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Msdebym
Posts: 8
Joined: Oct 2012

I just wanted to introduce myself my name is Debbie I have been diagnosed with stage IV cancer back in 2009 . I always visited this website but I've never joined until today. I am at an advanced stage with metastases to my bone, spinal cord and brain. I've been through hell and back and I and in constant pain. I am hoping to find ideas to help me alleviate some of this pain. I'm current currently doing Taxol and Hercptin every Friday At Mount Sinai Hospital in Manhattan New York.

I have my good days I have my bad days - it seems more bad as I'm hitting a depressive state.
I got I have my two cats that make me smile and a wonderful supportive boyfriend and family. If it wasn't for them I think I would've given up a long time ago.

Anyhow. Hello all and I look forward to joining in on some wonderful conversation.

Debbie

roseann4
Posts: 992
Joined: Sep 2009

So sorry to hear that you are suffering. My cancer is not stage IV so I don't have any advise about controlling your pain. I just wanted you to know that I saw your post and send you my love. Never give up hope.

Roseann

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

Hi Debbie,

You might ask your doctor about Fentanyl Patches. I use one and it make a big difference with quality of life. It slowly release the amount of medication you need. My patch is changed every 3 days. There is never having to watch the clock or start hurting because you didn't remember your pill.

There really is no point in suffering, talk with your doctor about it. I like it a lot more convenient than pills and I believe work better. I started with the lowest dosage and worked upwards until I found the right amount. They are a narcotics so you have to purchase them in a pharmacy not mail order if you have a prescription policy.

Wishing you the best,

Doris

ladyg's picture
ladyg
Posts: 1577
Joined: Apr 2010

Welcome to the club no one wants to be in. It is good that you found us but I am sorry you had to. We are here for you any time you want to talk or vent. You will also get a lot of support here.

Hugs,
Georgia

disneyfan2008
Posts: 6313
Joined: Oct 2010

HI Debbie:

NICE to meet you via this site...

Denise

nanniebgood
Posts: 42
Joined: Oct 2012

Hi Debbie, Im soo terribly new here too, I cannot relate to your journey but their is a wealth of info and love here, I'm begining to feel like every woman has breast cancer the numers are staggering, but we are here! I hope you can feel my arms hugging you and as a former nurse they Fentyl patches are great, ask your doc about them and I hope you find some relief, praying for you.

Msdebym
Posts: 8
Joined: Oct 2012

Hello everyone and thank you for the warm welcome. I actually have tried fentanyl 75 mcg, but I broke out in hives. I think the dosage with extreme for me. When I go to the hospital this Friday I Will ask my oncologist for a lower dose.

My hospital did a little story on me. This was also before I had brain metastases to my frontal lobe which was very Recent.
http://www.mountsinai.org/patient-care/service-areas/neurosurgery/areas-of-care/spine-disorders/patient-stories/mount-sinai-neurosurgeons-reverse-paraplegia

Thanks for the prayers

Big hugs,

Debbie

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