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visit with gastro

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

So, I've been dealing with a lot of pain lately and it's finally gotten to a point where SOMETHING has to be done! I moved recently to live with my twin brother and his family, as it's getting harder to deal with stuff on my own. It definitely has helped tremendously having them around and not having to worry about where my next meal was going to come from (frozen or fast food? ick!) I've been eating much better, and my brother is making sure attention is paid to things that need to be addressed with my health (yea, my MO of ignoring it and hoping it goes away just wasn't working out so well!) So, I got a prescription for a new pain med, one that's supposed to work on the nerves in the rectal area, and I'm hoping that is going to help with my pain. I take it at night, so tonight will be my first chance to see if I get more relief. I'm scheduled for a scope on the first; hopefully this will reveal what's causing my pain and we can do something to fix it. I would appreciate prayers that we will be able to find what's causing my problems and can find a solution to give me some relief! My gastro mentioned all kinds of things that COULD be causing my pain, mostly scar tissue and tumor growth, most likely a combo of these. Scans still show active growth in the lymph nodes in my peritoneum and retroperitoneum and it could be that they're pressing against the rectum, but it could also be that scar tissue from the cytoreductive procedure I had done in 2009 along with the associated infections has wrapped itself around the intestinal tract and is causing the pain. The scope will tell us whether the problem is on the inside of the intestinal tract or the outside. If it's the outside, I'll have to speak with a surgeon to see what can be done. Any thoughts out there?
mary

HollyID's picture
HollyID
Posts: 940
Joined: Dec 2009

but you do have my prayers and warmest thoughts as you go through this.

Love and Hugs,

Holly

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

but I do send my love and prayers so that this comes to an end for your pain and that it is something very very minor.....Love to you, Clift

angelsbaby's picture
angelsbaby
Posts: 1154
Joined: May 2008

I pray that you find out whats causing the pain and they can fix it fast.

michelle

AnneCan
Posts: 3693
Joined: Oct 2009

but you are definitely in my thoughts + I hope it gets resolved soon. I am glad you are living with your brother; it sounds like a very good thing!

Lovekitties's picture
Lovekitties
Posts: 2884
Joined: Jan 2010

Dear Mary,

I sure do hope that the new meds give you relief from the pain and that the scan will provide needed info on how to get you pain free with minimal treatment.

Hugs,

Marie who loves kitties

Sundanceh's picture
Sundanceh
Posts: 4266
Joined: Jun 2009

....you've stumped me, Mary. I have nary a clue, cannot even speculate.

Sounds like the scope is the best thing we got going to get the answers you so desperately need right now...hope the pain meds work for you. Hate to see you hurting like this.

As far as any thoughts....well, my thoughts are with you:)

-Craig

tina dasilva's picture
tina dasilva
Posts: 632
Joined: Sep 2010

my thoughts and paryers are with you

maglets's picture
maglets
Posts: 2396
Joined: Jun 2006

a twin brother Mary? how lovely....good for you....and what a relief to know you are getting some good meals without having to fuss about them yourself.

So your scope is not until the first???/ do you mean Nov 1? or am i just missing something? that is 2 weeks...no? gosh I hope those pain meds click in and give you some relief Mary

sending prayers for your well-being and hugs

mags

tootsie1's picture
tootsie1
Posts: 5001
Joined: Feb 2008

Mary, I'm glad you've moved in with your brother and his family. Now you can eat well without having to worry about preparing it yourself. Woohoo!!

I have no info on your issues, but I'm praying things will be figured out and taken care of soon. Praying for that!

*hugs*
Gail

herdizziness's picture
herdizziness
Posts: 3388
Joined: Apr 2010

I'm glad your going to get some good nutrition, and glad you're around family.
I pray that your pain is taken care of.
Winter Marie

Lori-S's picture
Lori-S
Posts: 1286
Joined: Sep 2010

Don't know what to think about your pain. I hope the meds work for you and they figure this out soon. I will pray for the best for you. Enjoy the good food and your twin!

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Mary,

I'm glad you're getting some things accomplished soon & I will pray that a solution be found for your pain.
Do take care-

Lisa :)

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

For all your comments! The pain pill was a big disappointment; I couldn't really tell any difference, although I did sleep better (perhaps that means my pain was managed better, it usually wakes me up more than a few times a night). I will see how tonight goes, maybe I will decide it is worth it. Yes, Mags, my scope is scheduled the 1st of November, 2 weeks away. It hardly seems that long since I have been dealing with this for a while; I guess as long as I have pain meds, the time will go by soon enough :(. Will let you guys know of any new info, thanks again!
mary

maglets's picture
maglets
Posts: 2396
Joined: Jun 2006

darn i have been thinking about you all morning and had visions of a nice long drugged sleep....sorry they didn't work....there must be something that would help mary/////?

hugs, maggie

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Send you my prayers Mary .
Take care of you Mary you are great!

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I'm glad to hear you've moved where you have the help you need. Eating better and having some stress reduced can only help! I hope you get answers to your pain issues soon so you can address the situation and get that under control.

traci43's picture
traci43
Posts: 411
Joined: Jul 2007

Wish the pain pills did the trick! Did you have HIPEC in 2009? I did and now I've got tumors in the same general area that you are talking about, no pain though. I've had tugging, is the best word, on the left side as gas passes through my colon, but no pain since my surgery last year that is likely cause by scar tissue. I hope your colonoscopy is clear and they can get to what's happening. Traci

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

which is the procedure that went so bad with so much infection, leaving lots and lots of adhesions. That's why we figure it's probably scar tissue, but who knows. I'm actually NOT hoping for a clear colonoscopy, I'm hoping they find something they can fix. The other option's going to be finding someone willing to go into the abdomen/pelvis with an already heavy adhesion burden to find out what the problem is :(. I guess not knowing is the worst ... no, I think the constant pain is the worst! :)
mary

Lori-S's picture
Lori-S
Posts: 1286
Joined: Sep 2010

You sound a bit discouraged. I'm sorry that the pain pills didn't work out for you. They think that adhesions might be the culprit?

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

I have my ups and my downs, I guess the downs were getting to me. I'm feeling a bit better, although I'm still dealing with the pain. I've decided I've spent enough time feeling sorry for myself about the pain, I'm going to insist on better pain meds at the oncs on Friday and just be done with it until the scope on the 1st and the results. This too shall pass ...
mary

traci43's picture
traci43
Posts: 411
Joined: Jul 2007

Mary - That's too bad. I guess I'm really lucky in that my HIPEC went well. Of course that luck was short0lived since I've got a recurrance. I know that Dr. Lowy at UCSD has gone back and removed adhesions from one of his HIPEC patients. I'm going down to see him in a few weeks, as soon as I get the referral from my insurance. I hope htey find out what's wrong and fix it. Good luck to you, Traci

Kathleen808's picture
Kathleen808
Posts: 2269
Joined: Jan 2009

Mary,
I am happy to hear that you are with family. Wonderful that you don't have to worry about meals and that you have family around. Ahh that you are in so much pain. I was hoping the pill would knock you out and allow you to sleep soundly through the night. I will keep you in my prayers for the 1st. I hope the scope shows what is causing the pain and most importantly helps them know how they can attack the pain.

Aloha,
Kathleen

chicoturner's picture
chicoturner
Posts: 285
Joined: Apr 2009

Mary, I am happy to hear you are with family! That helps ease the pain! I am sorry you are experiencing so much pain as that can really wear you down. Maybe after a few days on the pain meds. it will be more affective. I will certainly keep you in my thoughts and prayers.
Best to you. Jean

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