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My 12 year old daughter

rcbert
rcbert Member Posts: 8
edited March 2014 in Thyroid Cancer #1
Is there anyone out there who was diagnoised with papillary thyroid cancer at such a young age. My daughter had a total thyroidectomy January 2010, and is now dealing with getting her TSH level under control.

Comments

  • sunnyaz
    sunnyaz Member Posts: 582
    12 year old
    Hi rcbert,
    I am so sorry to hear of your daughter's cancer. I have not yet heard of someone so young having this. Has she been exposed to a lot of radiation? Was her mom exposed to radiation during pregnancy and how is her mom's thyroid? Did she ever have a heat stroke?
    Julie-SunnyAZ
  • alapah
    alapah Member Posts: 287
    there is a pediatric thyroid cancer support group
    Robert,
    I searched thyca.org, a site I have always found immensely helpful, and found a link to a pediatric thyroid cancer support group. The direct link for the group is -

    http://health.groups.yahoo.com/group/Ped_thyca/join?referer=1

    and here is the thyca page with a bit more info -

    http://www.thyca.org/email.htm#pediatric

    Hope that is helpful to you and your daughter. Best to you both.
  • hunter1112
    hunter1112 Member Posts: 2
    alapah said:

    there is a pediatric thyroid cancer support group
    Robert,
    I searched thyca.org, a site I have always found immensely helpful, and found a link to a pediatric thyroid cancer support group. The direct link for the group is -

    http://health.groups.yahoo.com/group/Ped_thyca/join?referer=1

    and here is the thyca page with a bit more info -

    http://www.thyca.org/email.htm#pediatric

    Hope that is helpful to you and your daughter. Best to you both.

    My daughter was 14 when she was diagnosed
    Hi Robert,

    My daughter was 14 when she was diagnosed with papillary cancer. She had a TT in 2004. After RAI and scans and more biopsies, she is now doing better. Because she was younger and going thru puberty, it was a struggle to keep her TSH levels under control. Be sure to ask your doctor to check her levels often, especially if you notice changes - menstruation issues, anxiety, fatigue, palpitations, etc. You will learn the signs that will let you knoiw if something is off. Don't be afraid to ask for bloodwork. Every time I called the doctor and asked to have her levels checked, they found her levels to be off and changed her synthroid dose.

    Good Luck!

    Piper
  • dutch_poppy
    dutch_poppy Member Posts: 7
    I was 15 when I was diagnosed
    I was diagnosed in 1965,when I was 15, and I'm still going strong. Things were different then and I was under-treated, and needed more surgery and radioactive iodine therapy about 20 years later, but I'm doing fine. I've had a busy active career and two children.

    The main lesson I've learned that I would want to pass on is to keep having yearly check-ups. Thyroid cancer is highly treatable, but it CAN sometimes recur (and be treated) many years later, as mine did. And we're still learning about possible long-term effects especially in children and young people.

    Hope this helps!
  • ShannaChristine
    ShannaChristine Member Posts: 1
    Hello Rcbert. I was 12 years
    Hello Rcbert. I was 12 years old when I was Diagnosed with papillary carcinoma. I had my full thyroid removed and went through one dose of radiation and came out clean afterwards. It shocked my doctors cause I was so young. But, after research I seen it was so much easier on the human body at a young age to deal with then when you get older and find it. After they finally got my TSH levels down to normal I was put on Synthroid . I am now 22 and I am healthy. Im sorry your daughter is going through this, but the one thing I will say is she will be one strong woman after wards.
  • roe lorusso
    roe lorusso Member Posts: 2

    Hello Rcbert. I was 12 years
    Hello Rcbert. I was 12 years old when I was Diagnosed with papillary carcinoma. I had my full thyroid removed and went through one dose of radiation and came out clean afterwards. It shocked my doctors cause I was so young. But, after research I seen it was so much easier on the human body at a young age to deal with then when you get older and find it. After they finally got my TSH levels down to normal I was put on Synthroid . I am now 22 and I am healthy. Im sorry your daughter is going through this, but the one thing I will say is she will be one strong woman after wards.

    so young
    Wow, I cant believe this cancer had affected children at such a young age, my hear goes out to all the parents dealing with this and those dear children, I am a survivor of 10 years now. Good luck to all