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You OK, Sweetblood?

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

Everything OK with you? Haven't seen you around in a while.

--Jim in Delaware

denistd's picture
denistd
Posts: 517
Joined: Apr 2009

Was wondering that myself

pattyanny's picture
pattyanny
Posts: 533
Joined: Jul 2009

Thinking of you Sweetblood, and hoping all is well! We miss you!

Love & Prayers, Patty

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

On April 2, Sweetblood posted she was without internet (she was posting from a friend's house). My first hope is that she's just having too much of a good time, and hasn't had time to post. Second is that the internet issue isn't resolved yet, and we'll hear soon.

cwcad's picture
cwcad
Posts: 117
Joined: Nov 2009

Thanks for reminding me, Pam M. I had forgotten that post. I will abate my fears a little longer and wait for a new internet connection.

Hope you are doing well!!

Kent Cass's picture
Kent Cass
Posts: 1748
Joined: Nov 2009

Our kinda times, Sweetblood, give rise to cause for concern. Hope all is well with you, girl, and your distance is just the internet thing.

kcass

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

She'll be back I'm sure...i think she had intenret issues last time...

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

4 weeks out from chemo-rads - I have very nearly full taste, some saliva, and I started eating last week. I don't wake up hacking anymore - I've been lucky. First post-tx CAT scan is Thursday. Eating hurts, and there are lots of things I can't eat yet, and I have some of the issues most everyone faces here, but I know I'm lucky so far.

pattyanny's picture
pattyanny
Posts: 533
Joined: Jul 2009

Now I am VERY concerned. Our prayers and good thoughts are with you! I am kicking myself for not getting your email, although if your computer is down, that would not help much, huh. Duh! Hoping you are okay.Love & Prayers, Patty

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

We are all very concerned aboutyou, hope you are doing well and it is just your internet connection stopping you from posting.

Kent Cass's picture
Kent Cass
Posts: 1748
Joined: Nov 2009

This thread began 10 days ago. Reckon it's just about time for a Beckon Call to all in Sweetblood's name: hopes and Prayers. Girl, we all care, pray you are okay, and are anxious to hear from you.

Believe

kcass

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

thank you for thinking of me. i just got my internet back this week and i wish i had good news,but i am sitting here reeling over the last couple days. yesterday the sh*t hit the fan with a financial situation i have, and today the doctors office called me to say that they wished they had better news for me but my mamogram has come back with an area that they are concerned about and i need an ultra sound. i am so nauseas and scared right now. i am in bed balling. i have been thinking of you all. esp, steve, mick, mike , mary and those in treatment. i was going to try to catch up on threads, but i don't have it in me right now. i am so scared right now. i don't even want to get out of bed today. please pray that this is not breast cancer, i am so sick right now. i am going to try to nap.

thanks for thinking of me, missed you guys and your support. i really need that right now.

bfisher5560's picture
bfisher5560
Posts: 7
Joined: Mar 2010

I have been helped by this site and all the info shared. My prayers include you. Get some much needed rest. Becky

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Sweetblood, we were so worried about you, I'm glad you are finally back on line but sorry that things are not going well right now.

Please,stay in bed and have a good cry then get back in the fighting mode. I know it's hard for you right now but you need to get the positive attitude back and keep telling yourself that you can win this fight.

You are always in my prayers,
Glenna

staceya's picture
staceya
Posts: 704
Joined: Jan 2010

You are in my prayers.
Take care,
Stacey

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

Those of us who pray (me included) are praying for you, Sweetblood, and I'm sure that those who don't are pulling for you in their own special ways.
Hang in there, gal, and don't lose faith.

--Jim in Delaware

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

God be with you my friend

Chef daddy has been asking about you, he is in the hospital with pneumonia and very sick but is worried about you, I will be calling him later tonight and let him know to keep you in his prayers.

Kent Cass's picture
Kent Cass
Posts: 1748
Joined: Nov 2009

Glad to hear you're still with us, girl. Hopes and Prayers for you- from all, I'm sure.

Believe

kcass

pattyanny's picture
pattyanny
Posts: 533
Joined: Jul 2009

Hi Sweet! So sorry to hear about you news. Please don't panic, and try to stay positive.
(Look who's talking, wimpy ol' me!) It's easier said then done.
"Call to me, and I answer you
and show you great and mighty things,
which you do not know." Proverbs 15:8
I will continue to pray mightily on your behalf.

My finances are in the midst of hitting the fan also, but I know God will provide somehow.
Please stay strong, and pray. I know you have been so strong thru all of this - stay strong! I missed you, please stay in touch.
God bless you! Patty

stevenl's picture
stevenl
Posts: 587
Joined: Jan 2010

Hi Sweet,

Good to know you are still there. Sorry about the comps. You are have been in my prayers continuously.
keep your head high and know you have a lot of prayer warriors on your side.

Best,
Stevenl

Scambuster's picture
Scambuster
Posts: 975
Joined: Nov 2009

So sorry to hear you have this frightening situation. We are all punting for you that it's nothing serious. Keep in touch and please keep fighting.

Scam

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Hate to hear times are scary right now. When is the ultrasound? Like so many others here, hoping the ultrasound results are promising, not like the mammogram.

Love your picture - that is one comfortable looking pup.

Rest and get your strength up. You can catch up on the threads later. You know we're pulling for you - let us know.

- Pam

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

I lost touch and now I know why? I too have just returned from an adventure, My Boss gave me a week off for a vacation finally, and came to find out i need to return for throat surgery totally wasn't expected, I bit the bullet, I was lucky I guess and they had appointment cancel Wednesday, SO MUCH FOR MY VACATION! My throat of 7 weeks of radiation and chemo, isn't healing well, i was diagnosed wrong, and the doctor put in a implant for a paraylis of the vocal chords, he cut into the tumor, which he missed over 2 months of tests, biopsys etc..then they had to remove the implant, and start into the radiation. so my new oncologist went in an cleaned up rotten radiation and resent in another segment to be looked at too see if the cancer still exists???, I came home yesterday, now, with a throat trach, something i would never thought i would see in my life, he said 10 days of wear to help heal the area and strengthen my vocals, whats left, i sat, and laid in a hopsital, not able to speak, people calling couldn't talk, and learning how to clean this tube i have now, with a cap that i can out maybe a few sentences, i thought of you, i so wanted to talk to everyone here, my computer took a dump and shorted out while i was up there, I pray my test will come back ok, but something tells me...Please keep mew in your prayers, as i will you sweetblood. i have regained some of my eating, i dropped to 139 from 202, and the last days started to eat more, and drink ensure. I will know my next Tuesday what the outcome will be, and where we will be heading to, DOES ANYONE KNOW OR HAD, ANY PROCEDURE WHERE THE ONE SIDE OF THE LARYNX WORKS, AND THE OTHER IS DEAD, AND GOT SOME VOICE BACK, I AM NOT LIVING WITH THIS TRACH, THEY SAID IT WAS COMING BACK OUT NEXT TUESDAY, PLEASE PRAY OR THINK OF ME, SWEETBLOOD AND EVERYONE THAT HAS TAKEN A BEATING WITH THIS, I AM LOSING HOPE, AND CLOSE TO THE END OF WHAT WE WILL DO, DOCTOR ALSO MENTION A COMPLETE VOCAL BOX REMOVAL, SORRY, CAN'T SEE THIS HAPPENING EITHER, I found the whole operation a pain, the doctor looks like i hope this may work, Take Care..May god lend his hand to us, for strength, my walk with this is getting weary...DENNIS

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Hondo, I am not sure if it was yesterday or the day before I called Mike twice and got no answer. I was pretty worried. I have not been able to get on line for two days. I wanted to know if anyone else had spoken to him. I will call him again tomorrow. I am hoping that this posts. I cannot even tell you how annoyed I get with this stupid computer.

Delnative: Yes! Get a dog. What kind would you get? I could never be without one again. I was 25 when I found my Kiaya. Someone had thrown her out of a moving car and then the car the other way ran her over! Beasts!!!! There is a special place in Hades for people who hurt animals and children. She was just a tiny puppy. Black and white, at first I thought she was a cat. Then I saw it was a puppy. She was like a border collie - husky muut mix. But sort of looked like a caanaan dog, I think they are from Isreal in a way. I looked at her and tried to talk to her. I saw her rear left leg was dangling. I coaxed her into my arms and put her in the car. Broken ribs, and two leg surgeries later........she was mine for 15 blessed years. :) I had never had a dog before. It was funny, when I picked her up, i did not even know what the heck I was going to do with her. My step mom and her side are crazy animal rescuing people. I say that with love. I was going to bring her there. All of a sudden I realized I was an adult and had just gotten married, and I could bring home a dog to MY HOUSE. And would not get in trouble. LOL.

I get so much greif from my best friends with Noah. They just do not like the breed. They have a great dane! Now could you see me with that? NO. This is the first time I ever got a dog from a person. I paid for him. A very very low price for a Crested. All the rest of my animals were rescued and from the pound. My husband (and me, but they were 'his' dogs) saved a golden, a black cocker spaniel, a blue healer, and a boxer pit bull cross, and about 200 cats.

DENNIS: You know I am praying for you. I don't know what to say. I know how wound up I was at the thought of having to battle cancer again. You know that we all know how hard this walk is. You can always vent to me. I only wish I could do more for you than be here to listen and offer you my support and prayers. I had a break down talking to my step mom in the car. Between the mamogram, and, The other financial thing is that the friggin hospital is suing me!!!! I cannot believe it. I have been paying them almost every month. I probably paid them $1600. over the last 10 months. They say it isn't enough. Like served me papers! I have to go in front of a judge! Anyway. I just felt like I was a punching bag for those few days. I get so pissed sometimes. Somedays, I get tired of being tired, I get tired of being sick, I get tired of doing the right thing and getting sh@t on anyway, I get tired of not being able to work, and I get tired of being alone. Somedays, I wish I could go home to a hug. :( But Dennis, you never know how you can touch just one person's life. One person here can read your story and benefit greatly from it. One person may be spared pain, from your experience. That is my hope anyway. We have to hold steadfast that He has a plan. I struggle daily with prayng and the concept of "thy will be done." I go in and out. I relinquish control, and then months later, I am back at it. A maniac trying to control everything she can't. Then, it came to me. In a moment in the car on the way home from the hospital. After I got my good news. It's like when you are a little kid, and your toy breaks, and you go to your father and you say, "Daddy, fix my toy." But you hang on to the toy because it's your favorite, and you clench it while he is trying to work on it. and you tug it back from him....and you don't give it to him to do the things he needs to do. Give it up to Him, and He will fix it. Now, easier said than done, I know. But everytime I feel it creeping up on me. Trying to control what I cannot. I visualize giving Him, my toy. You know I will be praying for you.

hugs,

d

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Hondo, I am not sure if it was yesterday or the day before I called Mike twice and got no answer. I was pretty worried. I have not been able to get on line for two days. I wanted to know if anyone else had spoken to him. I will call him again tomorrow. I am hoping that this posts. I cannot even tell you how annoyed I get with this stupid computer.

Delnative: Yes! Get a dog. What kind would you get? I could never be without one again. I was 25 when I found my Kiaya. Someone had thrown her out of a moving car and then the car the other way ran her over! Beasts!!!! There is a special place in Hades for people who hurt animals and children. She was just a tiny puppy. Black and white, at first I thought she was a cat. Then I saw it was a puppy. She was like a border collie - husky muut mix. But sort of looked like a caanaan dog, I think they are from Isreal in a way. I looked at her and tried to talk to her. I saw her rear left leg was dangling. I coaxed her into my arms and put her in the car. Broken ribs, and two leg surgeries later........she was mine for 15 blessed years. :) I had never had a dog before. It was funny, when I picked her up, i did not even know what the heck I was going to do with her. My step mom and her side are crazy animal rescuing people. I say that with love. I was going to bring her there. All of a sudden I realized I was an adult and had just gotten married, and I could bring home a dog to MY HOUSE. And would not get in trouble. LOL.

I get so much greif from my best friends with Noah. They just do not like the breed. They have a great dane! Now could you see me with that? NO. This is the first time I ever got a dog from a person. I paid for him. A very very low price for a Crested. All the rest of my animals were rescued and from the pound. My husband (and me, but they were 'his' dogs) saved a golden, a black cocker spaniel, a blue healer, and a boxer pit bull cross, and about 200 cats.

DENNIS: You know I am praying for you. I don't know what to say. I know how wound up I was at the thought of having to battle cancer again. You know that we all know how hard this walk is. You can always vent to me. I only wish I could do more for you than be here to listen and offer you my support and prayers. I had a break down talking to my step mom in the car. Between the mamogram, and, The other financial thing is that the friggin hospital is suing me!!!! I cannot believe it. I have been paying them almost every month. I probably paid them $1600. over the last 10 months. They say it isn't enough. Like served me papers! I have to go in front of a judge! Anyway. I just felt like I was a punching bag for those few days. I get so pissed sometimes. Somedays, I get tired of being tired, I get tired of being sick, I get tired of doing the right thing and getting sh@t on anyway, I get tired of not being able to work, and I get tired of being alone. Somedays, I wish I could go home to a hug. :( But Dennis, you never know how you can touch just one person's life. One person here can read your story and benefit greatly from it. One person may be spared pain, from your experience. That is my hope anyway. We have to hold steadfast that He has a plan. I struggle daily with prayng and the concept of "thy will be done." I go in and out. I relinquish control, and then months later, I am back at it. A maniac trying to control everything she can't. Then, it came to me. In a moment in the car on the way home from the hospital. After I got my good news. It's like when you are a little kid, and your toy breaks, and you go to your father and you say, "Daddy, fix my toy." But you hang on to the toy because it's your favorite, and you clench it while he is trying to work on it. and you tug it back from him....and you don't give it to him to do the things he needs to do. Give it up to Him, and He will fix it. Now, easier said than done, I know. But everytime I feel it creeping up on me. Trying to control what I cannot. I visualize giving Him, my toy. You know I will be praying for you.

hugs,

d

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Dennis, I'm so sorry to hear that you have to go through all of this. I know the waiting is the hardest part, not knowing what the results will be can sometimes be the hardest part.

I was told twice that they may have to remove my entire larynx and like you thought NO WAY!! But then I realized that not having my voice couldn't be as bad as dying. I was fortunate that the treatment worked and I have my voice back. Please try to stay positive (easier said than done - I know)

I will say a special prayer for you everyday and hope that this will all be treatable without any further surgery.

NEVER give up the fight.

Stay strong and take care, Glenna

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

You are one strong lady, and I want you to know that you have been an inspiration to me.

Clearblue
Posts: 188
Joined: Apr 2010

Hi Dennis
My wife had an esophagectomy and one vocal cord was permanently damaged.
Her voice went through -no voice- hoarse- highpitch , u name it.
Most doctrs recommended full larengectomy which means removeal of everything , but she is dead against it as if her voice is her life.
Dennis im not sure I understand what you mean by: “HAD, ANY PROCEDURE WHERE THE ONE SIDE OF THE LARYNX WORKS, AND THE OTHER IS DEAD” , but

Since October 2009, she's had scc recurrence in the hypopppharingial wall and has had TWO partial larengectomies and has had a trach in since October 2009. A swiis Surgeon by the name of Monier advised on this, and a French Surgeon Prof Bruneu( my spelling is probably totally wrong)performed surgery with an Israeli Dr.. She couldn’t eat for two weeks and then slowly slowly got back to eating,; liquids being the most difficult.Her voice too is back to quite strong.

I dont know what type of scarring the Rad has done and maybe the following is irrelevant, but i mentioned in a previouse post that we were given a dialator , which with practice "we" did ourselves. No balloons, just a rubber snake looking thing inserted correctly in the throat. My wife found it extremely helpful , though she did have to deal with gagging.(see post April 30, 2010 - 5:26pm)in this string of messages.

Because i just havent managed to read backwards and followup on what everyone has had, i sort of come in, say my thing and leave again; something for which i feel terrible about. SO sorry if all of this in unapplicable or irrelevant.
All posts here are heartfelt.

My wife is on erbitux only and her scalp is pretty achne full. Anyone got any ideas of what shampoo, or whatever is considered appropriate?

Sweetblood,i owe you a letter, i know.I do want u to get in touch with your friend adn Kutler.
Sincerely
Clearblue.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Clearblue,

I never had Erbitux, but have read more than one person swear by Head and Shoulders shampoo for the Erbitux rash.

Good luck

Clearblue
Posts: 188
Joined: Apr 2010

Hi Dennis
My wife had an esophagectomy and one vocal cord was permanently damaged.
Her voice went through -no voice- hoarse- highpitch , u name it.
Most doctrs recommended full larengectomy which means removeal of everything , but she is dead against it as if her voice is her life.
Dennis im not sure I understand what you mean by: “HAD, ANY PROCEDURE WHERE THE ONE SIDE OF THE LARYNX WORKS, AND THE OTHER IS DEAD” , but

Since October 2009, she's had scc recurrence in the hypopppharingial wall and has had TWO partial larengectomies and has had a trach in since October 2009. A swiis Surgeon by the name of Monier advised on this, and a French Surgeon Prof Bruneu( my spelling is probably totally wrong)performed surgery with an Israeli Dr.. She couldn’t eat for two weeks and then slowly slowly got back to eating,; liquids being the most difficult.Her voice too is back to quite strong.ONE SIDE OF HER LARYNX IS DAMAGED BUT THE OTHER SIDE WAS in tact enough to allow surgery again as well as saving the vocal chord.

I dont know what type of scarring the Rad has done and maybe the following is irrelevant, but i mentioned in a previouse post that we were given a dialator , which with practice "we" did ourselves. No balloons, just a rubber snake looking thing inserted correctly in the throat. My wife found it extremely helpful , though she did have to deal with gagging.(see post April 30, 2010 - 5:26pm)in this string of messages.

Because i just havent managed to read backwards and followup on what everyone has had, i sort of come in, say my thing and leave again; something for which i feel terrible about. SO sorry if all of this in unapplicable or irrelevant.
All posts here are heartfelt.

My wife is on erbitux only and her scalp is pretty achne full. Anyone got any ideas of what shampoo, or whatever is considered appropriate?

Sweetblood,i owe you a letter, i know.I do want u to get in touch with your friend adn Kutler.
Sincerely
Clearblue.

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

my throat is still tight especially at night, so i drink a little, but get leary of laying down for bed, i can breath threw threw it , but is sores and feels tighter, if i drink water it get some phlem up, and we all seem to be happy. the weight lost is not going well, .send clam chowder...lol, i amd eatiing my 3 meals a day and drinking ennsure 2-3 times a day, I'm getting paprnoid to lay down. I'm glad to see sweetblood back on, how are you doing? well...Dennis, P.S anyone have suggestions open my throat to swallow better, I'm sure this is cartiledge and and buildup fromw the other associated problems, my breathing get harder and feels like it wants to deposit phlem, and nothing is there, any suggestions, toss them my way pleaseeeeeeeeeeeee

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

I almost feel guilty at how well I'm doing, and my heart goes out to you and all the others who are going through this. I've put weight back on to the point that I don't want to gain another pound. I've been lifting weights and have built back my upper body strength. I can swallow just like BC (Before Cancer) and my saliva is back virtually 100 percent. The only downsides are the Cisplatin numbness in my fingertips and the fatigue that I'm still prone to late in the day. But hey, I'm alive.
As for the phlegm, I used to sleep with my head and shoulders elevated -- basically, I used a bunch of pillows. I got used to that and still use them, even though I don't need them anymore. I don't know if that will help you, but it's worth a shot.
Hang in there.

--Jim in Delaware

wifeforlife
Posts: 189
Joined: Feb 2010

I'm sorry to hear you are struggling... not a Dr.. but I will tell you what helped my husband... Water...Water...Water... he also took musinex every 4 hrs. (large pill...but it desolves in water quickly) make sure you have enough humidity in the room you sleep in, prop your head up, use saline spray in your nose...
As for your jaw... My husband could barely open his mouth... I massaged and massaged his jaw joint and we worked it open and closed on a regular routine... it is much better now.

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Hey you guys. Thank you all so much for your support and prayers. I have been a serious basket case for three days. I lost almost 7 pounds from being so stressed. I was so scared.

I had the ultra sound today, and I was so thankful when the tech told me I was going to get the results right then. I was so relieved I was not going to have to wait, as I basically spent 3 days in bed with the dog, velcroed to me and the blankets over my head praying and crying.

The ultra sound was fine!!!!!!!!!!!! I cried with relief and my legs were like jello trying to walk out of the hospital. As you know, they never found my primary and plus I was stage 4 and had it my lymph nodes, I was really scared.

So thank you! I really missed you guys without my computer. I thought this new satellite would be better, but it was lightening fast the first day, and now, it's slow again.

thanks all,

d

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I have been so worried about you and Mike lately and am so relieved to hear your GREAT news!!!

I can only imagine the joy you must have felt when they told you everything was fine. It makes my day every time I read good new like yours.

Stay strong and keep us updated, we have all missed you lately.

My best to you always,
Glenna

rozaroo
Posts: 667
Joined: Apr 2010

Sweetblood! I am new to the board's. However, I just wanted to say how happy I am for you!
Congratulation's!

MaryRC's picture
MaryRC
Posts: 114
Joined: Feb 2010

That was great news Sweetblood! Was it a cyst? I had been thinking of you.
Mary

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

thanks guys. i texted my best friend saying, "how do you spell relief?" n-o-r-m-al-b-o-o-b

lol. no, no cyst. i am blessed with lumpy breast tissue. good times.

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

I'm so glad to hear that. What a load off your mind!
And thanks for the chuckle -- n-o-r-m-a-l-b-o-o-b. That's marvelous.

--Jim in Delaware

Kent Cass's picture
Kent Cass
Posts: 1748
Joined: Nov 2009

Good to hear, girl. Keep moving forward.

Believe

kcass

staceya's picture
staceya
Posts: 704
Joined: Jan 2010

What a relief!
Glad to hear the good news
Stacey

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

That is good news; I am happy for you and glad to see you are not depressed anymore.
Also thank you so much for calling my friend daddy Mike, what a fighter he is to be going through so many problems all at the same time and still having a positive attitude

May God continue to be with you.

Pumakitty's picture
Pumakitty
Posts: 653
Joined: Mar 2010

What wonderful news. I am happy for you!

Kathy

pattyanny's picture
pattyanny
Posts: 533
Joined: Jul 2009

Great news Sweetblood!
I am so glad all is well with you boobs! Glad to have you back with us! I missed you! Happy dance again! Hooray! Love Patty

cwcad's picture
cwcad
Posts: 117
Joined: Nov 2009

Glad to read some good news about you!! Keep up the good work. I also hate slow internet. Especially on this site. I cannot read the threads fast enough some days.

Clearblue
Posts: 188
Joined: Apr 2010

Release and feed the velcroed dog!
Clear B.

debbiejeanne's picture
debbiejeanne
Posts: 2590
Joined: Jan 2010

sweet, I'm just catching up so I wanted to say FANTASTIC, WONDERFUL, WAT-TO-GO, OUTSTANDING, ETC.!!!!! I'm so happy for you. It is always great to get good news on this site!!
God Bless,
Debbie

Clearblue
Posts: 188
Joined: Apr 2010

Hi,you dont know mw as im new here
My dear wife had an oesophogectomy two years ago +gastric pull up. She didnt have Rad because unfortunately she has Fanconis Anemia, which excludes her from Chemo too. Since then we have had recurrence in Lung and hypopharynx.
Anyway,
For about a year after surgery, she dialted herself with a dialator called a 44 French size Maloney.
It looks like a ruber snake! and she put it down her own throat. She received this form Univ of Michigan Prof. Mark Orringer who performed the surgery. Whenever she felt swallowing difficulties and "tightening up", she did self dialations.
Ijm not sure what uve had, or wheather your throat is in a position for this, so this might be toally irrelevant, but im posting this anyway.
FEEL BETTER soon
Clearblue

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

thanks for the latest round of well wishes. :) I really missed this site when I had no internet service. Everyone here is so nice.

Clearblue, I want to make it clear that the dog velcros himself TO ME. Not the other way around. :) I got Noah (aka Nizzy) after my first dog, Kiaya died. I had her for 15 years. It was so hard to put her down. I don't think anything else hurt my heart as much as that. I was dogless for a mere three, maybe four days? My step mom was negotiating in the wings when she knew Kiaya was not going to make it. She knew I needed a dog, as I had also just left my ex husband that had cheated on me after 15 years of marriage. It was a hard time.

I loved Kiaya, she was my baby, as I have never had any kids. I found out my step mom was getting me another dog by accident. She was doing it on the DL. I fessed up to her that I knew. I remember when she said that she had a two year old Hairless Chinese Crested lined up for me. He was an ex show dog. They had several dogs, and they no longer showed him, and he was crated most of the time. That made me sad. But I remember being scared about a new dog. I remember saying to my step mom, "But what if I don't love him?". When ever he is on me sleeping, or gazing up at my face, head on my chest as happy as a clam, (which is 24/7 now) my step mom laughs and says, "But what if I don't love him?" She swears that we are a perfect fit. He is the best present I have ever gotten.

When I was working, I worked at least 48 hours a week, and Nizzy went to "nanna and pop-pop's" for doggie day care everyday. (my poor parents have no grandkids. they have almost resigned themselves to the fact that their only grandkids are furry ones. or in my case, not-so-furry ones!) They have two cresteds, a rottie, and now a huge english mastiff. It used to bother me when I worked sometimes, because he would want to go up to my parents sometimes and not want to come down with me, he spent so much time with them, and the other two cresteds. LOL. Forget that now. I can hardly leave him for two seconds. He has become really over protective of me too. Sometimes he won't let anyone near me! Nut. I swear that my dog knew something was wrong with me before I did. Once I had surgery and was not working, that was it. He was stuck to me like glue. I called him my other tumor. He was on me like a growth. LOL.

Now he does not want to go to my parents. He hates the mastiff becuase he is a big slobbering brut that tortures poor Nizzy. He also knows that if he is going up there, that more than likely, mommy is going out with out him, and he does not like that.

Clearblue, your wife sounds like a seriously strong woman. I cannot imagine trying to dialate myself. I thank you for telling me about it though. I gag and carryon just brushing my teeth. I wish I could do something like that as it is almost 5 grand for every dilatation and I have had three. I have to be put on a ventilator and it got pretty hairy. They really do not want to do it again, it has become too risky.

I hope your wife does well with the next round of erbitux.

Hondo's picture
Hondo
Posts: 5936
Joined: Apr 2009

I am very glad to see you posting again and see you are in good spirits, I spoken to Chefdaddy last night he was not doing so good they were taking him in to surgery when I called so I could not talk to him long.

Thanks and may God continue to bless and be with you

delnative's picture
delnative
Posts: 452
Joined: Aug 2009

Lord willing, I'll be retiring in 435 days (not that I'm counting).
On day 436 I think I'll be getting a dog.

--Jim in Delaware

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