Jan 31, 2013 - 11:44 pm
CANCER SURVIVORS. Please enroll or check in for year 2013.
WE SURVIVED! Read about us and for the newbees, hope this forum brightens your day since a great percentage overcame this dreaded disease.
We have 97 folks who registered or checked back in. For those who have not checked in since January 1, 2012, you have been moved to the Missing list. (to be published in a few days)
We started this list a few years ago. It is a voluntary enrollment. H+N patients have had a very high survival rate and the enrollment/reporting would provide incentive and good news on our survival to those checking in for the first time. I am sure that many who failed to report back in are still around.
There may be others who post in this section and unless they enrolled, I have not included their names. We welcome your enrollment. As noted, please include your state, date diagnosed, type of cancer, brief description of your treatment and your status. After you have enrolled, we hope you will check back in at least once a year even if you had left this forum. A brief statement that you are still around and doing okay would suffice.
The date of enrollment will be different from date diagnosed. The enrollment date is when you registered for Roll Call, not when you registered to be in the forum.
THE SURVIVORS - 97 of us
Bigfuzzydoug, Mooresville-North Carolina, enrolled July 30, 2010. DX SCC above vocal cord July 2010. Checked in January 9, 2012, doing better than OK. Able to eat again and put back 17 pounds of lost weight. He is going through some final edits.
Billie67, Torrance, California, joined forum July 2012, enrolled October 24, 2012. DX’d stage IV laryngeal SCC with few lymph nodes. PET/CT NED on September 28, 2012. Checked in January 3, 2013.
Bjohn, Chicago, Illinois, enrolled January 22, 2013. Husband DX’d w/olfactory neuroblastoma in May 2011. Recurrence in neck in May 2012. Good response and feeling well at time of enrollment.
Braziliangirl82, state unk, enrolled January 20, 2012. DX’d T1N0M0 right side tongue cancer in December 2011. Next appointment on February 10, 2012.
CajunEagle, Lousiana, 2009, checked in 02-03-2010, DX Stage 4, left tonsilar cancer in 2009. Enrolled on February 3, 2010. Checked in January 8, 2012 and doing well.
Christmas, California, diagnosed Nasopharyngeal in 2004, enrolled July 8, 2008, had been absent and reported back on August 22, 2010. Checked in January 23, 2011. Checked in January 22, 2012.
CivilMatt, Oregon, enrolled October 22, 2012. DX December 23, 2011 w/Stage Iva, SCC, BOT, HPV+ & l lymph node on left side of neck. Checked in January 19, 2013.
Connieprice1, Texas, enrolled July 17, 2011. DX SCC stage IV, base of tongue in October 2010. Checked in January 17, 2012.
Cureitall66, Michigan, enrolled loved one on October 23, 2012. DX’d on August 21, 2012 w/Stage IV, SCC, BOT, HPV=, 1 lymph node n left side of nect. Still undergoing treatment at time of enrollment.
CynthiaB1, Buffalo, New York, DX’d May 2012 w/SCC nasopharynx, Stage III. Completed treatment October 21, 2012. Best wishes Cynthia. I completed treatment in June 1998 for NPC so great hope for a long life.
Dclear14, state unk, enrolled April 5, 2012, DX’d on 1/13/12 w/BOT cancer w/lymph node, State IV2BM0. Just finished chemo/rad at time of enrollment.
D Lewis, Sierra foothills, California, enrolled February 5, 2010. DX SCC base on tongue, January, 2010, checked in July 23, 2010. . PET-CT NED in October 2011. Few lingering effects of radiation, but all is well. Checked in January 4, 2012 and excellent.
DaveB, state unk, enrolled on January 18, 2012. Malignant CBT removed in 1990. Mets to lungs, spine and mediastinum discovered in 2003.
Davidgskinner, California, enrolled July 13, 2010. DX stage 4, SCC right tonsil. Checked in August 5, 2011. Checked in January 7, 2012, doing okay. Side effects discouraging and lot of depression, but seeing professionals. Wishing you the best.
Dazey, New York, enrolled January 31, 2010. DX’d SCC unknown primary in 2009. Checked in October 23, 2012 and all remains clear NED!
Depressed63, Brookville, Ohio, enrolled by wife Donna, January 17, 2012. DX’d stage 4A cancer, date unknown.
Donnahamblin, Fairborn, Ohio, enrolled January 11, 2012 Husband DX September 16, 2011, stage 4, tonsil cancer, SCC and is HPV positive. Start radiation January 12, 2012. Also DX with Parkinsons Disease at age 45 in year 2005.
Ekdennie, Oklahoma, enrolled January 17, 2011. DX’d Mucoepidermoid carcinoma of hard palate w/growth into maxillary sinus-June 30, 2010. Enrolled on January 17, 2011. Checked in January 7, 2013 & doing great w/no sign of regrowth. Welcome back!
Finz2lift, North Carolina, enrolled January 11, 2010. DX SCC base of tongue. Did not check in. Reported by Skiffin16 on January 4, 2012 that he is around and doing well.
Fire34, Illinois, enrolled March 17, 2010. DX unknown primary June 2009. Checked in January 5, 2012, starting annual checkups, so far-good.
Fisrpotpe, Champaign, Illinois, enrolled December 29, 3010. Dx’ed SCC 5 golf sized node around carotid on January 19, 1996, radionercrosis of pharynx in July 11, 2008, SCC back of tongue on February 5, 2009, broked neck March 5, 2006 in accident. Reported by Longtermsurvivor on October 25, 2011 that he is still around. Checked in January 4, 2012. Had 4 teeth removed, 4 checkups and continued NED. Checked in April 2, 2012.
Fishmanpa, Front Royal, Virginia, enrolled February 1, 2013. DX Tx N2b MO Stage IV November 30th 2012. About to undergo neck dissection (Feb 7th) and further biopsies. Treatment tentetively scheduled for beginning of March. 6-7 weeks rads and possible weekly chemo (Cisplatin).
GraceLibby, Renton, Washington, enrolled July 14, 2010. DX’d Stage 3 SCC, right tonsil primary. Checked in January 16, 2011. Reported in January 9, 2012. Had one year post treatment checkup in November 2011 and doing great. Saliva not good and worst is constant tinnitus.
Grandmax4, Green Camp Township, Ohio, enrolled January 19, 2013. DX’s September 2011w/De Vinci Robot surgery on November 2, 2011 and removed epiglottis. All is well and can eat anything.
Greend, Prattville, Alabama, enrolled January 16, 2012, DX SCC Right tonsil, still above ground and enjoying life.
Greg53, Missouri, DX SCC right tonsil, enrolled 07-20-2010. Checked in January 21, 2013. Almost 3 years out and doing well.
Greg from pa, Pennsylvania, enrolled January 21, 2013. DX’d SCC base of tongue w/mets to lymph notes stage 4. NED in November 2010. Returning back to work soon.
Hawk711, California, enrolled January 1, 2012, diagnosed SCC base of tongue January 2010, NED July 2011. Checked in January 4, 2012.
HAWVET, Hawaii, DX Nasopharyngeal January 1998, Enrolled in January 2008. Checked in August 4, 2011. Checked in January 1, 2013 and still okay.
Hondo, Lafayette, Louisiana, enrolled January 31, 2010, joined forum April 2009. DX’d Nasopharyngeal in November 2002. Having lot of problems w/radiation side effects almost 8 years later. Check posting below for more info. Checked in February 1, 2013.
Hwt, St Louis, Missouri, enrolled October 23, 2012. DX’d January 2012 w/cancer in mandible (lower jawbone). 19 hour surgery and recent scan - NED. Will start implants to replace majority of lower teeth removed during surgery.
Irishgypsie, Rochester, New York, enrolled on 07-11-2010. DX SCC right tonsil, Checked in January 16, 2012.
Its, Michigan, enrolled January 2, 2013. DX’d October 2012 Adenoid Cystic Carcinoma right submandibular gland. Neck dissection to remove gland, 30 lymph nodes, and some local muscle. Still in radiation as of enrollment date. Best wishes!
J3rey, Florida, enrolled July 26, 2010. SCC left lymph node April 2010, Did not check in but reported by Skiffin16 on January 4, 2012 that J3rey is still around and doing well.
Jbob1981, Montrose, Pennsylvania, DX December 2009 w/malignant paraganglioma of right carotid artery w/lymph node involvement. Discovered in January 2012 that have mutation of the SDHB gene.
Jeepman, enrolled January 8, 2012, DX stage 4 SCC primary right tonsil/BOT. Neck dissection following rads showed NED. Also had abscess in neck.
JGE, state unk, checked in 03-17-2010. 2008, BOT w/2 nodes. Had chemo and rads. All scans cleared, return to work 01 2009. Finally checked back in January 3, 2013. Welcome back. Enjoyed your post J
Jim & I, registered on August 7, 2011. Checked in January 20, 2013 w/more info. Caretaker of husband Jim, dx’d w/base of tongue, stage 4 and two lymph nodes in April 2011. Finished treatment in August. Three months later spread to both lungs. Informed in September 2012 that less than a year. Still believe in miracles. Adding my prayers and best wishes.
Jkinobay, Arizona & Mexico, enrolled April 21, 2009. DX’d HPV16 positive lymph nodes in 2007, checked in July 27, 2010. Finally checked back in on February 28, 2012. First person to check in-year 2013 on January 2, 2013 and reached the 5 ½ years and still NED.
Jtl, SW Florida, enrolled October 23, 2012. DX’d in August 2011 w/cancer of the or pharynx and one lymph node. One year post treatment and NED. No saliva, taste, dental or swallowing issues. Congratulations!
K9lover, tried to enroll on January 15, 2012 on another thread. Please post at the end of this thread if you have returned.
Katenorwood, Minnesota, enrolled October 23, 2012. DX’d with ACC adenoid cystic carcinoma of the right submandiblar gland. Had radical resect done, 7 nodes taken.
Kdwers, Texas, enrolled on January 18, 2012. Husband DX’d NPC, stage IV w/mets to lymp nodes/liver in September 2010. .
Kent Cass, Quad cities, Midwest, enrolled July 22, 2010. NPC unknown primary in 2009, Checked in January 6, 2012, still dealing with teeth issues/neck spasms, but still okay.
Kingcole42005, California, enrolled January 3, 2011DX Mucoepidermoid Carcinoma in 2010.
Klynten, Clinton, Washington, enrolled January 10, 2012, DX November 2011 w/Stage IV Mestatic SCC, unknown primary, starting radiation in two weeks.
Larrykins, Europe, enrolled January 18, 2012. DX’d SSC left tonsil w/3node metastasis in February 2011.
LeoS2323, Liverpool, England, enrolled on April 2, 2012. DX’d MEC stage 4, unknown primary, met to lymph node. One tonsil to be removed April 2012,
Longtermsurvivor, Arkansas. Posted on October 27, 2011. Must have missed his enrollment. Enrolled on January 11, 2012. DX SCC soft palate. Third cancer and still in treatment. Commented on post on February 1, 2013.
Luv2cut1, Myka Landry, Colorado, enrolled January 6, 2011. Husband DX SCC supraglottis in May 2008, recurrence in neck-March 2009. Checked in January 15, 2012, husband doing well 27 months out. Now in treatment for CLL (chronic lumphocytic leukemia). Checked in January 21, 2013. Complete remission. Overall quality of life good.
Luv4lacrosse, St Louis-Missouri, enrolled December 28, 2010. SCC right tonsil in June 2010, Reported in January 16, 2012 and almost 15 months NED.
MarineE5, state unk, joined forum December 2005. DX 2004 Base of Tongue cancer. Checked in February 1, 2013, doing fine.
Meaganb, Columbia, South Carolina, enrolled on October 24, 2012. DX’d March 2012 w/Adenoid Cystic Carcinoma. Tumor removed along w/47 lymph nodes. Clean MRI/chest X-ray in August 2012.
Mikemetz, Decatur, Georgia, enrolled January 11, 2012, DX Mucoepidermoid in February 2009, Currently being treated for ORN, otherwise doing well, next scan in April 2012. Checked in on October 25, 2012. Had Debridement in April and again on this date. Still NED
Mrs.Sarge, State unk, enrolled October 24, 2012, joined forum April 2012, DX’d stage 1 SCC vocal cords, NED. Voice not the best but thankful. Checked in January 7, 2013 and voice better. Several scans and all NED. Rechecked in on January 21, 2013.
Nankster, zip code 30033. Enrolled for wife on January 3, 2012. DX Adenoid Cystic Carcinoma and completed radiation December 16, 2011.
Netracker61, state unk, enrolled on April 2, 2012. DX’d esthesioneuroblastoma in 2001. Back for 3rd time. .
NJShore, New Jersey, Enrolled Jan 7, 2013, DX’d October 11, 2012 w/Stage IV left tonsil cancer, metastatic to left neck. 3 involved lymph nodes of which 2 are extra capsular. Still undergoing treatment as of enrollment date.
Noellesmom, Noellesjim, Alabama, enrolled on April 2, 2012. DX’d advanced hypo pharyngeal and base of tongue cancer in April 2010. Checked in January 22, 2013 and reported NED in November 2012.
NousDefions, state unk, enrolled January 19, 2013. DX’d June 27, 2012 w/T2N2CM0 Stage IV SCC, primary right tonsil. Left and right lymph node involvement. Treatment completed and given NED on November 16, 2012. Went into 1st surgery weighing 225 pounds and after treatment, weighed 165 pounds (-60 lbs). Feels great and look forward to deploying. TY if you are serving in the military. I also proudly served.
Nwasen, Ohio, enrolled January 9, 2012, DX Stage 4, base of tongue w/3 lymph nodes in October 2010. Last treatment December 18, 2010, PEG removed July 2011. Grateful to be alive. Only posted “oops” on January 9, 2012
Olivia46, New Jersey. enrolled January 3, 2012. DX olfactory neuroblastoma (ethesioneuroblastoma) in the sphenoid sinus. Surgery in October and will start radiation therapy January 2012.
Oldpaint03, Utah, enrolled January 14, 2012 for husband Jack. DX w/stage 4 SCC BOT w/nodes on both side of neck. Completed 7 weeks chemo/35 rad treatments on January 15, 2011. Three Pet scans all clear for cancer, but having problems w/blood clot in jugular vein. Also had nerve damage. Still fighting, but unable to return to work due to dizziness.
Ooo, Boston, Massachusetts, enrolled on April 2, 2012. DX’d SCC oral tongue in February 2012. Tumor removed April 2012.
Osmotar (Linda), Arizona, enrolled January 5, 2012. DX June 2011 with SCC Rt tonsil, 1 lymph node. Completed chemo October 2011 & radiation in December 2011.
Palmyrafan, Ohio, enrolled January 11, 2012. DX 1994 multiple megiomas. Sinus surgery 1993, brain surgery 1994, Radiation therapy 1996, Sinus surgery 1997. Tumors returned in all areas that were resected and radiated. On W&W with upcoming sinus surgery. Have lost most of hearing and trying to preserve her vision. My prayers and wish you the very best.
Pascotty, Bunbury, Western Australia, enrolled January 7, 2011. DX’d SCC right tonsil in November 2009. Checked in January 8, 2012. 2 years/3 months survivor as of January 7, 2012.
Patricke, South Florida, enrolled on January 19, 2012. DX’d Stage 4, base of tongue in July 2000. DX’d w/tumor at entrance to trachea in April 2011. Larynx removed. Checked in March 1, 2012.
Phranni51, Kalispell, Montana, enrolled, April 2, 2012. DX’d NPC Stage III, T1N2M0 on March 26, 2012. Checked in January 18, 2013. Finished rads in June.
Puggle, Pennsylvania, enrolled, January 4, 2012, caregiver for husband, DX June 2011, primary epiglottis with node involvement (1 side). Completed 32 rads and 3 chemo (cisplatin) Aug 2011. First scan post treatment shows NED
Rascal52, Michigan, enrolled January 17, 2012, DX SCC of neck on January 19, 2009, unknown primary
Ratface, Illinois. DX July 2009 BOT, T1N2BMX, Stage IV-BOT-2 nodes right side, selective disection 11-30-09 9 nodes removed. Checked in October 24, 2012 and getting ready for another horrible winter.
RayTodd, Checked in December 31, 2011. Cannot locate enrollment data, checked back in January 7, 2012.
Redbanker, New Jersey, enrolled on January 21, 2012. Nancy enrolled BF. DX’d SCC BOT HPV + T1N2a, Stage IVa on March 9, 2011.
RJC-still-vertical, Illinois, enrolled January 15, 2012. DX June 1991 w/SCC base of tongue. Non-operable chemo and radiation. Long term survivor and no recurrence except for issues from complications associated w/treatment. NPO (No food or fluids orally), Gastic (Gtube) insertion in stomach for nutrition, medication and fluids.
Rmdgy, Georgia, enrolled December 28, 2010. SCC right tonsil in 2009, Checked in January 4, 2012. Scans clear and NED.
Rush1958, Kansas City, Kansas, enrolled July 20, 2010. DX’d SCC base of tongue January 12, 2010. Checked in January 21, 2013.
RushFan, Cypress, Texas, enrolled August 3, 2010. Diagnosed HPV=T) N2b MO unk primary in January 2010, . Checked in January 11, 2012. Regained 25 of 35 pounds lost. Saliva doing well and taste back to normal w/exception of sweets. Minor issues with jaw still tightening and w/tinnitus.
Sash, Florida, enrolled August 24, 2008. DX SCC base of tongue September 1999. Checked in March 4, 2012
Sassysric, Cape Cod, Massachusetts, enrolled January 21, 2013. Boyfriend DX’d SCC base of tongue w/1 lymph node on November 2012. Treatment will end on January 31, 2013.
Shoeloy, Cypress, Texas. Enrolled January 5, 2012. DX hypopharyngeal SCC State 3 in December 2010, Completed treatment in April 2011 and NED as of this date. Checked in March 4, 2012 and feeling good.
Skiffin16, Lakeland, Florida, enrolled January 31, 2010. DX right tonsil, January 2009. Reported in January 4, 2012 w/status of finz2left ~ Lloyd, j3rey ~ Mark, irishgypsie ~ Charles (all doing okay). Checked in January 18, 2013 and all clear.
Soccerfreaks, not enrolled, but posted on welcoming Sash back. May have missed enrollment, but he has been around a long time.
Staceya, Whitefish, Montana, originally from Brooklyn, NY, enrolled February 2, 2010. DX stage 1 NPC in 2009, Last scan December 2011 - NED. Checked in January 4, 2012.
Stevenl, Fort Worth, Texas, enrolled January 31, 2010. DX SCC right tonsil. Checked in January 9, 2012 and doing well.
Sukichu61832, Danville, Illinois. Enrolled January 9, 2012, DX September 9, 2011 w/stage 3, SCC left tonsil. Surgery removed on 10/4/1011. Started radiation in November 2011 and still have four more treatments. Lost weight and have issues with shoulder/arm due to surgery.
Sumarah8, state unknown, enrolled Januay 5, 2012. DX September 2011 with NPC, Stage 2b. Treatment until February 2012. Checked in January 8, 2013; struggling to gain weight but still okay.
Susan0803, New Jersey, enrolled January 20, 2011. Husband Joe, DX’d SCC of left tonsil (primary tumor)-August 3, 2010, Reported in January 11, 2012. All news good, no scans needed in foreseeable future, weight back up and eating normal. Still have hearing loss and tinnitus still bad..
Sweetblood22, Pennsylvania, enrolled March 18, 2010. SCC HNC unknown primary stage 4 DX December 2008. Checked in January 3, 2012, everything appears okay. January 2012 is 3rd anniversary.
TheOtherDitto, state unk, enrolled January 21, 2013. Reported Ditto1 DX’d w/stage IV, BOT, multiple lymph nodes on both sides in March 2012. Treatment completed and unofficially all clear. Follow up biopsies due on January 26, 2013. Best wishes.
Timreichhart, Ohio, enrolled January 16, 2011. DX NPC March 2010. Checked in January 6, 2012. Still dealing with lung problems and other minor ailments, but otherwise okay.
Tommyodavey, Las Vegas, Nevada. DX October 2011 w/Mucoepidermoid Carcinoma. Tumor on base of tongue removed November 9, 2011. Scheduled for radical/modified dissection on January 11, 2012. Checked in on January 7, 2012.
ValerieMo, in military, enrolled on January 20, 2012. DX’d Olfactory neuroblastoma.
Vermontgirl, Vermont, enrolled January 3, 2013. Husband DX’ed with SCC tonsils, Stage IV w/one lymph node on same side on November 19, 2013.
Victor53, Rhode Island. Lives in Costa Rica, enrolled August 5, 2008. Started Stage 4 treatment on April 4, 2008, chuckled on comment that chemo & radiation did not sterilize him. Has 5 year old son & 11 month old daughter. Checked in January 23, 2012; Announced he is on FB “face book.com/victorb153” on January 7, 2013.
VivianLee5689, state unk, enrolled January 21, 2013. Husband DX’d w/stage IV, BOT cancer. Also DX’dwith Primary Plasma Cell Leukemia, November 24, 2012. Cancer is not curable and given a 3% chance of living. Wishes he will be here for next roll call.
FORUM USERS, PRAYERS NEEDED.
MAY THEY REST IN PEACE
Bany, Canada, 2008, Dad (TR2), SCC of the maxillary sinus (located near Canada). Enrolled on July 30, 2009.. Dad completed treatment 03-2009, Dad lost 70 pounds. Bany later reported that dad passed away on 11-02-2009.
Delnative, Delaware, Diagnosed Stage III SCC Right tonsil in 2008. Enrolled February 2, 2010. Reported by Skiffin16 on April 5, 2012 that he passed away.
Glenna M, New Hampshire, enrolled on 1-31-2010. DX’d SCC laryngeal and NSCLC Aden carcinoma in left lung in May 2009, Checked in January 16, 2012. Just finished chemo and waiting to start clinical trial w/Sinutinub for recorrence of NSCLC now in both lungs. No problems w laryngeal after 2 ½ years. Reported by Skiffin 16 that she passed away in 2012.
Hunpot, Massachusetts, Mom passed away, August 18, 2008 (Squamous cell carcinoma top voice box). Checked in Jan 2009 Name Tracy
MOM674, Passed away in December 2008. Was a brief member, fought hard…reported by knobby
Mswijik, New York, husband Patrick diagnosed laryngeal stage 4 - September 2010, enrolled January 16, 2010.Condolences extended. Reported on March 6, 2011 that Patrick passed away on February 17, 2011.
Robinleigh, Montgomery, Alabama, caregiver for Andy. Andy DX January 2011, SCC primary tonsil. Had surgery, metastasis to pelvic region bone, in clinical trial and fighting hard. Checked in on January 7, 2012. Reported by Robin that Andy passed away in September 2012.
Vikeman10, Edina, Minnesota, enrolled October 30, 2012. DX’d December 2010 w/malignant neoplasm of posterior hypo pharyngeal, stage 4. Pet scan and NED on 10/29/2012. Happy to be still kicking. Me too J Checked in January 3, 2013. It was reported that Vikeman passed away shortly after posting his status. May he rest in peace.