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Men with peritoneal mesothelioma
prayingwife
CSN Member Posts: 12
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Peritoneal Meso
Hey!
Go to the Curemeso.org website. Mary Hesdorfer is the medical liason for the Mesothelioma Applied Research Foundation (MARF for short). There are monthly teleconferences for patients and caregivers. There is also a PRIVATE facebook group for Mesothelioma patients, where we discuss treatments and clinical trials. To register and join a group, please contact Mary Hesdorffer, Nurse Practitioner, at mhesdorffer@curemeso.org or by phone at (877) 363-6376. There are numerous men in the group who are currently battling this disease with very positive results. Again, if you have any questions, please feel free to contact me. I have peritoneal mesothelioma and I have found the support from the people at MARF to be overwhelmingly fabulous. THey are NOT associated with any law firms. They are just there to support the patients and caregivers, and raise awareness of this disease.
Elissa Shelton
baseballgirl71@gmail.com
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