CSN Login
Members Online: 5

Mets to spine and rib

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

I saw my oncologist Tuesday to go over the results of the PET scan. My day actually started with a very urgent sounding lady from the lab insisting I get a hold of my provider immediately. Evidently she didn't realize this was blood work ordered by my oncologist as it seems my tumor markers were way elevated. (7. something)
I had been concerned about a muscle spasm in my right back and hoped it wouldn't light up like Times Square on the scan. I'd had this problem since early April and I thought it was from my new keyboard.
After getting the results yesterday I now know what I'm facing and it's not good. Evidently I have 2 spots on my spine (T2 and T9) as well as mets to the 12th rib. So the pain wasn't a muscle spasm at all but bone mets.
I was to have my port installed yesterday morning but the imaging machine at the hospital went on the fritz and I've still heard nothing about rescheduling.
I will be starting 6 rounds of CMF (Cytoxan, Methotrexate and Fluorouracil) probably next week. Not sure what the prognosis is for the bone mets but I've heard not so good.
Anyone else dealt with this?
Lynne

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

I am so sorry Lynne and will be praying for you.

Hugs, Debby

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

I was diagnosed initially in Dec. '09 with Stage 3C invasive ductal ca. Had lumpectomy, re-excision for margins, 6 rounds of TAC chemo and 33 rads. I was on Arimidex for about 18 months. Last Dec/Nov. I was experiencing back pain. Had PET, bone scan, MRI, CT and was re-diagnosed with bone mets-T-12 fully involved and then sprinkled throughout my spine/pelvis. Needless to say, I was devastated. I started monthly injections of Faslodex (stronger estrogen blockers) and infusions of Zometa (strengthens bones). I've had 5 monthly treatments and have my PET scan tomorrow to see if the treatment is working. Stable would be good, diminished areas of mets would be even better. This treatment is extremely tolerable and I pray it's working. If not, we start up on a chemo regimen :(.

I'm quite jittery about the PET tomorrow, but it's in God's hands and I pray that He will take care of me. I pray that for you too, Lynne. Please keep us posted or PM me if you'd like.

Hugs, Renee

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

Hi Renee,
I can imagine you're nervous about the PET scan but let's pray it shows some improvement. Please let us know the results. We can only succeed with faith and positive thoughts. So I work on that all the time.
I was angry that I had to be strong and protect my family while undergoing treatment the first time. I told them that this time around would be different and they all agreed that I shouldn't shoulder that burden and they'd take care of me. However, here I am again, hiding the seriousness of this DX.
Cancer is so difficult on so many levels, isn't it?

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

Yes, cancer is difficult unfortunately. Let others share this fight with you Lynne. You deserve their help and I bet you welcome their support and strength too, just like we all offer to you.

Lots of hugs and prayers,

Kylez

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Still checking for any update from you...

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Hi Lynne,

As you probably know, I've been dealing with this stage IV/mets status for about 9 months now. (Although my mets are not causing any pain as yet.) It is a hard pill to swallow, and coming to acceptance is different than the initial dx.

Sometimes I think the second time around is easier because I know much more now that I did before dx....sometimes I think it is harder for the same reasons.

I wish I had more for you than hugs.

Linda

New Flower
Posts: 4226
Joined: Aug 2009

Hello Ladies,
I am waiting with my husband at my oncologist office to go over my PET scan results.
It seems like they found something in my bones.
What questions should we ask
I am not ready to join the club
Lynn I am very sorry for your progrssion

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

Dear New Flower,

I was sad to read your post. I am hoping it is some other irregularity. No one wants to join the stage IV Club. It isn't really much fun.

Keep us posted.

Best to you,

Doris

New Flower
Posts: 4226
Joined: Aug 2009

I am very sad too. My diagnosis has changed today. We have a plan and I am going to SF on Saturday
I will pm you next week

survivorbc09
Posts: 4378
Joined: Jun 2009

Sending lots of prayers, hugs and positive thoughts.

Hugs, Jan

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I am so sorry New Flower to read your post.

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

I don't have nor know a lot about mets to the spine and rib Lynne, but, I wanted to tell you how sorry I am about your results and to let you know that I am praying for you.

Huge hugs,

Angie

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Sending gentle hugs today!

camul's picture
camul
Posts: 2213
Joined: Dec 2010

I was 8 1/2 years out (Aug/Sept 2010), had rib pain, went to urgent center, they took an x-ray, looking for pneumonia and blood work to ck for infection. They sent me to hosp for ct scan, who said it was a pulled muscle.

Two weeks later, hips and tailbone were really painful, couldn't walk up a flight of stairs. Called the onco, he scheduled me for 9a the next morning. He did blood work and sent me for a pet scan which lit up like a Christmas Tree. I had mets to almost every bone in my body, and skin tumors sporadically on my body.

I was shocked, but not surprised. Started tamoxifen, Zometa, Vitamin D,, and rads to hips, pelvic and tailbone. Did not start chemo til Jan 12 2011, as I was ckg out alternate treatments and trials, and went to Johns Hopkins and City of Hope for 2nd opinions. City of Hope gave the same treatment plan as my onco gave me.

I just wanted to be sure I was on the right track. I am still here 21 months after diagnosis, and today finished 17 months of weekly chemo. I am taking a 2 week break now. Was going to be at least a month, but today, it was determined it would only be 2-3 weeks.

In some ways like Renee or Linda said, it is easier than the first time around because we know what to expect, but in some ways it is harder because we know what to expect. .

I just wish you the best possible outcome with the treatment plan. I hope they can shrink the tumors, then just be on a maintenance schedule after that.

My best to you always, will keep you in my prayers and hope they get you that port soon!

Hugs and prayers,
Carol

Double Whammy's picture
Double Whammy
Posts: 2419
Joined: Jun 2010

Dear Lynne-

You've had so much to go through these past months. Will continue to send prayers and hope your way.

Suzanne

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Lynne, I hate reading this news. You've been through enough! I am praying and sending you big hugs!

Sue :(

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

I knew I could count on all of you to help me understand and come to grips with this DX. My oncologist didn't discuss anything beyond the 6 sessions of chemo followed by another PET scan. My first time around there was something suspicious on T9 but after 5 infusions of Cytoxen and Taxotere It didn't show on my Dec. scan. Naive me thought chemo could clear up whatever was in me.
I thought I caught this tumor so early that everything would be fine. However, even though I was taking Arimidex the tumor doubled in size within a month.
I will be having my port put in on Monday and start chemo shortly thereafter.
I don't know how to tell my daughter and grandkids, who were so proud of me for going through treatment. I had a little great granddaughter born about half way through my chemo and that gave me the will to get better no matter what. Now I'm faced with this and realize that this is a whole new ball game.
I have said about the same thing. I know what I know and don't know what I don't know. I do know that this time around it's life threatening way beyond what I could have ever imagined the first time.
Keep sending me more stories as I feel I need all the information I can get. While my oncologist and I have a long history (he treated my 16 year old daughter for malignant melanoma back in 1986) he's not one to offer up more than he feels I need to know at the time.
Hugs to all of you,
Lynne

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Praying and thinking of you!

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

Hi Lynne,

I am sorry for your new problem. Many people with bone mets can live for many years. Who knows by the time it becomes very serious, there might be a cure.

Bone mets is very painful. Keep your chin up and in due time, it will become a way of life. I am going into my 18th year and 12 with mets.

Hoping you will have that port installed soon so you can start on your chemo treatments.

Best,

Doris

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

Hi Doris,
You got that right, I've been hurting since early April and thought it was a muscle problem. I later read that this is a common thing and many women experience this. Even my NP felt my back and gave me Flexeril.
You've given me hope however. I was figuring I'd be lucky to have another year or two. I have my little 9 month old great granddaughter to see grow.
Thank you so much.
XXXX
Lynne

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

You have had a bad turn of events and of course you are weary of it all. Once you meet Mr. Stable Boy or better yet, Mr. NED you will feel the confidence returning.

Best to you,Lynne,

Doris

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

We are here to give you hope, strength, prayers, hugs and maybe even a few laughs when you need them Lynne.

This isn't the news we had all prayed for, but, we are here for you..always.

Hugs, Noel

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

double post

Monicalynn
Posts: 61
Joined: Apr 2012

Sending my thoughts and prayers to you Lynne

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I just hate reading this! My thoughts and prayers are with you Lynne.

Big hugs, Lex

LoveBabyJesus's picture
LoveBabyJesus
Posts: 1659
Joined: Jan 2011

I hate these news!!! I don't come here as often, although I check and now I am part of the facebook group, but I HATE to come here and find out one of us is dealing with this beast, AGAIN.

Lynne, I know this is very hard for you. I know you probably feel discouraged. But you never loose faith, ever. And know prayers will lift you up really high so that you can face this new challenge with courage and a positive attitude.

Sending you a big hug. Hoping for a smooth recovery (because I am praying for your FULL recovery), and little to no side effects with your chemo regimen.

<3

VickiSam's picture
VickiSam
Posts: 8652
Joined: Aug 2009

Gentle hugs, and prayers for you. Stay strong and allow us to help you thru this
step of the journey.

Strength, Courage and Hope for a Cure.

Vicki Sam

mom62
Posts: 601
Joined: Mar 2004

Hi lynne,

Sorry to hear about your results. Sometimes it never seems to end does it! I have mets and am still around 3 years later. I'm on hormone therapy. They did take out most of my sternum and sawed off half of five of my ribs on the right side. I have no chest wall, quite pretty! But I am here and living. I'll say prayers for you as well.

Terry

debi.18's picture
debi.18
Posts: 850
Joined: Jun 2011

So sorry to hear this. Sending hugs and prayers. We're all here for ya!

Hugs, Debi

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Praying every day for you Lynne!

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

Hi everyone,
I do feel better when I hear of the "success" stories. And also knowing how many of you have faced this challenge allowing me to feel less alone.
My sister and daughter were with me when I got a call from my surgeon's office saying the imaging machine was down again so the Monday port installation has been postponed, again. They both had a fit over this delay but for some reason I stayed calm. I know it is so hard on them, now that they've gotten more involved. Plus I remember all too well going through Stage IV malignant melanoma with my 16 year old daughter.
I had to delay the PET scan for 2 weeks in order to get my arm to raise high enough, so a week's delay for the port isn't so awful to me. I also know I've had this bone pain since April, two months before the PET scan. While I'm actually anxious to get started on treatment I've gained a lot of patience and acceptance. I think that's something we all share.
You ladies mean a lot to me and I wish everyone the best. Everything.
Hugs,
Lynne

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Glad you are feeling better Lynne. We will help you however we can to get through this battle. You will win the war!

Hugs, Diane

Tux's picture
Tux
Posts: 544
Joined: Aug 2009

Lynne, so sorry to hear of this setback for you. You are in my thoughts & prayers. Keep us posted..(((Hugs)))

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

Wishing you all the best too! Lots of prayers and hugs! And, keep updating us Lynne.

Lex

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

You are always in my prayers and thoughts Lynne.

The biggest of hugs,

Megan

Kat11's picture
Kat11
Posts: 1931
Joined: May 2009

So sorry, sending hugs and prayers.

survivorbc09
Posts: 4378
Joined: Jun 2009

Lots of support, courage, hugs and prayers are coming your way Lynne from me.

Hugs, Jan

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

Let us know Lynne when you have your port and test done and we will get the pink bus out for you!

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

Hello Fellow Warriors,
The imaging machine still wasn't working and a demo unit had been ordered. It didn't show up on time either. My oncologist was getting very anxious so my surgeon went ahead and did it anyway. Then just an X-Ray to double check all was well. My surgeon asked me if he should call my oncologist to let them know all systems were go on this end. I agreed he'd get to a phone before me. I was in so much pain that I was given Dilaudid before even starting then twilight sleep which didn't work at all!!
Now it's Monday and not having heard from my oncologist called them. It appears that chemo hasn't been scheduled yet. I'm beginning to think there's a conspiracy.
The "muscle" pain that turned out to be spine and rib mets has gotten so bad that even 2 10/325 hydrocodone/actem just dull the pain and the "activity" on my spine has now grown to the point it's easily felt. Also it was just the right 12th rib involved before. Now I have pain on the rib in front too. I've known this is an agressive cancer from the way the tumor doubled in size even while taking Arimidex but I'm beginning to feel discouraged. How can something grow so fast and be treatable?
I've never been anxious for an infusion but I feel like this cancer is gaining too much ground to be controlled.
Thank you all for your concern and prayers. I'm feeling a bit hopeless but my spirits get a lift when I join you here.
Hugs to everyone,
Lynne

survivorbc09
Posts: 4378
Joined: Jun 2009

Lynne, I am glad your port is in but not happy about the rest of your news. Don't be hopeless! You can beat this!

Hugs, Jan

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

Hi Jan,
I was so against a port since my last one was very, very uncomfortable. It rubbed under my collarbone and made my shoulder and arm hurt. So I discussed it with my wonderful surgeon and he said I could have it put almost anyplace I wanted it. So, it's about an inch up and over from my arm pit crease. Very unobtrusive!

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

Lynne, I'm always praying for you and appreciate your keeping us updated as we all care!

Hugs, Angie

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

Hi Lynne,

I am so sorry that you are having all this problem and are in so much pain. One of your doctors should address the pain immediately.

My cancer had double between the ct scan that found it all and the ct scan I had as I began treatment. My next scan 7 weeks later had it all stable. It can be done. I am assuming that you will have radiation on the rib and the spine area. That should kill those cells and the chemo will do the rest.

I understand your frustration. I had some snafu's too. The oncologist office forgot to submit my name to the Thoracic surgeon office until I called and inquired after not hearing from them. That was one week, then it took another to schedule me in to see them and another before they could perform the biopsy. Then it was waiting for the pathology report. Nearly 2 months went by between when I learned of my new cancer and when it was treated.

I felt the anxiety too and they seem to take it all as business as usual.

Keep us posted,

Doris

laughs_a_lot's picture
laughs_a_lot
Posts: 1369
Joined: Mar 2011

on the prayer list lady.

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Lynne, I've been thinking of you and wondering how you are doing by now. How has the break from rads been? Is your skin healing up at all?

Hugs

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

You are on our prayer list at church too Lynne.

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

I just read your earlier post that you got your port. I know you didn't want one, but, in the long run, I hope it helps with your treatments to make it worth it.

You didn't say how your skin was from rads? Is it healing Lynne?

Always thinking of you and praying,

Diane

Lynne Logan's picture
Lynne Logan
Posts: 105
Joined: Jul 2011

Hi Diane,
I finished my rads in early March just before I discovered the new lump. I posted a suggestion for dealing with the weeping ugly mess from rads burn.
As of now I'm on the countdown for chemo to begin. What a long wait it's been and I get so discouraged since the pain has gotten so bad and it's spread to other ribs. I'm thinking all this delay has taken time off my life.
I had a question I posted in a different place...the one where I was thought to be MIA. Anyway, originally I was told my chemo was going to be the typical every 3 weeks, for 6 sessions. Then I get word last week that chemo gas been scheduled for next Saturday the 7th, Sunday the 8th and Monday the 9th. Has anyone else had their chemo begin with such a hard hit? I'm wondering if it's due to the delay or what? But I'm very curious if this has happened to any of you in The Club?

You're all such special ladies,
Lynne

Lynn Smith
Posts: 1265
Joined: Mar 2011

Thinking of all who are going through some bad times after dx.It has to be hard hearing it's somewhere else and you have another battle to fight.This is what I worry about even with Stage 0.We're all different.We never know.

I want nothing but the best in treatment for Lynne, Renee ,New Flower and Carol.Alos any others on here who have been dx with mets.Good news from some of you being in treatment.Keep up the good fight and wish the same for other starting this war against this beast.

Thoughts/Prayers to all of you going through difficult times.

Lynn Smith

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

I am sorry Lynne that you even have to have chemo. I am wishing you the best of luck and you know I am praying for you.

Hugs, Noel

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network