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Stage 4b

Jen_louisiana
Posts: 2
Joined: Jan 2010

My sister was diagnosed with stage 4b cervical cancer. She has undergone surgery, chemo, radiation. She feels alone in her fight not knowing of any other stage 4b survivors. Please post so I can help show her that she is not the only one out there.

SvenskaFlikka
Posts: 1
Joined: Aug 2012

I too have Stage 4 cervical cancer...it is in my lungs...glowing away. There is NO cure. The doctors are trying to beat it back to give me more time. My original cervical cancer was treated in 2009 with radiation and brachytherapy (too unpleasant to think about). Then six months later they discovered it had metastasized into my lungs.

The doctors at Sloan gave me 6-10 months a year at the most "with or without treatment"...so why have treatment I said. BUT, I switched to Dana Farber who were optimistic about gaining me more time...So I had about 5 1/2 rounds of chemotherapy: cisplatin and gemcitabine as they are the least debilitating and I was interested in quality of life. It will be two years this October since that grim news. The tumors were stationary for 16 months, without treatment, so how lucky am I. Unfortunately, they have started to regrow, so I have now restarted the gemcitabine and cisplatin with hopes of stopping their growth. If that doesn't work, I can try a different combination of drugs, but I will lose my hair...and maybe get mouth sores and all that jolly stuff...and I have to decide if it is worth it.

I DO NOT like Sloan Kettering. Try Dr Barry Boyd at Greenwich Hospital. He seems brilliant and very accessible...most of the doctors at Sloan and Dana Farber treat you like a specimen. Whatever...good luck. I wish you the best in treatments...who knows what is around the corner? I am sixty-five, so it is very sad to read of your young age...truly not fair.

If you want to travel to Boston...hard to do, but still doable...my doctor there is Alexi Wright and she is quite brilliant, but has no miracle cures at the moment...

grievinghusband
Posts: 6
Joined: Jul 2012

I'm so sorry to read about your condition. My wife was at Memorial Sloan and we hated it for the same reason you mentioned. They treated her lime a used car and never with any sympathy.

I hope things are going as well as they can be with your treatment.

Bittersweetly's picture
Bittersweetly
Posts: 14
Joined: Apr 2012

I was diagnosed with stage 4b vaginal cancer with local mets in December 2011, which was treated virtually identically to cervical cancer. (the original tumor was an adenocarcinoma about an inch away from my cervix.) Like you, after initial treatment, my staging changed to stage 4, with around 6-8 nodules in my lungs. For the lung nodules I got 5 months of Carbotaxol, which did nothing.
I am 49 years old, in San Francisco.
I will find out in two weeks, after an x-ray, what my oncologist suggests.
I have also thought a great deal about what treatment I'm willing to endure, especially after a five useless months of chemo. I am kind of hoping for no growth! Any luck with the cisplatin and gemcitabine? x

beadinout@yahoo.com
Posts: 1
Joined: May 2013

Greetings:

 

She is not alone.  I am here.  The only one I know of internationally.  I have been through it all too.  Long story.  For me, the lonlieness is hard to bear.  I nearly died so many times.  I keep reanimating myself. 

 

The drama around these life and death situations is amazing.  For me, it is not drama.  It is trauma.  There is a big difference. 

 

Suzanne

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