Mask Question

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osmotar
osmotar Member Posts: 1,006
in Head and Neck Cancer #1
I know I've read that a lot of you couldn't wait to get rid of the mask as a reminder..but I have been trying to explain to my neice what one looks like, did any of you take a picture or have a picture I can share with her.

Thanks,

Linda
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Comments

  • mrapp
    mrapp Member Posts: 30
    #2
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    Mask


    I have a pic of my mask. Before I started radiation I wanted to keep my mask. After radiation I never wanted to be reminded of what the experience was like. Yes I have a picture of it.

    Mitch
  • osmotar
    osmotar Member Posts: 1,006
    #3
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    mrapp said:

    Mask


    I have a pic of my mask. Before I started radiation I wanted to keep my mask. After radiation I never wanted to be reminded of what the experience was like. Yes I have a picture of it.

    Mitch

    Would you
    be able to post? If not I understand.
  • mrapp
    mrapp Member Posts: 30
    #4
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    osmotar said:

    Would you
    be able to post? If not I understand.

    Mask


    You can see them on net if you search. I will email it to you if you give me your email address.

    Mitch
  • osmotar
    osmotar Member Posts: 1,006
    #5
    Options
    mrapp said:

    Mask


    You can see them on net if you search. I will email it to you if you give me your email address.

    Mitch

    I'll
    search the net first.....
  • Goalie
    Goalie Member Posts: 184
    #6
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    osmotar said:

    I'll
    search the net first.....

    mask pic
    I remembered this from an earlier thread.

    http://www.caringbridge.org/visit/dougbernstein

    Go there and follow the pictures. My mask was like this and not like the one on Wikipedia which is giant.

    btw, I had no problems and often fell asleep or just zoned out. If not, following the machine through its paces and knowing where we were was always interesting. I hope yours is easy as well. Doug
  • osmotar
    osmotar Member Posts: 1,006
    #7
    Options
    Goalie said:

    mask pic
    I remembered this from an earlier thread.

    http://www.caringbridge.org/visit/dougbernstein

    Go there and follow the pictures. My mask was like this and not like the one on Wikipedia which is giant.

    btw, I had no problems and often fell asleep or just zoned out. If not, following the machine through its paces and knowing where we were was always interesting. I hope yours is easy as well. Doug

    Thanks
    Thanks Mitch and Doug for the pics.

    Linda
  • Hondo
    Hondo Member Posts: 6,636 Member
    #8
    Options
    Goalie said:

    mask pic
    I remembered this from an earlier thread.

    http://www.caringbridge.org/visit/dougbernstein

    Go there and follow the pictures. My mask was like this and not like the one on Wikipedia which is giant.

    btw, I had no problems and often fell asleep or just zoned out. If not, following the machine through its paces and knowing where we were was always interesting. I hope yours is easy as well. Doug

    Mask

    I did treatment twice and still have both of my masks, don’t know why I keep them, I guess as a reminder of what hell will be like.
  • mrapp
    mrapp Member Posts: 30
    #9
    Options
    Hondo said:

    Mask

    I did treatment twice and still have both of my masks, don’t know why I keep them, I guess as a reminder of what hell will be like.

    Mask
    I hate my mask. The thought of it makes me start to feel anxious.

    Mitch
  • rhoward
    rhoward Member Posts: 1
    #10
    Options
    I have a couple of pics
    I have a couple of pics with the mask on. I am new to the site, is there a way to send them to you through this site or do i need to e-mail them?
  • RushFan
    RushFan Member Posts: 224
    #11
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    rhoward said:

    I have a couple of pics
    I have a couple of pics with the mask on. I am new to the site, is there a way to send them to you through this site or do i need to e-mail them?

    Still have mine
    It hangs out in the corner of our bedroom. Mine was the large variety...over the shoulders too. I don't mind having it around at all. When friends ask, I can show them what it looks like etc. I also look at it and think "that thing helped save my life" thank you.

    Best to all here...
    Chuck.
  • osmotar
    osmotar Member Posts: 1,006
    #12
    Options
    RushFan said:

    Still have mine
    It hangs out in the corner of our bedroom. Mine was the large variety...over the shoulders too. I don't mind having it around at all. When friends ask, I can show them what it looks like etc. I also look at it and think "that thing helped save my life" thank you.

    Best to all here...
    Chuck.

    Thank you
    all for your replies and shared pics.
  • lauralou55
    lauralou55 Member Posts: 12
    #13
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    My Dad's Mask
    My Dad just finished 35 radiation treatments for base of tongue stage 2 squamous cancer. Towards the end of the treatments his mask rubbed his neck raw and was very painful for him. He said he wants to take his mask to a shooting range and shoot it full of holes with a gun - tee hee - but he has not done this yet.
  • staceya
    staceya Member Posts: 720
    #14
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    lauralou55 said:

    My Dad's Mask
    My Dad just finished 35 radiation treatments for base of tongue stage 2 squamous cancer. Towards the end of the treatments his mask rubbed his neck raw and was very painful for him. He said he wants to take his mask to a shooting range and shoot it full of holes with a gun - tee hee - but he has not done this yet.

    Mask
    I just posted a picture of me wearing my mask. It is under my profile in expressions.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #15
    Options
    staceya said:

    Mask
    I just posted a picture of me wearing my mask. It is under my profile in expressions.

    Hi Staceya

    Looks like they did a full body harness on you; all I did was just a small mast. I thinking of using it for Halloween

    Boo
    Hondo
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #16
    Options
    staceya said:

    Mask
    I just posted a picture of me wearing my mask. It is under my profile in expressions.

    Stacey, that is what my mask
    Stacey, that is what my mask looks like. They did have to cut out eye holes for me. Mine came a tad bit, but not much, lower in my chest.
  • pattyanny
    pattyanny Member Posts: 544
    #17
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    Yep! I still have mine. I
    Yep! I still have mine. I even took it when I moved. I have no idea why.
    Hmmmmm.... Maybe it reminds me, if I could get thru that experience, I can do anything, and I am a whole lot stronger then I was before I started that journey. I thank God!
    Patty


    "I can do all things through Christ.... Phil 4:13
  • Husker Fan
    Husker Fan Member Posts: 65
    #18
    Options
    pattyanny said:

    Yep! I still have mine. I
    Yep! I still have mine. I even took it when I moved. I have no idea why.
    Hmmmmm.... Maybe it reminds me, if I could get thru that experience, I can do anything, and I am a whole lot stronger then I was before I started that journey. I thank God!
    Patty


    "I can do all things through Christ.... Phil 4:13

    I plan on keeping mine...
    73% done today! They told me I could keep mine after it is all done. Not sure why, but I plan on it. I think for the same reason Patty did. It may suck getting there, but wow what a blessing it is to have this technology to make us better again!

    David
  • osmotar
    osmotar Member Posts: 1,006
    #19
    Options
    CT
    I had my first CT and simulation at the rad office tonight. Tech was telling me how mask was made and I was close to tears, but the tech was great and walked me thru everything. He even let my neice stay with me until the CT scan started, she took pics for the east coast family to see, and then let her stay in the observation room watching the screens with him. All in all at this point I can say the mask and the CT session wasn't bad, they however won't make any cut outs in the mask, the nose/mouth breathing wasn't difficult, nor will they allow my music as they want to be able to hear anything I may say :(. The total time was around 15 mins, they tell me the actual treatment will be 10 mins or less. what I kept in my mind was my grandaughter singing you are my sun shine when she was around 3, she's now 6. I'll let you know how I feel about the mask and process after say the first 15 sessions, Iwill have a total of 39. I go for a test run on Oct 31 (happy halloween, all I'll need is a costume), with the first actual treatment starting on Nov 1 and ending Dec 29th. Time off for good behavior. What suprised me most, was that this rad center starts at 6:15 am and they work until 10:pm, guess it's to accomadate as many schedules as they can.

    Linda
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #20
    Options
    osmotar said:

    CT
    I had my first CT and simulation at the rad office tonight. Tech was telling me how mask was made and I was close to tears, but the tech was great and walked me thru everything. He even let my neice stay with me until the CT scan started, she took pics for the east coast family to see, and then let her stay in the observation room watching the screens with him. All in all at this point I can say the mask and the CT session wasn't bad, they however won't make any cut outs in the mask, the nose/mouth breathing wasn't difficult, nor will they allow my music as they want to be able to hear anything I may say :(. The total time was around 15 mins, they tell me the actual treatment will be 10 mins or less. what I kept in my mind was my grandaughter singing you are my sun shine when she was around 3, she's now 6. I'll let you know how I feel about the mask and process after say the first 15 sessions, Iwill have a total of 39. I go for a test run on Oct 31 (happy halloween, all I'll need is a costume), with the first actual treatment starting on Nov 1 and ending Dec 29th. Time off for good behavior. What suprised me most, was that this rad center starts at 6:15 am and they work until 10:pm, guess it's to accomadate as many schedules as they can.

    Linda

    No music!
    That sucks!!!!!!!!!!!!!!! You are the first person, I think, that had said they cannot have music. I was supposed to raise my hand if I had a problem.

    As far as them cutting out the eye holes, they had no choice. The mask was so tight on my face that it left the waffle marks, but on my eye bones, not only did it leave the waffle marks, but it bruised me and broke capillaries or something on my eyes, it was that tight. I went home with the worst migraine that day, and my eyes were immediately bruised. I bruise like fruit, right away, because of my anemia. If you grab my arm to hard, you will leave a hand print. No lie.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #21
    Options
    osmotar said:

    CT
    I had my first CT and simulation at the rad office tonight. Tech was telling me how mask was made and I was close to tears, but the tech was great and walked me thru everything. He even let my neice stay with me until the CT scan started, she took pics for the east coast family to see, and then let her stay in the observation room watching the screens with him. All in all at this point I can say the mask and the CT session wasn't bad, they however won't make any cut outs in the mask, the nose/mouth breathing wasn't difficult, nor will they allow my music as they want to be able to hear anything I may say :(. The total time was around 15 mins, they tell me the actual treatment will be 10 mins or less. what I kept in my mind was my grandaughter singing you are my sun shine when she was around 3, she's now 6. I'll let you know how I feel about the mask and process after say the first 15 sessions, Iwill have a total of 39. I go for a test run on Oct 31 (happy halloween, all I'll need is a costume), with the first actual treatment starting on Nov 1 and ending Dec 29th. Time off for good behavior. What suprised me most, was that this rad center starts at 6:15 am and they work until 10:pm, guess it's to accomadate as many schedules as they can.

    Linda

    Hi Linda
    Just keep in mind your granddaughters song that “you are her sunshine” while in treatment and the time and treatments will all soon be a thing to remember.

    Hondo

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