started removab in hallwang.

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  • Cathleen Mary
    Cathleen Mary CSN Member Posts: 827 Member
    #22
    pete43lost_at_sea said:

    thanks judy
    i still remember how strange it was to do my first post, today was a good day a hallwang, about 6 hours on the drips. a good consult with doctor schwab and copic re the plan short and medium term. i am getting stems cells to boost my low platlets and white blood cells, i am on so many pills and drips. lots of the good old basics like alpha lipoic, fish oils, minerals, zinc. they are really trying to get the platinum out. they have recommended edta. so that maybe coming , i am also getting photoporessece to boost my blood. so while my liver heals, other important aspects of my biology being addressed. must still be sleeping 14 hours a day.
    8 durung the night and 6 during the day.

    i did spend some time reading and praying today, not an hour goes past when i don't reflect on the beauty i have around me. the lady in the kitchen, had her 11 year old daughter, helping. my daughter now has a new pen friend, both the girls love horses.

    thank you for the prayers judy, I have faith in our God, miracles are possible, and i am asking.

    godbless us all.

    hugs,
    Pete

    ps even tonight I had a crosset delivered to help with my hernia. the delivery lady is going to try and find me a place to live thats cheaper than the clinic and i can come here as an out patient.

    I am praying for a miracle

    I am praying for a miracle for you, too, Pete.
    Hugs,
    Cathleen Mary
  • janie1
    janie1 CSN Member Posts: 753 Member
    #23
    Cathleen Mary said:

    I am praying for a miracle

    I am praying for a miracle for you, too, Pete.
    Hugs,
    Cathleen Mary

    Hi Pete
    Thinking about you!!! I hope you are not too lonely. We all feel it. Even with lots of familiar people around, this is a lonely journey, but I feel like we are ALL family. And we just have to continue to support (and LOVE) one another, even when that requires sending the love across oceans and continents.
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #24
    Cathleen Mary said:

    I am praying for a miracle

    I am praying for a miracle for you, too, Pete.
    Hugs,
    Cathleen Mary

    thanks cathleen
    a little miracle for me, maybe a miracle for us all, these leading edge therapies in the black forest may offer some hope. thats my prayer also, for us all. with every crazy alternative post, now these therapies a cure that works has always been my intention.

    it still is.

    hugs,
    Pete
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #25
    janie1 said:

    Hi Pete
    Thinking about you!!! I hope you are not too lonely. We all feel it. Even with lots of familiar people around, this is a lonely journey, but I feel like we are ALL family. And we just have to continue to support (and LOVE) one another, even when that requires sending the love across oceans and continents.

    thanks janie
    dear janie,

    not too lonely today, to be honest i have my fears and tears, stage 4 well, what a place to be.

    but i am smiling, i am confident, there is a way. The LOVE we share is a part of the solution, not the total answer but the most essential. With no love, we have no peace of mind. I have a deep peacefulness and faith my god, in the doctors here.

    I know more than the doctors do about some things between you and me, but they are real experts in there treatments and I feel their experience offers me , my best real chance of longterm survival. But i explained the new research about fat stem cells, thanks steve. We are the smartest colorectal cancer patient on the planet collectively. Working together with love, science and determination we will push our care to the limits.

    Yes we ALL are family, feeling much better today, i am sure my liver enzymes are better, i am off to yoga/qigong here now , its 7am here and its so dark in germany.

    they are measuring my immune system to see if it responds to cimetidine, now thats precise. no more popping pills and supplements without precise guided science.

    Lots of love back to you across this beautiful planet, no point keeping love and goodwill in store for a rainy day. anyway today's a rainy day here anyway.

    hugs,
    Pete

    ps behind every hug is love, there always has been , but we don't want to scare the newbies, that are not living in this space next to the edge. everyday is the best last day of my life, no point holding back on anything any more.

    its time to live very well this amazing dark day in the black forest, what the stem cells will do this afternoon, well thats interesting, thats exciting. to fix my chemo ravaged immune system, now thats another super cool experiment. Many amazing accomplishments on the way to the summit of my everest.

    pps. to wake up today receiving kindness, well no better way to start the day.
  • relaxoutdoors08
    relaxoutdoors08 CSN Member Posts: 521 Member
    #26
    Thinking of you with Prayers
    We are here to support you as you start your next phase in this cancer journey.
    Prayers,
    NB
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #27
    relaxoutdoors08 said:

    Thinking of you with Prayers
    We are here to support you as you start your next phase in this cancer journey.
    Prayers,
    NB

    thanks relax and technical basis of therapies on blog today
    the onc today mentioned my markers are sky high, been very mellow today.

    i just got this is the info about the removab and doctor vogel, i put the papers on my google docs today and linked it on my blog. they are pretty good i think.

    http://petertrayhurn.blogspot.de/2012/10/cancer-markers-high-and-walk-in-black.html

    here is hoping........

    the prayers are really appreciated! if God's is gracious enough to guide me through the path to cure, i hope my posts may help others.

    hugs,
    Pete

    ps 48 hours to doctor vogel and getting chemo injected into the mets. might as well have some fun on the bleeding edge of science in this beautiful black forest.
  • k44454445
    k44454445 Member Posts: 494
    #28
    Pete
    hang in there! i am still sending huge prayers your way!
    hugs
    judy
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #29
    k44454445 said:

    Pete
    hang in there! i am still sending huge prayers your way!
    hugs
    judy

    thanks Judy
    I had a great day today, most of the aussies in the clinic went to a french winery and restaurant today, then we had sunset drinks over looking the blackforest.

    so I had pork knuckle, red wine, a latta and then a beer towards the end of the day. so the diet is on hold for a day and it was a really good day.

    treatment starts for real on monday.

    hugs,
    Pete
  • k44454445
    k44454445 Member Posts: 494
    #30
    pete43lost_at_sea said:

    thanks Judy
    I had a great day today, most of the aussies in the clinic went to a french winery and restaurant today, then we had sunset drinks over looking the blackforest.

    so I had pork knuckle, red wine, a latta and then a beer towards the end of the day. so the diet is on hold for a day and it was a really good day.

    treatment starts for real on monday.

    hugs,
    Pete

    good luck
    on monday. i am glad you had a good time. you needed that!!!
    hugs
    judy
  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    #31
    Praying for your miracle
    Praying for healing for you, my sweet friend.

    *hugs*
    Gail
  • pmac
    pmac Member Posts: 12 Member
    #32
    pete43lost_at_sea said:

    thanks Judy
    I had a great day today, most of the aussies in the clinic went to a french winery and restaurant today, then we had sunset drinks over looking the blackforest.

    so I had pork knuckle, red wine, a latta and then a beer towards the end of the day. so the diet is on hold for a day and it was a really good day.

    treatment starts for real on monday.

    hugs,
    Pete

    Pete - day you had at the
    Pete - day you had at the winery sounds like 'perfection'!!. Positive thoughts always your way.
    P
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #33
    tootsie1 said:

    Praying for your miracle
    Praying for healing for you, my sweet friend.

    *hugs*
    Gail

    thanks gail, judy and pmac
    so I went to mass today and prayed, amazing god knows all these languages.
    I am off to have doctor vogel treatment tomorrow, I hope this works on my tumours.
    Its going to be a real big day, infusions start 5.30am . I will update you guys when I am on the other side. I have my first hyperthermia tuesday as well.

    hugs,
    Pete
  • janie1
    janie1 CSN Member Posts: 753 Member
    #34
    pete43lost_at_sea said:

    thanks gail, judy and pmac
    so I went to mass today and prayed, amazing god knows all these languages.
    I am off to have doctor vogel treatment tomorrow, I hope this works on my tumours.
    Its going to be a real big day, infusions start 5.30am . I will update you guys when I am on the other side. I have my first hyperthermia tuesday as well.

    hugs,
    Pete

    Good luck, Pete. You and
    Good luck, Pete. You and the whole CSN family will be in my prayers tonight. It feels so good to pray.
  • janderson1964
    janderson1964 CSN Member Posts: 2,215 Member
    #35
    pete43lost_at_sea said:

    thanks gail, judy and pmac
    so I went to mass today and prayed, amazing god knows all these languages.
    I am off to have doctor vogel treatment tomorrow, I hope this works on my tumours.
    Its going to be a real big day, infusions start 5.30am . I will update you guys when I am on the other side. I have my first hyperthermia tuesday as well.

    hugs,
    Pete

    You are in my prayers each
    You are in my prayers each and every morning
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #36
    janderson1964 said:

    You are in my prayers each
    You are in my prayers each and every morning

    thanks jeff and janie
    our wonderful god spans the planet and beyond and the universe between our cells.
    I prayed heaps during the day, between the mri, the chemo embolisation of my peritoneal mets, of the post op ct with contrast. I got a long way to go, we all do.

    but for the record the no chemo hippie is a happy convert. but my chemo is low dose and its been directly injected into each of the peritoneal mets. now thats fancy smancy. something a bit different to keep this board a place of interesting new age therapies.

    whats more important the prayerful peaceful mind body meditation or doctor vogel therapies.

    my dearest friends, time will tell ? I synergy I think.

    http://petertrayhurn.blogspot.de/2012/10/first-vogel-treatment-at-frankfurt-uni.html

    hugs,
    Pete

    ps I had a chocolate biscuit after the procedure and I survived that as well! go figure! of course sugar is bad, but lets no fight that one out.

    pps its sad but I was praying on the table, its all done under local, I remember roger, lisa, blake, kerry and all my none csn friends who have passed. My pryers were emotional but positive.

    we are a great community, i just wish you all had better spelling and grammar, but life is full of imperfection. My example being proof of that.
  • pokismom
    pokismom Member Posts: 153
    #37
    Crossing my fingers
    Hi Pete,
    I hardly post just lurk every once in a while. I am doing the folfiri avastin thing but have also doing some immunology in Japan, I guess we're not that far. I go back to japan after I'm better from my chemotherapy. I just did two and should be back at the end of the month for another. I'd like to keep updated on what you are doing, I'm always looking for options.
    Good luck and keep up the great attitude.
    Aloha
    Donna
  • pokismom
    pokismom Member Posts: 153
    #38
    Crossing my fingers
    Hi Pete,
    I hardly post just lurk every once in a while. I am doing the folfiri avastin thing but have also doing some immunology in Japan, I guess we're not that far. I go back to japan after I'm better from my chemotherapy. I just did two and should be back at the end of the month for another. I'd like to keep updated on what you are doing, I'm always looking for options.
    Good luck and keep up the great attitude.
    Aloha
    Donna
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #39
    pokismom said:

    Crossing my fingers
    Hi Pete,
    I hardly post just lurk every once in a while. I am doing the folfiri avastin thing but have also doing some immunology in Japan, I guess we're not that far. I go back to japan after I'm better from my chemotherapy. I just did two and should be back at the end of the month for another. I'd like to keep updated on what you are doing, I'm always looking for options.
    Good luck and keep up the great attitude.
    Aloha
    Donna

    thanks Donna and my first hyperthermia
    Dear Donna,
    I am grateful for my attitude, its evolved as I have aged on our wonderful forum, this place where we care and share and aim to live well.

    immunotherapy in japan sounds interesting ........... tell me more when you can. I am having stem cells here, photo phoreece how ever they spell it. they take out 300cc blood and pass it under UV light i think. its something they do here, i have to read about it some more.

    so now I just had my first hyperthermia fullbody 39.3 for about an hour, I was pretty hot.
    it was about 15 hours after the my localised chemo, they want your core body temp raised within 24 hours chemo get the synergy.

    feeling really relaxed after hythermeria. I am diong the therapies I have researched and dreamed of. I am optimistic about my care here and my future. I will simply have the best future I have access to and that god is kind enough to deliver. of course I can help a little, but as I play the stage 4 game for real now I have offloaded the heavy duty medical care to my german medical team at the clinic.

    my legs and fingers are crossed for you also and for us all. Its a dam hard illness, but it is problem that can be solved, we can find a way to pevail, but god its had work.

    hugs,
    Pete
  • pete43lost_at_sea
    pete43lost_at_sea CSN Member Posts: 3,900 Member
    #40
    pokismom said:

    Crossing my fingers
    Hi Pete,
    I hardly post just lurk every once in a while. I am doing the folfiri avastin thing but have also doing some immunology in Japan, I guess we're not that far. I go back to japan after I'm better from my chemotherapy. I just did two and should be back at the end of the month for another. I'd like to keep updated on what you are doing, I'm always looking for options.
    Good luck and keep up the great attitude.
    Aloha
    Donna

    thanks Donna and my first hyperthermia
    Dear Donna,
    I am grateful for my attitude, its evolved as I have aged on our wonderful forum, this place where we care and share and aim to live well.

    immunotherapy in japan sounds interesting ........... tell me more when you can. I am having stem cells here, photo phoreece how ever they spell it. they take out 300cc blood and pass it under UV light i think. its something they do here, i have to read about it some more.

    so now I just had my first hyperthermia fullbody 39.3 for about an hour, I was pretty hot.
    it was about 15 hours after the my localised chemo, they want your core body temp raised within 24 hours chemo get the synergy.

    feeling really relaxed after hythermeria. I am diong the therapies I have researched and dreamed of. I am optimistic about my care here and my future. I will simply have the best future I have access to and that god is kind enough to deliver. of course I can help a little, but as I play the stage 4 game for real now I have offloaded the heavy duty medical care to my german medical team at the clinic.

    my legs and fingers are crossed for you also and for us all. Its a dam hard illness, but it is problem that can be solved, we can find a way to pevail, but god its had work.

    hugs,
    Pete
  • pokismom
    pokismom Member Posts: 153
    #41
    pete43lost_at_sea said:

    thanks Donna and my first hyperthermia
    Dear Donna,
    I am grateful for my attitude, its evolved as I have aged on our wonderful forum, this place where we care and share and aim to live well.

    immunotherapy in japan sounds interesting ........... tell me more when you can. I am having stem cells here, photo phoreece how ever they spell it. they take out 300cc blood and pass it under UV light i think. its something they do here, i have to read about it some more.

    so now I just had my first hyperthermia fullbody 39.3 for about an hour, I was pretty hot.
    it was about 15 hours after the my localised chemo, they want your core body temp raised within 24 hours chemo get the synergy.

    feeling really relaxed after hythermeria. I am diong the therapies I have researched and dreamed of. I am optimistic about my care here and my future. I will simply have the best future I have access to and that god is kind enough to deliver. of course I can help a little, but as I play the stage 4 game for real now I have offloaded the heavy duty medical care to my german medical team at the clinic.

    my legs and fingers are crossed for you also and for us all. Its a dam hard illness, but it is problem that can be solved, we can find a way to pevail, but god its had work.

    hugs,
    Pete

    Interesting
    I too had to give blood, think only 20cc, they divided into six and separated the white and red cells, then boost the lymphocytes and they put it back after chemotherapy. I always am curious about hyperthermia, I have one of those mats that heat up to 165 degrees, with infrared heat. But I cannot use it in conjunction with my chemo because of dehydration. I have a hard time staying hydrated as it is so I usually wait a couple of days after my chemo to use it, I sleep on it every nite after, I love how you feel on it, nothing like heat to make your body feel better.
    Thanks Pete
    Donna

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