Good news to share. (well, I wanted better... but I'll take this)

Options
joemetz
joemetz Member Posts: 493
in Colorectal Cancer #1

Went to get a second opinion on the cancer battle...  did receive some good news, but wanted even better.

But, I guess I'll take what I got.

see the info here on my CaringBridge blog site:

http://www.caringbridge.org/visit/joemetzger/journal

 

 

Comments

  • Maxiecat
    Maxiecat Member Posts: 544 Member
    #2
    It is so encouraging to hear

    It is so encouraging to hear that your maintenance chemo is working.  Keep on battling ... Best wishes for your next scan in march.  Let's hope for even more progress on beating the beast....or better yet NED.

    Alex

  • Chelsea71
    Chelsea71 CSN Member Posts: 1,169 Member
    #3
    Hi Joe,
    Sounds like it was a
    Hi Joe,

    Sounds like it was a positive appointment. I would recommend you not stop. Talk to some other hospitals. There are so many different ways to target the liver directly. I would try to get a consultation with Dr. Patty at Sloan. (Not sure if that is her real name or just a nickname. Seems very well liked by her patients). Phil has done really well with his HAI pump. I wonder if you could benefit from this same type of treatment? I believe Sloan is the only hospital using this pump. They have had a lot of success with it. You are likely tempted to stop looking for more opinions. I know what a physically and emotionally draining process it can be. Thanks for the update. Good luck. Don't settle for anything other than the most top notch treatment that is available to you.

    Chelsea
  • danker
    danker Member Posts: 1,276 Member
    #4
    joemetz

    Good news is always welcome at this forum'!!!

  • steveandnat
    steveandnat CSN Member Posts: 886
    #5
    So glad

    It is good to hear some good news. Stay well and pray for more good news. Jeff

  • maglets
    maglets CSN Member Posts: 2,576 Member
    #6
    steveandnat said:

    So glad

    It is good to hear some good news. Stay well and pray for more good news. Jeff

    Joe

    oh Joe that is such good news.  i am glad you liked your young doctor.  Keep up the great work...something really wonderful is bound to show up...

    all the best, maggie

  • hippiechicks
    hippiechicks CSN Member Posts: 509 Member
    #7
    So happy to hear your plan is

    So happy to hear your plan is working for you and continue to get better!  It would be nice if you could get into Sloan ... maybe that could happen for you as well. It does sound as though they have the most advanced procedures/treatments.

    Best to you for continued success and hope you are feeling well during your remaining treatments.

  • Varmint5
    Varmint5 CSN Member Posts: 384 Member
    #8
    I would get another opinion...

    So glad to hear your cancer is stable and the treatment is working but you've done so well, it seems like going for broke with a plan to truly eradicate those liver tumors would be a good thing! I would seek another opinion, specifically asking for doctors who do liver targeted therapies. My daughter had Theraspheres. Maybe you could contact Suzanne Lindley of www.beatlivertumors.org and see what she suggests. Best wishes to you and glad you're doing well and looking to "kick it up a notch."

    Sandy

    P.S. Here is a link for some contacts in Ohio re: Theraspheres: http://www.nordion.com/therasphere/treatmentcenters_us/us.asp

  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #9
    Joe

    Hey Joe,

    No progress and shrinkage is good, and glad you got another opinion, but hey, it doesn't hurt to go for a couple of more.  I went through two tumor boards and finally an onc that had connections with surgeons that my regular onc sent me to, and I got my surgeries, and longer life span so far.

    But the news is still good my man, I'm glad for you!

    Winter Marie

  • tommycat
    tommycat CSN Member Posts: 790 Member
    #10
    Hi Joe

    You may want to talk with Phillg as others have suggested. He's done well with the HAI pump from Sloan. From what I understand, some Drs. don't utilize that tx, so you may wnat to talk with Phil for his input.

    God Bless,

    Tommycat

  • tachilders
    tachilders CSN Member Posts: 313
    #11
    I'm right with you Joe (well,

    I'm right with you Joe (well, not exactly but close).  First 6 months of chemo (FOLFOX + Avastin) resulted in shrinkage of tumors, but not as dramatic as your results.  However, I am definitely stable or still improving, so they are trying a maintenance chemo of just 5FU + Avastin.  I have taken 2 tx of that regimen, and will take 2 more and then get more CT scans to see how it is working.  When needed *tunors no longer stable), I will start FOLFIRI + Avastin as my second round of aggresive chemo, OR I may look into other options (dendritic cell vaccine and other options available in Germany).  A lot will depend on how Pete continues to do, and whether I can get my life insurance to pay out early.  Keep up the fight, and continued prayers for your well being....

    Tedd

  • smokeyjoe
    smokeyjoe CSN Member Posts: 1,425 Member
    #12
    tachilders said:

    I'm right with you Joe (well,

    I'm right with you Joe (well, not exactly but close).  First 6 months of chemo (FOLFOX + Avastin) resulted in shrinkage of tumors, but not as dramatic as your results.  However, I am definitely stable or still improving, so they are trying a maintenance chemo of just 5FU + Avastin.  I have taken 2 tx of that regimen, and will take 2 more and then get more CT scans to see how it is working.  When needed *tunors no longer stable), I will start FOLFIRI + Avastin as my second round of aggresive chemo, OR I may look into other options (dendritic cell vaccine and other options available in Germany).  A lot will depend on how Pete continues to do, and whether I can get my life insurance to pay out early.  Keep up the fight, and continued prayers for your well being....

    Tedd

    Great news .... love your

    Great news .... love your blog!!!    Continued success with  which ever route you decide on,  these decisions are so complicated and hard to make.   

  • Phil64
    Phil64 Member Posts: 838 Member
    #13
    Congratulations!

    On the excellent response to the chemo!  I'm hoping for similar news in a few months.

     

    Also, excellent blog!

     

    Thanks,

    Phil

  • annalexandria
    annalexandria CSN Member Posts: 2,571 Member
    #14
    Popped over there and read it, Joe...

    sounds pretty good to me!  Seems like there is a distinct chance for things to get to the point for surgery, if the tumors can knocked back to virtually nothing, and it sounds like that might still be a possibility.  You don't seem like the kind of guy to take no for an answer, so I have a feeling that you've got a good chance of getting even better news in the future!  Hugs~AA

  • joemetz
    joemetz Member Posts: 493
    #15
    thanks eveyone

    thanks everyone for your feedback.

    I did get a call back today from the doc and he spoke with a couple other docs and they want me to come back soon... and want to discuss Radio embolization and Y90

    I guess I might be a good canidate for this treatment.

    http://www.radiologyinfo.org/en/info.cfm?pg=radioembol

    anyone had experience with this?

    Joe

     

  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #16
    joemetz said:

    thanks eveyone

    thanks everyone for your feedback.

    I did get a call back today from the doc and he spoke with a couple other docs and they want me to come back soon... and want to discuss Radio embolization and Y90

    I guess I might be a good canidate for this treatment.

    http://www.radiologyinfo.org/en/info.cfm?pg=radioembol

    anyone had experience with this?

    Joe

     

    great news joe

    a close friend had sirt spheres, one got loose and lodged in her stomach burnt a whole in it.

    she suffered a bit, all procedures can have complications. another friend had chemo embolisation with vogel on same day as me and suffered agony for 2 weeks as 

    somehow the artery lining was damaged. she is ok now.

    hugs,

    pete

Discussion Boards