colostomy looming (stage 3 rectal cancer-may 23-for hubby). looking for encouragement, again!

Hi
I recommend the following book:

The Ostomy Book: Living Comfortably with Colostomies, Ileostomies, and Urostomies

Barbara Dorr Mullen and Kerry Anne McGinn RN BSN OCN


It was recommended by my ostomy nurse. It is an excellent source for the person just starting out. It was written by a mother who have an ostomy and her daughter who is an ostomy nurse. You may find it at your library, but definately on Amazon or perhaps at the local book store.

It covers types of ostomies, appliances, irrigation, and life style questions that may come up.

Living well with an ostomy is highly do-able. How long to get comfortable with it varies by person. I found that by the time I was recovered from surgery, I was managing very well.

The ostomy nurse who will do the marking for placement should also be a good resource for anything you or he may be concerned about.

Hope this helps,

Marie who loves kitties

colostomy
HI, I had mine done in April of 2011. I was 47.. I have a feeling the younger we are the easier it may be to get used to.. It did take a while to learn how the body works after the surgery.but once you get it down it is pretty easy.
I have a feeling irrigation is not to widely used today..it seems to have gone out of style. but yes you can switch between them from what I have read.. there are some great video on utube regarding the process. my nurse and dr.. don't seem so excited by it so I haven't investigated furter.
The appliances are so easy to use and work with there really should be no issue. And there are many to select from .. I use a Holister 2 piece system. and he will find what works best for him..
Jife will be fine.

Hi Mamalea...
My 53 year old husband is stage 4 and had colorectal resection surgery (LAR) last Jan. We knew there was the possibility of a temporary ileostomy before surgery but because of a complication, he had a colostomy. I remember telling him while he was recovering that he had a colostomy. I can't tell you how afraid I was and seeing the swollen stoma for the first time was a bit shocking for me too. I was so worried about how my husband would adjust...would he ever leave the house again and would he be self-conscious?

Well, I can't begin to tell you how smooth it has gone, for both of us. He had a wonderful ostomy nurse that helped us in every way. He tried a few products and found one that he is very happy with. He likes Hollister New Image closed pouch with filter. After a bowel movement, he just takes the pouch off, tosses it, and puts on a new pouch. He changes the wafer every 3-4 days. He has been out and about, gardening, driving, walking the dog, and he has no issue with the colostomy. His surgeon said that 6 months after the surgery, he will re-evaluate, and see if the colostomy can be reversed. My husband has said, that he does not know if he would want it reversed even if it is possible. His quality of life has improved so much after 7 months of living in the bathroom and afraid to leave the house for fear of not being close enough to a bathroom.

He hasn't gone swimming but I hear many people do. He also hasn't tried irrigation yet. I would like him to try but he says he is fine with the bag. He keeps a kit in his truck with his supplies just in case.

So, for us, it all happened so quickly that we really didn't have any time to think about it. Once we got the hang of cutting the wafer to fit the stoma, there has been no looking back. It became a part of life and we have both adjusted to with no qualms.

Take care,

Ellen