Does anyone survive brain cancer?

Options
2

Comments

  • j_waffles
    j_waffles Member Posts: 22
    #22
    I have full confidence I'm
    I have full confidence I'm going to live until I'm at least 90 :)

    My dad was diagnosed at 38 with a very malignant tumor. He's 53 now, and very healthy.

    Though in addition to treatment, I'd suggest looking into some alternative therapies and diet changes. It's worked for us.
  • d3rryn
    d3rryn Member Posts: 1
    #23
    kidjpo said:

    Sorry, hit submit button before done. Anyway he had another small leision in the lung and on Jan. 4th had what they call radiofrequency ablation which means they went in and burned off the cancer cells. His lung function is only 26%, so this was the best surgery for him. Doesn't even need to have oxygen! He is doing fine, still has a drainage tube that is draining the lung, but expects it to come out next week when we go back to the Dr. Will need radiation to the lung again. But, hey, I'm expecting to have him around for awhile. So, yes one does survive brain cancer and he does have a quality of life. We go to church, out to dinner, usually Fla. in the winter, etc. So, expect the best. God Bless!

    surviver
    I was diagnosed with a germinoma which engulfed my piturity gland when i was 12 im 36 now im on all sorts of replacements I have panhypopiturityism I have diabetes insipidus
  • RLR
    RLR Member Posts: 36 Member
    #24
    loulou said:

    I was diagnosed Jan. 5, 2000 with nscl, lypmnode involvment and brain lesions. I am feeling great today. So yes, you can survive!!!
    loulou

    Does anyone survive Brain Cancer
    Yes we can survive Brain Cancer. I too was told the tumor for GBM4 was inoperable. That was 2 1/2 years ago. I had surgery and have been doing fine ever since. I had 6 weeks of radiation and have been on Temdar chemo ever since surgery in Jan 2009. I can still do most things I did before with good quality of life. Find a doctor to do surgery if yours say it's inoperable. The 3rd one I ran across said he would do it and does them all the time. His name is Dr. Healy in Toledo Ohio. I could not be more pleased in what he had done. Don't give up HOPE.
  • 4theloveofmysis
    4theloveofmysis CSN Member Posts: 248
    #25
    RLR said:

    Does anyone survive Brain Cancer
    Yes we can survive Brain Cancer. I too was told the tumor for GBM4 was inoperable. That was 2 1/2 years ago. I had surgery and have been doing fine ever since. I had 6 weeks of radiation and have been on Temdar chemo ever since surgery in Jan 2009. I can still do most things I did before with good quality of life. Find a doctor to do surgery if yours say it's inoperable. The 3rd one I ran across said he would do it and does them all the time. His name is Dr. Healy in Toledo Ohio. I could not be more pleased in what he had done. Don't give up HOPE.

    thank you for the hope. Can
    thank you for the hope. Can you tell me a little more about your story. My sister has GBM4 they said it was inoperable. So we are a little over half way through radiation with temador and avastin.
  • rajan kunwar
    rajan kunwar Member Posts: 1
    #26
    my girlfriend
    my girlfriend is brain tumor patient.i dont want to loose her.dr. have said that she will live only for 2yrs from now.i'm from nepal we dont have experienced dr. for the cure of brain tumor here. pls refer me some good dr. who can cure her.
  • RoxyBasilJack
    RoxyBasilJack Member Posts: 1
    #27
    rajan kunwar said:

    my girlfriend
    my girlfriend is brain tumor patient.i dont want to loose her.dr. have said that she will live only for 2yrs from now.i'm from nepal we dont have experienced dr. for the cure of brain tumor here. pls refer me some good dr. who can cure her.

    You have to find the right "Team"
    A lot of the survival has to do with how you feel going into it. I have had surgery and radiation treatment at the Odette Cancer Centre in Toronto, Never have I met a more caring loving bunch of people. I am getting my energy back and getting over the side effects of the radiation. The next stage is another MRI, followed by a second MRI then I meet with my 'team' to discuss the next stage. All you have to do is look around and i am sure you will be able to find someone you can work with.They key is being a part of a 'healing team' at a well equipped Cancer Centre. I am convinced that Cancer is not the 'big scary' thing that it was to my/our parents. I had my tumor for 19 years before it started acting up. Just keep as positive as you possibly can and have fun where can (I had fun trying on wigs, I look good as a blonde, i sing to my primary nurse on her birthday, and send my technologists presents) i meditate daily, i find it helps. As soon as my balance issues resolve themselves, I will go back to my daily Yoga practice. In the meantime, i have a cousin who brings me shopping bags filled with books, tons of videos i have never had time to see and a novel somewhere inside of me that wants to come out.
    I have the time to do and explore all of the things I have always wanted to.
  • cushla69
    cushla69 Member Posts: 45
    #28
    jay1973 said:

    I am a brain tumor survivor. You should never lose hope. I was diagnosed when I was 17. I'm 32 now, and am cancer free and feeling great.

    what type of tumor and
    what type of tumor and cancer did you have and where was it located in the head. mine is between the frontal and temporal lobe, deep down in crease. I have anaplastic astrocytoma (dont know if i spelled it right). they say mine is inoperable. say ill have it rest of my life
  • cushla69
    cushla69 Member Posts: 45
    #29
    Rory1987 said:

    of course you can. I've read
    of course you can. I've read a lot of survivor stories of brain cancer patients who are alive until now since their diagnosis 20+ years ago, i've even read one who is already a 40+ year survivor of brain cancer.

    good news to hear, but its
    good news to hear, but its still scary. i just hold on to my faith
  • cushla69
    cushla69 Member Posts: 45
    #30
    mgreggsmith said:

    Brain cancer
    Anyone reading this post has survived brain cancer.

    In the end Nature will have its way with all of us. Until then I think it is helpful to relax, take care of yourself, accept one's condition with grace and try to be a model of love. In the end that is all there is.

    G.

    you are right and to keep
    you are right and to keep Faith
  • oceanmermaid
    oceanmermaid Member Posts: 2
    #31
    j_waffles said:

    I have full confidence I'm
    I have full confidence I'm going to live until I'm at least 90 :)

    My dad was diagnosed at 38 with a very malignant tumor. He's 53 now, and very healthy.

    Though in addition to treatment, I'd suggest looking into some alternative therapies and diet changes. It's worked for us.

    Hello, and congrats that your dad is cancer free! Could you please give me more information on how your dad survived his malignant tumor? What alternative therapies worked and what did his diet consist of? My dad was just diagnosed in June of this year with malignant glioblastoma multiforme stage IV. He went through 6 weeks of radiation and chemotherapy, but the tumor only grew bigger instead of shrinking. He is 66 years old, and I would love to know how I can cure him? If you could please help me out, I would really appreciate it? I do not have any kids, and my dad is my life. He is going downhill so quickly, and I am not sure what to do.

    Thanks,
    Oceanmermaid
  • micgrace
    micgrace CSN Member Posts: 131
    #32
    So many variables. What
    So many variables. What type, where it is, what genetic abnormalities in the cancer, what response to radiation, removal and chemo, age of person, general health, what size, what depth, where else. plus plenty more. Sorry to say there is no simple answer.

    However considerable number of people do survive a brain cancer so good luck.
  • jeffballew
    jeffballew Member Posts: 9
    #33
    Thats a hard question. you
    Thats a hard question. you have to define Survive. is lasting 5 years survival? then yes, some do. But others last 20+ years and others only 2 years, knowing what kind and the getting the right team of doctors is very important. They know more about the particular types and there is enough research on any one type to give you hope. No one is a statisctic until they actually pass on. my initial diagnosis was a GRade II Astrocytoma in June of 06'. Then in May of 2010 i was told I now have a Grade IV GBM, the big daddy as it were.. I've heard of folks 12-20 years out after hearing that diagnosis, so my goal is 50-60 years. Just stay around long enough for a cure, there are lots of treatments, but no CURES! but treatments are the path to a cure, remember that. There are a ton of clinical trials on Vaccines and immunotherapies, so the goal is to stay strong and positive and be around long enough to see the cure when it comes. Remember when HIV/AIDS was a death sentence?
  • I_Promise
    I_Promise CSN Member Posts: 218 Member
    #34
    jeffballew said:

    Thats a hard question. you
    Thats a hard question. you have to define Survive. is lasting 5 years survival? then yes, some do. But others last 20+ years and others only 2 years, knowing what kind and the getting the right team of doctors is very important. They know more about the particular types and there is enough research on any one type to give you hope. No one is a statisctic until they actually pass on. my initial diagnosis was a GRade II Astrocytoma in June of 06'. Then in May of 2010 i was told I now have a Grade IV GBM, the big daddy as it were.. I've heard of folks 12-20 years out after hearing that diagnosis, so my goal is 50-60 years. Just stay around long enough for a cure, there are lots of treatments, but no CURES! but treatments are the path to a cure, remember that. There are a ton of clinical trials on Vaccines and immunotherapies, so the goal is to stay strong and positive and be around long enough to see the cure when it comes. Remember when HIV/AIDS was a death sentence?

    I really like your attitude
    Jeff,

    Let us know about your journey and treatment plan. I too believe that when my sister lives long enough there is going to be a cure. Have you heard of places where they do both a vaccine and oncolytic virus? (stacking the deck)

    Julia
  • alutiiqmom
    alutiiqmom Member Posts: 256
    #35
    I_Promise said:

    I really like your attitude
    Jeff,

    Let us know about your journey and treatment plan. I too believe that when my sister lives long enough there is going to be a cure. Have you heard of places where they do both a vaccine and oncolytic virus? (stacking the deck)

    Julia

    I like Jeff's attitude as well
    Hi:

    I like that treatment is a pathways to a cure. Amen! I do believe the facility that one choose's plays a big part in care and survival. I wish you the best Jeff and also Julia.

    Edna
  • JasmineX
    JasmineX Member Posts: 1
    #36
    RoxyBasilJack said:

    You have to find the right "Team"
    A lot of the survival has to do with how you feel going into it. I have had surgery and radiation treatment at the Odette Cancer Centre in Toronto, Never have I met a more caring loving bunch of people. I am getting my energy back and getting over the side effects of the radiation. The next stage is another MRI, followed by a second MRI then I meet with my 'team' to discuss the next stage. All you have to do is look around and i am sure you will be able to find someone you can work with.They key is being a part of a 'healing team' at a well equipped Cancer Centre. I am convinced that Cancer is not the 'big scary' thing that it was to my/our parents. I had my tumor for 19 years before it started acting up. Just keep as positive as you possibly can and have fun where can (I had fun trying on wigs, I look good as a blonde, i sing to my primary nurse on her birthday, and send my technologists presents) i meditate daily, i find it helps. As soon as my balance issues resolve themselves, I will go back to my daily Yoga practice. In the meantime, i have a cousin who brings me shopping bags filled with books, tons of videos i have never had time to see and a novel somewhere inside of me that wants to come out.
    I have the time to do and explore all of the things I have always wanted to.

    Please Help
    To anyone, please help. My boyfriend found out that he's had a brain tumor for over 7 months, and just recently it's been getting active. The Doctor say he has a 47% chance of survival if he were to do surgery. Even if he wanted to do the surgery, he's currently in the Phillipinnes, where the doctors arent as qualified. His only option is to go to Toronto, and do it, but his Mom is standing in the way. I don't understand why, but she doesn't want him to go to Toronto. She's willing to let her son slowly die. Which pisses me off. I don't know what to do, I can't picture life without him...
  • ffgirl69
    ffgirl69 Member Posts: 3
    #37
    4theloveofmysis said:

    thank you for the hope. Can
    thank you for the hope. Can you tell me a little more about your story. My sister has GBM4 they said it was inoperable. So we are a little over half way through radiation with temador and avastin.

    Husband
    My husband had a crainiotomy on July 11, 2008 and went through 6 weeks of raidiation and then 6 months of Temodar. After a year he went back for his routine MRI and it was back. That was March of this year and he has gone through 6 months of temodar and avastin, but it only took care of one tumor but the other one is still there.
    He just had his 3 month check up with the MRI again and we are awaiting the results of this one, but after looking at the scan myself I can see more bright white and tumors. Bummed out
  • ffgirl69
    ffgirl69 Member Posts: 3
    #38
    4theloveofmysis said:

    thank you for the hope. Can
    thank you for the hope. Can you tell me a little more about your story. My sister has GBM4 they said it was inoperable. So we are a little over half way through radiation with temador and avastin.

    Husband
    My husband had a crainiotomy on July 11, 2008 and went through 6 weeks of raidiation and then 6 months of Temodar. After a year he went back for his routine MRI and it was back. That was March of this year and he has gone through 6 months of temodar and avastin, but it only took care of one tumor but the other one is still there.
    He just had his 3 month check up with the MRI again and we are awaiting the results of this one, but after looking at the scan myself I can see more bright white and tumors. Bummed out
  • lauralee67
    lauralee67 Member Posts: 2
    #39
    mwiltshire said:

    Hi lisa777 I had a tumour removed from near brain stem about 13 months ago, said to be rare and slow growing.Had stereotactic radio therapy 2 months ago.I have right side weakness,but can walk and talk alright.Live in New Zealand am 69.
    user name is mwiltshire
    greetings from Michael

    brain tunour
    hi my name is Laura i do not have cancer but my husband does we live in Canada back in 2007 my husband was diagnosed with stage 3 tumour which he was told was rare as it was growing out from the brain stem he had surgery which removed about 90% then 6mnths of radiation and almost 2 yrs of temedol.he stopped the temedol and went back to work his last MRI which was in Dec 2011showed a two cm growth know were waiting for word from the surgeon.
  • sumanghosh90
    sumanghosh90 Member Posts: 2
    #40
    tazmoe said:

    I was diagnosed with brain cancer, I had a cancerous tumor called an ependymoma. It's not exactly the same thing, but it was brain surgury. I had to go through two brain surguries, and radiation. They got it all, so i'm very thankful. I have the rest of my life in front of me now, I am a surviver. I hope this helps you some.
    God Bless,
    Tazmoe

    My wife has got Ependymoma Grade II
    Dear Sir,
    my wife(31 yrs) has got Ependymoma Grade II and removed surgically..Doctor saying most of it is removed..
    She has increased Intracranical Pressure and may need Shunt.
    May i know your story and what is the approx lifespan that can be expected for Ependymoma Grade II ? Doctor is telling it is a slow growing tumour.
    I will be happy if you give your mail ID.(my id is : sumanghosh90@gmai.com)
    regards
    suman ghosh
  • sumanghosh90
    sumanghosh90 Member Posts: 2
    #41
    jay1973 said:

    I am a brain tumor survivor. You should never lose hope. I was diagnosed when I was 17. I'm 32 now, and am cancer free and feeling great.

    My wife has got Ependymoma Grade II
    Dear sir,
    what kind of tumour you had? please let me know your story.
    my wife is 31 and hav ependymoma grade II - slow growing tumour..operated recently - 9th July'12. What is the survival expectancy? Please send your mail id also.(my id: sumanghosh90@gmail.com)
    regards
    suman
    sumanghosh90@gmail.com

Discussion Boards