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I am torn between flaunting and sharing my success

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Comments

  • vinaykumar
    vinaykumar Member Posts: 66
    do you get fever as a

    do you get fever as a response to this vaccine? wondering how is the efficiency of DC vaccine measured?

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900

    do you get fever as a

    do you get fever as a response to this vaccine? wondering how is the efficiency of DC vaccine measured?

    great quesion vinaykumar

    not the vaccine itself, but some inflamation is possible at the injection site.

    the fever you get from newcastle virus disease, which is an integral part of the vaccination process.

    how is effectiveness measured ? scans, pet, mri, ct, ultrasound  combined with markers. and of course paitent feedback, how they feel.

    the vaccination manufacturing process can be tuned and adjusted, if the first was not efficious. 

    its possible to have stable disease, reducing disease or escalating disease. hopefully reducing.

    now i am looking for mri results and lymph node swelling. i have found many tips and tricks to assess the effectiveness of all these therapies.

    as an example we are doing an extra cea marker 2 days post vaccination to see if we can see a spike, if i can see patterns in me behaviour, well it might

    be worth repeating for others.

    beyond what the doctors do in isolation. even these clinics are so specialised. basically the patient has to step back and look at the big picture, and own all the key clinical decisions.

    hugs,

    Pete

  • smokeyjoe
    smokeyjoe Member Posts: 1,425

    great quesion vinaykumar

    not the vaccine itself, but some inflamation is possible at the injection site.

    the fever you get from newcastle virus disease, which is an integral part of the vaccination process.

    how is effectiveness measured ? scans, pet, mri, ct, ultrasound  combined with markers. and of course paitent feedback, how they feel.

    the vaccination manufacturing process can be tuned and adjusted, if the first was not efficious. 

    its possible to have stable disease, reducing disease or escalating disease. hopefully reducing.

    now i am looking for mri results and lymph node swelling. i have found many tips and tricks to assess the effectiveness of all these therapies.

    as an example we are doing an extra cea marker 2 days post vaccination to see if we can see a spike, if i can see patterns in me behaviour, well it might

    be worth repeating for others.

    beyond what the doctors do in isolation. even these clinics are so specialised. basically the patient has to step back and look at the big picture, and own all the key clinical decisions.

    hugs,

    Pete

    Pete,  again I'm

    Pete,  again I'm confused......are you taking metformin and celebrex too   along with these therapies.      Besides the chemo. shots,  the immune vaccine,  what exactly are you taking??   Are you taking tagamet still??      I'm just curious,  all these drugs have side effects,  I just know with my oncologist  he debates long and hard before he'll consider adding something to the mix because if things are going well he doesn't want to throw things off balance.  I'm on lovenox and folfiri,  he did his own searching before he'd give me tagamet.     He  thought long and hard before he would add  avastin into the mix just because it could cause side effects (we all know what those can be)   ...... I would think if I asked him to add celebrex into the mix  he would probably consider that waaay to risky and it may cause more harm than good.  I gotta wonder about doc's that will give you whatever it is you are asking them for and not give some serious consideration as to how it may affect you in some other way.  I don't want to come across as critical,  you seem to be getting a good response from what you are doing,  those are just the questions that come to mind when I see your posts.   I know  someone who is on metformin for diabetes,  he simply took some tylenol cold and flu  and  his liver  kidneys etc. started to shut down because of a mix of two drugs....it almost killed him.

  • PhillieG
    PhillieG Member Posts: 4,866

    tony yes yes yes. THANKS for the guess. its good guess.

    dear tony and all,

    between the two of us, we are documenting the colorectal stage 4 immunotherapy based survival path.

    the absolute beauty, is that we are so far ahead of conventional medicine, that their is no conflict.

    these posts, are the beginning of a hope based treatment regime with immunotherapy at its core. they are filled with science which has merit, is plausible and conveniently explains my survival.

    the chemo based options still exist, but the first points of call has to be immunotherapy based solutions.

    lets call it "try before you die" approach.

    don't you remember "navy" the labrador, the navy protocol. all I needed was a few pointers from a few friends. how can i ever repay you ?

    My willingness to try all these therapies, the brute force approach to individualised medicine, and doing it so openly on the net means that,

    potential so many of my friends here are now thinking about pete's story.

     

    if as a community we can pulled together about 50 cures over the next few years from friends on colonclub and CSN. can you see the potential.

    we will have a dendtritic cell lab based in the states using doc N expertese. he is already doing it with doctor chang in new york.

    in fact another load of vaccines is being flown over next week. but do you want to know a secret, the us patients are not getting the same results as i am getting.

    your legal framework in the us, its the same in australia ( and all other developed ) does not permit the therapies in these clinics. the services just don't exist I suspect.

    its our responsibility as patients to encourage, or gently force change on our systems of government.

     

    ask yourself why is doctor N flying dendtritic cell vaccines to US soil. whats wrong with your country? I'll leave that for my american friends to answer.

     

    its tragic that the time delay for the adoption, will cost so many lives, so many friends lost. so much life and money wasted. the magnitude of the that very loss, worth contemplating. the magnitude of that loss should serve to motivate politically active stage 4 survivors to demand the best medical care. so maybe the taunting of my therapy success is not taunting.

    maybe i am duty bound, indeed privileged to be the first here on these forums to prove publicily that these immune based therapies work.

    to highlight their potential to enhance our quality and quantity of life, above and beyond chemo.

    i am filling my obligation to all my dead friends, my public campaign, is just one mans story. but it is a real story. its a great news story. this is such an emotionally intense phase of my life. this is my greatest achievement. I can see my continued existence as essential to proving these therapies are curative of stage 4.

    the challenge is now laid squarely on all other cancer patients. its very very simple. 

    we will all be judged by our actions and our lack of action. that includes us personally, us as a community and as countries.

    if you believe my story, ask your oncologist about immune based therapies. state very politely that you won't to live, that you want to try therapies similar to pete's

    get a few opinions , from a few oncologists , even from some alternative specialists.

    the few of us with the insight, education, will power, who have focus, need to demand and implement change,personally and as a community we really need to step up to the challenge.

    if we don't then the less fortunate among us will have no hope. its our responsibility, now given we are living with our mortality squarely starring us down, is their a better or more nobel stance to take. even if your only therapy choice is to take chemo each fortnight, you can demand access to these services and therapies.

    the more of us who demand these therapies, the faster they will materialise for all the rest. and future generations. these are not magical cures for everybody.

    but the "immunotherapy revolution" has started, its my campaign. Marie you asked me once what I would do re political change. I ask you, and everyone on CSN what action

    you will take in the light of my story. Its your own health, you have to take your own actions and get the best advice and care.

    At the present moment, that care to me appears to be in a few clinics in germany. That situation can change very very fast. it just needs a few phone calls from obama.

    i actually think he is up for the challenge. we just want one large immunotherapy based clinic in the USA and most importantly the legal framework amended so that these german based therapies can be practiced on your soil. obviously i want the same thing for australia, canada, uk, spain, holland. actually in every county where we have csn members. those members themselves to demand change and the best care.

    its been easy for us to be passive cancer patients, for so long now. my story could be a catalyst, a chance to fast track these therapies. i am one man, together we are many.

    i ask, what can a motivated group of terminally ill colorectal cancer patients accomplish ? its an open ended question.

    I know in my heart whats clearly possible. i have a vision of that immunotherapy lab and services being provided asap. whats been missing all these years in the cancer field to me seems to be political change.

    so now a group of terminally ill colorectal cancer patients have to take on the us government to get access to these therapies. I will take on the australian government.

    i think its only fair we split up the planet, country by country. as soon as we get one country converted, the others will fall like dominos. Australia will be easy, we got a federal election coming up in 8 months. I already have the name of the head of the DC lab down under "julien barton", he does not even know it yet. i have never emailed him.

    he is the dendritic cell researcher who developed my p2x7 peptide dosing for my vaccine. his research had to go to germany to be tested in me.

    now his research comes back to him in a living cured cancer patient(pete). i think he qualifies for the job.

    i know we will win in the end. we have too. the first time we all meet will be on the white house lawns, having lunch with obama. all our families as well.

    I hope this is not to positive, hopeful or motivational for the american cancer society. this makes the challenge of the walking post, look like a walk in the park.

    I begged the management of the american cancer society two years ago to highlight the walking post, to get it encouraged on all the forums. they ignored me then. they 

    may ignore me again. I hope I don't get banned. maybe its time for the american cancer society to step up and help us all take action.

    hugs,

    pete

    PS re celebrex, having another now. another piece of the puzzle. 

    can you see how we are effectively back filling my regime. 

    so I start with this massive ridiculous, laughable pain in the butt supplement regime.

    now I have my fantastic result, that means that components of what i am doing have worked.

    tony, thanks again for highlighting the science of MDSC and celebrex.

    I am torn between flaunting

    I am torn between flaunting and sharing my success

    "if as a community we can pulled together about 50 cures over the next few years from friends on colonclub and CSN. can you see the potential."

    Pete, I like you, you're an interesting fellow for sure and you have incredible passion for what you do. I also like your attitude of not considering yourself, or all of us, victims but that's part of who you are which was evident in your SCUBA "adventure"...

    BUT (always a but - or butt in our case) I just can't see how you could pinpoint what has been the "Magic Bullet" in your vast journey. I've followed your journey for the most part and it's been a roller coaster of trial & error to get where you are. I may be way-wrong but I've seen you mentioning using chemo as of late. Is there a possibility that helped too?

    I think you really need to keep in mind that what works for one may not work for others. Cancer's not that simple. That's not to say that our immune system, diet, exercise, genes, environment, attitude, etc are not part of the puzzle. They all are part of it as are getting a good or great medical team in place. Face it, you can have the best therapy but if your doctor is incompetent you're kind of screwed as has been the case with some members here. 

    Not being "Dr. Phil", all I can offer are my opinions but I would imagine that if previous therapies haven't worked, then maybe the latest ones helped you? 

    While I too love my country, I know what it's capable of doing and how the bottom line EVERYWHERE is the Almighty Dollar. It's the driving force behind most of what we do... There's little if any chance of getting things done as long as lobbyists are writing the laws which unfortunately, IS how our Govt "works".

    When I think of how we, as cancer patients/survivors/advocates, can make a difference, I always think of Dave deBronkart, widely known as “e-Patient Dave,” who is a cancer patient and blogger who has become a noted activist for healthcare transformation through participatory medicine and personal health data rights.

    From Dave's website:
    An engaged patient plays an active role in his or her care. Or, as e-patients.net founder “Doc Tom” Ferguson said, “e-Patients are Empowered, Engaged, Equipped and Enabled.”

    We who’ve become e-patients don’t wait for our providers to tell us everything; we get it in gear, we ask questions, we do what we can to help.

    Don’t think you’re qualified? Trust yourself. You know more than you think you do.

    CRI Awards $10 Million to Advance Immune-Based Cancer Treatments. While this isn't our Govt doing anything, things are being done and I do feel too that it's up to us to push for change. 

    As far as flaunting your success goes, I would be curious to see how the credit is dispersed.

    Bottom line, I'm glad you're still around :-) 
    -phil

     

     

     

  • manwithnoname
    manwithnoname Member Posts: 402
    smokeyjoe said:

    Pete,  again I'm

    Pete,  again I'm confused......are you taking metformin and celebrex too   along with these therapies.      Besides the chemo. shots,  the immune vaccine,  what exactly are you taking??   Are you taking tagamet still??      I'm just curious,  all these drugs have side effects,  I just know with my oncologist  he debates long and hard before he'll consider adding something to the mix because if things are going well he doesn't want to throw things off balance.  I'm on lovenox and folfiri,  he did his own searching before he'd give me tagamet.     He  thought long and hard before he would add  avastin into the mix just because it could cause side effects (we all know what those can be)   ...... I would think if I asked him to add celebrex into the mix  he would probably consider that waaay to risky and it may cause more harm than good.  I gotta wonder about doc's that will give you whatever it is you are asking them for and not give some serious consideration as to how it may affect you in some other way.  I don't want to come across as critical,  you seem to be getting a good response from what you are doing,  those are just the questions that come to mind when I see your posts.   I know  someone who is on metformin for diabetes,  he simply took some tylenol cold and flu  and  his liver  kidneys etc. started to shut down because of a mix of two drugs....it almost killed him.

    my 2 shekels

    "if things are going well he doesn't want to throw things off balance"  good attitude, but it's when things aren't going well that huge descisions are made.

    "Eight drugs (vincristine [VCR], hydroxyurea, procarbazine, CCNU, cisplatin, cytosine arabinoside [Ara-C] high-dose methylprednisolone, and either cyclophosphamide or dacarbazine) were administered within 12 hours in an attempt to minimize myelosuppression"

    This was a protocol given to children with relapsed brain tumors, no one knew what effect the combination would have, it just seemed 'resonable' to try it anyway (given the future of the kids)

    Sometimes it gets to a point where you have nothing to lose, personally I believe this was a bizarre protocol and it was used many many times all over the world, still, some children benefited... "50% had an objective tumor response including 15.5% who had a complete response (CR)"  

    If Dr's and patients didn't take risks then nothing would progress IMHO

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900

    As always, congrats on your

    As always, congrats on your success, but 1 in 10 doesn't sound very promising to me.  Why do 90% not respond well to the same therapy you are taking?  You have also mentioned that Vogel said your response was like 1 in 40, right?  Again, why don't the other 95+% respond if his therapy is so far ahead of conventional medicine.  I'm guessing the positive reponse to standard chemo therapy is waaaay higher than <5 to 10% or they wouldn't allow it.  Not trying to rain on your parade, but I wonder abouth the 9-39 people that are paying thousands of dollars for the same treatments, but not getting much response.  Until the percentages get a lot higher, I don't think you are onto a cure for colon cancer.

     

    Edited to add that I don't want this to come across as negative, just am surprised at the admitted low percentage of success by the German doctors.  I really wish they would do some clinical trials with these therapies, as that is the only way they will get these therapies accepted by the general medical profession, and also they would then be available worldwide to cancer patients.

    Tedd

    oh ted, just one more thought

    its just i have been so blessed so far, the odds were the doctors opinions, but i did push for them.

    look, they get heaps of good results, some better and a few excellent, mine was exceptional.

    the money they charge is reasonable in my opinion. see what dr chang in new york charges for each vaccine.

    http://www.cancercenter.com/liver-cancer/chemoembolization.cfm

    just for fun see how much these guys charge in the usa. ask them what drugs they would use.

    see if they use local avastin.

    hugs,

    pete

  • smokeyjoe
    smokeyjoe Member Posts: 1,425

    my 2 shekels

    "if things are going well he doesn't want to throw things off balance"  good attitude, but it's when things aren't going well that huge descisions are made.

    "Eight drugs (vincristine [VCR], hydroxyurea, procarbazine, CCNU, cisplatin, cytosine arabinoside [Ara-C] high-dose methylprednisolone, and either cyclophosphamide or dacarbazine) were administered within 12 hours in an attempt to minimize myelosuppression"

    This was a protocol given to children with relapsed brain tumors, no one knew what effect the combination would have, it just seemed 'resonable' to try it anyway (given the future of the kids)

    Sometimes it gets to a point where you have nothing to lose, personally I believe this was a bizarre protocol and it was used many many times all over the world, still, some children benefited... "50% had an objective tumor response including 15.5% who had a complete response (CR)"  

    If Dr's and patients didn't take risks then nothing would progress IMHO

    Yeah,  some protocols seem

    Yeah,  some protocols seem completely bizzarre when I see what they are giving to some children with cancer .... the mustard gas ones in particular come to mind!!!   Scarey scarey stuff.     I had a family member (not a child) pass away from brain cancer, surgery was not an option.     I'm not posting to be critical of what Pete is doing,  I'm just sooooooo confused as he brings up all these things....and I don't know if he's taking them,  just talking about them,   thinking about taking them.    A simple list of what he does take and how many mgs  would clear up my questions.   

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    smokeyjoe said:

    Yeah,  some protocols seem

    Yeah,  some protocols seem completely bizzarre when I see what they are giving to some children with cancer .... the mustard gas ones in particular come to mind!!!   Scarey scarey stuff.     I had a family member (not a child) pass away from brain cancer, surgery was not an option.     I'm not posting to be critical of what Pete is doing,  I'm just sooooooo confused as he brings up all these things....and I don't know if he's taking them,  just talking about them,   thinking about taking them.    A simple list of what he does take and how many mgs  would clear up my questions.   

    thanks smokey

    alas i have taken almost everything i discuss, iam typing still, it must be another miracle.

    see my blog for immunotherapy.

    i have been off cimetidine for a few weeks.

    re celebrex, google navy protocol, i thinks its mentioned on my blog also.

    hugs,

    pete

  • luvinlife2
    luvinlife2 Member Posts: 172
    German Therapies

    My clinic in Canada uses a lot of German therapies and the cost is not anything close to what you are paying in Germany Pete.  The technicians and Dr.'s were trained by German Dr.'s either in Germany or here so the integritiy of the therapies is not compromised.  A number of tests such as CTC are sent to the German lab company that does this.  Fully body and local regional hyperthermia treatments are less than 1/3 of the cost in Germany but it's the same machine imported from there.  My clinic cannot offer chemotherapy with treatments because that is regulated by our public health system so they cannot have an onsite pharmacy that mixes the drugs.  However, they are able to administer chemo drugs if the patient brings them to the clinic.  Besides the price, that perhaps is the one big difference.  Additionally, there are some therapies that are not yet approved for use in Canada but I think it's minimal.

    As far as Denditric Cell thereapy is concerned, some places in Canada have offered this in the past but my Dr. says that he doesn't know of anyone currently offering this therapy.  That doesn't mean that Canada has rejected the thereapy, in fact, to my surprise, quite the oppposite.  It turns out our research labs at the University of British Columbia are actively researching vaccine therapies.  Here's the link:

    http://www.publicaffairs.ubc.ca/2012/02/05/ubc-researchers-discover-key-to-immune-cells-internal-guidance-system-could-lead-to-more-efficient-vaccines/

    As it turns out, the professor who wrote the article and who heads the Dept. of Immunology and Micobiology happens to be a personal friend of mine so it goes without saying that I will be emailing Wilf and picking his brain about the vaccine.  I'll let you know if he tells me anything that hasn't already been posted here.

    I guess what I'm trying to say is that it doesn't have to cost $120,000.00 to get a lot of these treatments and you don't necessarily have to go to Germany.  The German clinics have trained Dr.'s from many different countries in Europe and now Canada, in their therapies.  There are already a lot of private clinics in Canada and the US that offer the same or similar type of immunotherapy treatments with respect to IV vitamins, nutrition etc. 

    I think what you are doing Pete is great and I thank you for all the info you post here.  I just want folks to know that there are other options for getting a lot of the same treatments.  Also, it should be mentioned that quite a few of the German treatments are intended to work in conjunction with chemotherapy for optimal results.  This doesn't mean they are not effective without chemo.  Many patients at my clinic great results without chemotherapy but it takes longer, so is more expensive.  One last thing.... I've seen too many patients try these therapies when their cancer is already out of control and their bodies are weakened by chemotherapy.  For these people, the treatments help with quality of life only.   Pretty much anyone I've met at this stage of their disease has passed away. 

  • manwithnoname
    manwithnoname Member Posts: 402
    smokeyjoe said:

    Yeah,  some protocols seem

    Yeah,  some protocols seem completely bizzarre when I see what they are giving to some children with cancer .... the mustard gas ones in particular come to mind!!!   Scarey scarey stuff.     I had a family member (not a child) pass away from brain cancer, surgery was not an option.     I'm not posting to be critical of what Pete is doing,  I'm just sooooooo confused as he brings up all these things....and I don't know if he's taking them,  just talking about them,   thinking about taking them.    A simple list of what he does take and how many mgs  would clear up my questions.   

    Hi Smokey

    A simple list of what he does take and how many mgs  would clear up my questions. "

    I'm guessing a lot of people are also wondering that, me included, Pete keeps changing stuff so fastFoot in Mouth  although I suspect there is a core 'protocol' I'm also wondering what his Doc's think of the added medications, ours is very cautious but if I present a good case he will include it, after all we have everything to gain...

    Our Profressor said 'what we are doing has never been done and probably will never be done again' I think it's the same with Pete, we are all individuals and react differently, we just have 'faith' that it's is the right treatment.

    No time for double blind random placebo trials....

  • k44454445
    k44454445 Member Posts: 494

    thank you for the prayers judy

    always lots of hugs. our lord works in strange ways. faith is the key. i was thinking of you when I did my speech at the healing mass.

    pete

    Pete

    thank you for thinking of me. when i read your post to me i was deeply touched & cried.

    hugs

    judy

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900

    German Therapies

    My clinic in Canada uses a lot of German therapies and the cost is not anything close to what you are paying in Germany Pete.  The technicians and Dr.'s were trained by German Dr.'s either in Germany or here so the integritiy of the therapies is not compromised.  A number of tests such as CTC are sent to the German lab company that does this.  Fully body and local regional hyperthermia treatments are less than 1/3 of the cost in Germany but it's the same machine imported from there.  My clinic cannot offer chemotherapy with treatments because that is regulated by our public health system so they cannot have an onsite pharmacy that mixes the drugs.  However, they are able to administer chemo drugs if the patient brings them to the clinic.  Besides the price, that perhaps is the one big difference.  Additionally, there are some therapies that are not yet approved for use in Canada but I think it's minimal.

    As far as Denditric Cell thereapy is concerned, some places in Canada have offered this in the past but my Dr. says that he doesn't know of anyone currently offering this therapy.  That doesn't mean that Canada has rejected the thereapy, in fact, to my surprise, quite the oppposite.  It turns out our research labs at the University of British Columbia are actively researching vaccine therapies.  Here's the link:

    http://www.publicaffairs.ubc.ca/2012/02/05/ubc-researchers-discover-key-to-immune-cells-internal-guidance-system-could-lead-to-more-efficient-vaccines/

    As it turns out, the professor who wrote the article and who heads the Dept. of Immunology and Micobiology happens to be a personal friend of mine so it goes without saying that I will be emailing Wilf and picking his brain about the vaccine.  I'll let you know if he tells me anything that hasn't already been posted here.

    I guess what I'm trying to say is that it doesn't have to cost $120,000.00 to get a lot of these treatments and you don't necessarily have to go to Germany.  The German clinics have trained Dr.'s from many different countries in Europe and now Canada, in their therapies.  There are already a lot of private clinics in Canada and the US that offer the same or similar type of immunotherapy treatments with respect to IV vitamins, nutrition etc. 

    I think what you are doing Pete is great and I thank you for all the info you post here.  I just want folks to know that there are other options for getting a lot of the same treatments.  Also, it should be mentioned that quite a few of the German treatments are intended to work in conjunction with chemotherapy for optimal results.  This doesn't mean they are not effective without chemo.  Many patients at my clinic great results without chemotherapy but it takes longer, so is more expensive.  One last thing.... I've seen too many patients try these therapies when their cancer is already out of control and their bodies are weakened by chemotherapy.  For these people, the treatments help with quality of life only.   Pretty much anyone I've met at this stage of their disease has passed away. 

    thanks luvinlife2

    its a really great answer, and maybe a more cost effective option for some our american friends.

    i am glad your clinic has many of the german therapies available, and i know they help some.

    its just the level of expertese at hallwang with removab and infusions, its the synergy of hallwang, duderstadt and dr vogel that helped me.

    the first few following my path, will make or break it. it will be an interesting next few months, better than tv shows like csi, this is real life drama.

    good point about really late stage not responding well.

    well its arguable about mixing these german therapies with systemic chemo, you know my beliefs, i won't repeat them for upsetting my friends here.

    we make our decisions , place our trust and hope. i guess thats all any of us can do. who we trust and listen to, well that important.

    hugs,

    pete

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900
    smokeyjoe said:

    Pete,  again I'm

    Pete,  again I'm confused......are you taking metformin and celebrex too   along with these therapies.      Besides the chemo. shots,  the immune vaccine,  what exactly are you taking??   Are you taking tagamet still??      I'm just curious,  all these drugs have side effects,  I just know with my oncologist  he debates long and hard before he'll consider adding something to the mix because if things are going well he doesn't want to throw things off balance.  I'm on lovenox and folfiri,  he did his own searching before he'd give me tagamet.     He  thought long and hard before he would add  avastin into the mix just because it could cause side effects (we all know what those can be)   ...... I would think if I asked him to add celebrex into the mix  he would probably consider that waaay to risky and it may cause more harm than good.  I gotta wonder about doc's that will give you whatever it is you are asking them for and not give some serious consideration as to how it may affect you in some other way.  I don't want to come across as critical,  you seem to be getting a good response from what you are doing,  those are just the questions that come to mind when I see your posts.   I know  someone who is on metformin for diabetes,  he simply took some tylenol cold and flu  and  his liver  kidneys etc. started to shut down because of a mix of two drugs....it almost killed him.

    got a clear program today

    first metformin, celebrex and cimetidine breaky

    dinner metformin and cimetidine 

    got the scripts today, no issues, the few sides i will sort, after all i am fighting metastatic colorectal, who scared of the side effects, not me at all.

    now the cancer cells, they are scary difficult little devils. if these off label uses help, then i am on them.

    i just had the vaccine injected, these offlabels all designed to support its efficacy

    next week i from i dca for 2 weeks. it sydnergies with metformin from memory.

    i think i have tried almost every alternative cure ever made, and i am still smiling.

    thanks for being concerned. of course get professional medical advice always.

    hugs,

    pete

  • manwithnoname
    manwithnoname Member Posts: 402

    got a clear program today

    first metformin, celebrex and cimetidine breaky

    dinner metformin and cimetidine 

    got the scripts today, no issues, the few sides i will sort, after all i am fighting metastatic colorectal, who scared of the side effects, not me at all.

    now the cancer cells, they are scary difficult little devils. if these off label uses help, then i am on them.

    i just had the vaccine injected, these offlabels all designed to support its efficacy

    next week i from i dca for 2 weeks. it sydnergies with metformin from memory.

    i think i have tried almost every alternative cure ever made, and i am still smiling.

    thanks for being concerned. of course get professional medical advice always.

    hugs,

    pete

    Not 100% sure

    DCA synergises with MET,    "results in MDA-MB-468 breast cancer cells found that DCA could block the activation of AMPK by metformin"  not enough studies on this for sure, ask Dr.N what he thinks.

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900

    Not 100% sure

    DCA synergises with MET,    "results in MDA-MB-468 breast cancer cells found that DCA could block the activation of AMPK by metformin"  not enough studies on this for sure, ask Dr.N what he thinks.

    thank you tony

    tony,

    no point asking doc n about dca. he is not a fan of it( very tragic story i will not relay here). hallwang is. 

    i will check this out, but can see dca being dropped as preserving metforimin dual role re glucose and the immune system a high priority in 

    in my care plan. 

    but can you see how i need a team with our expertese managing these interactions, the doctors themselves focus of there therapies.

    alas i am my holistic doctor stepping back, looking at the big picture between these clinics, and getting essential, life saving support from a few very very clever friends.

     

    i am so glad i did my gcmaf experiment, you found me, now ren. if i was not searching and trying i would not have found such excellent sources of technical knowledge.

    almost everyday what you or tans or into the future ren will shape our understanding of cutting edge therapies. why not leverage every single resource possible in the impossible quest, that actually may not be incurable.

    now your research in dc, is second to none. what we discuss even leaves that naturopath at nesslehuts in the dark, and she is real good. i skyped my danish doctor mikael. the gcmaf supplier. i am going to start gcmaf injections if i can get doc n ok. he had some very interesting comments about imiquimod.

    hugs,

    pete

     

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900

    Hi Smokey

    A simple list of what he does take and how many mgs  would clear up my questions. "

    I'm guessing a lot of people are also wondering that, me included, Pete keeps changing stuff so fastFoot in Mouth  although I suspect there is a core 'protocol' I'm also wondering what his Doc's think of the added medications, ours is very cautious but if I present a good case he will include it, after all we have everything to gain...

    Our Profressor said 'what we are doing has never been done and probably will never be done again' I think it's the same with Pete, we are all individuals and react differently, we just have 'faith' that it's is the right treatment.

    No time for double blind random placebo trials....

    the supplements are discretionary

    my gut health drives all the decisions.

    now today i got shoved back on cimetidine, it suppresses stomach acid, can cause the villi to atrophy.

    my supplements are now are of my evolving health. if i work out hard i have some map.

    if a skip a meal i have some map.

    if i do weights i have a protien shake and aminos.

    today i am back on tallberg powders doc n and doc M suggestions, these lead into

    my study with regard amino acids therapies and controlling mdsc issues.

    i know my tregs are way to high, so whatever my therapies or life style interventions are , they have minimised the

    the capacity of my treg cells to blunt the immune response eating my tumours.

    how to i summarise todays 2 hours of consults with highly skilled cancer specialists. my video blog, thats how.

    hugs,

    pete

     

     

     

  • manwithnoname
    manwithnoname Member Posts: 402

    thank you tony

    tony,

    no point asking doc n about dca. he is not a fan of it( very tragic story i will not relay here). hallwang is. 

    i will check this out, but can see dca being dropped as preserving metforimin dual role re glucose and the immune system a high priority in 

    in my care plan. 

    but can you see how i need a team with our expertese managing these interactions, the doctors themselves focus of there therapies.

    alas i am my holistic doctor stepping back, looking at the big picture between these clinics, and getting essential, life saving support from a few very very clever friends.

     

    i am so glad i did my gcmaf experiment, you found me, now ren. if i was not searching and trying i would not have found such excellent sources of technical knowledge.

    almost everyday what you or tans or into the future ren will shape our understanding of cutting edge therapies. why not leverage every single resource possible in the impossible quest, that actually may not be incurable.

    now your research in dc, is second to none. what we discuss even leaves that naturopath at nesslehuts in the dark, and she is real good. i skyped my danish doctor mikael. the gcmaf supplier. i am going to start gcmaf injections if i can get doc n ok. he had some very interesting comments about imiquimod.

    hugs,

    pete

     

    Pete

    Im still finding ways to increase the efficacy of the DC vaccine, Im 100% sure adding GM-csf, Poly-ICLC and Imiquimod into the equation will double the immune response, the vaccines cost too much not to get max benefit out of them, our Dr. is unsure, Im not, I will end up signing papers to allow it.

    The other piece in the puzzle is immune suppresors, Imc's MDSC's and T-reg, the retinoid family (vitamin A) is coming up again and again, this differentiates cells and also kills cancer stem cells.

    The amino acid's are crucial too, and most people, including Dr's, think nothing of them.

    p.s Im glad I found your Gc-maf experiment, I have learnt a lot from your path and the board. Wink

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900

    Pete

    Im still finding ways to increase the efficacy of the DC vaccine, Im 100% sure adding GM-csf, Poly-ICLC and Imiquimod into the equation will double the immune response, the vaccines cost too much not to get max benefit out of them, our Dr. is unsure, Im not, I will end up signing papers to allow it.

    The other piece in the puzzle is immune suppresors, Imc's MDSC's and T-reg, the retinoid family (vitamin A) is coming up again and again, this differentiates cells and also kills cancer stem cells.

    The amino acid's are crucial too, and most people, including Dr's, think nothing of them.

    p.s Im glad I found your Gc-maf experiment, I have learnt a lot from your path and the board. Wink

    the greatest immunotherapy on the planet

    so per doc n,

    the cell receptors for the Imiquimod are on the inside of the immune cells, not the outside, the trick is to attach the molecule to glucose to get it absorbed inside the target dc cell. he talked about it, its on the video, but no clear suggestion even for me to take it. it was a suitable topic for discussion, he is amazed at what i know, but he does not know my friends. now even when i read the standard imiquimod trial about the rats you suggested months ago, well i read it, note its claimed role in reducing treg numbers systemically. alas only in mice and rats. but you know i am part rat and mice now.

    so we have an intracellular response and an extra cellular response that ( this one interesting re the systemic treg reductions ). what interesting science.

    what you are trying is commendable reasonable but alas untested and uncertain. except doc n was actually rubbing imiquimod on his forehead. so it must be ok. you know i like the gamma delta option i think the offering the best hope for those with tumours to resolve promptly so that a slower more constant immune response can occur without the immune damaging side effects of tumour growth re tfn-alpha growth and its consequences. if i remember yesterdays lecture doc n. oh it was a consult or was it a lecture. maybe both.

    faith is the key, i will see you soon i think somehow somewhere i hope.

    hugs,

    pete

    ps i emailed doc n if i can try  GM-csf, Poly-ICLC and Imiquimod, we will see, i have serious treg issues to reduce. 

     

  • luvinlife2
    luvinlife2 Member Posts: 172

    thanks luvinlife2

    its a really great answer, and maybe a more cost effective option for some our american friends.

    i am glad your clinic has many of the german therapies available, and i know they help some.

    its just the level of expertese at hallwang with removab and infusions, its the synergy of hallwang, duderstadt and dr vogel that helped me.

    the first few following my path, will make or break it. it will be an interesting next few months, better than tv shows like csi, this is real life drama.

    good point about really late stage not responding well.

    well its arguable about mixing these german therapies with systemic chemo, you know my beliefs, i won't repeat them for upsetting my friends here.

    we make our decisions , place our trust and hope. i guess thats all any of us can do. who we trust and listen to, well that important.

    hugs,

    pete

    That is one drug not available here.  I think the one advantage of going to Germany to do the treatment plan is that everything is focused around your treatment plan and your entire life for that time is completely about getting well again.  No other distractions.   I can do my treatments here in Canada but I go home to the regular routine and stresses of life.  Everyone I've talked to has returned with positive stories about the clinics there.  Keep smiling Pete  Smile

  • annalexandria
    annalexandria Member Posts: 2,571

    That is one drug not available here.  I think the one advantage of going to Germany to do the treatment plan is that everything is focused around your treatment plan and your entire life for that time is completely about getting well again.  No other distractions.   I can do my treatments here in Canada but I go home to the regular routine and stresses of life.  Everyone I've talked to has returned with positive stories about the clinics there.  Keep smiling Pete  Smile

    Catumaxomab (Removab)...

    I believe it is in clinical trials here in the States.  People who are interested in trying it and can't afford to go to Germany, might want to check out what's available.  AA