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Emotional pink rollercoaster...need my Girlies and a bus... please!!!

JuJuBeez's picture
JuJuBeez
Posts: 332
Joined: Apr 2010

Hello Pinks! I am recruiting some rowdy gals to join me virtually on Monday 2/11 while I have a total hysterectomy and a bladder fix. (Yay! No more stopping to cross my legs before I sneeze.!) I was on Tamoxifen for two years...couldn't handle it, sick ALL the time. I've been on Arimidex since Sept '12. I am having pain in my knees, shoulders, and hands. But it still isn't as bad as I felt on Tamoxifen.

As luck would have it, I started having a pain in the 'good sister' on Monday. I could tell it was probably an infection of some sort. Went to onco on Tuesday, and they did sono. Sono showed a spot, so they wanted a mammo. Then they said they wanted me to see my surgeon and have a biopsy.  Joy. They said it's because of my history, and they want to be extra careful. I was fine at the dr office, but on the way back to work I went kookoo for cocoa puffs. Cried the rest of the day, in front of everyone. So embarrassing. The visit with the surgeon was nice. She said the spot they saw was most likely the infection, so she wants me to finish the antibiotic, have the surgery on Monday, and she will see me on the 25th. She said that even if it happens to be another cancer, it's half the size as the first one we removed and she's not worried. Sooo...another two weeks of waiting to see what it is. I'm going to believe that it's just the infection because I don't have the energy to worry about that AND heal from Monday's surgery. So I picked concentrating on healing.

So while I'm watching winter storm Nemo from the window at work, I decided to ask for some help. Loud music, booze, noise makers, chicken and noodles, brownies... anything??? A card game, perhaps. A real funny movie would be great too. If we can get out of the house. LOL.

I hope all the NE Pinks are weathering the storm ok. Please check in and let us know. Ayse?? How's it by you? Who else is in the blizzard band???

Thanks, Ladies. You're amazing and wonderful and inspiring and supportive and... Laughing  <3

 

 

CypressCynthia's picture
CypressCynthia
Posts: 3994
Joined: Oct 2009

I will be right there with you.  With beignets and cafe au lait, jambalaya, gumbo--whatever you want!  Big hugs and prayers coming your way!

jerseygirl231's picture
jerseygirl231
Posts: 166
Joined: Mar 2011

I am there

roseann4
Posts: 994
Joined: Sep 2009

I'm 4 years out next week and I still think about how terrible it was to wait for the biopsy results, then the cat scan, then the bone scan, then the mri.  I listened to a head set when I went to sleep to drown out my mental conversations and it really worked.  During the day I watched every good movie I could find.  Reading didn't help unless it was stories of medical miracles.  I hate that you are playing the waiting game again but you know that your surgeon is right.  If she isn't worried, you shouldn't be.  They know what cancer looks like.  My surgeon told me after the fact that she knew it was cancer when she saw my mammo but needed the biopsy results before saying anything.  Even with that, here I am still NED.  In fact, I was able to donate a kidney to my son last July.  Try to stay positive...it really will be fine.

 

SIROD's picture
SIROD
Posts: 2181
Joined: Jun 2010

Aromatase Inhibitors do give one pain in the joints and bones.  I am sorry that you are having them.  

If the spot turns out to be, it still would be a local recurrence or a new one, so for now with your plate so full with your surgeries, it is good to take it off your worry list.  Wishing you a good surgery and a noneventful recovery.

Since when have they started to name winter storms?  I am on the coast and the expectations are 24 inches of the white stuff.  I am beginning to hate northeasters but I rather they not have names.  When I was a kid, I love them.  Nemo?  Oh gosh, he is furious and it's still snowing and blowing in my neck of the woods.

Good luck and let us know how you are doing.

Doris

PS:  I'll bring a snow shovel, some salt for the sidewalk and some lobster rolls.

smalldoggroomer's picture
smalldoggroomer
Posts: 1181
Joined: May 2010

I hate waiting too. I'm with ya on the bus. And all day.. Best wishes

Kay,

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

I am with you too!

lintx's picture
lintx
Posts: 456
Joined: Sep 2012

on Monday.  I think you'll be fine but do know the feelings you described.  Waiting for everything stinks but do get beyond the hysterectomy first.  Piece of cake, girlfriend:)  Linda

Double Whammy's picture
Double Whammy
Posts: 2303
Joined: Jun 2010

for those of us on the bus.  I imagine we will be pretty crazy by the time the day is over.  But we'll all be there for you.  As one who had both parts (boob and uterus) needing attention at the same time 2 1/2 years ago, I know it's overwhelming.  I will bring comfort food - chicken soup.

Hugs,

Suzanne

Lynn Smith
Posts: 1265
Joined: Mar 2011

I'll be on the bus. I think 3 Pink Sisters need the bus so we will be driving all over the place. Still we'll be there to support you with your surgery and the others with their tests etc. Hope your surgery goes smooth and without problems. 

Lynn Smith

Jean 0609's picture
Jean 0609
Posts: 2329
Joined: Jun 2010

Sorry to hear that you are going through all this.  Sending positive thoughts, prayers & hugs your way.

 

We are having our Hershey reunion in November, maybe you can make it this year.  I am trying to talk Ayse into coming too.

 

xoxo,

Jean

 

camul's picture
camul
Posts: 2081
Joined: Dec 2010

Wishing you the best on your surgery and will pray that in 2 weeks when you go back the spot is gone!  Be careful with the storm.

Hugs

Carol

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Praying your surgery was successful and that you fully recover at home soon.

 

muffingranma
Posts: 107
Joined: Sep 2012

I am sorry your going through so much. I know about surgerys and scans. My cancer is in the blood cells and I will have surgery the 15th. I will say a prayer for you. THE pink bus will carry healing pills for you. We will be thinking about you.

jennytwist
Posts: 737
Joined: Sep 2009

keeping you in all my prayers and thoughts!  I'll bring a pitcher (or 2) of margarita's - that can't hurt!!!!

keep us posted

much love,

 Jenny

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Thinking of you and hoping that your surgery went well.  Check in when you can.

Hugs, Kylez

eihtak
Posts: 857
Joined: Oct 2011

Along for the ride. I just started making possible hysterectomy plans myself! You'll be in my thoughts and prayers.

JuJuBeez's picture
JuJuBeez
Posts: 332
Joined: Apr 2010

Thanks, Ladies! I think those of us with procedures Monday should get together before the pain meds wear off so we can giggle and compare boo-boos. LOL. You are such a great group of Pinks!

p.s.  i had a big margarita last night during the snow storm...luckily sports bar (i almost wrote sports bra.. lol) 3 blocks from house. boy, do i have a headache today!

Bella Luna's picture
Bella Luna
Posts: 1572
Joined: Aug 2009

 

 

Count me in.  I will be riding the Pink Diva Bus with you and the other Pink Sisters.  As to what to bring... I'll bring a pitcher of long island ice tea to get the party going.  Prayers and hugs to you.

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

I will be with you!

 

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

I drank margarita's just once and never again.  LOL  I thought I'd never get over that headache. 

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Sending healing thoughts and lots of gentle hugs!

muffingranma
Posts: 107
Joined: Sep 2012

I will say a prayer for you. I hope your  surgery goes well, and no pain. Lets hope your. Lets hope the other is just infection. We all will be thinking of you. keep us posted.

aysemari's picture
aysemari
Posts: 1590
Joined: Dec 2009

I will be holding your hand and your cocktail, so you don't spill it being rumbunctious and all.

I am raising my glass to an uneventful surgery and a very quick recovery. We will all be pampering

you and checking on you virtually till you get sick of having us all around you and that's a promise,

or is it a thread?

 

Love you Julie,

keep us updated on everything

Ayse

VickiSam's picture
VickiSam
Posts: 8292
Joined: Aug 2009

I caught the bus!!  Gentle hugs, and prayers coming your way, dear Sister.    Fingers and toes, crossed. 

I may need a cup of coffee or two .. to keep up with you East Coast Gals!

 

Vicki Sam

 

disneyfan2008
Posts: 5398
Joined: Oct 2010

count me in..

Denise

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Where's our JuJuBeez?  Miss you and are starting to worry.

Sue :(

sbmly53
Posts: 1476
Joined: Jan 2010

How are you, Julie?

 
Sue

 

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

I haven't seen any update either on Julie.  I pray she is alright.

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Thinking of you and sending gentle hugs!

Pink Rose
Posts: 495
Joined: Nov 2012

Congrats to you for your good news!

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

I missed the big congrats party!  But, that is ok!  I'm just so happy for you Julie!

LoveBabyJesus's picture
LoveBabyJesus
Posts: 1654
Joined: Jan 2011

Sorry I missed this bus but I want to know how you are. Please let us know when you can!

JuJuBeez's picture
JuJuBeez
Posts: 332
Joined: Apr 2010

Hi Ladies!

Thanks for checking in on me! Sorry I haven't been on. I don't get on the computer much, and for some reason I can't log in from my Kindle. The surgery went well..the bladder mesh-thing was a little more painful than the hysterectomy. Last Monday I went for a biopsy on the good sister, and lo-and-behold... there was NO spot when they did the ultrasound. No biopsy needed. It was the infection that they had picked up a few weeks ago. Can I get a HALLE-LOO? I know I don't even have to try to explain the relief I felt at that moment. Holy Cow.

Thanks SO much Pinks, for being there for me! Your prayers, thoughts, vibes, 'juju' all go a long way. You make great things happen! Now my next goal is to train for the Komen 3-day in Chicago, coming up in August. LOL. If any of you are in the Chicago area, and want to join the team I'm on... we are Double D-lites. LOL. We'd love to have company. If you are in the area, and don't want to walk, but would like to meet in person..that would be wonderful too! Let me know and we can work something out!

Thanks again, Pinks. You are awesome! xoxo

 

 

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

First, CONGRATS on NED!  That is so wonderful!  So, you get a HALLE-LOO and more!

So glad to know your surgery went well.  That is really good news! 

Good luck with the Komen walk and thank you for doing this for all of us!

 

Sue :)

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Thanks for updating us JuJuBeez!  We were getting worried!  Congrats to you and glad your surgery is over and that you're doing well.

Hugs, Lex

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

Very good news!  Appreciate the update!  Have fun on the Komen walk JuJuBeez!

 

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Love the name Double D-lites!  lol  Have a great time at the walk and congrats!

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Sending big congrats to you too for getting thru your surgery and I pray that your healing will be fast for you.

I really like your team name too.  Very clever!

Keep us updated on how you are feeling as we all are here for you.

 

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Happy dancing along with the others for your good news!

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