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Mouth sores from 5fu
I'm looking for others who have had 5fu treatments I've had one treatment with the infusion removed last Saturday. The mouth sore are really severe. Not so much pain, but not able to eat, brush, and even open mouth very wide. What have others done to releave this side effect?
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Sorry I haven't logged in..
Sorry haven't logged in for awhile. Been down in the dumps I guess. Things just get worse instead of better. Beginning to wonder if I can beat this. Has been one hill after another to climb to get this far. Had hoped I would have finished treatments by now. Did get the * power port * and got the stitches out yesterday. Doc…
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New procedure to open up esophagus
With so many reports here of folks struggling with constricted or closed throats and now living with PEG for the long haul, I saw this post about a very new experimental treatment that might offer hope to restore swallowing. Click
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Uveitis and NPC
Hello everyone!! Just wondering if any of you have experienced recurrent Anterior Uveitis (eye inflammation) post treatment? I had a few recurrences last year and now again. The Docs don't seem to know why I'm getting it. Sometimes I think it could be related to the radiation (because everything else seems to be!! ) so was…
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Can Radiotherapy affect your hearing?
Bilateral, 60 gy x 36. Halfway up face and back of head.
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Checking IN
Hi all: Haven't forgotten y'all. Never will for that matter! Request prayer requests for dear friend (Debbie) in Chatt. She is dealing with her stepdaughter diagnosed with brain tumor - inoperable, highly malignant and very aggressive. And then her cousin who lives about ten minutes from his wife Jean who has all sorts of…
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Esophageal problems
Need some input please....I am dealing with radiation damage to my esophagus and am wondering f anyone who has experienced the same could let me know at what point were you ble to swallow solid food and what did you begin with. Ive had 8 EGD procedures to help with the stricter in my throat. After my second Barium swallow…
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What IS 'Miracle Mouthwash' ?! :)
Hiyah I keep seeing 'Miracle Mouthwash'. As far as I know, we don't have it over here. But you're all saying it's really good. As you know, I'm going in on 14th November to have even more of my tongue taken away Here is what I do have prescribed, and 'in stock' in my ever bursting medication cupboard: * Xylocaine…
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Stanford
I head off to Stanford tomorrow. I received a letter stating that they would accept whatever my insurance would pay, I am afraid it will be $0. The hole in my jaw has gotten bigger, a crown popped off and my wisdom tooth fell out last week. There is still an opening from mouth to sinus and a small opening in the scar from…
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Itching
It feels great to have more radiation sessions behind me (17) then in front of me (13)! :) It is going ok, mouth and throat sores but manageable with all the great advice from the CSN. I don't know if I missed it on the discussion boards but has anyone else experienced itching on the radiation sites? My neck and ears itch…
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Sable1 does Happy Dance
Dear All: 6 month post pet scan behind me now. Wow, what a two week scananziety attack! My Pet Scan showed no cancer. Amen! I was so mentally and physically tired that I litterally slept the whole weekend. Taken Lorazpan definitely helped me get through it, though, the rad dr. wasn't to enthused to see me so calm on a…
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Prayer request for my husband
My husband picked me up from rehab Friday and at 4am Satirday morning suffered a stoke. Thanfull I was home with him. Hospital did not give him antidote because they thought he was on blood thinner. Turns out he was not. He is in ICU and struggling. He is my love of 35 years and my world. Please include him in your prayers.
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Denist for Dentures
Hey Gang went to see my doctor friday for a check up.He said everything looks very good.He liked how I have gained some weight back and the way everything is healing.He said the tounge flap looks very good.Even took pictures for a class he teach's at the clinic.Anyway we talking and I asked about dentures.He said lets wait…
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Been a while
Hi Folks, It's been a long while since I posted or participated on the forum. I want to extend my apologies for my lack of communication. I participated quite a bit before, during and immediately after my diagnosis and treatment. I recieved a Facebook post asking about myself and Marcia. It basically inquired as to how we…
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Question on tongue sensitivity
Hi all On day 11 of 14 golfing in Scotland, nice to finally get away after 3 years of hell. I never lost saliva and my taste seems to be 120% of normal as flavors are amplified now though some have changed. Orange juice can burn and some red tomatoe sauces do the same. All carbonated beverages burn plus all alcohol. The…
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quick hello and thank you
Hi, I'm starting chemoradiation on Monday, and although I just registered on this forum, I've been lurking for a couple of weeks on and off as I do research on what I'm up against. So by way of introduction... My name is Siobhan and I was diagnosed in early September with squamous cell carcinoma in my neck via a fine…
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rads/chemo vs surgery
Now I am very worried. I finished rads/chemo 9 wk ago. I was initially given a choice of rads/chemo or surgery. Drs though did advise me against surgery saying it could affect my speech. Ive now read a post on here where surgery is the better option, picking the other, you end up with problems as a result of rad/chemo the…
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biopsy from lesion hypopharynx
Hi.... Biopsy from Lesion Hypopharynx of my Father-In-Law (aged 63) has been stated to have "Multiple pieces of greyish friable tissue with all pieces embeded:. Microscopical Section Examination shows "moderately differentiated infiltrating sqamous cell carcinoma". Impression is "moderately differentiated infiltrating…
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Day 4 of radiation: DONE. Hope to relax for the week-end
Hello all so today I took some pills to calm me down during treatment and I think it helped as I did not have any panic attack. There are few things I have experienced for the first time: is it again do to me being anxious or is it do to radiation? 1) when I finished the 10 min session, I got up and had pain through my…
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Found a peanut, found a peanut
Found a peanut, found a peanut just now. Remember that childhood song. Well I have been singing that song since Tuesday. Four plus years ago they found a place on my mothers left lung and wanted to biopsy it but she refused. Fast forward to this summer. Spot is now the size of a quarter and she is spitting up blood. She…
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Day 4 of RapidArc radiation for low grade parotid gland mucoepidermoid carcinoma...still very anxio
Hello. I am new to the board. So happy to have found it: I feel very alone even if my family is helping a lot. I feel they do not understand what is going on with me and all the talk and chit chat they do to try to distract me, make me angry. I am so sorry for them, but I cannot help myself being the positive and outgoing…
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Halfway through Chemo and Radiation
I'm almost halfway through weekly chemo and daily radiation. My hair was coming out in fistfuls so I cut it short, very good decision. Chemo day is the only day I feel okay. I got half a dose of Dekadron today and no Ativan and felt great when I left. Now I'll decline from now until next Thursday and have to have a driver…
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Head and neck and sex
this may be of interest........htt://www.carepages.com/cancer/head-neck-cancer-and-sex.html
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Swollen Epiglottis, when does this heal, its been 9 weeks ???
Hi there, I was getting my throat checked with a camera down the nose almost 2 weeks ago now. Was told that everything was fine and throat was healing well but my epiglottis is still swollen. Im assuming this is what gives me the feeling of something stuck in my throat ? It has now been about 9 weeks since my treatment…
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First Time I Had to use Miracle Mouthwash- A question
Through all the treatments I've been through I've never had bad mouth sores. Got some this time and got Miracle Mouthwash today. My question is, does this stuff actually heal the sores or is it just for the numbing properties? Thanks, Joe
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choices -- scc bot hpv+
I was diagnosed with Stage 3 (T1, N1, M0) scc on base of the tongue HPV 16 +. I am hearing from the doctors there are two choices. 1: Seven weeks of radiation (no chemo), or 2: robotic surgery of the tumor along with removal of all nodes on one side of the neck (if any of the small nodes are found to have cancer though,…
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Skiff Update ~ 22 OCT 2014
This past Friday, I had another procedure, similar to an endoscopy.. They went in and removed a 3 - 4" stent that was put in during the original surgery in April. I guess it had moved from the original place, and has been moving around in my stomach... I felt instantly better (once back awake and kicking..) ... No more…
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I'm just going to ask. .no pussyfooting... it there any chance we will resume our sex life again? ?
I miss being intimate and I feel so guilty for missing it. We can't talk about it certainly not easily. ..l hate to complain a in and I shouldn't. . But I do miss our lives. .mind you it had diminished for over year before. . Even a few years it has decreased. .dunno b it makes akes me guilty sellfish..
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Re-posting this ..from ERTHWLKR
Re-posting this for ERTHWLKR hoping he can get some replies as it was buried in my thread about Flu shots.. High potency flu shot and laryngectomyNew Hi Patrick and all: I'm trying to find some backup for the statement that laryngectomy patients should get the high potency flu shot. Is this due to a higher susceptibility…
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Scared to death- 1st after treatment pet
my scan half way through showed uptake (new) in breast and lungs. long story short, but I have pTsd and right now I'm freaking not just about new cancer, old cancer cured, the hour drive there, the claustrophobia of the machine., having a panic attack there, you name it, I'm scared! I want to just cry