CSN Login
Members Online: 12

Dancing with NED tonight!

D Lewis's picture
D Lewis
Posts: 1523
Joined: Jan 2010

My three-month PET-CT was this morning at Stanford. My doctor was able to review the results and discuss them with me late this afternoon. NO UPTAKE! NO AVIDITY! NO EVIDENCE OF DISEASE! The scoping and all the palpations were normal. Got a finger jammed down my throat again today and it seems to be getting easier. I snapped at him, but he jumped clear.

I got a good look at the medical records I was hand-carrying down to Stanford from my local treatment center. They threw everything at me that they had, treatment-wise for T1N2cM0 Stage 4 HPV-16+ base of tongue SCC. High dose Cisplatin at 100 mg/m2 (and I'm only 120 pounds). A total of 38 radiation treatments, 6900 Guys to the base of tongue and the same to both sides of the neck. Doc says I do have quite a bit of lymphedema going on. Duh, I'll bet I do! No saliva yet, and could be problematic, given the bilateral rads. Nothing else of note, occasional tingling of feet, rare tintinitis, no hearing loss, and the odd attack now and again of L'hermitte's Sign. Just enough to keep me entertained and on my toes.

Stanford didn't give me the 100% all clear that Micktissue got, but they did say that, for someone in my shoes, the 5-year survival rate was in excess of 95%. That is good enough for me.

Deb, doing the happy happy dance with NED after a very long day.

Hal61's picture
Hal61
Posts: 656
Joined: Dec 2009

Deb, that's the best news anyone here can get, and I couldn't wish it on a more deserving survivor. You've done everything right, and I'm very happy it's paid off.

best, Hal

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Wonderful news Deb!!! Your news has started my day with a smile. I am so happy for you, you have been through so much and now you can finally see that it was all worth it.

Stay well,
Glenna

Joel4's picture
Joel4
Posts: 209
Joined: May 2010

That is fantastic Deb!

fisrpotpe's picture
fisrpotpe
Posts: 1322
Joined: Aug 2010

We are all cheering for you, Celebrate!

Skiffin16's picture
Skiffin16
Posts: 8058
Joined: Sep 2009

Great News, just in time for the week-end too....

John

RushFan's picture
RushFan
Posts: 217
Joined: Aug 2010

It's gonna be a rock & roll weekend...Great news, congrats.

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

Deb, that's great, we'll all put on our dancing shoes with you!!! Cheers

Jimbo

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Couldn't start a day better! Deb, that is awesome news, breathe easy, and dance for 50 more years!!
Kim

johnlax38's picture
johnlax38
Posts: 136
Joined: Aug 2010

I'm so glad for you, excellent news!

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Awesome news Deb! Congrats!!!

Greg

micktissue's picture
micktissue
Posts: 432
Joined: Dec 2009

Awesome news Deb.

Best,

Mick

JUDYV5's picture
JUDYV5
Posts: 392
Joined: Jun 2010

I love the NED dance - what wonderful news !!!

CajunEagle's picture
CajunEagle
Posts: 357
Joined: Oct 2009

I'm really glad for you. That was some tough stuff you went through. Ya got it made, Girl.

Larry

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Hi Deb,

I knew you had it in you. Upward and onward!!

Best Steve

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

Great News Deb, it's a great way to start the weekend! Happy for you! Enjoy!

Charles

Vivi C's picture
Vivi C
Posts: 70
Joined: Jul 2010

Dance like no one's watching! You deserve it So happy for you. You have been so kind and encouraging to me. I am thrilled for you. Keep dancing! Hope to join you soon.
God bless,
Viv

luv4lacrosse's picture
luv4lacrosse
Posts: 1376
Joined: Jul 2010

Deb, that is awesome. I had my surgery and will start Radiation and Chemo Sept. 8th. I know I am getting ready to face some tough side effects. but hearing your story just made a good day for me even better. It is so great to hear people post good news.

BEST!!

Mike

dogsrule's picture
dogsrule
Posts: 96
Joined: Apr 2010

So happy for you Deb. You are an inspiration for all of us to fight the fight.

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

Way cool!
Congratulations!

--Jim in Delaware

kimmygarland's picture
kimmygarland
Posts: 313
Joined: Aug 2009

Great News!

Hondo's picture
Hondo
Posts: 5655
Joined: Apr 2009

Great news, I am doing the NED Dance with you. Happy days and all the best to you

Pumakitty's picture
Pumakitty
Posts: 653
Joined: Mar 2010

I am so happy to get to read good news first thing in the morning.

Kathy

Kent Cass's picture
Kent Cass
Posts: 1746
Joined: Nov 2009

From one who remembers when you first joined us, Deb, you've got my happiest of Congratulations. To have been thru what you've been thru, and find yourself where you are now at- you deserve the night of dancing with Ned, and to keep on dancing. Ah, life is good.

Believe

kcass

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

Excellent news Deb. Super happy to get all this good news for a change. Live it up and keep on dancing.
Scam

Fire34
Posts: 351
Joined: Feb 2010

Deb
Congrats on the good news, and prayers for many more
Dave

hawk711's picture
hawk711
Posts: 525
Joined: Jan 2010

Deb
A big Congrats!!! You give us all hope that our news will be good too !!!
All the best
Steve

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

I did a chair dance for you. Got Billy Idol in my head "Dancin' with Myself". Ooops - now I'm chair dancing again.

pascotty's picture
pascotty
Posts: 164
Joined: Aug 2010

What an awesome result, and it is so good when you can see your medical records, it's almost like your trying to copy notes from the Doctors sometimes, 95% plus, you can't get much better than that. I'll do the happy dance with you. Cheers Jen

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network