update on my condition

greg57
greg57 Member Posts: 11
in Colorectal Cancer #1
when i joined this site i entered a post and got some good responses. unfortunately i cannot find those posts now and i wanted to update folks. monday 11/21/11 i will be having surgery AGAIN! this time an ileostomy. the general consensus is removal of the remainders of my colon is the best way to avoid further colon cancer - makes sense i guess. i hope i can find the people who were so nice to me when i joined.

Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #2
    Ileo
    Just make sure that you have an ostomy nurse mark you for placement because if the ileo is placed wrong it could make it very difficult. If this could save your life, you should go for it. There are more people out there with it than you know. Hoping that your surgery goes well. Please let us know how you are doing.

    Kim
  • tommycat
    tommycat Member Posts: 790 Member
    #3
    My ilestomy was temporary,
    My ilestomy was temporary, but I did have it for an entire year. Kim is spot on: Make sure you have it marked by a specialist in the field before surgery, and see how that mark works with your clothing.
    If your insurance will pay for it, having a home nurse come for a bit and teach you how to adapt to the pouch will be very helpful. There is a big learning curve....
    Through trial and error I found the Hollister brand the best for me.
    Sorry you have to go through all this.
  • greg57
    greg57 Member Posts: 11
    #4
    Annabelle41415 said:

    Ileo
    Just make sure that you have an ostomy nurse mark you for placement because if the ileo is placed wrong it could make it very difficult. If this could save your life, you should go for it. There are more people out there with it than you know. Hoping that your surgery goes well. Please let us know how you are doing.

    Kim

    ostomy nurse
    Hi Annabelle. I do have 2 ostomy nurses through my surgeon - both with 30+ years experience! She did mark me the other day & im keeping it marked very well. When i had my colostomy they did not place it where marked (different hospital/surgeon) & it caused me great difficulty. I know there are people out there and this forum is a great resource, although i find some things about it difficult to navigate and i am far from a novice pc/internet user. someone at my local acs office offered to try to help me find someone locally but she has not been responding to me :-( Thanks for your response & good wishes. I'll get back on when i can but it will be a while.
  • greg57
    greg57 Member Posts: 11
    #5
    tommycat said:

    My ilestomy was temporary,
    My ilestomy was temporary, but I did have it for an entire year. Kim is spot on: Make sure you have it marked by a specialist in the field before surgery, and see how that mark works with your clothing.
    If your insurance will pay for it, having a home nurse come for a bit and teach you how to adapt to the pouch will be very helpful. There is a big learning curve....
    Through trial and error I found the Hollister brand the best for me.
    Sorry you have to go through all this.

    ostomy
    Hi - as i told Kim i do have good ostomy nurses and have been marked. ive had a colostomy for almost 3 years so i am rather proficient at the appliances. The brand they gave me after my colostomy was complete garbage. the ostomy nurse i have now turned me on to Convatec Surfit Natura products and these have worked very well for me. Of course the products will change but i perused there website last nite and it seems they also have what i will need.
    im glad you ileostomy was temporary - i am amazed that in the 21st. century they cannot develop a better way to deal with this issue. i jokingly said to my gastro man that maybe a "clamp" of some sort that you could control. surprisingly he said that they have tried to develop something like that but it never worked - too many infections.
    take care
  • keystone
    keystone Member Posts: 134 Member
    #6
    greg57 said:

    ostomy
    Hi - as i told Kim i do have good ostomy nurses and have been marked. ive had a colostomy for almost 3 years so i am rather proficient at the appliances. The brand they gave me after my colostomy was complete garbage. the ostomy nurse i have now turned me on to Convatec Surfit Natura products and these have worked very well for me. Of course the products will change but i perused there website last nite and it seems they also have what i will need.
    im glad you ileostomy was temporary - i am amazed that in the 21st. century they cannot develop a better way to deal with this issue. i jokingly said to my gastro man that maybe a "clamp" of some sort that you could control. surprisingly he said that they have tried to develop something like that but it never worked - too many infections.
    take care

    There is other options check
    There is other options check out bcirostomy.com. We have a friend that had this surgery about 15 years ago and thinks there is no other way to go. I don't have personal experience. It is very intersesting and they do it in a few different cities.
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #7
    Original Post
    Greg, Your Original Post
    I just did a search in the Colon Cancer forum on your name and this turned up.
    Hope it helps.
    -p
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #8
    thinking of you
    Hi Greg,

    Well, you're probably already in surgery as I write this at a little after 11 am (Pacific time) on Monday the 21st. I pray all is/has gone well during the surgery. When you're up to it, please let us know how you are. I just said a prayer for you for good surgery and recovery.

    Take care,
    Lisa
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #9
    Hi
    I remember you, Greg. Praying things go well for you!

    *hugs*
    Gail

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