vibes, please think of him. All this infighting to me seems small.

    Still love you all

    Kim

    Thinking of your son

    I hope all is well with him. Do keep us updated, though not on this thread, hoping that it, along with the others will disappear onto page two. 

    Prayers for you and your son.