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NPC - post treatment clogged ears
Does anyone still get clogged ears now and than even after treatment for NPC? Please share cause I am having it now on one side and very worried. Any suggestions to clear the ear?
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Update.. surgery again
Been to see the Doc's the last two days and I have to go back into surgery next week on Wednesday. ENT Doc going to go back in and whittle away on the tumor to get me breathing better before the chemo/radio starts. They did this last July and that is how the tumor in my nasal passage was found, they thought it was polyps.…
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Flu shot?
Did anyone refuse the Flu shot? Doc seemed unhappy with me that I don't want it. I have only had the Flu once and that was years ago. Is there any benefits to would want me to change my mind? Prayers and Hugs ! Kritter
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HBOT YES OR NO?
Hi Everyone, I am new to the site, I tried to find out if anything was posted about HBOT but couldn't. Have any of you tried HBOT? My husband is 5 month post radiation, he has a severe burn in the back of his mouth, and they are now wanting us to try HBOT .....I have googled and now I would like some real opionions please.…
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Best Radiation Oncologists in NJ/NYC area?
Hello, My dad is getting ready for the next step in this journey, which will be radiation. We wanted to see if anyone had any recommendations of top radiation oncologists for oral cancer/head and neck cancer in the NJ/NYC area. He will need radiation to the base of his tongue as well as his neck where he had a modified…
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erbitux
Well people here I sit in the chemo room getting my weekly fix of erbitux this is the 5 week of treatments, I will see the Dr. When the dripping of fluids quit. So far only side effects is a lite rash in my hair. I'll update after I see Dr.
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Still no appetite after 8 weeks, getting worried
I'm getting a bit worried about having no appetite still after 8 weeks since treatment. I am missing food so much though. But it doesn't matter what the food is, my appetite wont stir. I am eating extremely tiny amounts of food, maybe 2 or 3 mouthfuls and I do bottles through my peg, but I need to eat more, losing weight…
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Dad's results after surgery
My dad got his path results back today and stitches taken out after his surgery (modified radical neck dissection) last tuesday. They found the primary tumor- it was in the base of the tongue, as they expected it would be, and they got it all out. I think that's known as "clear margins". It was in more than one lymph node-…
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FACIAL HAIR
Just curious how the men who had beards or mustaches were able to regrow them or not. Before I had my neck cancer I had a full beard and mustache, and what could be long and thick hair, now I cannot grow a beard or mustache. I get at best a well lets call it a 3 O clock shadow and then it just stops growing. I still have…
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Sable1 returns after completion of treatment
Dear All: My last thread was in March prior to the start of my combined radiaition and chemo for tonsilar cancer. I would like to personaly thank this forum site! My journey, as well as everyone here, was rough! But...your where all right...I survived. I am 4 months post treatment and am still dealing with taste bud issues…
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Skiffinator...
Just a quick update..., sorta.. I'm still hanging in there full of hope... I had an abcess pop up, very slowly near one of the original drain sites... That was pretty painful.., got some antibiotics and pain meds for that, and it's on the mend. Not much new on the leky hole as of yet... I am scheduled to see my Gastro MD…
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Do all taste buds come back ?
Hi there, Wondering if anybody had all their taste buds come back. I'm hoping it does, I seem to be able to taste most things, some have even changed slightly because it's not 100%. I still have a sore mouth, maybe thrush or mucositis, unsure, being treated for the latter with a medicine not on the market yet, not a big…
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Clinical trials
Hello everyone, At Don's suggestion, I am reposting a reply I wrote yesterday. My reply was brief but I am more than happy to go into more depth if requested. I have attached a link to the trial below. It's been quite some time since I've piped in. I visit the site often and am still inspired by everyone who posts. After…
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Endoscopy
I had an appt with the surgeon who will carry out my endoscopy. I was in two minds whether to have it done or not. It's not the normal endoscopy, they will go through my PEG tube site up to my esophugus and another surgeon will go through my throat and hopefully they will meet in the middle. They haven't done many of these…
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Thinking about you Shell!!
Good luck today.....think you'll pretty much nap through chemo. First day of rads can be a bit of a heart thumper, but once you get a few days under your belt, things will relax. Drink....drink....drink today and tomorrow.....flush that stuff out of your system. p
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METASTATIC... LIVER LUNGS AND BONE
IVE JOINED THIS FOR MY FATHER NOW 60. HE WAS DIAGNOSED ON NOV 1ST 2013, WITH SQUAMOUS CELL CARCENOMA. I HAD WORKED IN ONCOLOGY AND HEMATOLOGY SINCE 2009 AND HAD LEFT THE PRACTICE FOR NEUROLOGY IN 2012. I CONTACTED MY DOCTOR THAT I HAD WORKED FOR AND WAS ABLE TO LET ME COME IN AND TALK TO HIM LITERALLY RIGHT AFTER WE GOT…
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Side effects of Radiation- Mucoepidermoid Carinoma of Salivary gland
Hello Everyone, My father has been diagnosed with Mucoepidermoid carcinoma - Low grade w . He has undergone surgery to remove the cancer cells and has undergone Neck dissection as a palliative measure. He is currently undergoing radiation . I am not sure if it coincides with what others have had with the same/similar…
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Is it bone metastases or side effect?
Hi everyone. Hope all is doing well. Just to recap, I am 6 months post treatment from NPC cancer. However about 2 months ago, I am having this pain on my left pelvis right up to my knee (left leg). The pain often comes and goes and it tends to be worse at night and while laying down. And may be relieved by movement. My…
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long acting pain meds
Hey everyone, Have a question for anyone using meds. like MS contin (extend release 12 hr). I've been on a very low dose for quite awhile now, using vicodin for break through pain. Are there any weird side effects other's have had using these ? I put a message into my primary today. I'm recently having bizarre episodes of…
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stupid pain patch withdrawls
so my hunny decided he was done with these patches...and took it off on thursday...boy..last night was hell! how long does it take? he feels cold and clammy...cried several times last night...not from pain but feom the withdrawls symptoms...on a good note..he ate three small meals yesterday finally...making progress!
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Gum
Good Morning.... I am sure that I have read in these posts somewhere suggestions for saliva producing chewing gum??
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tracheotomy
Hi All, Thank you all for all your support in this hard journey till now. I have come across another hard point now.My father today had tracheotomy as he had problem in breathing.Last month oncologist has told that the primary tumor has already gone from Pyriformfossa,But there are swollen inside the neck near voice box…
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Countdown
I'm preparing for my treatments. They begin Wednesday for the next seven weeks. Radiation and weekly cisplatan. So far I have: Anti-nausea med Prochlorper (?) Comfy loose clothes Lorazepam for comfortable mask time Spray bottle (Thanks Estelle!) Cases of Ensure Complete Sign on kitchen wall stating "EAT TO LIVE" Eucalyptus…
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STRICTLY LADIES ONLY
Sorry for bringing up something personal, but I have just thought some ladies might not know about it. Many women, including myself, their periods can stop when they're undergoing radio, and all these other horrible cancer treatments. Mine stopped for 4 months, then they've come back, a bit differently, but are gradually…
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Heard from Debi16043 ???
Wondering if anyone had heard from Debi? Last contact was that she had issues with original fibula flap and was getting a second using the other fibula. She remains in my prayers
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Scar Tissue and Radiation
Hi.. does anyone know how radiation affects scar tissue? I haven't had a chance to speak with my Radiologist/Oncologist about this. I do know they are now planning to radiate both sides of my neck. On the right side it is the lowest part of my neck, and my whole right shoulder up to my neck and down to my elbow is 3rd…
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Ringing in my ear
I wanted to first say thanks to everyone on this site. It is very comforting knowing that I can ask questions and get support from such an encouraging group that has experienced much of what i am going through or about to go through. I appreciate it very much!! I started my treatment two weeks ago and half 4 and 1/2 weeks…
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Gravy Tongue
Good morning! My husband is almost 8 months post Radiation.....he has 95% taste back and is tolerating everything - even hot/spicy items. He has regained all of his saliva on the sides of his tongue, and we thought some on the main part. But a few days ago he started saying that he felt like he had a thick gravy on the…
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Adenocarcinoma Ethmoid Questions
Hi All! My doctor strongly suggested I have this cancer but won't know for sure until full pathology report is delivered & MRI is done next week. Any survivors here that can describe what to expect if the doctor's suspicion is realized? (I had a nasal polyp, got CT-scan which showed nothing, but Dr. found tumor upon…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…