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Oral sex

Bkanter72
Posts: 39
Joined: Mar 2011

Ok, so I'm a year out of treatment and all is good. When I was diagnosed I did a lot o research, like many of you I am sure. I found that hpv in the tonsils leading to tonsil cancer is likely caused through oral sex. Well I hate to get to personal but I am a male and I thoroughly enjoy oral sex with my Wife. Problem is that since I was diagnosed I am terrified of reoccurrence as a result. Now my tonsils were removed. Do any of you know if my concerns are valid?

longtermsurvivor's picture
longtermsurvivor
Posts: 1823
Joined: Mar 2010

First of all, the association may be just that, an association between HPV causing cervical cancer, and HPV causing oral cancer, rather than oral sex causing transmission of the virus. The road to hell is paved with good intent, and those that assume these two are causally related may or may not be right. At the moment this is interesting speculation, not proven fact.

One thing that is for certain, if oral sex causes transmission of HPV fron genitals to throat, and if you have already had an HPV related throat cancer, the for you the genie is already out of the bottle, so to speak. If you personally chose to go down the road of testing for her to see if she is carrying the same HPV virus that you have had isolated from your tissue sample, then you have described the limits of your behavior set. No one really knows the answer to all of this, and anyone who claims they do, is merely trumpeting their ignorance. sorry I can't be of more help, but you won't find definitive answers.

best to you

pat

Bkanter72
Posts: 39
Joined: Mar 2011

Thank Pat.

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

I am for it.

Take care,

Joe

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

As Pat has said, no definitive studies have proven the oral cancer thought...as far as I have read.

As a side note...

My wife has been tested as part of her annual exams by her MD, she has no HPV showing. We have been together for over 20 years, not venturing in our relationship.

So if indeed oral sex was where my HPV+ derived cancer originated. It would have had to been from over 20 years ago, and lay dormany until my immune system might have became compromised allowing it to become active.

It is a fact that our bodies come into contact with all kinds of bad things. Normally our immune systems fight off these bad things.

But occasionally from stress, illness, etc..the immune system allows something to get through.

So as far as I'm concerne that's how my HPV+ dervived cancer originated.

I was exposed who knows when, where or how, and my body didn't fight it off.

This could be a question you pose to your MD, another might be to make sure your wife for both your knowledge request to be test for HPV during her routine annual exams.

Another topic to investigate, CHarles brought up a few weeks ago concerning Gardasil injections post treatment...either you, or both you and your wife as a possible extra preventive measure.

Thoughts,
John

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

Hi John....can you tell me where I can get more info on Gardasil? And maybe give me a quick run down on what it is / does?

Thanks,

Tim / Idaho

Laralyn's picture
Laralyn
Posts: 453
Joined: Apr 2012

I think I read yesterday that HPV-related H&N cancer shows up typically for men in the late 50's. Mine is HPV-positive and I'm on the other side of the demographics (younger and female), but it's certainly been dormant for many, many years.

Even if oral sex with an HPV-positive partner had a role in the cancer, there are many factors that caused cancer for each of us, and we will never know what they were. Millions of people have oral sex every year, millions of people are HPV-positive, and this cancer is still comparatively rare (although the numbers are growing).

Why did it become cancer in us and not in other people? IMO, we can't try to guess that or blame ourselves. It's just something that happened to us. We hit the wrong kind of lottery... or maybe we hit the right kind, because HPV-related cancer responds so very strongly to treatment that they're considering reclassifying it so it can show the proper survival stats. When I heard my biopsy showed strong HPV presence, it was probably the most joyful day since my diagnosis. I still tear up, thinking about it.

The genii is indeed out of the bottle for you! For your wife, I'd keep having her tested and have her ask her GYN about the Gardasil. Here's a link to their website with more info. I don't know if it's been proven to work on adults (it's usually given to kids) but it may not hurt to try! http://www.gardasil.com/what-is-gardasil/

The odds of her hitting the same lottery--especially since she tests negative--are pretty astronomical, and you already hit the numbers. IMO, this is a time when you should be enjoying being alive and with the woman you love. :-)

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

This is a subject that unfortunately most people of the medical community and patients tend to ignore!! Instead they say don't smoke, don't drink alcohol anymore; they don't say don't have anymore oral sex!! Also,one that I have had trouble with from the beginning; since I'm single. (How do you meet someone and let alone tell them you are a cancer survivor and in addition, tell them you got this from a STD)??? :(

This is why I stopped going to my support group because all the older people who didn't get tested for HPV and the clinicians don't want to talk about this subject!! :(

Regardless of what we don't know the fact is it's a reality; though there isn't 100% certainty that this was caused by oral sex; all the research is leaning that way! I won't share my oral sex history, but as far as the research goes, I am definitley in the (more than 5 partners)high risk category!

If this isn't caused by oral sex then why is HPV+ Oral Cancer low in african americans? From the african american men that I have made friends with over the years; they have mostly all stated that they don't partake in oral sex. Is this why there tumors are negative for HPV? who knows for sure, but it definitley makes sense!! In addition, those of you who are lucky to be in relationships; chances are if your spouse did have HPV; most likely there bodies cleared it like the rest of the majority of the population; so obviously the paps will be negative, but rememeber it's not just in the cervix; it can be on the genitals, hence vuvlar cancer, penile cancer etc!!! These areas are not tested in a PAP or male exam!!! In addition, people are not having there spouses oral cavities swabbed! Is HPV there? Afterall they performed oral sex as well most likely!! it's a viscious cycle, possibly being passed back and forth, like a viral ping-pong game :(!!! Maybe it's being spread from french kissing??? Who knows, but are we gonna stop kissing???? :(

Yes we are unlucky at this cancer lottery; but like laralyn stated, "we are lucky it's HPV+) the bottom line is "life is short and you have to be happy"; we all know this too well being the ones on this side of the fence. I guess it just depends what you can live with. We can't say for certain if oral sex will continue to put us at risk; you can use a dental dam; but I know it's unnatural; I say go for it, life is short!!

Yes, I have decided to get the vaccines; is this a waste of time? Who knows for sure, however some research is tending to show this may help with preventing HPV reaccurence, which can lead to cell dysplasia; which we know may lead to cancer reaccurence. In addition, Why get this?; because I believe that chances are if we are lucky enough to be alive 10,20,30 years from now an HPV outbreak is more than likely to reaccur again!!! :(

This is such a good/Huge subject it probably should have a super thread of it's own!!!

Charles

ratface's picture
ratface
Posts: 1252
Joined: Aug 2009

Oral sex terrifies me. History: I was base of the tongue, which is associated with higher incidence of HPV. I was however HPV negative. I have had more than six degrees of sex partners. According to theory, I have then touched all of mankind. My wife has had cervical dysplasia all of her adult life. We have been married over thirty years. It is possible I infected her originally and cleared it. Is it possible we will keep infecting one another? She has never been able to clear it? Web MD says 99.9 percent of cervical dysplasia is caused by the HPV virus. I have now had several opinions in the 75-to 80 percent range, one from My ENT on Tuesday. HPV is transmitted by skin to skin contact. This seems to be bourne out in the gay community as this demographic suffers a higher degree of HPV positives. Men are twice as likely to be HPV positive as women. The normal person can clear the virus within 2 years. It seems to me that the virus is not in saliva. If we ingest saliva does it not get absorbed into the bloodstream via the digestive tract, yet the virus is not blood bourne? My oncologist said it was a one time infection which I don't really understand, nor does that make sense to me. There are 141 strains of the stuff, four which are implicated in cancer. If you get one strain and clear it, are you then immune?

My oncologist stated that he thought we were around 80 percent safe from the virus if my wife is tested and found to be HPV negative.

My Ent thought we were 99 percent safe if we maintained a monogamous relationship,
regardless of the dysplasia. She also mentioned that 50 percent of their head and neck cases now are HPV derived and that the country is at epidemic proportions and growing.

There is no definitive answer from the experts. We have to make our own decisions and assess our own risks. We are still undecided and will probably wait for the HPV test. I don't want to go through this again but it would be really tragic if I gave this cancer to my wife. I think oral sex is part of the human existence and behavior cycle. I'm glad we are talking about it though. Wish someone had the answers.

longtermsurvivor's picture
longtermsurvivor
Posts: 1823
Joined: Mar 2010

which showed oral HPV in men to not have a positive correlation to oral sex practices. If you have a study that shows black men do not engage in oral sex as often as white men, could I please see it? Because honestly, this is how wives tales tend to get started. Heres the link:http://www.ncbi.nlm.nih.gov/pubmed/21148755

Thanks.

Pat

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

First, When I stated my comment on the African American population it was just to state a theory; it's my personal opinion it was not intended to offend anyone! I have several African American friends/aquatinces and they have all pretty much stated the fact they don't partake in oral sex; at least giving!!

Second, this is just one study and yes I know it's from the NCI and I'm a U.S. Public Health Officer so I am all to familiar with NIH and NCI. This study seems biased because it definitely targets tobacco use. It kind of contradicts all the other current studies out there that are being done or have been done!! Just from this small pool of HPV+ patients on this web-site and the oral cancer foundations web-site; correct me if I'm wrong but most are non-smokers. I'm mainly talking about the folks being diagnosed younger in the 20,30,40 range. I agree that there is something else going on than just HPV exposure; be it decreased immune response, combined with ETOH use, chronic sinus infections causing a inflammed response etc, who knows?

One huge problem with these studies is that most people are hesitant to talk about there personal sex practices and be truthful about there sexual history. So until people are honest they will never get to a true study!!! This board is a perfect example; I remember when they started a thread "things we have in common" none of the questions contained anything about "how many oral sex partners have you had?" Unfortuantely this cancer has a stigma to it :(

I still believe after the research that I have read and getting this disease first hand that oral sex is the main culprit. :( Only future studies and time will tell!

Charles

longtermsurvivor's picture
longtermsurvivor
Posts: 1823
Joined: Mar 2010

http://www.ncbi.nlm.nih.gov/pubmed/22429603

ratface's picture
ratface
Posts: 1252
Joined: Aug 2009

the entire article. Pat, once at their site what do you do to get the source document of the abstract?

longtermsurvivor's picture
longtermsurvivor
Posts: 1823
Joined: Mar 2010

i have proprietary access to several subscription sites. If you are interested I will try to pull up and mail.

ratface's picture
ratface
Posts: 1252
Joined: Aug 2009

do you know what they charge for a full version of the article. I registered on their site and the next step is the purchase , but they don't list prices up front, a minimal fee would be well worth it.

longtermsurvivor's picture
longtermsurvivor
Posts: 1823
Joined: Mar 2010

a couple of bucks will do it.

dsantor's picture
dsantor
Posts: 19
Joined: Jun 2012

I so agree with you!!!!!
I recently was diagnosed with receurrent base of tongue cancer HPV related-- I had to travel from upstate new york to new york city for treatment, part of which consisted of a week in the hospital in isolation for brachytherapy treatment, before the city it was chemo and external radiation-- really sucked but i am optimistic that treatment helped. from what I understand from my radiation oncologist in NYC, HVP related head and neck cancer is now an epidemic in NYC!! This is a HUGE subject and definately deserves more recognition!!!!! I was also asked about the Gardasil injection after treatment, I am going to inquire when I go to the city for my follow up appointment.

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

I believe statistics just has it as an epidemic in general.

Studies show that it will overtake tobacco related H&N derived cancer within the next ten years or so...

Like mentioned further down, it is believed that something like 75 - 80% of the population under 40 have been exposed.

JG

nedsky39
Posts: 6
Joined: Mar 2012

My husband has HPV+ SCC of BOT Stg III and has now finished his RX....same rx as most pt's...33IMRT's and 4 chemos running concurrently. I have tested negative for HPV...clear paps with HPV testing and never had atypical pap. I have read that John's Hopkins is recommending that pt's and their partners get the Guardasil vaccine. Our oncologist isn't recommending it...she said it's still in study stage. I asked if my husband could still have HPV...she says...we're treating CA not HPV...not very helpful!....anyone been recommended vaccine?......

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

As far as I know and have read, there is no cure for HPV, although in most people, the infection goes away within a year or so. Since an HPV infection does not usually cause symptoms, most people are completely unaware that they have even been infected.

My wife, like you is tested annually during her exams and paps. Her MD doesn't feel anything other than is necessary to date.

Best,
John

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

It is a vaccine that they have been offering to younger girls for a few years now..mainly three injections to help in preventing HPV derived Cervical Cancer.

There have been a lot of studies and research if it is or would be benificial in boys as well.

Just lately there are discussions going on about the possibility of recurrence reduction for individuals that have already had HPV derived H&N Cancer.

OCF - HPV

HPV Vaccine & Recurrences of Cervical Cancer

Charles above (Irishgypsie) I believe has already had the injections, or looking into having them.

He knows a lot more than I on the topic....

JG

Crazymom's picture
Crazymom
Posts: 300
Joined: Nov 2011

I am currently having the doctor give my 17 year old son the gardasil vaccine. However, are people who already have HPV cancer getting the Gardisil?

Ann

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

I believe that Charles is and has some articles, studies and or links for reference concerning Gardasil post treatment of HPV derived cancer.

JG

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Roselvr
Posts: 30
Joined: Feb 2012

Content removed by site administrator.

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

You know, you were banned once on your other screen name for your personal comments.... You think you would have figured it out then.

It's great that you have an agenda, but all that I see is that you only mainly enter conversations concerning Gardasil.

We get it, you are not for Gardasil...how many times do you need to copy and past this long post slamming it.

Comparative...how many more people die from cancer than die from Gardasil?

John

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

I agree with Skiffin; we get the hint "Roselvr" your against vaccines!!!!!! I also hope your not or never got the Flu vaccine, pneumovax; polio vaccine, measles, mumps, and rubella vaccine for (MMR; because I wouldn't want you to get those diseases since vaccines aren't effective. Oh and also, don't travel because I wouldn't want you to get any vaccines that may protect you from infectious diseases such a malaria, small pox, etc; and you probably don't want the TST test to test for TB if you goto high risk countries as well!!!!!!!!!!!

Oh and god forbid if there ever is a vaccine developed that cures all cancers; don't take it!!!!!

Charles

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

Ok, I'll get off my soapbox now!! :) I guess it's the Registered Nurse in me!!! :)

God Bless everyone!!! Big Hugs!!

Charles

Roselvr's picture
Roselvr
Posts: 30
Joined: Feb 2012

I'm surprised to see the comments by you guys. I have not come here much since whatever happened to my other user name; which the mod can't answer. I was never warned for anything. I have no clue if I'm supposed to be banned or not- the mod did not see anything. The board was having issues that week; since they have no support here for stuff like that; who knows how many other people were affected? I don't post unless I feel I can contribute something & I posted to 2 threads before; the other about peg tubes.

I participated on my other account; do you remember the list of questions for doctors? I brought over the questions I wrote when my hub was diagnosed & you guys helped me write a better version. One reason I didn't participate much here is because I had a bad injury back in September where I couldn't sit long. I'm disabled to begin with; I'm not "needed" here. If you go to CC; you know Gardasil is not my only interest. Being disabled & in pain; I count on email replies to remind me where I have posted. I post on CC & Inspire as well as a few FB boards; then I have noncancer interests. There are a lot of knowledgeable people here to begin with; I send a LOT of people here via PM at CC because I actually prefer the help you guys give compared to some members there. You give helpful advice which is what they need. I stopped in today to grab Dawn's super thread link for the person at CC with the post titled surgery with no primary. I give the link to everyone that is new there. If you know CC; you know they moderate posts with links; everything is done via PM. Marine is familiar with me & my posts; message him & ask if Gardasil is the only thing I post to.

As far as Gardasil; I scan the page- this post wasn't even about the vaccine- it's titled oral sex; which is something else I'm interested in reading because I have not found where they know it's caused by oral sex. I saw gardasil mentioned & wanted to give links for people to make their own mind up. I am not against the vaccine- I am against them giving it to people that should not have it. How do I know this? It was offered to MY daughter by 2 different doctors without asking specific questions. I told them I had to research it because that's what I do. We've all had our vaccines- my daughter did not have chicken pox vaccine because it had just come out in early 90's & I felt it was too new.

I know people that have successfully gotten Gardasil with no side effects but I know a few that have side effects. I would never tell someone to run out & get any vaccine without looking it up.

I don't even buy a coffee pot until I research it. I'm not putting any vaccines in my body before I read information. I was around toxic chemicals all of my life with my job (family business started helping at 11).. I was exposed to the same toxic chemicals that caused my dad's AML Leukemia.. so you're right; I'm a little picky about what I do now; even something as simple as a vaccine. Birth control freaks me out too; especially the depo since you're stuck for 3 months if your body rejects it. I just lost 3 weeks of my life due to Effexor antidepressant- which my hub took with no issues. My body is weird with medications; doesn't matter what it is. All I posted was for people to read as much info as they can. If I post to Gardasil again; I will tell them to google; which is what I started doing but felt I should post a few other links; like the 2 articles that you guys posted a few months ago. I will take out all of the information I posted; they can google. *Note- problem is that I feel like I'm being cold saying- gee; you have cancer; you don't have enough on your plate; so use google.

And by the way... I'm actually interested in Gardasil for my husband; the oral cancer patient after seeing that some of you participated. I'm keeping my eyes on posts about that when I remember to come here

Do not read any of this snotty because I'm not being snotty. Nothing is in all caps; I bolded a few words. I understand you guys don't know me because you don't go to CC & are not familiar with my posts.

Edit- can't modify my posts because you guys reported it. Trust me; I will never post those links again

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

I have no problem at all if your approach is one of being open minded regardless of your own personal thoughts, comments or opinions. All of which you are entitled to express...

My heartburn is the tone of the entire post which I have seen many times.

To me it's not open minded, it seems (to me) as one of conspiracy theories, one sidedness, and leaves enough doubt that seems to be a scare tactic to force one to only see Gardasil as you.

I'm neither PRO or CON concerning it, I just try to leave any treatments, methods and procedures up to the one considering. I mainly base my comments based from my own experiences and history, those of which I have personally endured.

Do I have my own opinions and thoughts, of course. I also let those be known on heated topics. But I at least try to be open minded enough to not force anyone to my thinking and there are always options and special circumstances.

You are totally correct in saying that people should research, and make their own informed and educated decisions on how they approach treatment/recovery.

I flagged your post, not Charles...

I apologise if I offended you.... I just don't like feeling that I'm having something shoved down my throat. That is how I feel everytime I see that post copy and pasted the numerous times that it has.

John

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

I don't want to get involved in any ill feelings, and I think it's a very good thing that you refer people to this board for info and support. And, hope you continue to do so. I, personally, don't object to a subtle warning about side-effects, but one must keep it all in perspective.

Thing is, medicine is an inexact science, and they deal in percentages of benefit, or the contrary. I see that Gardasil is believed to have lead to 4 deaths from adverse reactions, but for the vast majority there is no reported problem with side-effects. That's just the way it is with vaccines and medicines. Look at all the warnings on just about any medicine. Are all medicines off-limit? Not sure that'd be the right way to see things, you know. Lord knows what the poison that is chemo does to us, while it also stops the replication of C cells. It's called trade-offs, I reckon. And who among us would dare to go thru radiation treatment? There's news stories about the government warning against overuse of little old xrays amongst the young? And, it is known that the rad treatment, itself, can cause a secondary C down the road. When you compare the amount of rads we get in tx compared to just getting a couple xrays over a couple years- the comparison is so far off the charts different. And then add to that all the Pet Scans and CTs, post-tx.

I am sorry if you've had a bad experience in your life with a vaccine, or med. Know it happens all the time, but the percentages make it acceptable. Just the way it is in an imperfect world.

kcass

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

http://oralcancernews.org/wp/1-of-6-cancer-deaths-worldwide-caused-by-preventable-infections/

Posted from the oral cancer foundation web-site!!

nwasen's picture
nwasen
Posts: 235
Joined: Feb 2011

My stage 4 cancer was caused from years of smoking (cigarettes) but also HPV was found in my cancer. So the good news was it gave me better survival chances.
The bad news is the folks at the James who are all over head and neck cancer feel it is for sure on the rise and in a big way. If I had a young child, be it boy or girl, you can bet your booties they would be vaccinated.
People having these fears about vaccinations are why some diseases that were thought to be long gone have reappeared.
My mom had polio in the 40's and I shudder to think of anyone in these times having to endure what she went thru.
Don't fall for some of the crap you read on the internet unless it comes from a reliable source!
Peace, Nancy

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

Especially on the re-appearance of diseases once vaccinated for, thought to be gone, now again on the rise.

I've read numerous places that the thought concerning HPV derived H&N Cancer, will more than likely over take tobacco related H&N Cancer within the next ten years.

Peace Out Nancy....

~JG

DrMary's picture
DrMary
Posts: 527
Joined: Nov 2010

He tested me last year for HPV - this involved collecting cervical tissues and looking for the active virus. He said that the virus can lay dormant for many years and then become active, and so testing "negative" does not mean you've not been exposed (we assume I have) or that it will not become active in the future - which is why I'll get Pap smears yearly and HPV tests every three years (forever, I guess).

According to him, this is the schedule that is recommended for women who are known to have been exposed.

Circling back to the original topic of oral sex - I don't think you can consider anyone who has been exposed but not currently testing positive to have "cleared" the virus. If it becomes active, it is because something in your system (stress seems to be one culprit) cause it to do so, not that you got re-infected. However, I think that is based on general knowledge of viruses and not on specific tests (how could you test that - it would take decades).

Given the high numbers of people who have been exposed (my doctor suggested it could be over 80% of the population) work on how to prevent activation of the virus would seem useful.

kingcole42005's picture
kingcole42005
Posts: 177
Joined: Oct 2010

We are all adults here and can make our own decisions. I have a teenage daughter and no she has not had the gardisil vaccine. I'm not against. I'm leaving it up to her, she is 18 now and can now decide for herself. Actually I was quite taken aback at the tone of this whole thread. The first post was too explicit for me, and I debated on whether flagging it as offensive myself. But as I said we are adults, and I do not control the content. It is almost as if you are shoving the pro gardisil argument down our throats. I understand you are for it. Some people may not be, and they are entitled to their opinion.

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

I have no problem with your take on it....

And I'm neither PRO or CON concerning the vaccine....., if you read my other posts explaining my feelings, you would have seen that.

If I were absolutely for it, I would have gotten them for myself. But, I'm not against the idea... I just haven't really considered it.

I'm not sure what lead you to believe that I am PRO and trying to shove it down anyone's throat. I have never said to get the vaccine, nor recommended them...nothing to stating anything close.

That was my point specifically, she was and has been for several posts, including many under her other screen name against the vaccine...regardless of what she posted after the fact.

If you have participated in the many of these threads, she has posted the same long reply on her thoughts that pretty much mirror those of Michele Bachmann.

To me those types of comments are just a way of trying to scare someone into your way of thinking.

I am all for someone researching and making an informed decision, their decision.

I'm sorry if your take was that I was trying to pursuade someone to have the vaccine, I wasn't.

It was merely to allow people to make their own choice without trying to scare them into making your choice.

As for flagging the original topic, I suppose that is your decision. Although I do see it as part of lifestyle in many of the general population.

JG

CivilMatt's picture
CivilMatt
Posts: 3020
Joined: May 2012

Bkanter72

After what I have read here and what my ENT went over with me I think I am hanging it all up and will be avoiding everyone. I was happier to believe I got the cancer from breathing in when I should have been breathing out, no such luck.

My ENT told me about the increases in hpv+ HNC, about what he thought about the oral sex, vaccinating young kids, etc. I tell you, I don’t wish what I went through on anyone and if a vaccine (may) prevent it, then more power to the vaccine. Many vaccines do improve with continued research; I would hope that the powers to be use all available data to refine the vaccines to produce fewer side effects.

Look at the difference between Tim6003 and myself, both using Erbitux with reactions 180 degrees apart. He got the heck kicked out of him and I only got punched in the stomach.

Peace,

Matt

tuffenuff's picture
tuffenuff
Posts: 277
Joined: May 2012

I've asked two oncologists (one is a gyn onc) if I should be concerned for my husbands health since I'm HPV+. Both have said things to the effect of don't worry about it, his body probably fought off the virus and it will be a nonissue. One also said most of us have contracted HPV by the time we reach high school. My husband says he doesn't care and whatever I've got, he will take. He may change his mind after seeing what I have to go through beginning this week.

One thing that really caught me off guard... When I first met with my chemo doc he recommended I get tested for HIV since I've had now two HPV related cancers. I was very defensive, embarrassed, shocked at the notion. Of course, I said I would pass because who needs that kind of stress when you're already scheduled to start chemo/rads.

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

Your MD's are the first that I have ever heard relating HPV to HIV in any way....

JG

tuffenuff's picture
tuffenuff
Posts: 277
Joined: May 2012

he said something like "it's not mandatory and there is no relation but you may want to consider..."

other than that... i love him lol.

longtermsurvivor's picture
longtermsurvivor
Posts: 1823
Joined: Mar 2010

because frankly, this type of comment borders on completely inappropriate. Inappropriate in that 1) there is no evidence to link the two and 2) the general take on a comment like that is to be hurt and terrified. Just saying.

Best to you.

Pat

Jahnsart's picture
Jahnsart
Posts: 41
Joined: Jul 2011

Oral Sex is great, the genie is out of the bottle, and can't be put back in. What difference does it make how I got this cancer. I can't count how many times I have put myself in jeopardy, from the countless times driving high or drunk as a young man. The motorcycle racing, sky diving, scuba diving, flying, driving, running, walking, skiing and breathing. At 51 I have traveled to every continent except Antarctica, been on the tops of mountains and been through deserts, I have met many friends, eaten things I had no clue what they were, been exposed to trillions of different microbes, bacteria, and viruses and survived it all so far. Now people tell me about oral sex causing cancer and we should worry about it. Why? Is there definitive proof? Maybe I got it the first time I had Sex at 14 years old, now what could I have done about that. Frankly, I am not at all concerned about how or why, quality of life is my goal and I'll never give up my extracurricular activities...after all, the cats out of the bag.

tuffenuff's picture
tuffenuff
Posts: 277
Joined: May 2012

Every continent but antarctica! Wow... I wish I had been that adventurous. It would make all of this a little easier to swallow, no pun intended.

Being everyone here seems to be beyond legal age of consent, I think it would have been a travesty if the original post had been deleted. This is something we are discussing with our doctors so it should be fair game on the boards. There was nothing indelicate or pornographic in the way he phrased his post. And I'm sure at least 10 people were chomping at the bit to ask similar questions but are too embarrassed to do so. I'm sure the cervical cancer and anal cancer boards are overrun with this type of question and if they aren't, they should be. Oral sex should get the same attention.

Birds don't do, bees don't don't do it but we do it. Or most of us anyway. Perfectly natural conversation and I commend the original poster for being brave enough to bring it up.

Tim6003's picture
Tim6003
Posts: 1497
Joined: Nov 2011

I never was against it...just never gave it a thought. Base of tongue cancer has made me realize I NEVER want one of my five children to go through what we did (btw...not that anyone anyone cares, I thought the comments of Bachman were silly and irresponsible, but she is entitled to her opinion..I just attributed her talk to "election fever" ..lol)

I have a 13 year old daugher ...we are more or less a "traditional" family. I teach her to wait...be careful, blah blah blah...but I'm not dumb.

Now my daughter (and four sons if allowed) will be given the vaccine (my decision). My wife too will be tested and if she shows clear or not I think she should get the vaccine.

Because of this thread and comments by skiffin and some other links...I too may get the vaccine even though I was dx already with BOT HPV+.

So I for one am thankful for the discussion and I learn something new everyday on this forum.

Tim

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