I'm home from the hospital

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  • hansonp
    hansonp Member Posts: 18
    #22
    lisa42 said:

    Lori "z"
    Hi Lori,

    This rectal tumor is a recurrence. My original rectal tumor was treated with radiation and chemo for 6 weeks and it completely resolved/disappeared with biopsies of the area showing no cancer cells. With lots of discussion and especially since my cancer had already spread to the liver and lungs, my surgeon and I decided not to do a resection. I knew there was a chance of recurrence, but figured I'd deal with it "when" and "if". That was 3-1/2 yrs ago. About a year ago, PET scans started showing something in the rectum lit up again. We've been "watching" it, but I hadn't had any test that actually could give us a size measurement until yesterday's flex sigmoidoscopy with ultrasound. I'm probably facing surgery with a colostomy now, but can't deal with that immediately- maybe towards the end of the summer. Meanwhile, I'll be on pain meds, Lyrica for the nerve pain, and continuing chemo and the natural supplements.

    Lisa

    What kind of natural supplements are you taking?
    Is your Dr. supportive of this? My poor Dad -I've got him taking so many vitamins, he thinks every time I call or see him I'm going to push another pill on him! I admire your courage and resolve? I pray God heals you.
  • hansonp
    hansonp Member Posts: 18
    #23
    lisa42 said:

    Lori "z"
    Hi Lori,

    This rectal tumor is a recurrence. My original rectal tumor was treated with radiation and chemo for 6 weeks and it completely resolved/disappeared with biopsies of the area showing no cancer cells. With lots of discussion and especially since my cancer had already spread to the liver and lungs, my surgeon and I decided not to do a resection. I knew there was a chance of recurrence, but figured I'd deal with it "when" and "if". That was 3-1/2 yrs ago. About a year ago, PET scans started showing something in the rectum lit up again. We've been "watching" it, but I hadn't had any test that actually could give us a size measurement until yesterday's flex sigmoidoscopy with ultrasound. I'm probably facing surgery with a colostomy now, but can't deal with that immediately- maybe towards the end of the summer. Meanwhile, I'll be on pain meds, Lyrica for the nerve pain, and continuing chemo and the natural supplements.

    Lisa

    What kind of natural supplements are you taking?
    Is your Dr. supportive of this? My poor Dad -I've got him taking so many vitamins, he thinks every time I call or see him I'm going to push another pill on him! I admire your courage and resolve? I pray God heals you.
  • thingy45
    thingy45 Member Posts: 632 Member
    #24
    Kathleen808 said:

    Lisa,
    Lisa,
    Thank goodness you are able to attend your son's graduation. I was praying my friend.

    I'm glad the "good" doctor stepped in and listened to you. The other doc needs to just go away.

    Thinking of you this weekend. I hope something good comes out of the biopsy.

    Aloha,
    Kathleen

    So glad to hear you are home
    So glad to hear you are home again and that you are taking Lyrica, that does help alot.
    Let pray that the tests all come back with good results, and they can help you get rid of this tumor.
    Lots of love and prayers are send your way,

    Marjan

    You never walk alone
  • relaxoutdoors08
    relaxoutdoors08 Member Posts: 521 Member
    #25
    Happy you found some answers
    Lisa,
    Happy to hear you were able to get information on what it was not. Wishing you are able to get good information and a plan when you talk to the surgeon.
    Best,
    NB
  • lesvanb
    lesvanb Member Posts: 905
    #26
    Lisa
    So glad you went to the hospital;had all those tests; and are now back home; especially in time for your son's graduation! Enjoy yourself at the graduation and keep on resting well.

    I'll be interested to see about your lung biopsy results. My 6/10 PET showed an infection that we're watching (did a sputum test). Been getting better but of course the infection lit up the lungs though everything elsewhere was clear.

    lots of love, Leslie
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #27
    hansonp said:

    What kind of natural supplements are you taking?
    Is your Dr. supportive of this? My poor Dad -I've got him taking so many vitamins, he thinks every time I call or see him I'm going to push another pill on him! I admire your courage and resolve? I pray God heals you.

    ultra dose nutrition made easier
    We've found most supplements can be mixed in large amounts with the low sugar versions of Boost or Muscle Milk and makes the pills less of a burden. Since then, we've moved on to building the shakes from scratch with healthier, cheaper components, e.g. whey protein instead of caseinate, modified citrus pectin instead of starch based thickners. We've started juicing, taken separately.

    Only a few supplements are so nasty tasting they have to remain in the pill because of flavor issues. Others that need to be taken on an empty stomach, remain as pills.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #28
    lesvanb said:

    Lisa
    So glad you went to the hospital;had all those tests; and are now back home; especially in time for your son's graduation! Enjoy yourself at the graduation and keep on resting well.

    I'll be interested to see about your lung biopsy results. My 6/10 PET showed an infection that we're watching (did a sputum test). Been getting better but of course the infection lit up the lungs though everything elsewhere was clear.

    lots of love, Leslie

    going to pain clinic
    I have an appt this Wed with a Moores Cancer Center pain clinic doctor. I don't know how they work differently than what pain meds the regular doctor would give me, but I guess I'll find out.

    My son's graduation was wonderful- lots of family there since my niece also attended and graduated from the same school. My body cooperated & I actually felt good all that day and evening.

    Yesterday it was pretty bad again, so I'm glad I'm going to the pain doctor this week. I really don't like to think about the possibility of major surgery and a colostomy... the jury is still out on that. I'm going to try to get through the next month and my cruise on July 31-Aug 7th before I get to planning any kind of surgery.

    I haven't started the Lyrica yet that I mentioned before because the surgeon forgot to call that one in for me after talking about it & now she's on vacation for 3 wks, naturally. I was told her nurse would still be there, though, so I put in a call to the nurse to see if I can get that prescription taken care of. Hopefully that will happen soon & i can at least try the Lyrica (for nerve pain).

    Awaiting on my lung biopsy results. I was told before I would get a call about it either Monday or Tuesday- so that should be today or tomorrow. I will definitely let you all know when I do.
  • tanstaafl
    tanstaafl Member Posts: 1,313 Member
    #29
    best wishes
    Happy that you made it home for graduation. Glad those folks got off their butt and helped get things straightened out.
  • z
    z Member Posts: 1,414 Member
    #30
    lisa42 said:

    going to pain clinic
    I have an appt this Wed with a Moores Cancer Center pain clinic doctor. I don't know how they work differently than what pain meds the regular doctor would give me, but I guess I'll find out.

    My son's graduation was wonderful- lots of family there since my niece also attended and graduated from the same school. My body cooperated & I actually felt good all that day and evening.

    Yesterday it was pretty bad again, so I'm glad I'm going to the pain doctor this week. I really don't like to think about the possibility of major surgery and a colostomy... the jury is still out on that. I'm going to try to get through the next month and my cruise on July 31-Aug 7th before I get to planning any kind of surgery.

    I haven't started the Lyrica yet that I mentioned before because the surgeon forgot to call that one in for me after talking about it & now she's on vacation for 3 wks, naturally. I was told her nurse would still be there, though, so I put in a call to the nurse to see if I can get that prescription taken care of. Hopefully that will happen soon & i can at least try the Lyrica (for nerve pain).

    Awaiting on my lung biopsy results. I was told before I would get a call about it either Monday or Tuesday- so that should be today or tomorrow. I will definitely let you all know when I do.

    Lisa
    I hope the pain clinic will give you relief from your pain. I am also hoping that the lung biopsy will show no cancer or activity there. I am praying for good results. Lori
  • luvmum
    luvmum Member Posts: 457 Member
    #31
    lisa42 said:

    going to pain clinic
    I have an appt this Wed with a Moores Cancer Center pain clinic doctor. I don't know how they work differently than what pain meds the regular doctor would give me, but I guess I'll find out.

    My son's graduation was wonderful- lots of family there since my niece also attended and graduated from the same school. My body cooperated & I actually felt good all that day and evening.

    Yesterday it was pretty bad again, so I'm glad I'm going to the pain doctor this week. I really don't like to think about the possibility of major surgery and a colostomy... the jury is still out on that. I'm going to try to get through the next month and my cruise on July 31-Aug 7th before I get to planning any kind of surgery.

    I haven't started the Lyrica yet that I mentioned before because the surgeon forgot to call that one in for me after talking about it & now she's on vacation for 3 wks, naturally. I was told her nurse would still be there, though, so I put in a call to the nurse to see if I can get that prescription taken care of. Hopefully that will happen soon & i can at least try the Lyrica (for nerve pain).

    Awaiting on my lung biopsy results. I was told before I would get a call about it either Monday or Tuesday- so that should be today or tomorrow. I will definitely let you all know when I do.

    Best wishes
    Dear Lisa,

    Goo luck to your lung biopsy results!!!! I have been praying for you...

    Love Dora
  • mommyof2kds
    mommyof2kds Member Posts: 519
    #32
    tanstaafl said:

    best wishes
    Happy that you made it home for graduation. Glad those folks got off their butt and helped get things straightened out.

    Thinking about you Lisa..
    Thinking about you Lisa.. God Bless.
  • lagwag
    lagwag Member Posts: 76 Member
    #33
    Sending get-well wishes and
    Sending get-well wishes and prayers.

    Liz
  • AncientTiger
    AncientTiger Member Posts: 130
    #34
    Good to hear
    about you getting the help you needed and deserved, and about being able to make it to your sons graduation!!!

    Hope they can get that pesky tumor without too much fuss. Would it be something they could just burn out I wonder....
  • pscott1
    pscott1 Member Posts: 207 Member
    #35
    Lisa,
    I haven't been on the
    Lisa,
    I haven't been on the board for a few days but was so glad to see that you were able to get in and get checked. I hope you're feeling better as each day passes. Hang in there and know that you are being held up in prayer.

    Take care,

    Pam

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