Head and Neck Cancer
Discussion List
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Surgery this week
I will have surgery this coming Wednesday. The plan is to remove the fibula that replaced half of my lower jaw 3 years ago and hope the fistula will close (80% chance). Hinge is original and will remain. PET scans have remained clean, next one late February or early March. Cosmetically, that area is already a mess so at…
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I need to give credit to Stanford Medical again...
I just need to give credit to my Doctor and the team at Stanford. For the last four days I have had a problem with the prosthesis in my neck so I can talk. It has been leaking down the center of my TEP [prosthesis] which means that I am asperating and liquid is going down my trach to my lungs. My GURD is the main cause of…
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New to this site
Hi all - my name's Crystal. I'm a 30 year old mom of 4 from Florida. I am new here - not 100% sure if I will need to be here or not but figured at least for now it is a place to start. 4 months ago I found I had a few swollen lymph nodes behind my ear and on my neck and collar bone and asked my doctor about them at a…
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Neck Dissection
Hi all, this is Tammy, wife to Dale. I posted awhile back but lost my user name so I had to just now make up a new one. Not sure if you all rememer me...him? Dale had stage 4 throat cancer and is now 4 years cancer free. Along with chemotherapy and radiation he also had a radical neck dissection. The usual stiff and tight…
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If I can do it so can you
I've been saying for quite some time now that if I can do it anybody can do it. Yesterday I went to see my surgeon for my 5 year check up. He scoped me and said I am officially cured. So again I say..............."If I can do it anybody can" I may even pull out my radiation mask on March 30th (my 5 year anniversary of…
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Green Tea
https://www.yahoo.com/health/green-tea-may-zap-cancer-cells-in-your-mouth-109500145432.html Now if they would only tell us how much to drink per day and can it be decaffinated
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Lung biopsy update "there's good news and bad news"
Jim's surgeon had him come in today for his post surgery x-Ray. He also had final lung biopsy results. He said he didn't have confidence in the first lab results, so the sent his samples to The University of Louisville, which is the lab that found his cancer 3 years ago. They compared it to his slides from 2011 and…
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My Journey with lower right tonsil Squamous cell carcinoma, 1 year out Clean scan 1.27.2015. last po
OK, here goes, This is long winded. sorry, Early to Mid May of 2013 my wife,Terri made me an appointment at the Dr. for a check up thinking sleep apnea was an underlying issue that was causing me to stop breating for short periods while i was sleeping. So when I went, we ended up doing a follow up with a ear/nose and…
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Fluid in middle ear post radiotherapy
About 2 weeks before I finished my 7 week radiotherapy course I noticed my right ear felt blocked. I was hoping it was just wax but apparently I have fluid in my middle ear. This is a radiotherapy side effect and I'd like to hear(pardon the pun) if anyone can tell me if this goes away by itself. The specialist was already…
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Check In
Hi all. Although I have not posted of late I still read the board most days. Saddens me there are new members but also great to see all are taking things head on. This board is such a powerful tool for those in the fight, those helping and well anyone really! I am coming up two years post treatment for a SCC on my tongue.…
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olfactory neuroblastoma diagnosis
I Am totally new to chat rooms and discussion boards so I hope I do this right. I was just diagnosed with olfactory neuroblastoma stage A grade 2 - 3. I had a polyp removed on December 29th and the biopsy showed a malignant tumor instead.my doctor is sending me to San Francisco (ucsf) to be treated. I'm actually really…
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"Your scan looks good...but"
I got my results today from my first CT scan and I have a reactive lymph node under my jaw on the opposite side of original cancer. My onc says there is no way it is reccurrance from the tonsil. It is either backed up lymph fluid (neck dissection removed 40 lymph nodes on opposite side) or it is a completely new cancer.…
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Hi Everyone...
Hi everyone, Haven't been on due to watery eyes. Doc says it's a good thing, so trying not to complain. Decided they are going to take my PEG out instead of moving it, as I am eating a little on my own now. I am not going to have it moved lower, as I was warned that there is a great chance of infection if I do. I don't…
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neuropathy hand
Almost 18 months post treatment I had both Chemo and radiation, The neuropathy in my right hand has not gotten any better fingertips hurt very badly outside in the cold. I was just wondering if there is any medication that can be given. It has also gotten very hard to button shirts or in my case splice cable back together…
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Hypothyroid Free T3 & Free T4 Testing?
Finished chemo/rad 9/5/14. Thyroid TSH was in the normal range until December 2014 when it went up to 5.02. Dr. Prescribed Levothyroxine 50 mcg. Thyroid damage from radiation (thanks a lot!) My chemo treatment consisted of 5FU & Hydrea. The 5FU caused hair thinning. However, my hair was falling out at an alarming rate even…
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Anyone heard from Pat, aka "Longternsurvivor"?
I have not been on CSN much lately but have heard nothing from pat on PM. Has anyone been in contact with him? Mike
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Coconut Oil
Have some of you tried "pulling oil"? If so, did it help in any way. I've read much about the benefits. If your suffering from dry-mouth from the rads, like me, and most of you I'm sure, doesn't swishing this oil for 15 or 20 minutes draw out what little saliva is in the mouth and make it even drier or worse? Is it worth…
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"Complete Response to Treatment"
We don't have a scan yet but these were the sweetest words we've heard yet. From the Oncologist after the manual exam on Thursday!! It's been a very rough go since the last treatment but Bob continues to be strong. Our order of Liquid Hope arrived today so we are hoping this will help his body be stronger for what we hope…
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Advice Needed! UPDATE
Thank you to all the wonderful people on this board.... I wonder if I could get some feedback please? I'm just 4-1/2 months post chemo (5FU & Hydrea) plus radiation (35 treatments) 7 rounds for tongue cancer. Surgery to remove left side tongue cancer 16 months ago. 2 surgeries to move affected lymph nodes, then tx.…
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winding road
IHello. I have been lurking for sometime now, I have a couple of questions.I am travelling the winding road with my dearest friendand though I have done my homework, I am looking for some experience I guess. Summer of 2013 she was dx stage 2 throat cancer. 7 weeks of rad with excellent results and hardly missed a beat. her…
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Checking In
Friends, Been a while since I stopped in last...with two teenagers really dont have time to stop. It will be two year this April but had my last checkup at MDA Houston mid January '15. Physical exam and CT Scan with NED again as I slowly inch toward that wonderful two year mark (April 16 2015). MD's were very pleased and…
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Locked jaw
Has anyone experienced a seizure after their jaw has locked up? Husband drinks a lot of water and drinking ensure after his jaw lockec up but sodium level dropped and caused a seizure. laurabeau
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Half Marathon
I dedicate my first Half Marathon to the dear people on this discussion board. All is well with me as I ran my first Half Marathon on Sunday. It wasn't easy but I was thinking of what we all go throught, and how blessed that I am to still be here to do this. May victory be with you who are still fighting cancer.
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Touch wood
touch wood, I've been on a new formula Vital1.5 for three days. Day one my swollen tummy went down by half and no gas or pain. Same day two and more energy. Day three I felt so good went for a short walk. I'm hoping to continue this way. It's early days but I think at last ive been given a formula that agrees with me. I've…
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Finally, NO LEAKAGE
Well, finally they replaced my tube and yesterday was the first day since that I didnt have any wetness or burn. I am so happy!! Now to clear up the damage done to the stomach area.
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Non healing ulcer in throat after radiation tx
Sorry in advance for the long post. I finished my treatment on November 5 of last year with 35 rounds of radiation and 6 rounds of Erbitux for Tonsil cancer- primary tumor was in tonsil and had spread to a few lymph nodes on both sides. Everything during the treatment went good except the radiation doctor at MD Anderson…
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Skiffin16 ~ Whipple Fish...
Well... As many of you know and have followed my progress.... I had the Whipple Surgery on 4/22/2014.., it's been an adventure for sure.. My surgery was for a pre-cancerous cyst, and all ended up being benign.., yay on that.. But I never really regained and appetite, was very nauseaous, and ended up getting an abscess at…
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possible aspiration???
I am a year out from stage 3 Throat . Starting in Nov I was getting more hoarse and feel like lungs are inflamed or have some liquid hard to define. Since radiation I have had two swallow studies and they both show some dysphagia. Feels like food just stops on the left side same place all the time and then disappears on…
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Bloody Nose & spit blood-- after 2 yrs & 2 months - Normal?
Just wondering if anyone has experienced a bloody nose and then spitting of a bit of blood so far after tx (2 yrs & 2 months out)? Kreg had this happen today and little concerned. He doesn't see his ENT for next checkup until February. Last check up was November and all appeared normal with the scope. Any input would be…
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blood in am phlegm
Am curious to know if anyone else has had blood in their phlegm. Seems like just the last couple days my throat is more sore(8 radiation sessions) and in sthe am I have tinges of blood. Am seeing the dr this morning and will ask him, but wanted to hear from you all.