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Head and Neck Cancer

Archives for October 2014

Tijuana Mexico
A close friend who is a cancer survivor underwent radiation and chemo and then traveled to Tijuana for alternative homeopathic medicine. It is an all natural approach with treatment lasting a week, he went every 3 months for the first year and then every 6 months, now he goes annually but uses the recipes (not products)…
Update
I had surgery 09/19 a pectoral flap. Titanium was removed and fibula placed in 2012 saved. Follow up showed fistula still present. Suggested g tube and nothing by mouth and hyperbsrics. felt it would heal but months not weeks. came back to STL to get tube. Unable to tolerate jevoty. Hospitalized again. Doing ok now on…
Prayers and positive MOJO for lung tap tomorrow
I had to skip 2 of my Cisplatin treatments while having to return to St. Louis as my dad passed away. Recent CT shows an increase in my of fluid in both pleural spaces. A drain will relieve my increases SOB, buyy Oncologist main concern is no cancer cells present in the fluid. I'm not too worried as I have already had 7…
Vertigo
As Roseann Roseannadanna used to say, "It's always something" but this might be a new one for us here. I am 5+ months out from a jaw resection--left side, and 5+ years past my successful rads and chemo gig. Not too long after the jaw surgery I started to have some periodic dizziness that was originally attributed to some…
My attendence
My attendence in our unique room has been poor lately thanks to my demanding job. Recently, nobody wanted my job which means no one ran against me or anyone else on my team so I am back in office for another 3 years. I was just up in Bostom Mass. in Trutee classes most of last week and I should have asked who was close by…
Scared
I beat Stage 3 Rectal Cancer and now after a "punch out" of a tumor on the base of my tongue I have Stage 4a HPV tongue cancer.
Is anyone a patient at Santa Clara Valley Medical Center/ Sobrato Cancer Center?
Hi, My mother is currently a patient at Santa Clara Valley Medical Center. She was diagnosed as Tongue cancer on Sep 17 through biopsy. After MRI and PET/CT Scan, it was said to be in stage I/II so she was scheduled for a removal of tongue and lymph nodes surgery on Oct 16. However, after the surgery, the doctor said it…
MRI waiting on results
Had an MRI done Friday on the H/N. Had posted I thought I was having issues with medications. We went over all of them, and aren't finding the culprit. Was wondering with other H/N dx's do any of you get pinned down to the table during one of these scans ? Man that was a rough one. Usually get CT's of the area. This is…
Major milestone this week
Major milestone this week, 1 1/2 years post treatment, and was able to eat a cheeseburger deluxe with a milk chaser, no pickles, mustard, or mayo, easy on the katsup, but boy did it taste great, ate one every day this week...almost guilty for posting this....but everyone needs to know there is life after cancer....... Jim
Great wife, mum and family
From day one my wife, mum, dad, sisters and my dear brother in law had been there for me and i am so grateful to have such loving and caring family. they are the greatest people in my life.
Taste
Hey everyone, I'm writing because my dad still is having problems tasting foods and finding something that he can tolerate. It has been a year and about 3 months since he finished treatment. I hate this for him and everyone going through it :( We don't take it personal of course, but I just wish there was something that…
Change of profile pic
I changed my profile pic. This was taken at my granddaughters wedding last April I found out a week before I had cancer. I never told anyone for some time after. If you look close you can see my swollen node on my neck the first sign I had.
Tumor.. not shrink?
My ENT set me up for surgery, but my Rad/Onc cancelled it. They were afraid since all tests done and mask ready that if the ENT played around up in my nose that I would have to be re-scanned and new mask made. Has anyone ever had a tumor that didn't shrink from Radio/Chemo treatments? I should know next week their plan of…
hoarse talking
Hi everyone..just curious if this is pretty normal.Been out of treatment now for about 2-1/2 months.Back to work feeling pretty good.Pet scan came back clear surgen pulled peg tube.He did have to stand on my chest he tied it to a door and closed it.Anyway do feel goos except no when I talk my voice is rather hoarse or…
Doing the Work of God
Sounds somewhat blasphemous to say it, but I really feel that the people on this site are doing the work of God. I was going through a file in one of my desk drawers that had the label "Ministry of Jokes" and came across an old one about a man's faith. Seems this individual lived in an area that had a big storm approaching…
Dental Implants
Just wanted to share happy news! My husband is on his way as I type this to have his new teeth put into place on his dental implant posts. He is beyond excited. He was diagnosed in December 2012, so this has been a long time coming. I feel like we have rounded a corner against this hideous disease. I pray for you all daily…
Cisplatin 3X or Weekly
Hello everyone, i am am really happy to have found this board, my level of anxiety has dropped a bit! I was diagnosed with Stage 4 HPV+ first week of September with lymph node extensions. I had robotic surgery on September 15 to take the base of tongue tumor out and dual neck surgeries to remove impacted lymph nodes. The…
Chef Daddy Mike Up-date
I got in touch with Mike and he is doing a lot better, still down and out but at lease he has a roof over his head. Hi brother had an old mobile travel home that he gave him. It needs a lot of work but like he said he’s got nothing better to do right now. He is planning to fix it up and start traveling south trying to pick…
New Baby Cures All
anyone in the houston area?
Anyone in the houston area that needs some jevity? i have several cases and supplies that i would love to give you if you need it! :)
Should I get tubes for my clogged ear
I am going for an operation this monday to remove a flash growth under my tongue. About 4 days ago my right ear also got clogged after 6 moths of post NPC treatment and its getting worst. I almost can't hear on that ear and its relly make me nuts. Since I will be under General Anesthesia, would it be wise to also get a…
How to get past that first Post Pet Scan Anxieties
rI am having alot problems dealing with my upcoming, first post Pet Scan. As the 22nd gets closer I become more irratible, depressed, crying, not sleeping at night and just down right scared. Has anyone else experienced this? What can I do to help myself thru the next two weeks and the 48 hour waiting period for the…
Next and Maybe Last PET
Hey All, Since the successful treatment of my cancer I haven't come back in here and posted the NED topic. In fact, my doctors and nurses never even heard the term before. My last PET scan was August of last year and it was all fine and dandy. Now, once again my doctor has ordered another one. Here comes the weird part. He…
Need to go for surgery to remove growth under tongue
Been having various symptoms lately after my past 6 months post treatment for NPC, like buttocks pain on one side of my leg right down to my knees, one of my ear is now clogged up again, which the doc said it’s just side effects and finally, there is a 1.5cm growth under my tongue. Seen my ENT doc today and he was…
buccal mucosa
I'm actually posting this for ankursazena99 as they had put it in a post from 2011 and i wanted all to see this so he would get replies. Right buccal mucosa cancer Hi I also was diagnosed with buccal mucosa cancer (right cheek). I had surgery on Sep 1 2014 and am recovering now. Whule surgery went well, lymph nodes came…
Got a but kicking last week
I had a very bad reaction to some medication I was taking and all I can say is man it kicked my butt. I though the end was coming it was so bad; I had 104.6 fever and sweating like a wet dog. The bad part was we did not know what was doing it until I thought to myself, none of this started until I started taking this…
Medicinal Marijuana
Medicinal marijuana. It's already in place in amny states and on the November ballot in Florida. Where do you stand? http://thecancerrollercaoster.blogspot.com/
Celebration To Encourage
Friends, Completed my sixth 5k in about eight months today on my 18 month anniversary of being cancer free. I will enjoy and rejoice in each day I am given. For those in treatment there is a light at the end of the tunnel. And I ran today remembering those who continue the fight and for those who have fought the good…
Got through the claustrophobia of the mask
My husband is terribly claustrophobic and, even with 2 1/2 Atavan in him, was unable to allow the techs to clip the mask in place the afternoon of the "dry run". We spent the week-end worried that he'd do the same thing on Monday and keep postponing the radiation treatment. If he didn't start radiation, the chemo doctor…
Ssc now lung cancer?
i finished 40 rads for squamous cell carcinoma base of tongue metastasized to lymph. At a pet scan 1/2 through treatment, original cancer nearly gone, there was some lighting up in the upper lung region but the radiologist and dr weren't worried. It has been 7 weeks since treatment ended. During treatment I was doing well…

Head and Neck Cancer

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