bad arse day, who is in the most pain today, you gotta be able to laugh to join this post

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pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900 Member
in Colorectal Cancer #1
anyone else having lots pain ?
i don't think i am the only one.

was at dinners tonight seated alo9ng way away from the only loo. i own the loo the now.

all day today, pooing all day. some said i wasnfull of shiiit, they were right. this is an example of the humour i use to cope with pain.

at dinner tonight my friend said so and son was a pain in the aarse. i immediately intejected and asked here to use better language. we all laughed and run off. at least 40 craps this afternoon.

I AM JUST WINGING ABOUT PAIN. its got so bad a had a cocktail and 3 bowls of carva at dinner. the pain persisted but the cocktail was great.

just ntell your pain story here, try to make us laugh if you can.

hugs,

pete
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Comments

  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #2
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    Ouch
    Hey, Pete.

    I can't think of anything funny about it today. I've been in deeply unrelenting pain the past couple of days. Night before last, I was pretty sure I was going to either expire from the pain or end up in the hospital. My husband gave me a Hydrocodone, and mercifully I went to sleep.

    I know I don't have the worry of Stage 4 or some of the complications others here have, but I think I can give some of them a run for their money on the level of pain I deal with.

    Hope your pooping slows down soon!

    *hugs*
    Gail
  • Nana b
    Nana b Member Posts: 3,030 Member
    #3
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    tootsie1 said:

    Ouch
    Hey, Pete.

    I can't think of anything funny about it today. I've been in deeply unrelenting pain the past couple of days. Night before last, I was pretty sure I was going to either expire from the pain or end up in the hospital. My husband gave me a Hydrocodone, and mercifully I went to sleep.

    I know I don't have the worry of Stage 4 or some of the complications others here have, but I think I can give some of them a run for their money on the level of pain I deal with.

    Hope your pooping slows down soon!

    *hugs*
    Gail

    Sore shoulders, wrist and
    Sore shoulders, wrist and ankle! Dang tendons!!!! Dang itchy butt! lol
  • pluckey
    pluckey Member Posts: 484 Member
    #4
    Options
    Oh Pete, I get sick of
    Oh Pete, I get sick of azz-pain too. Oh, and I've never farted so much in my entire life.
    I feel for those pedestrians downwind of me..the more and faster I walk (from the train station to work etc) the worse it gets. So, does one exercise and risk farting in perpetuity, or forgoe the exercise in order to be kind to the nostrils of others?


    I'm more of a frequent crapper...if I don't eat the right balance of veggies, immodium and such, I go all bleeping day, causing major diaper rash, which then I can't walk or exercise for a day or 2 until my bottom heals.

    I keep toilet paper, butt balm and huggie wipes at my desk. thank GOD there is a private bathroom on my floor, ususally vacant, for my long "meetings"

    peggy
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #5
    Options
    tootsie1 said:

    Ouch
    Hey, Pete.

    I can't think of anything funny about it today. I've been in deeply unrelenting pain the past couple of days. Night before last, I was pretty sure I was going to either expire from the pain or end up in the hospital. My husband gave me a Hydrocodone, and mercifully I went to sleep.

    I know I don't have the worry of Stage 4 or some of the complications others here have, but I think I can give some of them a run for their money on the level of pain I deal with.

    Hope your pooping slows down soon!

    *hugs*
    Gail

    welcome to the pain post
    sorry i am not the only one.
    i would like to on my own, the little crc joys,
    the cancer that keeps on giving!
    what does crc give you ask ?
    well to start with pain and death come to mind.

    dearest gail,

    my prayers and wishes fora pain free day and night for YOU.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #6
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    pluckey said:

    Oh Pete, I get sick of
    Oh Pete, I get sick of azz-pain too. Oh, and I've never farted so much in my entire life.
    I feel for those pedestrians downwind of me..the more and faster I walk (from the train station to work etc) the worse it gets. So, does one exercise and risk farting in perpetuity, or forgoe the exercise in order to be kind to the nostrils of others?


    I'm more of a frequent crapper...if I don't eat the right balance of veggies, immodium and such, I go all bleeping day, causing major diaper rash, which then I can't walk or exercise for a day or 2 until my bottom heals.

    I keep toilet paper, butt balm and huggie wipes at my desk. thank GOD there is a private bathroom on my floor, ususally vacant, for my long "meetings"

    peggy

    dear peggy, lets just have a good arse day
    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #7
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    Nana b said:

    Sore shoulders, wrist and
    Sore shoulders, wrist and ankle! Dang tendons!!!! Dang itchy butt! lol

    and you keep on smiling
    the itchy butt, now that made me laugh !

    its quiet frustrating.

    dear raquel,

    we can suffer in silence mostly, today we can suffer out loud. OUCH
    !!!!

    i hope today is better!

    hugs,

    pete
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #8
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    Terrible
    Last two days have been so bad. Just peeing and when that hit my bottom the acid would burn so bad. My butt is so raw. We are camping this weekend with family and can't join in a lot because I need the bathroom close. 11 people and one bathroom is not a good combination for me. Good luck with the pain. Mine bleeds otters so raw and I've tried a lot of products.

    Kim
  • SisterSledge
    SisterSledge Member Posts: 332 Member
    #9
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    Annabelle41415 said:

    Terrible
    Last two days have been so bad. Just peeing and when that hit my bottom the acid would burn so bad. My butt is so raw. We are camping this weekend with family and can't join in a lot because I need the bathroom close. 11 people and one bathroom is not a good combination for me. Good luck with the pain. Mine bleeds otters so raw and I've tried a lot of products.

    Kim

    portable toilet for camping
    Hi Kim,
    I've been camping four times so far this year and I must admit that I probably couldn't have done it if I'd had to share a toilet with very many people as I make so many trips per day and usually can't wait long for my turn. We bought a portable toilet for my camping needs...tis inexpensive and simply made...just a five gallon bucket with a bag liner and a lidded seat. The lid/seat costs around $15 and the bag liners are biodegradable so that you can just bury the bag when ready to leave the campsite. If there isn't a private space for the toilet, we hang a curtain around it (we have a camping shower that we can put the toilet inside of if needed). I think we bought the set-up at Cabela's but it's not hard to find elsewhere.

    Happy camping,
    Janine

    Extra thought:
    Take an extra tent and set it up as a personal bathroom with the portable inside...wouldn't that be perfect???

    Another thought:
    I recall Pete mentioning his personal loo he set up in his van for daily needs...how cool is that???
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #10
    Options
    tootsie1 said:

    Ouch
    Hey, Pete.

    I can't think of anything funny about it today. I've been in deeply unrelenting pain the past couple of days. Night before last, I was pretty sure I was going to either expire from the pain or end up in the hospital. My husband gave me a Hydrocodone, and mercifully I went to sleep.

    I know I don't have the worry of Stage 4 or some of the complications others here have, but I think I can give some of them a run for their money on the level of pain I deal with.

    Hope your pooping slows down soon!

    *hugs*
    Gail

    Gail
    Oh, Gail- I'm sorry it's been so bad for you. Do the drs know what is actually causing your pain?
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #11
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    Pete
    Hi Pete,

    I'm sorry to hear what a pain and tough time you've been having since your reconnection surgery. 40 times in the bathroom- that's no fun at all. I will be praying that your body starts to adjust to new "hookup"system soon and that your pain and number of trips to the bathroom will lessen. Are you taking the rice fiber? If not, definitely start, as it does help me!

    I'm actually not having any pain so far today. I had chemo Tuesday and so yesterday was my "unhook" day, in which the "dam breaks loose", is you know what I mean. It goes from being stopped up for a day or two to going fire/acid and burning as it comes out to diarrhea of the fire acid from the chemo. Last night was miserable, but I am okay so far today. I take it one day at a time. We are going away 4 days next week starting on Monday, so I hope and pray I'll be up for this and not crapping in my pants while driving out there, lol!
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #12
    Options
    lisa42 said:

    Gail
    Oh, Gail- I'm sorry it's been so bad for you. Do the drs know what is actually causing your pain?

    Sort of
    Lisa,

    It's probably a combination of longterm IBS, plus my body not taking well to the resection. We've explored many avenues.

    *hugs*
    Gail
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #13
    Options
    pete43lost_at_sea said:

    welcome to the pain post
    sorry i am not the only one.
    i would like to on my own, the little crc joys,
    the cancer that keeps on giving!
    what does crc give you ask ?
    well to start with pain and death come to mind.

    dearest gail,

    my prayers and wishes fora pain free day and night for YOU.

    hugs,
    pete

    Thanks
    Thanks, Pete!

    We're heading soon to Virginia to enjoy time with some loved ones. That will help!


    *hugs*
    Gail
  • AncientTiger
    AncientTiger Member Posts: 130
    #14
    Options
    Pain story?
    Shall I re- tell my story of testing the peanut buttered mouse trap? ;)

    LOL

    Dang Pete.. hope it starts leveling off for you soon buddy.
  • TMac52
    TMac52 Member Posts: 352
    #15
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    AncientTiger said:

    Pain story?
    Shall I re- tell my story of testing the peanut buttered mouse trap? ;)

    LOL

    Dang Pete.. hope it starts leveling off for you soon buddy.

    I would take the pain.
    Rather than deal with the perm colostomy ( i Think ??? )I have a different kind of pain but still have Butt,back,hip and leg pain........(not to mention the feet)!!!
    I'm feeling you pete.
    Tom

    PS one year ago today was my last pre-op radiation treatment. I honestly think that was the worst day of my life.........things are so much better today so i'm not complaining..just saying.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #16
    Options
    SisterSledge said:

    portable toilet for camping
    Hi Kim,
    I've been camping four times so far this year and I must admit that I probably couldn't have done it if I'd had to share a toilet with very many people as I make so many trips per day and usually can't wait long for my turn. We bought a portable toilet for my camping needs...tis inexpensive and simply made...just a five gallon bucket with a bag liner and a lidded seat. The lid/seat costs around $15 and the bag liners are biodegradable so that you can just bury the bag when ready to leave the campsite. If there isn't a private space for the toilet, we hang a curtain around it (we have a camping shower that we can put the toilet inside of if needed). I think we bought the set-up at Cabela's but it's not hard to find elsewhere.

    Happy camping,
    Janine

    Extra thought:
    Take an extra tent and set it up as a personal bathroom with the portable inside...wouldn't that be perfect???

    Another thought:
    I recall Pete mentioning his personal loo he set up in his van for daily needs...how cool is that???

    great suggestions janine
    extra tent, portable loo.

    with all the great suggestions here we will comeup with a comprehensive way to live post crc.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #17
    Options
    lisa42 said:

    Pete
    Hi Pete,

    I'm sorry to hear what a pain and tough time you've been having since your reconnection surgery. 40 times in the bathroom- that's no fun at all. I will be praying that your body starts to adjust to new "hookup"system soon and that your pain and number of trips to the bathroom will lessen. Are you taking the rice fiber? If not, definitely start, as it does help me!

    I'm actually not having any pain so far today. I had chemo Tuesday and so yesterday was my "unhook" day, in which the "dam breaks loose", is you know what I mean. It goes from being stopped up for a day or two to going fire/acid and burning as it comes out to diarrhea of the fire acid from the chemo. Last night was miserable, but I am okay so far today. I take it one day at a time. We are going away 4 days next week starting on Monday, so I hope and pray I'll be up for this and not crapping in my pants while driving out there, lol!

    lisa your a lovelly lady
    i have no shame, so if i have to, i stop the car, put on the emerencies and squat.
    if people look i just smile, if they ask ? itell them how liberating crc is.

    i have a licence to poo anywhere anytime. if i need a loo, well gents preferred, disabled, ladies. they all count.

    the fire / acid got that sometimes. not so often now. the doctors cannot help alot.

    somedays a good and somedays are shiit, and you know what i mean.

    don't want to disturb nwebies, but they might as well know the story.

    hoping the famly camping is wonderful.

    hugs,
    pete
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #18
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    AncientTiger said:

    Pain story?
    Shall I re- tell my story of testing the peanut buttered mouse trap? ;)

    LOL

    Dang Pete.. hope it starts leveling off for you soon buddy.

    lol

    hugs,
    pete
  • thingy45
    thingy45 Member Posts: 632 Member
    #19
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    pete43lost_at_sea said:

    lol

    hugs,
    pete

    I wish everybody a pain free
    I wish everybody a pain free day,and a none stinging behind.
    Hugs Marjan
  • Nana b
    Nana b Member Posts: 3,030 Member
    #20
    Options
    Annabelle41415 said:

    Terrible
    Last two days have been so bad. Just peeing and when that hit my bottom the acid would burn so bad. My butt is so raw. We are camping this weekend with family and can't join in a lot because I need the bathroom close. 11 people and one bathroom is not a good combination for me. Good luck with the pain. Mine bleeds otters so raw and I've tried a lot of products.

    Kim

    Kim
    Need some plain ol' Vaseline or hydrocortisone cream.
  • Nana b
    Nana b Member Posts: 3,030 Member
    #21
    Options
    lisa42 said:

    Pete
    Hi Pete,

    I'm sorry to hear what a pain and tough time you've been having since your reconnection surgery. 40 times in the bathroom- that's no fun at all. I will be praying that your body starts to adjust to new "hookup"system soon and that your pain and number of trips to the bathroom will lessen. Are you taking the rice fiber? If not, definitely start, as it does help me!

    I'm actually not having any pain so far today. I had chemo Tuesday and so yesterday was my "unhook" day, in which the "dam breaks loose", is you know what I mean. It goes from being stopped up for a day or two to going fire/acid and burning as it comes out to diarrhea of the fire acid from the chemo. Last night was miserable, but I am okay so far today. I take it one day at a time. We are going away 4 days next week starting on Monday, so I hope and pray I'll be up for this and not crapping in my pants while driving out there, lol!

    Lisa
    Depends. Be safer then sorry!

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