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mother of all strictures

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Howdy friends.

The ENT Dr G and GI Dr Hewett sent me back to surgeon Dr G (no relation, not the same Dr) to deal with the esophageal stricture that prevents *anything* from going down. I cannot swallow my own spit. I cannot burp. It's bad. The trapped Chilean coal miners have a better chance than my stomach to ever see the light of day.

The good Dr G (he really is good) gave me the bad news no one else (apparently) wanted to. After a thorough exam he concluded that the stricture is so bad that it unlikely that food will ever pass. That's just the way it is. However Dr G is determined to open it and wants to give it a try. He says even though these cases usually do not work out, he thinks due to the soft quality of my mucosa, my general good health, and my attitude, I am an excellent candidate for dilation(s). He thinks I have a good chance at "having the cup of coffee, but probably not the steak".

The procedure will happen in October and I'll keep you posted.

I'm a bit bummed but I'm alive and can do the time while stuff heals. If it does mean I'll live on smoothies the rest of my life maybe I'll write a smoothie cookbook.

Best,

Mick

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Sorry to hear the bad news but with your attitude I know you will make it through this also.

If you write the smoothie cookbook please let me know and I will order one ;-)

Positive thoughts and prayers coming your way.
Glenna

wifeforlife
Posts: 189
Joined: Feb 2010

Not the best news... but your attitude is awesome!. Life is still good!.. go, live, enjoy!.. Take care, wfl

Clearblue
Posts: 188
Joined: Apr 2010

Hey Mick
sorry i might have missed previouse posts.
Can u fill me in on the stricture; type, causes etc and on yr present situation.
Your gonna be fine- youl find the way - youll see.
Clear

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

Mic, I have always admired your attitude. I'm sorry about the stricture. Check out the oral cancer foundation blog; there is some good people on that site that had stricture issues and had successful dilation's!! God Bless Brother!! Big Huggs!

http://www.oralcancer.org/

Charles

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

The stricture is a bad type - completely closed. It's bad mainly because now my chances for pneumonia have just gone up by an order of magnitude. It as caused by radiation although the esophagus received less than other areas in the mucosa. My present situation is 5+ months post-treatment and doing very well. June PET was NED.

I'll be fine one way or another. It's whether or not I'll be fine with wine, or beer, or a burger, that is in question. Fingers crossed!

Best,

Mick

RushFan's picture
RushFan
Posts: 217
Joined: Aug 2010

I'm pulling for you Mick! You are an inspiration.

Chuck.

JUDYV5's picture
JUDYV5
Posts: 392
Joined: Jun 2010

I love how you can see the positive in everything. You can make a smoothie out of anything.

charles55's picture
charles55
Posts: 87
Joined: Aug 2010

Mick, I have good feelings about this. The esophagus is tissue, and tissue, even scar tissue, should be able to be stretched given time and force. You want it bad enought that I just know this is going to happen for you. I can't wait to hear the good stories after this is all over.

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

Ah, I didn't know about this. Goes without saying, Mick, that I am sorry to learn of this. I know if anyone can overcome this obstacle it is you. And you must know that you are in all of our thoughts and Prayers. Ain't a one of us who've been here since you joined that's gonna let a day go by without thinking of you, and this battle you're in. Hope you'll find a way to keep us informed on what's what post-surgery, because we're all gonna be kinda anxious about how things went, and how you're doing. Know that we're all here to help as best we can, brother.

Believe

kcass

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

You know Kent this is just another bump in the road. I'm setting my expectations rather low in this case - I hope that I'll be able to swallow my spit to avoid the increased likelihood of pneumonia. If I never eat another In-N-Out Burger (sigh) that would be just fine as long as I can avoid an infection in my lung(s) by keeping the sputum out of there.

LOL - we sure post a lot of TMI here don't we?

I very much appreciate your best wishes and thoughts and prayers.

Best,

Mick

fisrpotpe's picture
fisrpotpe
Posts: 1317
Joined: Aug 2010

Attitude Attitude Attitude

Mick I have believed for 14 plus years that attitude is everything. You certainly have a Great Positive Mental Attitude.

Will all of us and so many others sending prayers your way soon you will be drinking more that smoothie's.

God Bless You!

John

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Mick,
There is a condition that babies are born with where their esophagus is blocked and no food can get to their stomach (esophageal atresia) 50 years ago they used to open up the baby's body from back almost to front under the armpit to repair the blockage. I understand this extreme surgery is no longer needed, and there is a less invasive way to correct the problem.
I wonder if how they treat this condition in newborns can somehow be helpful to your stricture situation.

Regardless what I hear you writing is that whatever comes you will embrace life and make the best of it. You will define your own quality of life, and it may not be based on a burger and fries but something much bigger. Your positive attitdue is clear!!

Good Luck with surgeon who is willing to try.
Kim

Jan Trinks's picture
Jan Trinks
Posts: 447
Joined: Apr 2009

Mick:

Sorry to hear about this but love your attitude. That is so important. Charlie always kept a great attitude no matter what. God Bless and you're in my prayers.

Jan Trinks

D Lewis's picture
D Lewis
Posts: 1518
Joined: Jan 2010

You WILL be able to accomplish miracles.

Deb

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Hoping for the best possible outcome. Hope you can do the dilations, and they work. Hoping you write a smoothie recipe book anyway.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

really really hoping all goes well

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

Hey Mick, so sorry to hear about this. Hope the good Dr G can work some magic for you. Cheers buddy

Jimbo

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Hey Mick,

Wishing the best for you.

Steve

Hondo's picture
Hondo
Posts: 5608
Joined: Apr 2009

I too am sorry to hear this, but as you know never give up hope. I am glad to see you have a doctor who is willing to help.

You will be in my thought my friend.
Hondo

CajunEagle
Posts: 353
Joined: Oct 2009

You da Man !! You're gonna make it, and get rid of that dang tube. I found out yesterday that radiation somehow made a small hole in my voice box area, which formerly had been hidden by scar tissue. Doc seems to think it's no big deal, as long as it doesn't get larger. Ah yes.....radiation, the gift that keeps on giving. So, I've got an extra hole in my throat if you wanna borrow it. :) Hang in there, man.

Larry

PattyNC's picture
PattyNC
Posts: 65
Joined: Oct 2006

Mick your attitude is phenomenal ... you could be a motivational speaker for sure. Praying that Dr. G has success with those dialations ---& that the stricture stretchs pullllll through & you get that burger & fries. Hugs

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Really was just updating my status, but man I'm getting all ferklempt at the gush of loving energy and support. I am really really really really grateful for all the kindness.

I'll keep you posted.

Hondo - One of my favorite movies is Galaxy Quest. I like it for a lot of reasons (I am a former filmmaker and film scholar and I use it a lot to talk about movies in a formal sense - drives my friends crazy). But there is a line in it that ties the character themes together nicely and I adopted it when I got sick. Now all my friends say it or respond to it (it's a two part phrase) when they greet me.

Recently my amazing 6-year-old son (remember the 3 Rocks story?) got on the mic at our 'Mick's Comeback Gig' in downtown Petaluma and shocked everyone by shouting it through the PA and got a huge cheer. He wasn't prompted by anyone, he just did it.

The phrase? Never give up, never surrender.

Best,

Mick

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

As usual Mick...Great Attitude! Hang in there, hope everything works out for ya!

Positive thoughts!
Greg

dogsrule's picture
dogsrule
Posts: 96
Joined: Apr 2010

I hope and pray that your doctors can fix this stricture. I am so sorry you are going thru this. Your staying positive and keeping a good attitude is very inspiring.

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