Hi Everyone- Thank you

Lori-S
Lori-S Member Posts: 1,277 Member
edited March 2014 in Colorectal Cancer #1
Hi! It's been a rough few days but, I wanted to say hi and thank you for all the prayers and support for my son.

He is still in ICU with his chest tube in and we are having some blood coming out of the chest cavity. I'm not fond of the medical community in Las Vegas and don't think I should have to tell the doctors what to do. But, unfortunately, I had to request that they test the fluid to determine exactly what caused the pleural effusion and collasped lung. They told me "Well we're pretty sure it is from his pneumonia" ARGH! While it's most likely that (he's had 8 bouts of pneumonia this year - baterial, viral and fungal). He also had a stroke and heart surgery within the last couple of months .... so "pretty sure" just isn't good enough to me. I want to know for sure what caused the problem and I told them so. His lung isn't responding so well and we don't expect it to reinflate quickly because of his underlying lung disease but, if it doesn't respond soon we will have to consider surgery (lung resection). It's something that I don't want done unless we have no other choice. We now have his platelets up into the 30's (which is about his normal) but can't do any kind of surgery with them that low so we are still just waiting to see and giving the lung more time. He's had 3 trasnfusions to get his platelets up that high as they were down to 12!

So, that's it in a nutshell. Had a busy Christmas day as I made a large dinner for friends and then ran dinner up to my son so he could have Christmas dinner too. The nurse gave him IV zofran before he ate. He scarfed it down which is good because he's now at about 88 lbs and needs his food. As I was about half way home he texted me to say he had thrown it all up. UGH!

I am exhausted and not looking forward to Chemo tomorrow. Not sure if my platelets are up enough but will find out as I get labs first to determine if chemo is on the menu. I still have some low platelet symptoms but not too bad so maybe they are up enough. We shall see.

I am so sorry if I missed anyone who needed some love and support recently. Know that you are all in my thoughts.

Again thank you all for the good vibes, prayers and well wishes. Feel the love!!!!

Comments

  • Friendinpenn
    Friendinpenn Member Posts: 70
    Hey Lori
    Lori, you are truly a remarkable person....you certainly have way too much on your plate right now...

    There's no doubt that everyone here is rooting for you and your son...

    Please take care of yourself too!

    Your friend in Penn
  • pepebcn
    pepebcn Member Posts: 6,331 Member

    Hey Lori
    Lori, you are truly a remarkable person....you certainly have way too much on your plate right now...

    There's no doubt that everyone here is rooting for you and your son...

    Please take care of yourself too!

    Your friend in Penn

    Lori, you are awesome!
    What a strength ! I Hope and pray for a fast recovery of your son.Just have my best wishes for a better year in 2011!
    I love you!
    Pepe.
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    Lori
    You are so strong! ah mothers usually are. :-)) Your son is so lucky to have you,you look after yourself too.

    Hugssss
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Son
    Hoping and praying that your son gets better soon. You have been dealing with so much, you need some good rest. Hoping that things will ease up for you soon. Stay strong.

    Kim
  • sasjourney
    sasjourney Member Posts: 395 Member
    I'm sorry to hear your news
    Lori,

    I am so sorry to hear about your son..he is in my prayers as are you. I can only imagine the strength it takes to go through all that you are going through right now. I know things will get better soon. I wish I was there to help you in some way. Please get some rest and take care of yourself.

    Big hugs,

    Sara
  • Erinb
    Erinb Member Posts: 293
    Lori,
    My thoughts and

    Lori,
    My thoughts and prayers go out to you and your son. You're an amazing person. I read your posts often and am amazed by your determination, persistance, strenth, kindness, knowledge...check, check, check all of the above. I too, hope that 2011 brings health to you and your family.
    Erin
  • OGammy01
    OGammy01 Member Posts: 67
    Your strength
    Lori, Your strength is amazing! I hope and pray that you and your son will start getting better soon. Think positive and hang in there, things are going to get better!

    A big hug for you both,

    Diane

    p.s. good luck tomorrow
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Oh, dear.
    Oh, my goodness. I haven't been on much in the last couple of days, and I was hoping that he would be doing so much better. We'll keep the prayers coming!

    *hugs*
    Gail
  • lisa42
    lisa42 Member Posts: 3,625 Member
    Lori
    Hi Lori,

    Wow- Unbelievable how much you have going on- I don't even know what to say except I'm thinking of you and your son and praying hard for him, for all the doctors involved, for your chemo tomorrow, & for healing and wellness for you both.

    Hugs and much love to you,
    Lisa
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Lori
    Lori,
    I am so darn sorry that you are in the midst of all of this. My heart breaks for you and your son. I wish he would get a break. I am praying for him. As you know, our family owes a lot to him and you.
    My prayers are with you and this round of chemo.

    I am holding your family in the light.

    Aloha,
    Kathleen
  • Lori
    Lori,
    I am so darn sorry that you are in the midst of all of this. My heart breaks for you and your son. I wish he would get a break. I am praying for him. As you know, our family owes a lot to him and you.
    My prayers are with you and this round of chemo.

    I am holding your family in the light.

    Aloha,
    Kathleen

    This comment has been removed by the Moderator
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    the xmas mission, missed your posts
    I am at loss for words. I hope you get your xmas wishes , you deserve them.
    Goodluck on the folfox express.
    love Pete
    Ps a bagful of miracles for us all would not go astray as well with a dash of peace, love, joy and hope.
  • Kenny H.
    Kenny H. Member Posts: 502 Member

    the xmas mission, missed your posts
    I am at loss for words. I hope you get your xmas wishes , you deserve them.
    Goodluck on the folfox express.
    love Pete
    Ps a bagful of miracles for us all would not go astray as well with a dash of peace, love, joy and hope.

    Thanks for the update Lori.
    Thanks for the update Lori. Sounds as if your plate is full. Try to get some rest, round 5 tomorrow.
    Doing my bloodwork today.
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Lori
    I don' know what words can express how sorry I am you + your son are going through this. Keep up your great attitude.
  • Nana b
    Nana b Member Posts: 3,030 Member
    AnneCan said:

    Lori
    I don' know what words can express how sorry I am you + your son are going through this. Keep up your great attitude.

    Yep, so sorry for your
    Yep, so sorry for your hardships, it must be very difficult to deal with everything. Take Care of yourself and please don't overdue.
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Lori, your strength is
    Lori, your strength is amazing and inspiring! Prayer's and hugs to you and your son!

    Gail