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I'm home from the hospital
Comments
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What kind of natural supplements are you taking?lisa42 said:Lori "z"
Hi Lori,
This rectal tumor is a recurrence. My original rectal tumor was treated with radiation and chemo for 6 weeks and it completely resolved/disappeared with biopsies of the area showing no cancer cells. With lots of discussion and especially since my cancer had already spread to the liver and lungs, my surgeon and I decided not to do a resection. I knew there was a chance of recurrence, but figured I'd deal with it "when" and "if". That was 3-1/2 yrs ago. About a year ago, PET scans started showing something in the rectum lit up again. We've been "watching" it, but I hadn't had any test that actually could give us a size measurement until yesterday's flex sigmoidoscopy with ultrasound. I'm probably facing surgery with a colostomy now, but can't deal with that immediately- maybe towards the end of the summer. Meanwhile, I'll be on pain meds, Lyrica for the nerve pain, and continuing chemo and the natural supplements.
Lisa
Is your Dr. supportive of this? My poor Dad -I've got him taking so many vitamins, he thinks every time I call or see him I'm going to push another pill on him! I admire your courage and resolve? I pray God heals you. -
What kind of natural supplements are you taking?lisa42 said:Lori "z"
Hi Lori,
This rectal tumor is a recurrence. My original rectal tumor was treated with radiation and chemo for 6 weeks and it completely resolved/disappeared with biopsies of the area showing no cancer cells. With lots of discussion and especially since my cancer had already spread to the liver and lungs, my surgeon and I decided not to do a resection. I knew there was a chance of recurrence, but figured I'd deal with it "when" and "if". That was 3-1/2 yrs ago. About a year ago, PET scans started showing something in the rectum lit up again. We've been "watching" it, but I hadn't had any test that actually could give us a size measurement until yesterday's flex sigmoidoscopy with ultrasound. I'm probably facing surgery with a colostomy now, but can't deal with that immediately- maybe towards the end of the summer. Meanwhile, I'll be on pain meds, Lyrica for the nerve pain, and continuing chemo and the natural supplements.
Lisa
Is your Dr. supportive of this? My poor Dad -I've got him taking so many vitamins, he thinks every time I call or see him I'm going to push another pill on him! I admire your courage and resolve? I pray God heals you. -
So glad to hear you are homeKathleen808 said:Lisa,
Lisa,
Thank goodness you are able to attend your son's graduation. I was praying my friend.
I'm glad the "good" doctor stepped in and listened to you. The other doc needs to just go away.
Thinking of you this weekend. I hope something good comes out of the biopsy.
Aloha,
Kathleen
So glad to hear you are home again and that you are taking Lyrica, that does help alot.
Let pray that the tests all come back with good results, and they can help you get rid of this tumor.
Lots of love and prayers are send your way,
Marjan
You never walk alone -
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Lisa
So glad you went to the hospital;had all those tests; and are now back home; especially in time for your son's graduation! Enjoy yourself at the graduation and keep on resting well.
I'll be interested to see about your lung biopsy results. My 6/10 PET showed an infection that we're watching (did a sputum test). Been getting better but of course the infection lit up the lungs though everything elsewhere was clear.
lots of love, Leslie -
ultra dose nutrition made easierhansonp said:What kind of natural supplements are you taking?
Is your Dr. supportive of this? My poor Dad -I've got him taking so many vitamins, he thinks every time I call or see him I'm going to push another pill on him! I admire your courage and resolve? I pray God heals you.
We've found most supplements can be mixed in large amounts with the low sugar versions of Boost or Muscle Milk and makes the pills less of a burden. Since then, we've moved on to building the shakes from scratch with healthier, cheaper components, e.g. whey protein instead of caseinate, modified citrus pectin instead of starch based thickners. We've started juicing, taken separately.
Only a few supplements are so nasty tasting they have to remain in the pill because of flavor issues. Others that need to be taken on an empty stomach, remain as pills. -
going to pain cliniclesvanb said:Lisa
So glad you went to the hospital;had all those tests; and are now back home; especially in time for your son's graduation! Enjoy yourself at the graduation and keep on resting well.
I'll be interested to see about your lung biopsy results. My 6/10 PET showed an infection that we're watching (did a sputum test). Been getting better but of course the infection lit up the lungs though everything elsewhere was clear.
lots of love, Leslie
I have an appt this Wed with a Moores Cancer Center pain clinic doctor. I don't know how they work differently than what pain meds the regular doctor would give me, but I guess I'll find out.
My son's graduation was wonderful- lots of family there since my niece also attended and graduated from the same school. My body cooperated & I actually felt good all that day and evening.
Yesterday it was pretty bad again, so I'm glad I'm going to the pain doctor this week. I really don't like to think about the possibility of major surgery and a colostomy... the jury is still out on that. I'm going to try to get through the next month and my cruise on July 31-Aug 7th before I get to planning any kind of surgery.
I haven't started the Lyrica yet that I mentioned before because the surgeon forgot to call that one in for me after talking about it & now she's on vacation for 3 wks, naturally. I was told her nurse would still be there, though, so I put in a call to the nurse to see if I can get that prescription taken care of. Hopefully that will happen soon & i can at least try the Lyrica (for nerve pain).
Awaiting on my lung biopsy results. I was told before I would get a call about it either Monday or Tuesday- so that should be today or tomorrow. I will definitely let you all know when I do. -
Lisalisa42 said:going to pain clinic
I have an appt this Wed with a Moores Cancer Center pain clinic doctor. I don't know how they work differently than what pain meds the regular doctor would give me, but I guess I'll find out.
My son's graduation was wonderful- lots of family there since my niece also attended and graduated from the same school. My body cooperated & I actually felt good all that day and evening.
Yesterday it was pretty bad again, so I'm glad I'm going to the pain doctor this week. I really don't like to think about the possibility of major surgery and a colostomy... the jury is still out on that. I'm going to try to get through the next month and my cruise on July 31-Aug 7th before I get to planning any kind of surgery.
I haven't started the Lyrica yet that I mentioned before because the surgeon forgot to call that one in for me after talking about it & now she's on vacation for 3 wks, naturally. I was told her nurse would still be there, though, so I put in a call to the nurse to see if I can get that prescription taken care of. Hopefully that will happen soon & i can at least try the Lyrica (for nerve pain).
Awaiting on my lung biopsy results. I was told before I would get a call about it either Monday or Tuesday- so that should be today or tomorrow. I will definitely let you all know when I do.
I hope the pain clinic will give you relief from your pain. I am also hoping that the lung biopsy will show no cancer or activity there. I am praying for good results. Lori -
Best wisheslisa42 said:going to pain clinic
I have an appt this Wed with a Moores Cancer Center pain clinic doctor. I don't know how they work differently than what pain meds the regular doctor would give me, but I guess I'll find out.
My son's graduation was wonderful- lots of family there since my niece also attended and graduated from the same school. My body cooperated & I actually felt good all that day and evening.
Yesterday it was pretty bad again, so I'm glad I'm going to the pain doctor this week. I really don't like to think about the possibility of major surgery and a colostomy... the jury is still out on that. I'm going to try to get through the next month and my cruise on July 31-Aug 7th before I get to planning any kind of surgery.
I haven't started the Lyrica yet that I mentioned before because the surgeon forgot to call that one in for me after talking about it & now she's on vacation for 3 wks, naturally. I was told her nurse would still be there, though, so I put in a call to the nurse to see if I can get that prescription taken care of. Hopefully that will happen soon & i can at least try the Lyrica (for nerve pain).
Awaiting on my lung biopsy results. I was told before I would get a call about it either Monday or Tuesday- so that should be today or tomorrow. I will definitely let you all know when I do.
Dear Lisa,
Goo luck to your lung biopsy results!!!! I have been praying for you...
Love Dora -
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