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found 3 spots in this mornings pet scan

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

its been 6 months since the last pet.

3 very small spots one liver, one lung and one spleen.

no feedback from onc's yet, i had the results faxed to my alt gp.

feeling great, i am alive and have a few challenges. possibly more than i bargained for, but it could have been worse.

for the record i have no regrets about my treatments so far, and i look forward to seeing what marvels the conventional system has to offer.

I wish the gcmaf and the seacucumber would have done it, they may help, time will tell.

i have put my alternative accomodation for cancer patients on hold as well as my teaching others qigong. looking at what is the best strategy. when i get my options presented, i will share my plan. until then its off to sleep.

I wish I had better news to share.

i wish the alternatives i have tried so passionately could have delivered a better result, for me , for others, but the race is not over, and the healthy life has been fun and exciting and the next stage of the adventure continues. I will see my three teams of onc next week to see who offers the cheapest price chemo, still favouring the light chemo approach, but i will take all recommendations into consideration before deciding.

i bought a bunch of flowers home to wife, finished work 10.30pm, a big day pet 8am and non stop except for 90 minutes qigong. it really settled my nerves. I gave my son the flowers to give to mum, i like teaching him how to be a gentleman. thats my job. my wife was all smiles. she made me my veg juice when i got home and my organic chicken and veg was waiting for me. i am off vegan and onto ketogenic diet.

my friends many of you have been down this path before, and now so do i. your thoughts and support are always appreciated.

hugs,
Pete

ps not the easiest post to write.

pps http://petertrayhurn.blogspot.com.au/2012/09/8am-pet-today-little-did-i-know-hat-it.html

ppps smile, i am, if my gcmaf and sea cucumber smoothie did not kill me then what chance do a few spots have.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i smelt the flowers, they were really nice.

then i gave them to the wife.

hugs,
Pete

herdizziness's picture
herdizziness
Posts: 3453
Joined: Apr 2010

Pete, oh dear Pete, keep smelling them, let them give you a calmness of some sort, so that this crazy often insane world of cancer can keep you in a peaceful spot for a minute or two, and then hopefully linger on in your memory, keeping things on an even keel.
I hate where your cancer has arisen (I'm know you do too even more so)but I believe with your determination and fortitude you can beat this once again.
Do your yoga, and whatever else mind wise that can bring a bit of peace to you, I know from experience the heart does a bit of the pitter patter a lot more when you discover it is back...but I have faith that you can beat it again, so take a little step back, reassure yourself and go from there my friend from down under.
And Pete??? Hugs back,
Winter Marie

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Sweet smells linger like flowers, like the kindness of our friends. Here and at home. I am calling in my favours and simply asking for more help to find a way to live well. Help from doctors, family and my local community.

Meditating in sauna as I post.
Hugs always,,
Pete

Ps our friendship is a good example of putting love ahead of ego, in that our different points of view have never got nasty.

LivinginNH's picture
LivinginNH
Posts: 1319
Joined: Apr 2010

Did I read that right?? It spread to your peritoneal cavity and you're considering HIPEC??? I didn't see that one coming! Well, if you decide to go for it, send me a note and I'll tell you all about it.

Take care,

Cyn

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

oh cyn,

the joys of this illness.

I think its hipec they said for me , i am waiting till i see the surgeon.

I suspected it was coming, and not in the liver, as my liver has been scanned till the cows come home.

yes that where the action is, the peritoneal cavity. yuk!

i will pm, after i have the consult, I am touch and go with regard to be considered for surgery.

hugs,
Pete

LivinginNH's picture
LivinginNH
Posts: 1319
Joined: Apr 2010

Oops, doubled tapped...

jr2012's picture
jr2012
Posts: 67
Joined: Aug 2012

India sounds good ... your optimism is contagious Pete.
Does your smoothie contain sugar or is it sugarfree?

If you do go to India, let me know if you need any info...

if your kid liked Slumdog, watch "The best exotic Marigold Hotel" -- a trip to India like never before :)

Sending you loads of prayers. You are a trooper. You will beat this again.

marqimark's picture
marqimark
Posts: 242
Joined: Jun 2011

Good luck in your battle.

Hope you continue to be positive as always.

jen2012
Posts: 1229
Joined: Aug 2012

I can understand not being calm. My husband was diagnosed a month ago and I feel like a crazy person...calm one second and complete breakdown the next. The first day he was told stage 4 he just kept saying how scared he was for us ... me and the kids. I only work Pt and no benefits...we have a baby and two older kids....we are terrified but try to keep the hope alive. You have done and tried so much..its got to be frustrating and disappointing. Hang in there...you are in my prayers.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Instead of progression I say challenge, lots of good is coming from the confronting pet result.

Be cool, look after yourself, kids and hubby.

Miracles happen everyday, I'd like to believe.

We are due a few here on csn 128, yes I am selfish.

Hugs,
Pete

thingy45's picture
thingy45
Posts: 584
Joined: Apr 2011

OK Pete, it seems that you are ready. Right fully so you have taken care of the future of your loved ones.
Now it is time to look at YOUR future. Option are to be weight against other options.
And I know eventually you will come up with the right way to proceed.
So far you have done whatever possibly was available to you. I have followed you posts and read and re-read every one of them.
One thing I can only add to the mixture is the power of positive thinking. Do not underestimate your brain power.
Possitive thinking is enormous.
Hugs as always,
Marjan

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear marjan,

our dear kerry here used to say attitude, attitude, attitude.

I am hanging onto to my positive attitude with both hands.

thankyou for reminding me and the support.

hugs,
pete

Hooley's picture
Hooley
Posts: 155
Joined: Aug 2012

Pete u sure are an inspiration. Hope u are enjoying the sauna. Ever since I've been having tem ny ceas are dropping? Sauna or treatment, ho knows. I'm in Gods hands. Keep positive, keep strong, yes I believe in miracles too. Prayers and hugs Sue

geotina's picture
geotina
Posts: 2065
Joined: Oct 2009

Just catching up. Well your news just sucks. I must admit I don't understand half the stuff you do but just keep putting one foot in front of the other to get a plan in place. I'm glad you got your affairs and business in order so you and your wife can concentrate in making decisions going forward. You know Pete my hubby George was diagnosed advanced Stage IV in March, 2009 and 2009 should have been his last year on earth but he is still here. Granted, there are some real tough days but there are lots of really good days too. No one knows their expiration date so don't you even think of going there. Wishing you nothing but the best outcome as you move forward in your journey.

All the best - Tina

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i really mean it.
i thought i had pulled out all the stops, but i have found a few more.
my wife is helping me alot more, making meals, juices, coffees.
i read about the hipec, its a big op.
http://www.drmulier.com/3%20en%20pat%20info%20hipec.html

godbless each and everyone of us, we a really special people with an insight thats unique and shaped by each of our journeys.

hugs,
Pete

PS my newest doctor has this site
http://www.medicdebate.org/
i was already being cared for him before i realised how clever he was.
the above link maybe one of the most critical i have ever posted here.
i would be interested in your thoughts on it.

pps http://www.medicdebate.org/?q=node/669
this is the drug to get out platinum from folfox.
do your own checks but i think this was merit
http://cancerx.wordpress.com/2008/11/24/disulfiram-antabuse-for-cancer/

I am starting this to get rid of my platinum and to improve the effectiviness of my chelation and hopefully my immune system.
www.google.com.au/url?sa=t&rct=j&q=&esrc=s&source=web&cd=5&ved=0CDkQFjAE&url=http://cancerx.wordpress.com/2008/11/24/disulfiram-antabuse-for-cancer/&ei=FY5UUN-5NbCXiQe4_4DoCg&usg=AFQjCNFJlKHWOxqoTnuYGQ_4Ey7f9jTHpQ

geotina's picture
geotina
Posts: 2065
Joined: Oct 2009

This truly is a very serious operation, not to be taken lightly at all. There are several on the site Colon Club that have had this procedure very successfully. One that comes to mind is Sky Fletch. He is young, around 29 I think. Anyway, he just had another successful scan showing NED. He was very involved in his treatment, scans, etc. Anyway, after diagnosis his gal did not leave his side, they are now married, he is remodeling a house and living life to its fullest. He would be a good source of information for you if you do have HIPEC. I don't think he did alternatives but was very involved in his treatment and very knowledgeable.

Tina

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

thanks again for caring and sharing.

Tina, the real life story helped. It's such a big op that I need to take it lightly, to cope with the risk and the pressure. I will contact him after I see hipec surgeon.

Ann, yes my reading of pet I said 3 spots, onc said peritoneal Mets., I am starting to understand what that means.

Hugs,
Pete

Ps i am glad I have given lots of hugs Here, they arr coming back to me.

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

I am so sorry to hear about the peritoneal mets. There is another group I have been reading up on... It is in yahoo groups...PMP Belly buttons...
http://health.groups.yahoo.com/group/pmpbellybuttons/

. They have a lot of info on hipec.

As does the appendix cancer connection ...
http://www.appendix-cancer.com/oldsite/

I hope the information helps. I have also been reading up on the hipec surgery... I have signet ring adenocarcinoma... Hipec is one of the treatment options for what I have. Not sure if I need to go that far just yet...but I want to be prepared.

Alex

annalexandria's picture
annalexandria
Posts: 2280
Joined: Oct 2011

did they find peritoneal mets? I thought it was three spots, spleen, liver and lung. I really hope they can do piecemeal surgery of these, rather than the overall stripping and internal chemo...that's rough from what I've read. Hugs!

Lovekitties's picture
Lovekitties
Posts: 2972
Joined: Jan 2010

Are 2 of the mets being classified as peritoneal because they are on the outside of the liver and spleen?

Marie who loves kitties

menright's picture
menright
Posts: 248
Joined: Oct 2008

Best of luck with the next battle. The war is still raging on. You wil WIN!

menright's picture
menright
Posts: 248
Joined: Oct 2008

Best of luck with the next battle. The war is still raging on. You wil WIN!

RickMurtagh's picture
RickMurtagh
Posts: 534
Joined: Feb 2010

"no regrets" - now that is what I like to hear. Your efforts to do everything possible to rid yourself of cancer has certainly been inspirational to me.

Here is to hoping this setback will be just a temporary blip on the radar.

best wishes and peace

Rick

pluckey's picture
pluckey
Posts: 471
Joined: Jul 2009

((HUGS)) to you dear Pete.

Peggy

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