CSN Login
Members Online: 3

IF U HAD AN RP PLEASE READ

hunter49
Posts: 205
Joined: Oct 2011

I had a robotic RP on 11/10/11. All went well. Healed good no pain meds or incontinence issues. ED work in very good progress. I was running 4 miles 3 or 4 times a week and eating right. Honestly looked better than when I was 40 (turned 50 in April). In late June I started haveing back pain and leg pain. All indications were siatic nerve. Had an MRI and showed a slight buldging disk so I thought that was it. PSA is undetectable so no fear of the beast. On 7/31 I had a fever with no head or lung or stomache issues. Just felt bad like worn down so I thought I had a summer bug. 2 days later a dull pain in my lower right side where hip meets your leg. Then neck sore parts of my chest. I went for blood work on 8/7 because I was now having a low grade fever for over a week (99.6 to 100.1) I was sweating during the night when the fever would break and then it came back. My SED rate was high and so was my C Reactove protein and Neutraphil%. Had a CT done of adbomen and pelvis. It revealed a Lymphoseal, which was an infection that stared when I had my RP. It happens occassionally when lymph nodes are removed. The doctor said I was a day a way from getting Sepsis. . He said it is rare to see this so long after surgery usaully in fiirst 90 days. He advised he has heard as long as a year after. If you had an RP and ever develop a fever lasting more than 4 days with no other sypmtoms or your lymph nodes get tender call your urologisyt and ask about this. I went in yesterday for an aspiration and have a drain for the next few days but no more fever and other than being a little sore feel good.

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Hunter,

So glad you got this checked out and taken care of before you ended up in the intensive care ward. Good advice.

VascodaGama's picture
VascodaGama
Posts: 1728
Joined: Nov 2010

Thanks for sharing this experience and how you got to find the facts.
Many guys doing RP can compare their symptoms with your naration and face the results. After surgery I had two drain tubes left attached during 4 days (if I can recall it) to avoid any inner infection. They dissected 9 lymph nodes so the urologist was much intouch with follow ups.

Wishing you a complete recovery.

VG

JR1949
Posts: 230
Joined: Jun 2009

Thanks for sharing. I had rp 3 years ago and so far no side effects from the surgery other than ED. My uro told me he did nerve sparing surgery. When I asked him why I now have ED his reply was that it is difficult to miss the nerves for making an erection. Wish he had told me it was difficult up front before the surgery.

jr1949

JR1949
Posts: 230
Joined: Jun 2009

Thanks for sharing. I had rp 3 years ago and so far no side effects from the surgery other than ED. My uro told me he did nerve sparing surgery. When I asked him why I now have ED his reply was that it is difficult to miss the nerves for making an erection. Wish he had told me it was difficult up front before the surgery.

jr1949

hopeful and opt...
Posts: 1480
Joined: Apr 2009

I hope that you get better soon from this unique experience

starr15
Posts: 31
Joined: Oct 2011

Hi Hunter:

Sounds like you had an infected lymphocele.
Lymphoceles usually are not infected.

http://www.ncbi.nlm.nih.gov/pubmed/19996659

Samsungtech1
Posts: 351
Joined: Jan 2011

As I havemany different things going on hard to tell what is going on. Thank you for the input. That is what makes this site so valuable.

Thank you,

Mike

hunter49
Posts: 205
Joined: Oct 2011

that is it.

mrspjd
Posts: 694
Joined: Apr 2010

@hunter
I'm glad you listened to what your body was telling you, saw the doc, and your expert med team caught this when they did. I wonder what type of antibiotics they have you on. Thx for sharing the info. Hope your recovery is swift and complete.

@starr
Good sleuthing (again) & thx for posting the link to the lymphocele case study. Even though your posts are infrequent and brief, I've found them to be informative and helpful. You seem to be the shinning starr that arrived quietly, almost out of nowhere, but glad to have you here. Hopefully you'll consider sharing more about your PCa journey or how PCa has touched your life. Please accept a very belated welcome to the forum.

Samsungtech1
Posts: 351
Joined: Jan 2011

Hunter,
Thank you for the info. Something to file away. Plenty of issues so just one more to throw on the pile. I really appreciate you taking the time to inform us. Good job.

Mike

hunter49
Posts: 205
Joined: Oct 2011

you guys are making me blush. actually my blood culture showed a staph infection I am on levofloxacin 750 mg 10 days which the test showed the bacteris sensative to. I also need steriod IV because my C reactive protien is 17.8 and normal is 0-.5. This means the bacteria is attackingg my heart. feel better now just tired.

fightn9er
Posts: 13
Joined: Aug 2012

Thank you for your post. As I am scheduled for a RP with debulking in early Oct. and am seeking all the information I can find. Gleason 9 (4+5) PSA 26

KTF and the FIGHT I am

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network