CSN Login
Members Online: 5

anyone else tried GCMAF or got any good or bad stories about it UPDATED great nagalase result <0.9

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

started on gcmaf yesterday, got a runny nose.
just google it, its all about stimulating your immune system
nothing on pubmed for colorectal but the method of action should be the same.
here is the pubmed link for breast cancer test, yes i know not in vivo.
http://www.ncbi.nlm.nih.gov/pubmed/22213287

it costs $170 dollars aud a week , planning for a 30 weeks program. we are stuffed financially temporarily but i have no will power when promising alternative advocates smile and says this is worth a shot. these are friends i trust. well here is hoping.

will check nagalase levels after 8 weeks to see if its worth the dollars.

anyone else done nagalase testing in conjunction with cea tests ?
I would be interested in your experiences as i have started down this path.

especially when still nothing on the table as far as treatments from conventional.
when i die one day, i want to be reincarnated as a guineapig, i figure thats fair.

i need to sell assets but so far wife not agreeing. so i have been cutting back non essential supplements and doctors visits and tests. this has in itself been kind of stressful. the positive to having more focused therapies / supplements is i guess i can tie the biological results to what i am trying.

its only money i keep telling myself. the compound interest on the credit cards is about as scary as the rate of cea rise.

its taking a while to get the emotions of fear, frustration and dissapointment under control with regard to the latest cea rise.

anyway thats life downunder. i am questioning many aspects of the alternative program i am on.

the only good news is that my gut dysbios is back big time, that my over zealous enemas may have upset my gut bacteria. certainly got some symptoms leakage, gas etc etc recently. that i should have realised was a problem with gut bacteria. so maybe these are somehow related to my rising cea.

so i am back onto progurt probiotic that fixed my gut ultra quick a few months ago.

anyway i am really interested if anyone else has tried gcmaf or has any stories.
its method of action is based on the immune system, i am also doing the nagalase blood test.

smile its a lovelly day to be searching for health.

hugs,
Pete

still sticking to the vegan diet, but its on a short leash.

my peace of mind has deserted me momentarily, like my mobile phone for 24 hours.

i think loosing my phone and my contacts, recordings and photos was as stressful the cea rise.

how a test result can tip my world upside down is intriuging for me. i need to realise is still am well, have no symptoms and great health. to let a test result dampen my mood is kind silly, i don't want to ignore the result, just deal with the result appropriately.

i am going to have to come up with a good framework for coping with "setup backs", thats what the alternative crowd call normal tumour progression.

just a few randon thoughts here, soon the peace of sleep, it can come a minute to soon.

steved
Posts: 836
Joined: Apr 2004

I haven't ventured down this path myself but know of GCMAF as it was promoted at one point as a 'magic bullet' for cancer with some unrealistic claims being made. I know you are smarter than to believe in that and take supplements knowing they may help some rather than absolute cures.

Your latest cea has clearly stressed you and there is a risk that you respond by grabbing at more supplements in your hope of improving this. I am certainly not saying that is wrong as I respect your treatment decisions as valid and right for you. HOwever when you start to talk of selling assets and your wife diasagreeing you need to check that you have things in appropriate perspective.

In the gentlest way possible I wonder whether it is time to worry less about your macrophages and more about keeping what is going on within your head under control. Take time to digest your recent results, talk to your wife about your fears and reflect on the idea of rationalising your supplements.

Tell me to back off if I am over stepping things but just offering a different perspective on your situation.

steve

tanstaafl's picture
tanstaafl
Posts: 1014
Joined: Oct 2010

Pete said his calculus is to maintain cash on hand by asset sale(s) to gain time for kids and research, extra care/treatments to try to buy QoL and time from recurrance or early detection; and if cancer gets him, life insurance refloats the balance sheets.

His challenges are:
Cash on hand and meeting crucial long range plans for several scenarios;
Component cost controls and avoidance of lurching;
Family - unit cohesion under stresses;
Prevent metastasis until the CEA resolves visually or not, to try to maintain a potential surgical option on any single CEA source site.

The GcMAF papers are very interesting, "silver bullet" stuff.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Nice summary, better than I could do, so thanks.

Silver is better than magic and it's antimicrobial to boot.
Thanks for checking some papers. At this point the pressure is on the alt team. They read the last result and hey presto a new strategy while my conventional team sits by waiting to help.

I am glad I have 2 teams.

It might be time to hammer the Chelation hardcore, a make a determined effort to get PB, hg, AR and pt out of my body. It's just high zn was a starting point, going onto liquid zn now.

As soon as my gut is fixed, yet again, I will start Chelation seriously.
Given the cea rise, I want accelerate my current slow and steady Chelation, maybe all the saunas and colonic enemas have contributed to the rise, certainly my crashed zn level got everyone's focus.

It's a wonderful day, cold and rainy, studying hard today.

Read an amazing book on fibre yesterday, oh checkout the lef post and if you can the proxidant effect my researchers is concerned about. I through the crc probiotic article just for fun

Some say no science behind alt cancer, actually more going on on our side of the fence than all the greedy drug companies trying to find the one magic Golden bullet to boost their share price and save a life.

So basically my fate rests with what I eat , drink and do and a few billion micros getting to work properly in my but.

Hugs,
Pete

Ps got to meditate as peace of mind my goal and then cure.

Lovekitties's picture
Lovekitties
Posts: 2993
Joined: Jan 2010

Please read the info on the following site before beginning Chelation therapy, particularly the potential side effects:

http://www.cancer.org/Treatment/TreatmentsandSideEffects/ComplementaryandAlternativeMedicine/PharmacologicalandBiologicalTreatment/chelation-therapy

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

i read this awhile back, its good to review it.
its it to see the cancer soceities view, from my research they are such along long way behind the times.
but the warnings are valid, but so many safer and effective chelation choices available to us cancer guys and girsl.

thanks for caring.

hugs,
pete

smokeyjoe
Posts: 1428
Joined: Feb 2011

Interesting, seems to be a lot of info. on the internet, I looked at it and it seems confusing to me anyway...are these shots you take?? Keep us posted.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

keeping all my friends here posted, the good and the bad is the deal with me.

obviously i wished to report amazing successful results, as i believe sincerely in what i have tried and the motivations of those who advise me.

so i feel great, i have this cea result and so much to be grateful for.

i have only spent 30 minutes researching gcmaf, i did met another cancer guy on the gawler advqanced course, cannot remember his naem or cancer but he had poor results from gcmaf. its very individual. so i go ahead with his story at least in the back of my mind, but also the knowledge that soon to be the qualified integrative oncologist sees merit in gcmaf for me at this point.

its a shot in the tummy under the skin.

hugs,
pete

Sundanceh's picture
Sundanceh
Posts: 4341
Joined: Jun 2009

" i am questioning many aspects of the alternative program i am on."

As one grows, it's only natural to question...the fact that you are is a good sign. You're starting to see things differently enough now to begin questioning...only good things can come from that.

When I can find time to clear my head and write, I've got something that will give you and everyone who reads it, a chance to ponder the possibilities...

You've already stumbled on a great many truths in your post already, Pete....the delicate balance in the gut that coffee enemas can upset....the vegan diet, the fact that you are healthy with no confirmed case of recurrence...etc.

Once you read my upcoming story...I think you will be "Questioning" things at an even deeper level than where you are today.

"Cancer is a fear-driven industry..."

But the more complicated we try and make it - the less vision we have with which to see.

-Craig (8-years old)

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

craig,

i wish is was not growing so much, but i can truly say i am learning and enjoying each day in this new alternative lifestyle i have.

to ponder possiblities is wonderful. i visualise beating my current possible threat, doing a head stand, looking like an aged mr universe on the beach and lots of diving. wonderful visualisations of my kids grwoing up.

as i meditate and pray intensely everyday and read and exercise my mind so much, i see many truths about me and others. one is that i have to help my wife overcome her ocd and hoarding for my kids sake going forward. now thats harder than colorectal, becuase colorectal is my challenge and indirectly my family and friends. but my wifes ocd, well its hers. it took me 2 days get the garbage out of the front door and out of the camping trailer and to pack to go away. so to really love someone and standby them while you have crc is also a wonderful challenge of life.

fear driven industry well yes i agree, and yes i agree clear vision to see, to truly see is fundamental to our quality of life and treatment and our time and quality of life. hence my committment to daily meditation, prayer and reflection. it keeps me centered and focused. i am not researching nearly as much. just adding here a few well choosen lef articles.

hugs,
pete

ps i hope you are smiling big brother, its a great life.

Lovekitties's picture
Lovekitties
Posts: 2993
Joined: Jan 2010

I am so very sorry to hear that your CEA has risen yet again.

You mention that your scans have shown no evidence of disease. What scans have you had and how long ago?

I know you have been working with non-traditional options, but have your medical doctors had any recommendations or options to explore why the CEA continues to rise?

If it were me, I think I would put my dollars into finding out the cause, then determine the treatment options. Obviously there is something going on which needs to be explained.

Perhaps there are scans which have not yet been done...bone...brain...muscle...while these are not usually "first sites" for crc, they have been known to occur. Please discuss these with your medical doctor.

Hugs and best wishes at finding the cause.

Marie who loves kitties

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

still ned, its been 2 months since the last ct, doing another this week.

i have had two pets and ultrasound as well.

the scans of brain was done on the last ct,

the nagalase test, from my alt doctor is supposed to pickup a protien marker for mets. i get those results in a week. still nothing offered from conventional.

given how upset my gut is, the crp inflamation marker, possibly the cea is not cancer, maybe it is.

like craig said in another post, time will tell. i just wih my crystal ball is a bit clearer.

hugs,
pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

thanks for the kind support everyone, its what we all do so well!
it means so much to me.

steve,

the selling assets is a lomg standing need, its funny how the cea rise, a bit of a financial crunch just coincidenced. the nature of life. i have the choice to stay meditating and focus on my treatments and not work and not have the huge pressure that comes from running my old business as my wife now has it. business conditions have really crumbled here, so getting the dollars is hard work. never pull your head in, keep on shooting out your suggestions. i appreciate being challenged not just biologically but physically, emtionally and interlectually.

gcmaf has been in the pipe for a while, its more of a coincidence that a trusted medical source has some good quality uk sourced gcmaf, apparently some duds out there. i want to try it, its been advised and now is the time for me, at this early stage.

i suspect the enemas may have upset my immune system, but its only a suspecicion. i have stopped them until my gut settles.

most of the supplements have been recommended for specific purposes along the way, all have been researched, dropping some of them is like loosing my kids. i am emotionally attached to them. as i have backed off over the last few months attempting to source nutrients from natural sources i have failed here and their. to complex to go into.

the irony here is the alternatives i am into have the potential to upset your gut just as much as chemo, it takes weeks to heal a leaky gut, which has come back, again. this must be the four reoccurence of leaky gut in a year.

hugs,
pete

steved
Posts: 836
Joined: Apr 2004

I fully respect your choices and the insight you show into use of complementary therapies as well as thier potential side effects- I am often amazed that people feel alternative medicines are 'cleaner' from side effects when in fact they can cause a range of unwanted effects similar to conventional medicines.

Pleased to also hear you are looking at up to date scans and keeping an eye on any signs of recurrence. I would challenge you (As you welcome it) to ensure you look after psyche as well as you look after your macrophages, as I guess that is my own area of interest and we all come to this site from a diverse range of backgrounds.

Does sound like you have come to terms with your role here on the board and pleased to see your continued postings,

steve

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Hopefully I will share great news about my cure one day, that's a clearly defined goal and post written in my heart and head and a speech I plan to give in October to this amazing alt cancer conference.

The only problem is biology does not want to play the game

So together day by day we try to find a way to live another day as well as we can be.

The psyche or my head or is it my brain or mind, is racing, going to give it a workout and read the metametrix int guide to functional med and then meditate.

Did you see the lef stuff on antioxidants and my caveats.

Their is method in my madness, though it may not be apparent.

Hugs,
Pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

I should post in a few of the other big forums,

Any thoughts nagalase testing, it seems to go with gcmaf?

Thanks for listening and your comments.

I will put the gcmaf and nagalase results, costs and experiences here and on my blog

Hugs,
Pete

manwithnoname
Posts: 402
Joined: Jun 2012

New member hijacking this thread ;-) Google brought me here when i was looking for info on GcMAF, my 9yr old son has anaplastic ependymoma brain tumour and a friend put us onto this, will be watching your progress Pete.
FYI Judah Folkman wrote about this but called it something else, (free article on Pubmed), for those that don't know he won the Noble for discovering angiogenesis.
Without angiogenesis tumours cannot grow more than 2mm.
There is very little research on this which is strange considering the results, where did you get yours Pete? any problems with customs?

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

Sorry about your kid, my daughter's 10, I cannot imagine your feelings.
, welcome to the thread, one of my medical pros supplied gcmaf.
Getting my shot tomorrow. Given how threatened alt doctors are here.
Just pm me if you want details, feel free to give me some real names if you want to be included in my prayers. My God knows who you guys are anyway. That's one of God's many advantages.

No customs issues, my drug dealer got it sorted.

Hugs,
Pete

Ps my kids meditate, it's so easy, just a suggestion.

Lovekitties's picture
Lovekitties
Posts: 2993
Joined: Jan 2010

"Given how threatened alt doctors are here"...

gee...I thought you wanted both sides.

Does this mean if we have differing info about your alts we should not post?

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

here is here, not there. sorry for any confusion.

here refered to in australia, conventional gp's looking at alt type solutions can hammered by there peers and the government. my doctors have to dot the i and cross the T, or else they had hassled.

all heated and warm hearted debate welcome.

so post away.

the alt's here are a dieing species, they are really brave and go against the trend. in my honest opinion. now i am not including frauds and quacks in that description and i know this is a slippery slope so i will stop now.

hugs,
pete

manwithnoname
Posts: 402
Joined: Jun 2012

Can't seem to find a PM button, maybe coz Im new? my son is Kai Webb-Deutscher, he has had 3 brain surgeries from 6-9yrs, now his tumour is inoperable.
Hospital has gave up but we haven't.
I am trying to find a reliable source of GcMAF, any info would be great. We live in Israel, customs are a *****....

Trying to get him to do guided meditation. He's a stubborn little bugger, hard to get him to do anything.

Take care, Tony

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

hi tony,

this is a bit off the thread, but charlie is a saint, he has saved countless lives and is just a courageous man.

i know a few living miracles. its along way to come, but i thought i would at least share his name. inoperable brain tumours are his specialty.

if you read about all his successes it might boost your hope levels.

on a separate note, have you read "the brain that changes itself" it might be helpful in understanding our brains marvelous healing potentials. it might put a bit of a smile on your face if you read it.

i will ask for our source tomorrow and pm you if i get it, my doctor was coy about it at the last consult.

hugs,
pete

manwithnoname
Posts: 402
Joined: Jun 2012

Hi Pete,
it's not just another surgery that frightens us, we realise this tumour just keeps coming back! only his immune system can get rid of it, that's what we believe anyway.

So our 'immune' protocol;

Autologous tumour vaccine
GcMAF
Newcastle disease virus (daily)
various natural supplements
exercise

and we sent his tumour for Proteomic testing in Texas, they test individually to see what chemo works.

Yes I read that book, plastic brain, amazing creatures aren't we.

Tony

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

you have a great protocol for your son.
now i have done heaps more reading on gcmaf since i got excellent results yesterday.

my poor cea results had me constantly thinking all my alterntives were failing to stem the tide of the relentless crc.

now its more likely they have been working, that i am possibly in the clear and cruising down the otherside of the crc hill to green pastures.

i can just relax smell the breeze , still do my routine with greater confidence that it has really worked for me.

i found this on pubmed for colorectal and gcmaf and how nagalase levels.

http://www.ncbi.nlm.nih.gov/pubmed/18058096

my doctor would not stop talking about my results, about stopping gcmaf to save me money and the alternative cancer conference. i like when our doctors care so much about us that they have big smiles with good news. i will ask him next tuesday when he is in. Sorry i plain forgot to ask him in my excitement. i am sure he said from the UK, but i need to get it more specific.

on such a big user group like csn you would think someone else would have used this, but it seems not.

i australia 20,000,000 people, lots with cancer, like me, well after a few days 20 separate samples and my score is the lowest so far and they are using me as the healthy bench mark. the lab doing the test healthscope is on a winner here. no sending blood international, just overnight local. its so much faster to have these tests done here.

i was going to try the testing in texas if think, but now thats on hold.

goodluck with the protocol for your son, i presume you are trying some of the diet stuff as well. i can imagine some of these changes harder to implement on a child than an adult.

i have not forgotten and will ask my doctor next consult.

hugs,
pete

hugs,
pete

manwithnoname
Posts: 402
Joined: Jun 2012

That Nagalase result reads like normal, not that Im an expert ;-) really hope this stuff can work for us, I have read every available article on it, it may not be a magic bullet but it should be in the arsenal.

Seems customs here in Israel has a problem with it, trying to find out why they don't allow it.

Think I found your UK source, had a chat with them and also the place in Japan, we will get it even if I have to fly and get it.
BTW this is hardly known in 'cancer circles' ME/CFS is where all the users are also it seems to work for Autism ( I wouldn't be surprised if alzheimer's and epilepsy can be helped)

Take care, Tony

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

where their is a will, they is a way.

you will find it,

don't ever let the law get in the way of anything important unless its the law of god or nature.

i hope you know what i mean. i besides a few dollars i have not established a medical downside to gcmaf.

did you note the dietary and vit d requirements. until you get it sourced you might get all the biomarkers correct.

did you read anything about gcmaf and the blood brain barrier, its just another factor to consider. i have not read anything about gcmaf and brain mets, but it does seem to help autism. but thats supposed to based around some gi tract issues in some cases anyway.

just a few thoughts.

hugs,
pete

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

or any othe stereotactic device? the were originally designed for brain tumors with big success !
Hugs, and god bless you both!

manwithnoname
Posts: 402
Joined: Jun 2012

Because it's now spread they advise whole brain and spine radiation (palliative only), he has already done radiation and it failed,

We are looking for a cure.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

my seriously overworked integrative onc had only 5 minutes for me today.
he said my nagalase result was exceptional, the lowest result in the country so far
0.9

this clearly puts me in the group who have no secondary cancers. as no relevant experience on csn with the tests relevance to cea test results.

given my recent cea highscore of 46, which precipitated the gcmaf and the nagalase testing.

its ironic that these results completely contradict the assumption of my doctors conventional and alternative that i am dealing with a slow growing recurrence.

as mentioned the 1 ultrasound, 2 pets and 3 cts in the last 7 months have been all very clean.

the ct scan next week will be interesting. if its bad on the scan then nagalase usefulness is compromised. if the scan is still clear then cea is likely not a good marker for my tumour growth and it will likely just be inflamation.

i feel terrific, like 50kg has been lifted from my shoulders.

all these daydreams and plans started rolling into my imagination.

i actually knew this test result was going to be interesting, a game changer in ways i suspect.

my integrative onc just could not stop smiling, he organised to get nagalase testing into the australia. how lucky am i. we covered alot in 5 minutes. i am proud of my health and these results. really overjoyed. i called all my closest friends. i know it not over and tomorrow is another day, but its a brighter day, i feel lighter and satisfied.

this may just be the eye of the storm or a long smooth calm patch.

i am committed to my vegan, juicing, meditating, exercising lifestyle with some supplements and qigong. i will start to plan wind back strategies.

my integrative onc went to australia premier alt cancer conference last weekend.
off the record here some things to ponder.

no supps from china or japan
best omega 3 nordic naturals
no soy, diary, whey
no b vitamin
no folate
check vit d ratios 3/1
no growth hormone ie mine from natural weightlighting is ok.
aged garlic essential
1000mg tumeric not enough mayve my 2000mg is ok.

have good protein but not to much ie p protein

we are going to have a good two hour chat about the conference and as soon as i am cured officially i may start work with him or i may go diving with some sexy sharks and take some photos.

my positive spirits maybe premature, but don't burst my bubble. please!
our cancers are perfectly capable of bubble bursting!

but in a healing journey full of challenges i think its essential to CELEBRATE loud and clear our successes. NO matter how large or small. NO matter how long or short.

I am alive, you are alive and its been an absolutely wonderful day.

hugs,
pete

ps saw my tcm onc tonight to get more herbs. guess who deleivered the conference address to 600 alternative cancer professionals on the weekend on tcm. yep thats it, my tcm doc. i am blessed with the best team, i have learned alot from them and i have tought them about difficult patients, thats too negative. lets say i have taught them about fantantical and obsessive patients with a will to live that reflects the beauty of life.

Helen321's picture
Helen321
Posts: 925
Joined: May 2012

GO PETE!!!! Excellent news. I'm getting very into food alternatives. Have yet to master the exercise portion. Commiting to lifetime change is hard so props to you! I'm so glad you did it and that your results have come out so wonderfully.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear helen,

you can do it, i did and i hope you hit 100 nice and healthy.

its easy to change our lifestyle, our brains are plastic, you just have to visualise.

for me the biggest challenge is the stress and pace of this western life, but that too can be managed.

just implement one change in one area of your life, jubnk by junk. doing it all at once is a recipe for failure.

just read the studies in the exercise post, that will get you walking.

not only will exercise improve your health, survival odds and you will look better also. its so easy to do. i am off to weight training again in a few hours after my meditation this morning.

great resulkts so far, at least one. still praying for our health all day. what a nice way to live for me.

hugs,
pete

ps and thanks for the cilantro post. chelation is a real big topic, thats lost on the masses here on csn at this point. so few even go to a naturopath, let alone challenge the naturopath about what to do. the alternative day fasting is what i would be looking into. i have a friend with crc doing it here, he is stage 4.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear helen,

you can do it, i did and i hope you hit 100 nice and healthy.

its easy to change our lifestyle, our brains are plastic, you just have to visualise.

for me the biggest challenge is the stress and pace of this western life, but that too can be managed.

just implement one change in one area of your life, jubnk by junk. doing it all at once is a recipe for failure.

just read the studies in the exercise post, that will get you walking.

not only will exercise improve your health, survival odds and you will look better also. its so easy to do. i am off to weight training again in a few hours after my meditation this morning.

great resulkts so far, at least one. still praying for our health all day. what a nice way to live for me.

hugs,
pete

ps and thanks for the cilantro post. chelation is a real big topic, thats lost on the masses here on csn at this point. so few even go to a naturopath, let alone challenge the naturopath about what to do. the alternative day fasting is what i would be looking into. i have a friend with crc doing it here, he is stage 4.

janderson1964's picture
janderson1964
Posts: 1828
Joined: Oct 2011

I di a lot of research today on gcmaf. Seems very promising and the whole concept makes sense however the isdue seems to how to get a good sourse for the drug that is made correctly especially here in the usa. There was one japanese website that looked very promising.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

hi jeff,

i just found this good full text from a pubmed citation.

its for us colorectals, it read very well.

http://www.revealtherapies.com/docs/Yamamoto,%20Immunotherapy%20of%20metastatic%20colorectal%20Can%20Imm%20Imm%202008.pdf

i have tried it, i feel great. Irconically it seems for me its only going to boost my immune.

i did the blood draw the day before my first shot last week. so now the results of that result are in.

read the study mate, its bloody fantastic. this nagalase blood test marker worked for all those colorectals for 6 years, till they are officially cleared.

no more expensive radiation ct's or pets for this little sucker. it time to save some money and save some lives.

so i would just find the best source and do the 8 weekly cycle and then retest. that was our plan, its just week 2 we stopped because the initial results say i do not have any solid tumours. no wonder they could not find anything on a ct or pet.

what this means for us as a colorectal community going forward.

having a more accurate test, that shows you tumour progression faster, gosh our treatment windows and protocols could become so much more effective.

if my assumption is correct that nagalase testing is more effective than cea testing for colorectal.

hugs,
pete

ps making this a separate post i realsie how important it is.

tanstaafl's picture
tanstaafl
Posts: 1014
Joined: Oct 2010

Pete, it's too early to rely on the nagalase test alone, especially with a high CEA. We all hope it works, but it's too soon to tell. The deeper in we get in to a stage IV cancer, the less time and manuevering room we have to recover from setbacks. Playing it safer means monitoring several parameters, frequently. If there is a divergence of results, it means two or more possibilities have to be considered.

annalexandria's picture
annalexandria
Posts: 2322
Joined: Oct 2011

lots of interesting info here, thanks! Was wondering why no B vitamins? I was thinking about adding them as a supplement, after talking to a scientist friend who said they're important for repairing chromosome damage. Did one of your docs think it was bad to take it? Ann

GcMAF
Posts: 2
Joined: Jun 2012

I am a researcher looking at GcxMAF in Australia, and I am writing a scientific review.
It seems like you are in Victoria from the reference to Gawler.
There are some science papers on this. Cheers

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

its nice to know this is being researched. i will pm you with my email, feel free to reply and even phone me if you want.

i would love a few more heavy heavy duty research papers to read.
i don't read newspapers any more, just books on biology and papers from pubmed and some assorted commentary on the net from sources i trust.

i am in sydney. i will post my gcmaf, may i ask a question about how a patient would source legitamite gcmaf, given trust on buying these alternatives direct over the net is hard to establish.

my one friend, a new one tried gcmaf and said it failed him, but he is a late stage. my other query is about the level of white blood cells and if this would limit gcmaf effectiveness. just some questions popping into my head. i am fighting like hell to peacefully elimenate any remaining cancers cells.

sincere thanks, a little science goes along long way. have a great day, i am.

thanks for writing the article and if its published on the net let me know.

hugs,
pete

janderson1964's picture
janderson1964
Posts: 1828
Joined: Oct 2011

Pete. You mentioned that you had a friend that failed him because his cancer was advanced. I read an article about a company testing gcmaf on advanced cancer patients over the past 4 years with success. They said for advanced cancer patients that you need to continue the injections for up to a year. I am stage 4 but currently NED.

My question is how long did he do it for and how advanced is his cancer. Does he have multiple leasonsor nodules.

janderson1964's picture
janderson1964
Posts: 1828
Joined: Oct 2011

Pete. Have you looked at this website yet (www.gcmaf.eu/info). They have the info on advanced cancer patients. Not trials but people who have used thier product and have kept them up to date on thier progress. Also lots of links to studies done on it all the way up until this year.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

No quick results and he pulled it, I will pass on the info.
Thanks Jeff, two heads are better than one, especially if if one is my brain.
Imagine if we git 3 heads involved.

One day we May save a few lives, with someluck it will include all our crc friends.
When I check our heaven, when I am 100 I have a few wrinkles faced friends to discuss what an amazing life we had and what an awesome eternity ahead. This way I cannot fail here even if I don't score a ton.

I will read link and studies and discuss.

One focused cancer brain is equal too 100 focussed gifted researchers.
They don't have their balls on the chopping block and they don't have human guinea pig. I have one very healthy guinea pig.
He Luke's raw organic food, macdonalds would kill him

Hugs,
Pete

janderson1964's picture
janderson1964
Posts: 1828
Joined: Oct 2011

I believe 100% in surgery but i have always been scepticle about chemo evan though i keep doing it. Next round will be my 12th this year. 34 over the past 6 years. I cant handle it any more. I just dont understand why they cant come up with or approve better treatment options. Chemo is torture. I am on my second oncologist and he is turning out to be the same as my first. They both just want to keep pumping me full of poison. At least gcmaf seems to be safe and nontoxic. I dont see the harm in it as long as i am still doing regular scans but i wil wait to see if anything new shows up on th scans first. In the meantim i will keep researching.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

dear jeff,

where you are at, i don't want to be. you situation is like many and i hope our investigations give hope.

even if its imaginery false hope, i don't give a shiite because it makes my days bearable with the uncertainty of this disease.

I will mention gcmaf and nagalase in passing to my onc, and she will ignore it most of the alternative tests.

i get my ct results 9am tomorrow. moderately interested to see if cea or gcmaf is a better indicator. say a prayer or send me a positive thought.

just because we a desperately fighting for our lives in the presence of a few blood sucking scumbag conartist charletane doctors around does not mean they can out smart me and my many committed friends. we are simply smarter than them and i firmly believe working together, sharing our research our experiences we can improve our quality of life and survival odds. and with luck send some of the bastards to gaol or at least bankruptcy.

i got this email from a friend here, not sure why she did not post it i will respect her privacy. i already thanked her.

Here is a critique of GcMAC that you could look at, Pete:

http://www.nosurrenderbreastcancersurvi ... id=3261190
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=34412
http://www.nosurrenderbreastcancersurvivorforum.org/post?id=3261190

the above link is a reasonable criteque i think from an evidence based perspective.
the lack of other good, bad gcmaf experiences here and on colon club proves in my mind what we already know.

very few try these alternatives off their own bats.
very few get medical advice to try them at my point of potential recurrence.
often the few try it at the latest stages and then have such little time, they are nervous and chop and changes therapies hoping for miracle style cures. i don't think our bodies heal in that time frame.

see my email reply to my friend about what i am up to with gcmaf.

I wished i did not read it, alas i am glad i did.
i already have the same conclusion as the criteque in the back of my mind.
but i am trusting my integrative onc's advice with gcmaf and the nagalase.
its not expensive, maybe effective.

but the points raised in the breast cancer reply are not without merit.
i simply have not had time to refute them point for point.
i am running both tests side by side with CT scans.
i will see how my treats me based on her cea tests, and so far the alternative tests and treatments are only fixing areas of of bio chemical make up and insufficiences.

so no real conflict at present.

i really appreciate the link. thanks.

so i am hopefully optomistic about gcmaf and nagalase and watchfully waiting to see how the results come in. i am leaving the door open to conventional treatment, which at present is none.

i am still going ahead full speed on alternative anticancer treatments and muscle building.

i did my 2 monthly ct this afternoon 3pm. get the results 9am at vitamin c alpha lipoic acid iv treatment and then lunchtime see my vegan specialist.

i have popped this link into the post, because i want it to be balanced.

hugs,
pete

ps my intentions here are always honable, i present the good, the bad the ugly. i am positive that trying alternatives that seem reasonable is worthwhile. but i will always try to provide my experience good, bad and in between. if i find a worhtwhile negative to a treatment, therapy or supplement i will include it.

the colon club discussion is linked here so i guess we have the combined colon cancer perspective on gcmaf at this point in time and we have two guinea pigs myself and i think jeff. if anyone else wants to offer feedback for or against let me know re gcmaf. i wish these alternatives were easy. but then that would take all the fun out of survival. some people win lotto, the trick is we just have to live long enough.

manwithnoname
Posts: 402
Joined: Jun 2012

Stumbled upon this, thought you might be interested;

"and the growth inhibition by liposomal curcumin was greater than that for oxaliplatin (P < 0.05) in Colo205 cells. Tumors from animals treated with liposomal curcumin showed an antiangiogenic effect, including attenuation of CD31 (an endothelial marker), vascular endothelial growth factor, and interleukin-8 expression by immunohistochemistry. This study establishes the comparable or greater growth-inhibitory and apoptotic effects of liposomal curcumin with oxaliplatin both in vitro and in vivo in colorectal cancer. We are currently developing liposomal curcumin for introduction into the clinical setting."

You can buy liposomal curcumin on the net. (read the first line again)

janie1
Posts: 753
Joined: Apr 2011

"we are currently developing liposomal curcumin for introduction into the clinical setting"

Question - Who is "we".

Thanks. Interesting topic.

manwithnoname
Posts: 402
Joined: Jun 2012

MD Anderson cancer centre, sorry should have put a link, here ya go;

http://www.ncbi.nlm.nih.gov/pubmed/17431105

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

if it works like that on humans, well thats a miracle.
never any human trials on this.

i guess the guys selling tumeric in the village amrket cannot afford the double randomised clinical trials.

lets just set the bar a little higher so all these natural therapies never get tested. how many lives lost, how many billions, or is it trillions of cancer dollars wasted.

so i am smug kind of, i have been making my own liposomal c at home, its a bit expensive on the net. i have few few kilograms of vit c powder in the kitchen.

my friend a food technologist knows how to extract the curcumoids, using a relatively simple process. i am going to do this and make it happen.

when its possible to just consume natural ingredients in the most bio available way, well even the supplement makers miss out. no conflicts of interest , just possibly healthier cancer patients.

i added some tumeric to my purple soup tonight, it still stayed purple.

thanks........

hugs,
pete

GcMAF
Posts: 2
Joined: Jun 2012

Sorry I missed this, and possibly an email you sent me

How can I contact you?

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

conclusions after iv this morning, then this arvo 1 hour with vegan alternative gp.

thankyou god and everyone for your help and support and patience.

nagalase maybe a good marker for me.

cea is likely not specific for me.

however i cannot ignore the cea rise 46 now, so i am doing the following
sticking on the vegan diet, but i did taste the kids roo at dinner tonight, quality control.
still doing vit c 60grams, alphaloic acid, bicard sode all iv
bumping up curcumoids to 10gram daily with some Boswellia
changing egcg suppliers and reishi mushroom as a combo specifically targetting colorectal
tumours. says to doctor, the spors need to be open for the mushroom to have an effect.
she is my kind of doctor, i have an inch of research papers to read that she put together for me. she asked her peers who went to the big alt cancer conference about advice for me.
she was really worried about the scan results.
she has never heard of naga;lase or gcmaf.

she loves chorella and recommended chloressence.
she rapped me over the knuckles for skipping green smoothies.

i took my clothes off and said what do you think, am i to skinny ?.
she smiled and said no you are ok. this actually happened becuase my onc hates the vegan diet, and is worried about weight loss. which will get in the way of chemo.

so i am keeping to the muscle building program.

i might push the ct window to 3 months, i might ask for a bone scan, i might also ask for a special mri with the fancy liver contrast that gives the best result possible for liver mets. but i have to pay for that mri myself.

i want to go on gcmaf until the cause of the cea rise is found.

my crp went to 6 from 0.7. it followed the cea rise which is a prognostic indicator for colorectal recurrence.

so even though the scan was clear, a few of the blood markers are a real cause for concern. i want an explanation from conventional medicine , rather than just a shoulder shrug and lets order another ct.

my scan today was not a triple phase on the liver, just a low dose one pass. i have paul and ken from sydney xray giving the best service on the scanning side. i will get alternative integrative oncologist to discuss diagnostic imaging solutions. these guys are really trying to find the met, you should see the report, oh so detailed. 8.7 milli Sevits. another great low dose scan. is everyone still getting fried on high dose ? see my blog.

also looking at flying to melbourne to do another more advanced dna test and a combo training course combined, hopefully with doc. lucky i have qualified as a naturopath in my own mind, so i attend these medical professional only courses. i hate how our government here wants to keep us cancer patients in the dark and out of these seminars and training courses.

most of the above came out of the arvo consult. this doc sold all the supplements at cost, she loves my dedication and commitment and i will see her in a few months. she is a vegan guru inspiration herself. she walks the walk and talks the talks.

she also poopoo'd the big SFN antioxidant conflict, saying my phd researcher who loves SFN is wrong and its a big ask to see if SFN can do it all. so the conflicts between alt doctors is real and exciting. no month is the same. if you are interested in this debate pm and i will forward an ebook that explains SFN therapy and the antioxidant overuse issue.

we discussed my cramping in my nappy one, two and sometimes three times a night. she does not like colonics either, we are hoping that was the cause. she has put me on probex probiotic to fix the gut bacteria.

i am overjoyed at the clear scan and the negative nagalase result and the positive cea result. to be alive is wonderful, we all have challenges and uncertainties, i am grateful for mine and the strength and support i have to deal with them. my wife has been wonderful lately.

hugs,
pete

ps crashed my car on the way home from the alt vegan doctors this arvo. my foot was in my mouth rather than being on the brake. not to serious, just money and metal. but the crash bought me back to reality, i was still in the doctors consult in my brain, going over and replaying all we discussed. when i see the crumbled bonnet, i will think of my clear scan and how lucky i am in so many ways.

manwithnoname
Posts: 402
Joined: Jun 2012

That's good news on your scan, just realised all you peeps are doing CT scans, for our stuff its only MRI, they offered us CT coz the MRI was fully booked after the last op. and my misses nearly hit the roof, CT is 400-500 x-ray dose, they make us leave the room when they do 1 x-ray for kids, now I don't want to open a can of worms here but for kids, and especially the brain its frowned upon unless an emergency.

BTW read the breast cancer womens 'critique' on GcMAF, i could write a few thousand words why it was a poor argument but don't have the time or inclination to try and convert sceptics.

How do you do the curcumin thing? would love to hear your full protocol, is it on a thread? if not do you mind posting it?

Tony

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3915
Joined: Nov 2010

sfn, mcp, avemar, minerals, vitamins, egcg, tumeric, q10, probiotics 4 types, slippery elm, glisodin, astralgus, spirulina, chorella, wheat grass, kelp, iodine, artemisinin, b12, fish oil, flax oil, udo oil, greenlip mussel oil, coconut oil, digestive enzymes 5 types, protein powders, alkaline water ph=9.5, tcm daily, shark cartlige , b17, resveratrol, grape seed, psp, psk, reishi, cordyceps, mushroom drops 3 types, vit d, vit c, vit k2, vit k3 and c, melatonin, milk thistle, gsh, nac, glycine, calcium d glucarate.

currently doing iv c, sodium bicard, alpha lipoic acid 3 days a week.

yoga, qigong, meditation, weightlifting, walking.

diet raw vegan, with a few cheats. doing 4 veg juices/ green smoothies daily.

my hobbies is reading research studies. in another life i am the worlds most enthusiastic underwater photographer.

the i have made my liposomal vit c, but not yet curcumin. my friend has to extract the raw curcumoids using a patentable protocol he thinks. so if you want to try liposomal curcumin then source on the net. i have not looked into this yet. i am happy with inflavanoid from metagenics. google its , got lots of good cofactors boswellia to name one.

i also don't waste a second on converting skeptics, our lives are to short.

I have an amazing book, 80 pages on sfn and glisodin from the worlds best source, a personal friend almost and an amazing phd researcher, if you want to read why broccoli powder is first on my list, that book is the way to go. pm with an email if you or anyone else wants it. if you want the clearest understadning of free radical cascades and the antioxidant pyramid then its the book.

hugs,
pete

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network