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ccRcc diagnosed 08/03/2012

Joe_fh
Joe_fh Member Posts: 50
edited October 2012 in Kidney Cancer #1
Hello. I have been reading the posts here for a few weeks as I try to get a handle on this whole Renal Cell Carcinoma thing.

I was diagnosed August 3rd with a large mass on my left Kidney 10cm, and ever since then it's been a confusing ride of tests, guesses, and assumptions. I have been trying to learn everything I can about this disease. It's not looking pretty from the Internet reads.

It appears that the cancer is restricted to the renal area. The PET Scan came back only showing that left kidney. The Doctor "seemed" to be happy with that scan result, but to be honest, he does not say much.

They determined they need to get that sucker out of there, and I am scheduled for a radical kidney removal tomorrow morning 11:00 AM. As I understand it, the game plan is to do it with laproscopic surgery, unless a condition on the fly mandates open surgery.

Frankly I am terrified, but put on the "no problem face" in front of the kids. Being a single Dad is hard enough without this complication. Not sure if I am more worried for me or for them. Probably both.

Since Dads are not suppose to whine in front of their kids, I guess I am doing my whining on here.
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Comments

  • Digger95
    Digger95 Member Posts: 59
    New Kidney Diagnosis
    Joe,

    Feel free to whine, ****, moan, complain, scream at the heavens, or whatever else you need to do. That's what we're here for! Good luck with the surgery tomorrow and be sure to check back when you can and let us know how you are doing. If they end up doing a full open surgery, just know that it was the best option for you and trust them to make the right decision. That's the surgery I had and I'm doing great twelve years out.

    Ask any questions you need to... the folks on this forum are very caring and knowledgeable.

    Jim
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    A burden shared
    And here is a good place to do it. Good luck tomorrow. Take the pain meds on schedule, expect a couple of rough days. Start moving and taking on plenty of fluids as soon as is feasible. Report back here as soon as you feel up to it and collect your spurs. Not long now to have your Club membership confirmed.
  • ourfriendjohn
    ourfriendjohn Member Posts: 72

    A burden shared
    And here is a good place to do it. Good luck tomorrow. Take the pain meds on schedule, expect a couple of rough days. Start moving and taking on plenty of fluids as soon as is feasible. Report back here as soon as you feel up to it and collect your spurs. Not long now to have your Club membership confirmed.

    Best wishes
    Joe,

    Hope things go smoothly. Know that you have a group of friends here who will be thinking of you and anxiously awaiting to hear from you afterwards. Like Texas_wedge said, get plenty of fluids and get moving as soon as possible. Welcome to the club.

    John
  • love_of_my_life
    love_of_my_life Member Posts: 77
    You can do this!
    My wife had the same surgery exactly one week ago. The first couple of days are tough, but not dreadful. I would say she is almost 60% today just a bit short on energy.

    You are in our prayers and you WILL get through this. I know exactly how you are feeling and its very easy to get into a negative state. You have every right to whine BTW.

    Tom
  • alice124
    alice124 Member Posts: 896
    New Diagnosis
    You've earned the right to be terrified and whiney, but you'll be fine. Those kids will get you through! We're here for you too and promise to get you through this ordeal. Godspeed.
  • garym
    garym Member Posts: 1,647
    Good luck tomorrow...
    Hi Joe,

    What you are feeling is all completely normal and I'll bet getting it off your chest has made you feel a bit better all ready. We understand and we're here for whatever support you need, even if its just some place to vent. There are many members here with tumors larger than yours that are doing fine and you are going to do just fine as well. Your kids will be your strength and you are about to learn that they are stronger than you think they are. Very soon this will all be behind you and you can get back to the important things of life. Let us know how things turn out when you can.

    Good luck and Godspeed,

    Gary
  • Joe_fh
    Joe_fh Member Posts: 50
    Appreciated
    Thank you all for the words of encouragement. To be perfectly honest, I needed them.

    I am happy to have found this place, it's a far cry better than so many of the doom and gloom web sites I have stumbled across since I learned of this disease.

    I have to be checked into the VA Medical Center at 9:00 am for surgery at 11, so this is likely to be a very long night of nerves. I spent most of the day working, and that helped keep my mind off it. But sooner or later night falls and that is the time your imagination weights in on the what-ifs, and how-comes. But I would guess you all know these things already.

    I am still waiting for someone jump up to say April Fools, but then I realize it's August. It's still kinda surreal to move from discovery to surgery in not quite 30 days. Does that rapid progression seem normal/common to you folks?

    And even after getting over the surgical hump, I understand it's just the beginning of the journey as you wait on the pathology report to determine type and grade which defines just how far up the screwed meter you push the needle. Perhaps that is a bad way to phrase it, but I am attempting to keep some semblance of humor. There is so much I don't know yet.

    And at this point I am apparently rambling, so I should stop and simply say.. Thanks for the encouragement folks.
  • Digger95
    Digger95 Member Posts: 59
    Joe_fh said:

    Appreciated
    Thank you all for the words of encouragement. To be perfectly honest, I needed them.

    I am happy to have found this place, it's a far cry better than so many of the doom and gloom web sites I have stumbled across since I learned of this disease.

    I have to be checked into the VA Medical Center at 9:00 am for surgery at 11, so this is likely to be a very long night of nerves. I spent most of the day working, and that helped keep my mind off it. But sooner or later night falls and that is the time your imagination weights in on the what-ifs, and how-comes. But I would guess you all know these things already.

    I am still waiting for someone jump up to say April Fools, but then I realize it's August. It's still kinda surreal to move from discovery to surgery in not quite 30 days. Does that rapid progression seem normal/common to you folks?

    And even after getting over the surgical hump, I understand it's just the beginning of the journey as you wait on the pathology report to determine type and grade which defines just how far up the screwed meter you push the needle. Perhaps that is a bad way to phrase it, but I am attempting to keep some semblance of humor. There is so much I don't know yet.

    And at this point I am apparently rambling, so I should stop and simply say.. Thanks for the encouragement folks.

    Diagnosis to surgery time...
    Joe,

    I went from diagnosis to operating table in less than a week. My nephrologist didn't mess around and in hindsight I am very glad for that because I didn't have much time to sit around and worry. You'll do great tomorrow, and we'll all be thinking of you.

    Jim
  • donna_lee
    donna_lee Member Posts: 1,018
    alice124 said:

    New Diagnosis
    You've earned the right to be terrified and whiney, but you'll be fine. Those kids will get you through! We're here for you too and promise to get you through this ordeal. Godspeed.

    Hi Joe
    No one or no doc can say this is an easy surgery. It's scary. Lap opposed to open is easier on the body, but recovery does take time. Please allow the time to heal...physically, emotionally, and however else you need.
    From the physical standpoint, muscles will be weaker; you start with two kidneys (one of which is not functioning adequately) and end up with one that has to do it all. Watch your salt and weight. And don't be afraid to be put on blood pressure meds if an internist prescribes it.
    Share with your kids what is age appropriate. They will understand. And let them know you want to get better so you can spend more time with them; and that's why you need them to help you now.
    Your tumor is/was in the size of a medium baking potato. I've been there-6 years ago-and came thru it.
    Hang in there and we're here to listen.
    Donna
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    donna_lee said:

    Hi Joe
    No one or no doc can say this is an easy surgery. It's scary. Lap opposed to open is easier on the body, but recovery does take time. Please allow the time to heal...physically, emotionally, and however else you need.
    From the physical standpoint, muscles will be weaker; you start with two kidneys (one of which is not functioning adequately) and end up with one that has to do it all. Watch your salt and weight. And don't be afraid to be put on blood pressure meds if an internist prescribes it.
    Share with your kids what is age appropriate. They will understand. And let them know you want to get better so you can spend more time with them; and that's why you need them to help you now.
    Your tumor is/was in the size of a medium baking potato. I've been there-6 years ago-and came thru it.
    Hang in there and we're here to listen.
    Donna

    Hi Joe
    Donna, your posts are as good as ever - a true pleasure to read.
  • icemantoo
    icemantoo Member Posts: 3,358 **
    Digger95 said:

    Diagnosis to surgery time...
    Joe,

    I went from diagnosis to operating table in less than a week. My nephrologist didn't mess around and in hindsight I am very glad for that because I didn't have much time to sit around and worry. You'll do great tomorrow, and we'll all be thinking of you.

    Jim

    Welcome
    Joe,

    Welcome to our club which nobody asks to join. Although I had it relatively easy with a Stage i diagnosis and no problems over the years there are so many on this board doing well with similar diagnoses to yoursefl that you should be able to here from those in your situation. In fact a number of them have greated you as well. Good luck on your surgery and recovery and may they be uneventful as well. My Dr. wrote on my surgical or dischrge summary that I was no longer in pain. Hah! A little pain however is required for your memborship.


    Icemantoo
  • Bubbs21
    Bubbs21 Member Posts: 47
    icemantoo said:

    Welcome
    Joe,

    Welcome to our club which nobody asks to join. Although I had it relatively easy with a Stage i diagnosis and no problems over the years there are so many on this board doing well with similar diagnoses to yoursefl that you should be able to here from those in your situation. In fact a number of them have greated you as well. Good luck on your surgery and recovery and may they be uneventful as well. My Dr. wrote on my surgical or dischrge summary that I was no longer in pain. Hah! A little pain however is required for your memborship.


    Icemantoo

    Good luck Joe
    Wishing you all the best tomorrow and with your recovery. Let us know how you are doing.

    I am glad you can get it out so quickly. Before you know it you will be back with your kids and planning for other life events....godspeed.
  • foxhd
    foxhd Member Posts: 3,181
    Bubbs21 said:

    Good luck Joe
    Wishing you all the best tomorrow and with your recovery. Let us know how you are doing.

    I am glad you can get it out so quickly. Before you know it you will be back with your kids and planning for other life events....godspeed.

    stay strong for the kids
    Good luck Joe. As you said, stay strong for the kids. It is not easy, but they are counting on you. Gee, no pressure there. Going from diagnosis to surgery so quickly is the way to go. I also had mine within a few days of diagnosis. You can spend your energy on getting better. And not spend your energy worrying about it for weeks. Your kids will be happy to help. If not, we can send Gary or Paula to do laundry.
  • James1980
    James1980 Member Posts: 10
    Hi!
    I was/am in much the same position as you. I am still waiting for surgery (September 12th.) I stumbled onto this site, just like you, and found the same comforting words from the same people. They truly are a great group.

    My prayers are with you, tonight and always!

    God bless you!
  • Eliezer2
    Eliezer2 Member Posts: 85

    A burden shared
    And here is a good place to do it. Good luck tomorrow. Take the pain meds on schedule, expect a couple of rough days. Start moving and taking on plenty of fluids as soon as is feasible. Report back here as soon as you feel up to it and collect your spurs. Not long now to have your Club membership confirmed.

    A joke for Texas Wedge
    Since the discussion boards here sometimes carry jokes to keep the spirits up, I just thought I would share a really bad joke, one I was just told that might appeal to our warped sense of humor. I personally thought it was hilarious.

    A man comes in to see his MD and the doc says I am afraid I have some bad news for you. You have both cancer and Alzheimer's Disease.

    The patient replies, well at least I do not have cancer.
  • garym
    garym Member Posts: 1,647
    Eliezer2 said:

    A joke for Texas Wedge
    Since the discussion boards here sometimes carry jokes to keep the spirits up, I just thought I would share a really bad joke, one I was just told that might appeal to our warped sense of humor. I personally thought it was hilarious.

    A man comes in to see his MD and the doc says I am afraid I have some bad news for you. You have both cancer and Alzheimer's Disease.

    The patient replies, well at least I do not have cancer.

    Good one...
    I hope its ok that I laughed too.
  • Joe_fh
    Joe_fh Member Posts: 50
    It's done
    Just going to manage a few words here. I am at home, still experiencing a lot of pain, but I did indeed survive. I was released around noon and after the most bumpy car ride I believe I ever had - I am in my own bedroom.

    Surgery came off well, no complications. Doctors felt they got it all, no pathology yet. Very large ugly scar.

    I will try to log back on tomorrow - perhaps the pain will be down a bit by them.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    Joe_fh said:

    It's done
    Just going to manage a few words here. I am at home, still experiencing a lot of pain, but I did indeed survive. I was released around noon and after the most bumpy car ride I believe I ever had - I am in my own bedroom.

    Surgery came off well, no complications. Doctors felt they got it all, no pathology yet. Very large ugly scar.

    I will try to log back on tomorrow - perhaps the pain will be down a bit by them.

    Home!
    Good for you Joe - well done. Do you have enough help at home to cope with your situation?

    If you feel up to it, you can dig aroung in the threads here for useful tips on the practicalities of living in the early period of recovery. In fact, you might find it worthwhile asking for suggestions for dealing with any problems you have (both practical and psychological - if you have any). there's a lot of valuable experience available here and an infinite fund of goodwill you can tap into. Just a thought.

    As iceman always says, it's tough at first but every day gets better.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    Joe_fh said:

    It's done
    Just going to manage a few words here. I am at home, still experiencing a lot of pain, but I did indeed survive. I was released around noon and after the most bumpy car ride I believe I ever had - I am in my own bedroom.

    Surgery came off well, no complications. Doctors felt they got it all, no pathology yet. Very large ugly scar.

    I will try to log back on tomorrow - perhaps the pain will be down a bit by them.

    Home!
    [Double-posting, drat!]
  • dhs1963
    dhs1963 Member Posts: 513
    Joe_fh said:

    It's done
    Just going to manage a few words here. I am at home, still experiencing a lot of pain, but I did indeed survive. I was released around noon and after the most bumpy car ride I believe I ever had - I am in my own bedroom.

    Surgery came off well, no complications. Doctors felt they got it all, no pathology yet. Very large ugly scar.

    I will try to log back on tomorrow - perhaps the pain will be down a bit by them.

    Welcome Back! Nice to see you are out of the hospital quickly
    Home is so much nicer than hospitals. At least at home, I was able to watch my Beloved Washington Nationals (if it weren't for an off day, I might not have found the cancer).

    Definitely look up what to do to help yourself. I have three pieces of advice: 1) Do not move quickly, 2) walk as much as you can, and 3) with any fever, call the Dr immediately. On the latter, I waited one day (four weeks out)...I thought I had a virus. Cost me three more weeks of recovery.

    **** Luck!
  • Joe_fh
    Joe_fh Member Posts: 50
    Can we talk pain management?
    I almost hesitate to ask this after reading so many extensive cases on these sections. If I am being whimpy, just say so.

    Just had my kidney removal this past Friday. Not being any kind of an expert, and all things considered, I seem to have lucked out with a dang good doctor and set of early results.

    I have three incisions, Two fairly small ones top and bottom horizontally, and a longer one vertical say about 5 inches. I handled post op pretty well and was walking less than 12 hours after the surgery started. The second day was a bit tougher when I had an RN suggest I should "tough it out". My dumb butt thought "tough it out" meant wait until I couldn't handle it before I asked for help. Bad choice.

    At any rate, Night shift came in and an angel put me on a pain management schedule that seemed to work for me. Something called Oxycodone 5mg, followed 2 hours later with Extra strength Tylenol. Alternate back and forth.

    I got sent home Sunday.

    Now the problem I am having is that it's just not doing the job. By the time I alternate it's wore off to a point that pain gets pretty bad before a new dose of Oxycodone. So what I tried to do is add the Tylenol each 2 hours which does stop the severe pain. I know you can't play with that narcotic stuff, so I figured increasing the Tylenol dose was the safer play. This is taking the edge off.

    But now I read that you're not supposed to exceed 6 doses of the Extra Strength Tylenol in a single day. Therefore if I stay at this solution I am going to exceed that quite a bit.

    So my question becomes what have other people done to get through the early stages of recovery? Is there another OTC that can be safely added to the mix? I live WAY out in the country and a trip in to the VA center, while doable, isn't really my best pick. The interstate ride alone made for a seriously bad ride home experience. (Do you guys know how many pot holes exist along 250 miles of travel? I do. Repeating it on purpose would seem to be in "glutton for punishment" territory.)
  • dhs1963
    dhs1963 Member Posts: 513
    Joe_fh said:

    Can we talk pain management?
    I almost hesitate to ask this after reading so many extensive cases on these sections. If I am being whimpy, just say so.

    Just had my kidney removal this past Friday. Not being any kind of an expert, and all things considered, I seem to have lucked out with a dang good doctor and set of early results.

    I have three incisions, Two fairly small ones top and bottom horizontally, and a longer one vertical say about 5 inches. I handled post op pretty well and was walking less than 12 hours after the surgery started. The second day was a bit tougher when I had an RN suggest I should "tough it out". My dumb butt thought "tough it out" meant wait until I couldn't handle it before I asked for help. Bad choice.

    At any rate, Night shift came in and an angel put me on a pain management schedule that seemed to work for me. Something called Oxycodone 5mg, followed 2 hours later with Extra strength Tylenol. Alternate back and forth.

    I got sent home Sunday.

    Now the problem I am having is that it's just not doing the job. By the time I alternate it's wore off to a point that pain gets pretty bad before a new dose of Oxycodone. So what I tried to do is add the Tylenol each 2 hours which does stop the severe pain. I know you can't play with that narcotic stuff, so I figured increasing the Tylenol dose was the safer play. This is taking the edge off.

    But now I read that you're not supposed to exceed 6 doses of the Extra Strength Tylenol in a single day. Therefore if I stay at this solution I am going to exceed that quite a bit.

    So my question becomes what have other people done to get through the early stages of recovery? Is there another OTC that can be safely added to the mix? I live WAY out in the country and a trip in to the VA center, while doable, isn't really my best pick. The interstate ride alone made for a seriously bad ride home experience. (Do you guys know how many pot holes exist along 250 miles of travel? I do. Repeating it on purpose would seem to be in "glutton for punishment" territory.)

    I believe Oxycodone has Tylenol
    So, you are already getting the Tylenol doses. The thing is, more than six per day can hurt your liver.

    The only real option is to increase the dose of Narcotics, but that will make you a zombie, and there are risks of addiction.

    Unfortunately, pain is part of the process.

    You can't use ibuprofin because of bleading risks. I am not sure about the other Non-steriodal anti-inflamitories and bleeding , but they are bad for the kidney.

    Good luck!
  • constantprayer
    constantprayer Member Posts: 18
    Joe_fh said:

    Can we talk pain management?
    I almost hesitate to ask this after reading so many extensive cases on these sections. If I am being whimpy, just say so.

    Just had my kidney removal this past Friday. Not being any kind of an expert, and all things considered, I seem to have lucked out with a dang good doctor and set of early results.

    I have three incisions, Two fairly small ones top and bottom horizontally, and a longer one vertical say about 5 inches. I handled post op pretty well and was walking less than 12 hours after the surgery started. The second day was a bit tougher when I had an RN suggest I should "tough it out". My dumb butt thought "tough it out" meant wait until I couldn't handle it before I asked for help. Bad choice.

    At any rate, Night shift came in and an angel put me on a pain management schedule that seemed to work for me. Something called Oxycodone 5mg, followed 2 hours later with Extra strength Tylenol. Alternate back and forth.

    I got sent home Sunday.

    Now the problem I am having is that it's just not doing the job. By the time I alternate it's wore off to a point that pain gets pretty bad before a new dose of Oxycodone. So what I tried to do is add the Tylenol each 2 hours which does stop the severe pain. I know you can't play with that narcotic stuff, so I figured increasing the Tylenol dose was the safer play. This is taking the edge off.

    But now I read that you're not supposed to exceed 6 doses of the Extra Strength Tylenol in a single day. Therefore if I stay at this solution I am going to exceed that quite a bit.

    So my question becomes what have other people done to get through the early stages of recovery? Is there another OTC that can be safely added to the mix? I live WAY out in the country and a trip in to the VA center, while doable, isn't really my best pick. The interstate ride alone made for a seriously bad ride home experience. (Do you guys know how many pot holes exist along 250 miles of travel? I do. Repeating it on purpose would seem to be in "glutton for punishment" territory.)

    Talking about pain management!
    Joe -

    Your incisions sound like mine. I had my surgery two weeks ago. In my case the pain management made me sick. They put me on dilaudid as soon as I was out of surgery and 24 hours later I was as sick as a dog. I knew something was wrong, but the nurse kept telling me "don't worry, this is normal". Once the doctor realized what was happening he took me off dilaudid and put me on tylenol. I have been on tylenol ever since. In the beginning I was taking one 500 mg tylenol every 4 hours and now it has slowed down to one every 8 hours. The only problem is that I have not had a good night's sleep since I got home. I go to the doctor today to get my staples removed and I am considering asking for something that will help me sleep. I don't know if that's a good idea or not.

    Anyway... give yourself a break! You just had major surgery and you know your body better than anyone else. If you are hurting... please tell the doctor so he can help you.

    Blessings and speedy healing,

    Cheryl
  • LaurenM
    LaurenM Member Posts: 1
    Joe_fh said:

    Can we talk pain management?
    I almost hesitate to ask this after reading so many extensive cases on these sections. If I am being whimpy, just say so.

    Just had my kidney removal this past Friday. Not being any kind of an expert, and all things considered, I seem to have lucked out with a dang good doctor and set of early results.

    I have three incisions, Two fairly small ones top and bottom horizontally, and a longer one vertical say about 5 inches. I handled post op pretty well and was walking less than 12 hours after the surgery started. The second day was a bit tougher when I had an RN suggest I should "tough it out". My dumb butt thought "tough it out" meant wait until I couldn't handle it before I asked for help. Bad choice.

    At any rate, Night shift came in and an angel put me on a pain management schedule that seemed to work for me. Something called Oxycodone 5mg, followed 2 hours later with Extra strength Tylenol. Alternate back and forth.

    I got sent home Sunday.

    Now the problem I am having is that it's just not doing the job. By the time I alternate it's wore off to a point that pain gets pretty bad before a new dose of Oxycodone. So what I tried to do is add the Tylenol each 2 hours which does stop the severe pain. I know you can't play with that narcotic stuff, so I figured increasing the Tylenol dose was the safer play. This is taking the edge off.

    But now I read that you're not supposed to exceed 6 doses of the Extra Strength Tylenol in a single day. Therefore if I stay at this solution I am going to exceed that quite a bit.

    So my question becomes what have other people done to get through the early stages of recovery? Is there another OTC that can be safely added to the mix? I live WAY out in the country and a trip in to the VA center, while doable, isn't really my best pick. The interstate ride alone made for a seriously bad ride home experience. (Do you guys know how many pot holes exist along 250 miles of travel? I do. Repeating it on purpose would seem to be in "glutton for punishment" territory.)

    Tylenol
    I had a left radical nephrectomy. After that I was told that I could no longer take ibprofin or asprin. Tylenol was the only pain killer I could take (and tylenol mixes of course). My tumor was quite a bit larger so my insicion was from flank to flank. I personally prefered to stay on top of my pain because it's way worse trying to play catch up.
  • alice124
    alice124 Member Posts: 896
    Joe_fh said:

    Can we talk pain management?
    I almost hesitate to ask this after reading so many extensive cases on these sections. If I am being whimpy, just say so.

    Just had my kidney removal this past Friday. Not being any kind of an expert, and all things considered, I seem to have lucked out with a dang good doctor and set of early results.

    I have three incisions, Two fairly small ones top and bottom horizontally, and a longer one vertical say about 5 inches. I handled post op pretty well and was walking less than 12 hours after the surgery started. The second day was a bit tougher when I had an RN suggest I should "tough it out". My dumb butt thought "tough it out" meant wait until I couldn't handle it before I asked for help. Bad choice.

    At any rate, Night shift came in and an angel put me on a pain management schedule that seemed to work for me. Something called Oxycodone 5mg, followed 2 hours later with Extra strength Tylenol. Alternate back and forth.

    I got sent home Sunday.

    Now the problem I am having is that it's just not doing the job. By the time I alternate it's wore off to a point that pain gets pretty bad before a new dose of Oxycodone. So what I tried to do is add the Tylenol each 2 hours which does stop the severe pain. I know you can't play with that narcotic stuff, so I figured increasing the Tylenol dose was the safer play. This is taking the edge off.

    But now I read that you're not supposed to exceed 6 doses of the Extra Strength Tylenol in a single day. Therefore if I stay at this solution I am going to exceed that quite a bit.

    So my question becomes what have other people done to get through the early stages of recovery? Is there another OTC that can be safely added to the mix? I live WAY out in the country and a trip in to the VA center, while doable, isn't really my best pick. The interstate ride alone made for a seriously bad ride home experience. (Do you guys know how many pot holes exist along 250 miles of travel? I do. Repeating it on purpose would seem to be in "glutton for punishment" territory.)

    pain management
    Pain management is important in your healing, and it needs to be managed effectively. Don't hesitate to tell your doctor you're still experiencing pain, and my guess is he'll increase your dosage of the oxycodone or add a pain patch to your maintenance regime. Suffering it out--as my husband had a tendency to do--does more harm than good. As far as becoming a zombie, John now takes 20 mg twice a day and it does not provide him a high or buzz at all; it simply relieves pain. He drives, he communicates effectively, he appears perfectly normal.

    Good luck to you.
  • Joe_fh
    Joe_fh Member Posts: 50
    Update
    Hi Folks, wanted to drop a note on my situation.

    I spoke with my doctor this morning, they apparently have got my pathology report back. When I spoke with him, he was out of pocket and did not have the report in front of him, but the gist is that the cancer was classified as IIIa due to size of tumor and some involvement with the Renal Vein. Since he did not have the report in hand, I did not get details such as type or grade.

    Overall, he seemed pretty upbeat about my situation. No evidence of Metastatic cancer, he said the Lymph nodes showed no evidence either. He also said that the pathology report did show that the margins were clear and he was confident that we got the whole thing.

    At this point, they plan no follow up treatment other than to closely watch for any new growth with initial quarterly scans. They did set up an appointment for me to come in and speak with Urology and Onology (sp?) to provide greater detail on all the results in October.

    Surgery recovery is not going bad, I have cut my pain meds down substantially and seem to be tolerating the remaining soreness okay. Still hurts to Cough or Sneeze, but otherwise the pain seems to have retreated back to a point that seems to be more of a dull awareness rather than anything really tough.

    His assistant whom I know personally, confided that her impression was (that the doctor felt) that I got lucky. With a tumor of that size, they would have expected to see more invasion, but did not. So I am feeling pretty good at the moment emotionally. I am not under any illusions, this was a serious matter that, for now, seems to be well managed. Just have to hope it stays that way.
  • adman
    adman Member Posts: 336
    Joe_fh said:

    Update
    Hi Folks, wanted to drop a note on my situation.

    I spoke with my doctor this morning, they apparently have got my pathology report back. When I spoke with him, he was out of pocket and did not have the report in front of him, but the gist is that the cancer was classified as IIIa due to size of tumor and some involvement with the Renal Vein. Since he did not have the report in hand, I did not get details such as type or grade.

    Overall, he seemed pretty upbeat about my situation. No evidence of Metastatic cancer, he said the Lymph nodes showed no evidence either. He also said that the pathology report did show that the margins were clear and he was confident that we got the whole thing.

    At this point, they plan no follow up treatment other than to closely watch for any new growth with initial quarterly scans. They did set up an appointment for me to come in and speak with Urology and Onology (sp?) to provide greater detail on all the results in October.

    Surgery recovery is not going bad, I have cut my pain meds down substantially and seem to be tolerating the remaining soreness okay. Still hurts to Cough or Sneeze, but otherwise the pain seems to have retreated back to a point that seems to be more of a dull awareness rather than anything really tough.

    His assistant whom I know personally, confided that her impression was (that the doctor felt) that I got lucky. With a tumor of that size, they would have expected to see more invasion, but did not. So I am feeling pretty good at the moment emotionally. I am not under any illusions, this was a serious matter that, for now, seems to be well managed. Just have to hope it stays that way.

    Great news....

    God Bless! Stay strong and continue to kick arse.

    ~M
  • garym
    garym Member Posts: 1,647
    Joe_fh said:

    Update
    Hi Folks, wanted to drop a note on my situation.

    I spoke with my doctor this morning, they apparently have got my pathology report back. When I spoke with him, he was out of pocket and did not have the report in front of him, but the gist is that the cancer was classified as IIIa due to size of tumor and some involvement with the Renal Vein. Since he did not have the report in hand, I did not get details such as type or grade.

    Overall, he seemed pretty upbeat about my situation. No evidence of Metastatic cancer, he said the Lymph nodes showed no evidence either. He also said that the pathology report did show that the margins were clear and he was confident that we got the whole thing.

    At this point, they plan no follow up treatment other than to closely watch for any new growth with initial quarterly scans. They did set up an appointment for me to come in and speak with Urology and Onology (sp?) to provide greater detail on all the results in October.

    Surgery recovery is not going bad, I have cut my pain meds down substantially and seem to be tolerating the remaining soreness okay. Still hurts to Cough or Sneeze, but otherwise the pain seems to have retreated back to a point that seems to be more of a dull awareness rather than anything really tough.

    His assistant whom I know personally, confided that her impression was (that the doctor felt) that I got lucky. With a tumor of that size, they would have expected to see more invasion, but did not. So I am feeling pretty good at the moment emotionally. I am not under any illusions, this was a serious matter that, for now, seems to be well managed. Just have to hope it stays that way.

    Update...
    Hi Joe,

    What you have heard so far sounds like very good news, I expect the full path report will confirm it. It sounds like you are managing the recovery process very well and you are maintaining a positive attitude, good job!! It won't be long before you are back to "normal".

    Hang in there,

    Gary
  • Joe_fh
    Joe_fh Member Posts: 50
    Joe_fh said:

    Update
    Hi Folks, wanted to drop a note on my situation.

    I spoke with my doctor this morning, they apparently have got my pathology report back. When I spoke with him, he was out of pocket and did not have the report in front of him, but the gist is that the cancer was classified as IIIa due to size of tumor and some involvement with the Renal Vein. Since he did not have the report in hand, I did not get details such as type or grade.

    Overall, he seemed pretty upbeat about my situation. No evidence of Metastatic cancer, he said the Lymph nodes showed no evidence either. He also said that the pathology report did show that the margins were clear and he was confident that we got the whole thing.

    At this point, they plan no follow up treatment other than to closely watch for any new growth with initial quarterly scans. They did set up an appointment for me to come in and speak with Urology and Onology (sp?) to provide greater detail on all the results in October.

    Surgery recovery is not going bad, I have cut my pain meds down substantially and seem to be tolerating the remaining soreness okay. Still hurts to Cough or Sneeze, but otherwise the pain seems to have retreated back to a point that seems to be more of a dull awareness rather than anything really tough.

    His assistant whom I know personally, confided that her impression was (that the doctor felt) that I got lucky. With a tumor of that size, they would have expected to see more invasion, but did not. So I am feeling pretty good at the moment emotionally. I am not under any illusions, this was a serious matter that, for now, seems to be well managed. Just have to hope it stays that way.

    Update +2
    When I spoke with the Doctor yesterday, I asked him to phone me back with the classification details. I have those now.

    T3aN0Mx

    Clear Cell - extraction size 12 cm - grade 3.

    Margins are confirmed clear.

    Now I don't know precisely what those numbers mean, but my gut (no pun intended) didn't like them very much.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    Joe_fh said:

    Update +2
    When I spoke with the Doctor yesterday, I asked him to phone me back with the classification details. I have those now.

    T3aN0Mx

    Clear Cell - extraction size 12 cm - grade 3.

    Margins are confirmed clear.

    Now I don't know precisely what those numbers mean, but my gut (no pun intended) didn't like them very much.

    Interpretation
    Joe, many members of our club have better classifications than yours, but quite a few of us must envy them. You knew your tumour was large but T3a (out of 4) isn't disastrous. Grade 3 (of 4)could be better but isn't a catastrophe. You're clear cell, which means most of the established facts and possible treatments apply to you. N0 is very good news since node involvement doesn't augur well. Mx is good and if it stays that way you're laughing.

    Since your margins are clear, there's a good chance that you'll go on to N0M0 status and NED. Keep us posted and keep visiting here if you find it worthwhile.