My husband is now 47 and was diagnosed 2 yrs ago with what they call "retroperitoneal liposarcoma". At first they thought it was kidney cancer, so they operated quickly, and removed the tumor and the kidney.
It took pathology 3 weeks to figure out what kind of cancer it was because we were told they were "baffled." We got refered to Sloan Kettering in NY because they said this is a rare type of cancer.
Turns out, after having CT scans at Sloan, they left behind an unclear margin and there was still cancer left in my husbands body. Found a small spot on the lung and had that removed, now 2 yrs later he is scheduled for surgery on the 16th of Nov. to try and get this leftover bit out of his abdomen.
The surgeon says it recurs on avg. every 2-3 yrs., and if that holds true, I guess that it better than the alternative.
I am so concerned about the surgery itself, and if it they will get it all this time.
It has just started to grow so that is why the surgery is being done now.
If anyone has a similar story, or more info on this disease, please let me know.