Jun 06, 2010 - 12:59 am
Hi. I'm a 54 yr old woman who was diagnosed with Stage IV (spread to liver and lungs) Duodenal Adenocarcinoma 1 year ago. I had a "partial" whipple in June 2009 and have been in chemotherapy since last July. My first six weeks of chemo were "alternative" treatments in a holistic hospital (I was too ill to have traditional chemo). Since Aug 2009, I've received chemo every two weeks--5 hrs at the hospital and then a take home bag plugged into my chest port for 2 more days. A LOT of chemo and no end in sight. I've had some major problems with side-effects, drug reactions, etc., not to mention losing over 60#, but as of now my cancer seems to be fairly stable. The main mass in the duodenum has remained the same size, ditto for the nodes in my lungs. The cancer in my liver has even shrunk a bit! :-) Best I can hope for I suppose. I've never met anyone (online or realtime) with duodenal cancer. My oncologist has previously treated duodenal cancer patients but nobody currently. I'd love to talk with anyone who has this cancer. Or, even the survivors of patients who lived a year or more beyond their initial diagnosis. In the meantime, if anyone has been recently diagnosed and has questions please don't hesitate to ask. I know how overwhelming it is to cope with a cancer diagnosis...especially one as rare as duodenal.