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News and (maybe) action

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Moores was fruitful.  Not because I got a trial (I did not, and I no longer qualify for the one at USC) but because the oncologist there disagreed with my current team on having used up all my options.  He believes I could still get benefit from FOLFOX.  I discussed it with my local doc, and he agreed to give it a shot. If it works it should solve the edema issue.

The biggest hurdle seemed to be one of logistics, as I am still not ambulatory.  My Onc had a solution; home infusion.  Now, dependent on insurance approval, I should start next week.

As to the mobility issue: 

I went to the pain guy yesterday and adjusted the bolus settings, doubling the dose, reducing the time limit between from 4 hours to 40 minutes and reducing the daily limit from 6 to 4.  I can tell you it was a heck of a lot easier getting in the house than it was getting out of it, so it seems to be working.

Blake

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I have never seen results on CEA until after 2 or 3 shots , just a suggestion from a friend!
Hugs Blake!
BtW as per I see you have been on folfox already why they stop it? progression?.
Hugs!

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Stopped at the current standard of care, which is about 12 rounds here in the US.

Lovekitties's picture
Lovekitties
Posts: 3327
Joined: Jan 2010

Sorry that the trials didn't work out but very glad that it was suggested that you still have a traditional option left.

Also very glad to hear that you are now able to get a better handle on the pain.

Best wishes for good results.

Hugs,

Marie who loves kitties

smokeyjoe
Posts: 1428
Joined: Feb 2011

Blake was there a specific reason you don't qualify for a clinical trial??

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

The rapid decline in general health.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Well, hope the Folfox kicks cancers butt and things improve for you....maybe you'll get to a place where you can participate in that trial....

Annabelle41415's picture
Annabelle41415
Posts: 6179
Joined: Feb 2009

Thanks for the update and glad that they have a plan for you. Hoping you get some relief from it and that insurance will cooperate.

Kim

lauragb
Posts: 370
Joined: Aug 2011

Hope this new pain set-up had good results for you. And it will be nice for you to receive treatment at home. Be thinking of you, keeping you in the light that these improvements come to fruition.

Laura

tko683
Posts: 265
Joined: Aug 2011

Blake,
Hoping that the FOLFOX works for you and glad you got another opinion. Home infusion sounds quite convenient in your situation. Wishing you the best. hugs, Teri

Phoebesnow
Posts: 567
Joined: Apr 2011

Sounds good Blake. What about steroids to give you strength?

buckeye2
Posts: 428
Joined: Jul 2011

I hope you get feeling better. I sure would miss your posts on this discussion board. Lisa

janderson1964
Posts: 2215
Joined: Oct 2011

I am glad to hear that they are at least tryinf folfox. The 2 new targeted therapy drugs are supposed to be approved this year. Hang in there and hopefully you will be a candidate for one or both.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Sorry, what new targeted therapy drugs??

janderson1964
Posts: 2215
Joined: Oct 2011

I believe Regorofab is the name of one of them produced by Bayer which got such good results in tirals that the FDA stopped the trials and put it on the fast track for approval. You can find out more about the drugs on the Colon Cancer Alliance web site.

karen40's picture
karen40
Posts: 211
Joined: Aug 2011

I'm glad your feeling better and hope you continue to feel better on the new pain regimen. Prayers that FOLFOX kicks some cancer a$$.
Karen

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