Songflower - Diane - update

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  • paris11
    paris11 Member Posts: 159
    daisy366 said:

    update received Sunday 2/26
    Just got this from Diane's husband, Jim. Please read info about blood clots and recommended medication. I am heartsick. Please pray for Diane and her family....
    Mary Ann

    "The stroke on top of the cancer has really put Diane in a rough spot. She is still unable to move her right arm or leg and she is very weak. She is not strong enough to tolerate aggressive physical therapy for the stroke or any more chemotherapy. We brought her home from the hospital last Friday and she is on hospice care now. Her speech is pretty good and she enjoys visitors.

    "Thank you for sending the link to the blog page where Diane’s online friends have posted messages to her. It does help to know what so many people are keeping her in their prayers. One thing that you might pass on to the ladies on the blog is to be very careful of the potential for strokes. Cancer patients in general are at higher risk of stroke. Diane had a pulmonary embolism several months ago and was taking Warfarin to decrease the risk of stroke but it didn’t work. The neurosurgeon that operated on Diane to try to clear the clot in her brain told me that he thinks that all cancer patients who are on blood thinners should be using Lovenox instead of Warfarin. If any of the ladies are taking Warfarin, they might consider talking to their doctor about Lovenox. It’s much more expensive than Warfarin and must be administered by injection instead of by taking a pill. However, Lovenox is much easier to regulate than Warfarin; it does not require frequent blood checks to determine if the therapeutic levels are OK; it does not impose the dietary restrictions that Warfarin does; and it apparently works better than Warfarin in cancer patients.

    "Regards,
    Jim "

    Dear Diane, Jim and family
    Dear Diane,

    I think of your beautiful face and your beautiful heart and your deep love for Jim and your family. I am so very sorry that you are having such a difficult time. You are so strong and you live with such grace and dignity.

    I continue to ask God to watch over you.

    My love,

    Connie
  • paris11
    paris11 Member Posts: 159
    daisy366 said:

    update received Sunday 2/26
    Just got this from Diane's husband, Jim. Please read info about blood clots and recommended medication. I am heartsick. Please pray for Diane and her family....
    Mary Ann

    "The stroke on top of the cancer has really put Diane in a rough spot. She is still unable to move her right arm or leg and she is very weak. She is not strong enough to tolerate aggressive physical therapy for the stroke or any more chemotherapy. We brought her home from the hospital last Friday and she is on hospice care now. Her speech is pretty good and she enjoys visitors.

    "Thank you for sending the link to the blog page where Diane’s online friends have posted messages to her. It does help to know what so many people are keeping her in their prayers. One thing that you might pass on to the ladies on the blog is to be very careful of the potential for strokes. Cancer patients in general are at higher risk of stroke. Diane had a pulmonary embolism several months ago and was taking Warfarin to decrease the risk of stroke but it didn’t work. The neurosurgeon that operated on Diane to try to clear the clot in her brain told me that he thinks that all cancer patients who are on blood thinners should be using Lovenox instead of Warfarin. If any of the ladies are taking Warfarin, they might consider talking to their doctor about Lovenox. It’s much more expensive than Warfarin and must be administered by injection instead of by taking a pill. However, Lovenox is much easier to regulate than Warfarin; it does not require frequent blood checks to determine if the therapeutic levels are OK; it does not impose the dietary restrictions that Warfarin does; and it apparently works better than Warfarin in cancer patients.

    "Regards,
    Jim "

    Dear Diane, Jim and family
    Dear Diane,

    I think of your beautiful face and your beautiful heart and your deep love for Jim and your family. I am so very sorry that you are having such a difficult time. You are so strong and you live with such grace and dignity.

    I continue to ask God to watch over you.

    My love,

    Connie
  • snowbird_11
    snowbird_11 Member Posts: 160
    daisy366 said:

    update received Sunday 2/26
    Just got this from Diane's husband, Jim. Please read info about blood clots and recommended medication. I am heartsick. Please pray for Diane and her family....
    Mary Ann

    "The stroke on top of the cancer has really put Diane in a rough spot. She is still unable to move her right arm or leg and she is very weak. She is not strong enough to tolerate aggressive physical therapy for the stroke or any more chemotherapy. We brought her home from the hospital last Friday and she is on hospice care now. Her speech is pretty good and she enjoys visitors.

    "Thank you for sending the link to the blog page where Diane’s online friends have posted messages to her. It does help to know what so many people are keeping her in their prayers. One thing that you might pass on to the ladies on the blog is to be very careful of the potential for strokes. Cancer patients in general are at higher risk of stroke. Diane had a pulmonary embolism several months ago and was taking Warfarin to decrease the risk of stroke but it didn’t work. The neurosurgeon that operated on Diane to try to clear the clot in her brain told me that he thinks that all cancer patients who are on blood thinners should be using Lovenox instead of Warfarin. If any of the ladies are taking Warfarin, they might consider talking to their doctor about Lovenox. It’s much more expensive than Warfarin and must be administered by injection instead of by taking a pill. However, Lovenox is much easier to regulate than Warfarin; it does not require frequent blood checks to determine if the therapeutic levels are OK; it does not impose the dietary restrictions that Warfarin does; and it apparently works better than Warfarin in cancer patients.

    "Regards,
    Jim "

    Thank you Mary Ann for
    Thank you Mary Ann for sharing this update. Diane's situation has been on my mind and I was concerned about her being able to manage any further treatment. My heart goes out to Diane and her family as they deal with this unfortunate turn of events. And how thoughtful of Jim to share the blood clot risks and treatment info of which many of us need to mindful.
    Annie
  • california_artist
    california_artist Member Posts: 816 Member
    daisy366 said:

    update received Sunday 2/26
    Just got this from Diane's husband, Jim. Please read info about blood clots and recommended medication. I am heartsick. Please pray for Diane and her family....
    Mary Ann

    "The stroke on top of the cancer has really put Diane in a rough spot. She is still unable to move her right arm or leg and she is very weak. She is not strong enough to tolerate aggressive physical therapy for the stroke or any more chemotherapy. We brought her home from the hospital last Friday and she is on hospice care now. Her speech is pretty good and she enjoys visitors.

    "Thank you for sending the link to the blog page where Diane’s online friends have posted messages to her. It does help to know what so many people are keeping her in their prayers. One thing that you might pass on to the ladies on the blog is to be very careful of the potential for strokes. Cancer patients in general are at higher risk of stroke. Diane had a pulmonary embolism several months ago and was taking Warfarin to decrease the risk of stroke but it didn’t work. The neurosurgeon that operated on Diane to try to clear the clot in her brain told me that he thinks that all cancer patients who are on blood thinners should be using Lovenox instead of Warfarin. If any of the ladies are taking Warfarin, they might consider talking to their doctor about Lovenox. It’s much more expensive than Warfarin and must be administered by injection instead of by taking a pill. However, Lovenox is much easier to regulate than Warfarin; it does not require frequent blood checks to determine if the therapeutic levels are OK; it does not impose the dietary restrictions that Warfarin does; and it apparently works better than Warfarin in cancer patients.

    "Regards,
    Jim "

    Diane
    It heartens me to learn that you are able to enjoy visitors and are hearing how much people are sending wishes of hope and healing your way. How very thoughtful of your husband to take time to reach out to us with information that could save one of us going through what you have. It is very much appreciated.

    You are as always in my heart and thoughts.

    Love, your friend,

    Claudia
  • RoseyR
    RoseyR Member Posts: 471

    Diane
    It heartens me to learn that you are able to enjoy visitors and are hearing how much people are sending wishes of hope and healing your way. How very thoughtful of your husband to take time to reach out to us with information that could save one of us going through what you have. It is very much appreciated.

    You are as always in my heart and thoughts.

    Love, your friend,

    Claudia

    We Love You, Diane

    We're so stricken to hear of this new crisis--and hope you are relatively comfortable and not in much pain.
    Thank goodness you can have visitors!

    Think of us as perpetual visitors: always wanting to peek in and know how you're doing, ever eavesdropping because we care.

    Love,
    Rosey
  • Tresia23
    Tresia23 Member Posts: 77
    daisy366 said:

    update received Sunday 2/26
    Just got this from Diane's husband, Jim. Please read info about blood clots and recommended medication. I am heartsick. Please pray for Diane and her family....
    Mary Ann

    "The stroke on top of the cancer has really put Diane in a rough spot. She is still unable to move her right arm or leg and she is very weak. She is not strong enough to tolerate aggressive physical therapy for the stroke or any more chemotherapy. We brought her home from the hospital last Friday and she is on hospice care now. Her speech is pretty good and she enjoys visitors.

    "Thank you for sending the link to the blog page where Diane’s online friends have posted messages to her. It does help to know what so many people are keeping her in their prayers. One thing that you might pass on to the ladies on the blog is to be very careful of the potential for strokes. Cancer patients in general are at higher risk of stroke. Diane had a pulmonary embolism several months ago and was taking Warfarin to decrease the risk of stroke but it didn’t work. The neurosurgeon that operated on Diane to try to clear the clot in her brain told me that he thinks that all cancer patients who are on blood thinners should be using Lovenox instead of Warfarin. If any of the ladies are taking Warfarin, they might consider talking to their doctor about Lovenox. It’s much more expensive than Warfarin and must be administered by injection instead of by taking a pill. However, Lovenox is much easier to regulate than Warfarin; it does not require frequent blood checks to determine if the therapeutic levels are OK; it does not impose the dietary restrictions that Warfarin does; and it apparently works better than Warfarin in cancer patients.

    "Regards,
    Jim "

    Loving thoughts to Diane and Jim
    Thank you Mary Ann for sharing this info. I imagine Diane you are relieved to be home in the care of your family and hospice team even with all that you are facing since the stroke. Love and good wishes to you both. Thank you Jim for sharing the information about Lovenox. You are very kind to be thinking of others when you have your hands full with your family. As Rosey said we too are visiting with Diane in this virtual world of our support community. Thinking of you at this tough but very special time, Georgia
  • kkstef
    kkstef Member Posts: 688
    daisy366 said:

    update received Sunday 2/26
    Just got this from Diane's husband, Jim. Please read info about blood clots and recommended medication. I am heartsick. Please pray for Diane and her family....
    Mary Ann

    "The stroke on top of the cancer has really put Diane in a rough spot. She is still unable to move her right arm or leg and she is very weak. She is not strong enough to tolerate aggressive physical therapy for the stroke or any more chemotherapy. We brought her home from the hospital last Friday and she is on hospice care now. Her speech is pretty good and she enjoys visitors.

    "Thank you for sending the link to the blog page where Diane’s online friends have posted messages to her. It does help to know what so many people are keeping her in their prayers. One thing that you might pass on to the ladies on the blog is to be very careful of the potential for strokes. Cancer patients in general are at higher risk of stroke. Diane had a pulmonary embolism several months ago and was taking Warfarin to decrease the risk of stroke but it didn’t work. The neurosurgeon that operated on Diane to try to clear the clot in her brain told me that he thinks that all cancer patients who are on blood thinners should be using Lovenox instead of Warfarin. If any of the ladies are taking Warfarin, they might consider talking to their doctor about Lovenox. It’s much more expensive than Warfarin and must be administered by injection instead of by taking a pill. However, Lovenox is much easier to regulate than Warfarin; it does not require frequent blood checks to determine if the therapeutic levels are OK; it does not impose the dietary restrictions that Warfarin does; and it apparently works better than Warfarin in cancer patients.

    "Regards,
    Jim "

    Dear Sweet Diane,
    I echo the comments of so many supporters who have posted on this board. Diane, I remember you so clearly several years ago when I "signed on" to this journey. Your posts were so calm, informative and sincere. I love your picture that you had posted here....you had such a peaceful look about you.

    I know you are busy sharing so many wonderful memories with your family...and I know Jim is keeping you under his watchful, caring eye.

    Thinking of all of you!

    Karen
  • Kaleena
    Kaleena Member Posts: 2,078 Member
    daisy366 said:

    update received Sunday 2/26
    Just got this from Diane's husband, Jim. Please read info about blood clots and recommended medication. I am heartsick. Please pray for Diane and her family....
    Mary Ann

    "The stroke on top of the cancer has really put Diane in a rough spot. She is still unable to move her right arm or leg and she is very weak. She is not strong enough to tolerate aggressive physical therapy for the stroke or any more chemotherapy. We brought her home from the hospital last Friday and she is on hospice care now. Her speech is pretty good and she enjoys visitors.

    "Thank you for sending the link to the blog page where Diane’s online friends have posted messages to her. It does help to know what so many people are keeping her in their prayers. One thing that you might pass on to the ladies on the blog is to be very careful of the potential for strokes. Cancer patients in general are at higher risk of stroke. Diane had a pulmonary embolism several months ago and was taking Warfarin to decrease the risk of stroke but it didn’t work. The neurosurgeon that operated on Diane to try to clear the clot in her brain told me that he thinks that all cancer patients who are on blood thinners should be using Lovenox instead of Warfarin. If any of the ladies are taking Warfarin, they might consider talking to their doctor about Lovenox. It’s much more expensive than Warfarin and must be administered by injection instead of by taking a pill. However, Lovenox is much easier to regulate than Warfarin; it does not require frequent blood checks to determine if the therapeutic levels are OK; it does not impose the dietary restrictions that Warfarin does; and it apparently works better than Warfarin in cancer patients.

    "Regards,
    Jim "

    Diane, Jim and Family
    You are all in my thoughts and prayers. Diane, I am glad that you are home and with your family and hope you will regain your strength.

    Kathy
  • Ro10
    Ro10 Member Posts: 1,561
    Kaleena said:

    Diane, Jim and Family
    You are all in my thoughts and prayers. Diane, I am glad that you are home and with your family and hope you will regain your strength.

    Kathy

    Thinking of you Diane
    You and your family remain in my prayers. I pray that you get a little stronger each day. You have always been an inspiration for me. Hope you can enjoy your family and visitors. In peace and caring.
  • Becky444
    Becky444 Member Posts: 29 Member
    Ro10 said:

    Thinking of you Diane
    You and your family remain in my prayers. I pray that you get a little stronger each day. You have always been an inspiration for me. Hope you can enjoy your family and visitors. In peace and caring.

    Also thinking of you Diane
    Hi Diane,
    I haven't checked in for awhile but was so sorry to hear of your troubles. You are such a sweet person. I have followed your blog on this board and you certainly have been an inspiration to me.

    You and your family remain in my prayers. May you enjoy your visits with family and visitors and know you are in our thoughts & prayers each day.

    Becky
  • daisy366
    daisy366 Member Posts: 1,458 Member
    Becky444 said:

    Also thinking of you Diane
    Hi Diane,
    I haven't checked in for awhile but was so sorry to hear of your troubles. You are such a sweet person. I have followed your blog on this board and you certainly have been an inspiration to me.

    You and your family remain in my prayers. May you enjoy your visits with family and visitors and know you are in our thoughts & prayers each day.

    Becky

    Sad Update Saturday March 3
    Hi all,

    I just talked to Diane's husband, Jim, and he said "things are going downhill". Diane is in pain (he thinks from ascites) and can't communicate (I assume from stroke).

    I'm so sad. Diane is a beautiful person who fought the best fight any of us could. I just hope she gets comfortable and the family is comforted. Please continue prayers for our UPSC sister who is already an angel.

    With sorrow, Mary Ann
  • daisy366
    daisy366 Member Posts: 1,458 Member
    Becky444 said:

    Also thinking of you Diane
    Hi Diane,
    I haven't checked in for awhile but was so sorry to hear of your troubles. You are such a sweet person. I have followed your blog on this board and you certainly have been an inspiration to me.

    You and your family remain in my prayers. May you enjoy your visits with family and visitors and know you are in our thoughts & prayers each day.

    Becky

    Sad Update Saturday March 3
    Hi all,

    I just talked to Diane's husband, Jim, and he said "things are going downhill". Diane has ascites quite bad, is in pain (he thinks from ascites) and can't communicate (I assume from stroke).

    I'm so sad. Diane is a beautiful person who fought the best fight any of us could. I just hope she gets comfortable and the family is comforted. Please continue prayers for our UPSC sister who is already an angel.

    With sorrow, Mary Ann
  • daisy366
    daisy366 Member Posts: 1,458 Member
    Becky444 said:

    Also thinking of you Diane
    Hi Diane,
    I haven't checked in for awhile but was so sorry to hear of your troubles. You are such a sweet person. I have followed your blog on this board and you certainly have been an inspiration to me.

    You and your family remain in my prayers. May you enjoy your visits with family and visitors and know you are in our thoughts & prayers each day.

    Becky

    Sad Update Saturday March 3
    dup
  • daisy366
    daisy366 Member Posts: 1,458 Member
    Becky444 said:

    Also thinking of you Diane
    Hi Diane,
    I haven't checked in for awhile but was so sorry to hear of your troubles. You are such a sweet person. I have followed your blog on this board and you certainly have been an inspiration to me.

    You and your family remain in my prayers. May you enjoy your visits with family and visitors and know you are in our thoughts & prayers each day.

    Becky

    Sad Update Saturday March 3
    dup
  • snowbird_11
    snowbird_11 Member Posts: 160
    daisy366 said:

    Sad Update Saturday March 3
    Hi all,

    I just talked to Diane's husband, Jim, and he said "things are going downhill". Diane has ascites quite bad, is in pain (he thinks from ascites) and can't communicate (I assume from stroke).

    I'm so sad. Diane is a beautiful person who fought the best fight any of us could. I just hope she gets comfortable and the family is comforted. Please continue prayers for our UPSC sister who is already an angel.

    With sorrow, Mary Ann

    Thank you again, Mary Ann,
    Thank you again, Mary Ann, for keeping us updated on Diane, although sad news it is. I do hope she can be medicated to allow her to rest comfortably and find some peacefulness. She fought this disease with such major efforts and showed her innate strength - her HIPEC surgery comes to mind. She and her family are in my thoughts and prayers. Let her get her angel wings gently and without pain.
    Annie
  • Ro10
    Ro10 Member Posts: 1,561
    daisy366 said:

    Sad Update Saturday March 3
    Hi all,

    I just talked to Diane's husband, Jim, and he said "things are going downhill". Diane has ascites quite bad, is in pain (he thinks from ascites) and can't communicate (I assume from stroke).

    I'm so sad. Diane is a beautiful person who fought the best fight any of us could. I just hope she gets comfortable and the family is comforted. Please continue prayers for our UPSC sister who is already an angel.

    With sorrow, Mary Ann

    Diane so sorry to hear about your pain
    I hope that hospice can help with the pain management. You and your family remain in my prayers. I pray for peace and comfort for all of you. You have been one of our true warriors. Sending you a huge cyber hug.
  • kkstef
    kkstef Member Posts: 688
    daisy366 said:

    Sad Update Saturday March 3
    Hi all,

    I just talked to Diane's husband, Jim, and he said "things are going downhill". Diane has ascites quite bad, is in pain (he thinks from ascites) and can't communicate (I assume from stroke).

    I'm so sad. Diane is a beautiful person who fought the best fight any of us could. I just hope she gets comfortable and the family is comforted. Please continue prayers for our UPSC sister who is already an angel.

    With sorrow, Mary Ann

    Soo Sorry to hear!
    It is always with great sadness to hear that one of our sister's is not doing well. My wish is that Diane will be free of pain and rest peacefully in the comfort of all of the love surrounding her from her family and friends.

    A real trooper, indeed!

    In sadness....Karen
  • Double Whammy
    Double Whammy Member Posts: 2,832
    kkstef said:

    Soo Sorry to hear!
    It is always with great sadness to hear that one of our sister's is not doing well. My wish is that Diane will be free of pain and rest peacefully in the comfort of all of the love surrounding her from her family and friends.

    A real trooper, indeed!

    In sadness....Karen

    Sending prayers
    to Diane and her family at this difficult time.

    Suzanne
  • HellieC
    HellieC Member Posts: 524 Member
    daisy366 said:

    Sad Update Saturday March 3
    Hi all,

    I just talked to Diane's husband, Jim, and he said "things are going downhill". Diane has ascites quite bad, is in pain (he thinks from ascites) and can't communicate (I assume from stroke).

    I'm so sad. Diane is a beautiful person who fought the best fight any of us could. I just hope she gets comfortable and the family is comforted. Please continue prayers for our UPSC sister who is already an angel.

    With sorrow, Mary Ann

    Such sad news
    I can't add much more than the thoughts that have already been shared. I hope the hospital can make Diane comfortable and support her and her family through this.
    In my prayers
    Helen
  • barbakamom
    barbakamom Member Posts: 15
    Beautiful Songflower
    I am so sorry to hear about Diane. I appreciated her encourgagment, courage, and wisdom while facing this horrible disease. The way she reached out to others was inspiring to me, and she made a big difference in my ability to cope with my own disease.

    Thank you, Diane - you are a beautiful songflower indeed.
    Barbara