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Question about lymphnodes

Thanks.
Love FM
Comments
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This is the case for me
I have distant lymph node involvement only. I know 3 others in my same situation with no organ involvement. When it is just one node, sometimes they will take it out and do follow-up chemo. When it is multiple nodes there is no point - they just pop up elsewhere. Chemo for life is basically the plan for us. If we get to a point where we appear NED, we can try to go on maintenance or take a chemo break and monitor closely. For me personally if I don't stay on Irinotecan, I progess rather quickly. I don't get 5-FU anymore, just Irinotecan and Avastin. Some are only on Xeloda, and others on FOLFIRI with or w/o Avastin. I cannot try Erbitux because I am KRAS mutant. Your mother is lucky she has one more drug in the arsenal!
We are treated as if we have a chronic disease like diabetis. Frequent labs and scans, and continued treatments. Overall we are usually slower to progress than those with organ involvement that can't be resected. So while being stage IV and not operable isn't something anyone wants to hear, it could be worse. -
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thanks for replying....IKathryn_in_MN said:This is the case for me
I have distant lymph node involvement only. I know 3 others in my same situation with no organ involvement. When it is just one node, sometimes they will take it out and do follow-up chemo. When it is multiple nodes there is no point - they just pop up elsewhere. Chemo for life is basically the plan for us. If we get to a point where we appear NED, we can try to go on maintenance or take a chemo break and monitor closely. For me personally if I don't stay on Irinotecan, I progess rather quickly. I don't get 5-FU anymore, just Irinotecan and Avastin. Some are only on Xeloda, and others on FOLFIRI with or w/o Avastin. I cannot try Erbitux because I am KRAS mutant. Your mother is lucky she has one more drug in the arsenal!
We are treated as if we have a chronic disease like diabetis. Frequent labs and scans, and continued treatments. Overall we are usually slower to progress than those with organ involvement that can't be resected. So while being stage IV and not operable isn't something anyone wants to hear, it could be worse.
thanks for replying....I understand it more.
FM
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