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Radiation Scatter
I wonder if there are others out there who are dealing with radiation scatter. I'm about 4-1/2 months post radiation & chemo treatment. my treatment was to the left side. I've had surgery to remove the primary on my tongue 16 months ago so that side of my tongue is pretty much numb. I'm experiencing pain on the right side…
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Progress
I completed my 33 rounds of radiation and 7 weeks of chemotherapy on 11/21/14. I had a neck dissection prior to that. This was for tonsil cancer stage 4 that spread to my neck lymph nodes. I lost 65 lbs and was hospitalized for dehydration and this has triggered a very deep depression. I am 52. My first follow up scan was…
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Doctors ??
Wondering what others think of this.... The Doc who put in my PEG tube has decided now he should never had it put in. Reason I had a gastric stomach.. now I have Gastroparesis due to this. He wants to take it from my stomach and have it placed in my lower intestines. Due to my stomach being full of infection and not…
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Need advise on scan
Hello today I went to see my ENT for my first check up and he was very pleased with my progress . He said my nerve regeneration is fantastic and normally he is not a guy that gives compliment so I was very happy. When I asked about what to expect as follow ups he told me he will be seeing me every 3 months. He did not…
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replacement of left jawbone with bone from the leg
hi all im just wondering if anyone has had this, i had an op for neck cancer just over 10years ago, it got rid of the cancer, been clear for over 10 years now, but i cant swollow and have a peg. but thats not a problem. i had radiotherphy for 6 weeks every day, and because of that it killed off all of my blood cells in my…
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Knowing when to exhale instead of inhale is so important.
Knowing when to exhale will help with: COPD; Anxiety; being a laryngectomee; or just haveing a bad day and having some depression; and panic attacks. Some of us have forgotten when you should not hold your breath, it only makes it worse. When you are going to sit down take a breath and exhale as you are going down. The…
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Liquid Hope
If you are looking for nutrient dense liquid food for your PEG please take a look at this web page. It was mentioned by another person on this site. It should be listed on the Superthread if someone can do that? She also used real food in her tube. functionalformularies.com
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Me again
hello everyone, i have tried to post and log in more often but it has been a challenge. Not feeling that great today
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Me again
hello everyone, i have tried to post and log in more often but it has been a challenge. Not feeling that great today
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Peg???
I am having such a time with my feeding tube! I had this put in Jan 5th and since then I have gotten an infection( am on antiobotics for it) and also it leaked alot. I mean some ugly stuff was coming out of the stoma. Stomach contents. Any how yesterday they were going to change it out, but discovered instead that it only…
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DiET - Now (rad/Chemo just ended) - and LATER
Our son in Milwaukee just finished the last radiation this week (& final Chemo week before), for Tonsil / lymph . He was told to stay away from certain 'good' foods during treatment, but WHAT NOW? We are all trying to learn what this means and WHAT diet items are better NOW and what are "Verboten". The last radiation was…
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Lymphoma...and trusting doctor
I am 25 years old, male. I was freaking out because I found a 1 centimetre enlarged lymph node behind my ear, its been there for about 4 months. I thought for sure it was cancer/lymphoma. My family doctor told me it was probably nothing to worry about, but would send me to a specialist because I am worried. I went to the…
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Acupuncture...
I've seen a few people mention that they had acupuncture treatments for saliva issues. Some people got it during rads and chemo and some afterwards. I was wanting to know if this helped with the saliva issues or not. If it did help, how many sessions did it take before you started seeing results? Do you have to continue…
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Burning Burn Tongue After Radiation Please Help
I am 4-1/2 months post chemo and radiation for tongue cancer. I had the cancer excised from the left side of my tongue 16 months ago. T1N3 The problem that I have is a burning and painful tongue. The burning feeling extends from the point of excision on the left, all the way around to the right side of my tongue along the…
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Nutribullet 900 tube users that blend
OK Im nearly sold on the Nutribullet blender. I've seen one, the Nutribullet 900, It says it blends smoother and has extras. just how smooth does this machine blend, how long does it last using it continuously. The recipes look nutritious. They say to add nuts and seeds do these completely blend or is there pulp. I can see…
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How to make 3 years feel like 30 years
Hi everyone. Just found out that my npc cancer had mets to my bone after less than a year, so i probably have about 3 years left. Therefore, can you guys provide some suggestion on how to make 3 years feel like 30 and anyone with the same experience share their treatment for npc bone mets. Appreciate it.
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Lung biopsy results
Jim had his lung biopsy on Wed. Just got the results and it was NO CANCER! It was a benign granuloma, which means he is NED now for 3 years! We are so happy and relieved! Thank you for all your thoughts and prayers!
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how are you guys, longtermsurvivor, kteacher, Hwt, luv4lacrosse
Hello guys, did not see any recent posts from you in awhile. Just wanted to see how you guys are doing. To all on this forum: I always have you in my prayers although I do not post that often. Happy New Year to everyone!
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Food makes me feel sick
I'm still having problems with feeding. Every time I put anything in my stomach I get dreadful pains with gas and feel sick. I've tried ensure 2 cl, ensure plus and Osmolite. I can digest the first one on an empty stomach but 4 hours later the second one seems to staying my stomach Undigested and my stomach blows up,…
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New painful ugly sore- panic attack
the past 3 days, I've felt like im catching a cold, throat sore aNd ear, more so on the side I did not have cancer on. I had squamous cell carcinoma, base of tongue st 3, spread to 1 lymph. Last onc appt was last week and said I was doing great. since yesterday my tongue is sore and swollen , this morning I went to take a…
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Week 3 + PEG today
checking in today... Husband had his Peg placed today. He's had 10 Rad since 1/30, and 1 Cisplatin. first few days were rough, mostly nausea and fatigue from the chemo. But last week he was feeling much better. Feeling good this week, and this afternoon got the PEG. It was routine, except in recovery where we waited for…
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The most amazing group of people!!
So I have been diagnosed with hpv tonsil cancer and last week started radiation and my first chemo. I am so overwhelmed by this, but Thank God that I found this site. I am in awe of the caring and helpful ness of you all. Actually a couple of days ago I posted(in the wrong place) a bit about myself, but as Bill said I…
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Caring and sharing
I wanted to share what my younger sister did in honor of myself, our Mama and our brother. I think she did a beautiful job.
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Can throat & Saliva still improve after 5 months ?
Hi there, Wondering if the throat and saliva can still improve 5 months after treatment ? I wrote a post on here not long ago about my tongue condition, seems nobody has ever heard of it, didnt get a response. Unfortunately only 2 % of the population get it and I just happen to be part of that bloody 2 % ! My throat still…
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First signs of movement in my face: SO HAPPY!!!!!
Rather than sharing frustration or concerned, today I want to share pure happiness> When they removed my MEC from the parotid glandin September they had to remove 4 cm of my facial nerve and do a nerve graft; my face has been half paralyzed since than and they could not predict success nor timing for recovery. Yesterday…
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Questions...
Hello all, I have an issue and would like some of your input or ideas. This Miss Peggy is being a real B*itch sorry for the language. But I can not keep any liquid or food at all in my stomach. I developed a ( Delayed stomach ) or Gastroparesis. I can not stand the taste of any food or drink in my mouth it is so horrible I…
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Tounge flap
Here's question I keep wondering about and always forget to ask the doctor.For those of us that had to have part of tounge removed and replaced with a tounge flap has anyone ever asked what would happen if it wasn't done.Would it make our swallowing and speach even worse or being would we just have a smaller tounge...
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SNUC.... I BEAT IT!!!
Yep... Got the magic words.... CANCER FREE!!! i was diagnosed with stage 4 snuc late August 2014 and as of yesterday January 9, 2015... Cancer free!! 2 rounds of chemo( cisplatin & 5FU) 35 radiatin treatments during the same time. Miricle... I believe so!!
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Still very tired - 6 weeks after radiation treatment . Is it normal?
Hello I am wondering if it is normal to get tired easily 6 weeks post radiation treatment. I actually had more energy during treatment than now. Also, I need to eat every 2 hours to avoid dizziness. I did lose only 2 lbs since the beginning of treatment so it is strange to me that I need to keep eating to maintain my…
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Hondo?
I searched the treads and found that you had bronchitis years ago and used Oil of Eucalyptus to help it? How long did it take before it cleared up? My husband has been coughing mucusy stuff up for about a week now. He finished a 5 day z-pac that didn't do anything, so it has to be viral......... Appointment at MDA isn't…