please-------------- - info on ER/PR negative, her-2+

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florist
florist Member Posts: 45
edited March 2014 in Breast Cancer #1
Does anyone out there have this type of breast cancer. Would like to know more. I have completed chemo and will start radiation in a week.
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  • Moopy23
    Moopy23 Member Posts: 1,751 Member
    #2
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    Hello, Florist
    The cancer I had was ER/PR negative but also Her-2negative. We do have several sisters here who are Her2 positive. I am sure they will be posting to you. I do know that Herceptin is a very powerful drug that is used very successfully against Her2 positive cancer.

    I welcome you to the board though I am sorry for the cause of your being here. You will find the members of this board to be unfailingly generous with their knowledge and experience and support.
  • florist
    florist Member Posts: 45
    #3
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    Moopy23 said:

    Hello, Florist
    The cancer I had was ER/PR negative but also Her-2negative. We do have several sisters here who are Her2 positive. I am sure they will be posting to you. I do know that Herceptin is a very powerful drug that is used very successfully against Her2 positive cancer.

    I welcome you to the board though I am sorry for the cause of your being here. You will find the members of this board to be unfailingly generous with their knowledge and experience and support.

    Thanks Moopy.........I sure
    Thanks Moopy.........I sure do hope someone replies and thanks for the welcome. I love this board and I think it will be beneficial and supportive.
  • CR1954
    CR1954 Member Posts: 1,390 Member
    #4
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    Welcome florist.....
    Welcome to the board.

    I'm ER/PR negative and HER-2+. Maybe I can help you with something.

    I did four rounds of A/C chemo, four rounds of Abraxane/Herceptin, and will continue the Herceptin every three weeks, for a year.

    I had 28 rads.

    CR
  • rjjj
    rjjj Member Posts: 1,822 Member
    #5
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    Welcome Florist
    You have come to the right place for loving support. Feel free to ask questions, vent, cry and yes even laugh. You have already come a long way,congratulations on finishing chemo.
    I was diagnosied with stage 3a bc, 6 positive lymphnodes involved. ER/PR neg, Her-2 pos. I have finished chemo and have had 2 radiation treatments out of 28. I had herceptin along with 2 other chemo drugs, and will continue Herceptin infusions for the rest of the year. Her-2 pos., means that you have a growth hormone making your cancer aggresive. But we now have Herceptin which is very good at blocking this hormone. Are you having Herceptin treatments? That is the usually the treatment. If you were estrogen and progesterone positive you would take tamoxifen or other inhibitors to stop regrowth. If you are neg like us there is no need for these pills. every thing we take is to stop regrowth or reoccurance. I don't know if i explained this all right, but if you google this you will find much information on it. I wish you the best with your radiation treatments. Keep in touch with us and let us know how you are doing.
    God Bless
    Jackie
  • florist
    florist Member Posts: 45
    #6
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    CR1954 said:

    Welcome florist.....
    Welcome to the board.

    I'm ER/PR negative and HER-2+. Maybe I can help you with something.

    I did four rounds of A/C chemo, four rounds of Abraxane/Herceptin, and will continue the Herceptin every three weeks, for a year.

    I had 28 rads.

    CR

    Thanks for the welcome CR.
    Thanks for the welcome CR. I had 6 rounds of chemo w/herception and also will have herception for a year. Probably 32 rads. This type of cancer which I think happens to 25% of the women diagnosed with breast cancer has so little information about it. I guess I'm just anxious to know all I can and what to expect. My cancer was stage 1, BUT grade 3, which is pretty much aggressive.
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #7
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    CR1954 said:

    Welcome florist.....
    Welcome to the board.

    I'm ER/PR negative and HER-2+. Maybe I can help you with something.

    I did four rounds of A/C chemo, four rounds of Abraxane/Herceptin, and will continue the Herceptin every three weeks, for a year.

    I had 28 rads.

    CR

    What is herceptin ? Is
    What is herceptin ? Is this chemo ? I am her2 positive and onc said something about Herciptin after surgery. Does this cause you to loose your Hair ? Does it make you sick ??
  • florist
    florist Member Posts: 45
    #8
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    Kat11 said:

    What is herceptin ? Is
    What is herceptin ? Is this chemo ? I am her2 positive and onc said something about Herciptin after surgery. Does this cause you to loose your Hair ? Does it make you sick ??

    From my understanding it
    From my understanding it does not cause you to loose your hair and it does not make me sick.
  • CR1954
    CR1954 Member Posts: 1,390 Member
    #9
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    rjjj said:

    Welcome Florist
    You have come to the right place for loving support. Feel free to ask questions, vent, cry and yes even laugh. You have already come a long way,congratulations on finishing chemo.
    I was diagnosied with stage 3a bc, 6 positive lymphnodes involved. ER/PR neg, Her-2 pos. I have finished chemo and have had 2 radiation treatments out of 28. I had herceptin along with 2 other chemo drugs, and will continue Herceptin infusions for the rest of the year. Her-2 pos., means that you have a growth hormone making your cancer aggresive. But we now have Herceptin which is very good at blocking this hormone. Are you having Herceptin treatments? That is the usually the treatment. If you were estrogen and progesterone positive you would take tamoxifen or other inhibitors to stop regrowth. If you are neg like us there is no need for these pills. every thing we take is to stop regrowth or reoccurance. I don't know if i explained this all right, but if you google this you will find much information on it. I wish you the best with your radiation treatments. Keep in touch with us and let us know how you are doing.
    God Bless
    Jackie

    You explained it.......
    You explained it very well Jackie.



    CR
  • florist
    florist Member Posts: 45
    #10
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    CR1954 said:

    You explained it.......
    You explained it very well Jackie.



    CR

    yes, I'm taking herceptin
    yes, I'm taking herceptin until the first of 2010
  • rjjj
    rjjj Member Posts: 1,822 Member
    #11
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    florist said:

    From my understanding it
    From my understanding it does not cause you to loose your hair and it does not make me sick.

    Florist
    You are right! Your hair will grow back and there aren't side-effects as Herceptin leaves your good cells alone and targets cancer cells only. You will not be sick!! YEAH!
    hugs, jackie
  • CR1954
    CR1954 Member Posts: 1,390 Member
    #12
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    Kat11 said:

    What is herceptin ? Is
    What is herceptin ? Is this chemo ? I am her2 positive and onc said something about Herciptin after surgery. Does this cause you to loose your Hair ? Does it make you sick ??

    Kat.......
    Herceptin does not cause hair loss and does not make you sick.

    If you are HER-2+, and your onc has not mentioned Herceptin, I would ask him/her about it.

    Although, I myself did not first meet with my onc until after I had surgery, and that's when I learned about the drugs I would be getting.

    CR
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #13
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    florist said:

    From my understanding it
    From my understanding it does not cause you to loose your hair and it does not make me sick.

    Florist, thank you for the
    Florist, thank you for the info, I am pretty new to this. I may ask stupid questions sometimes.
  • Kat11
    Kat11 Member Posts: 1,931 Member
    #14
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    CR1954 said:

    Kat.......
    Herceptin does not cause hair loss and does not make you sick.

    If you are HER-2+, and your onc has not mentioned Herceptin, I would ask him/her about it.

    Although, I myself did not first meet with my onc until after I had surgery, and that's when I learned about the drugs I would be getting.

    CR

    CR This is my understanding
    CR This is my understanding as well. I will not really know what the plans for my treatment are until after surgery. I met my onc a few week ago and all she said was I would be taking Herceptin. I did not ask any Questions about the drug, I had already heard enough on that day.
  • CR1954
    CR1954 Member Posts: 1,390 Member
    #15
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    Kat11 said:

    CR This is my understanding
    CR This is my understanding as well. I will not really know what the plans for my treatment are until after surgery. I met my onc a few week ago and all she said was I would be taking Herceptin. I did not ask any Questions about the drug, I had already heard enough on that day.

    Well, it sounds like a lot.......
    It sounds like a lot when the onc says "for a year". But the Herceptin infusions are a breeze. 90 minutes of relaxing with a good book every three weeks. I don't mind going at all.

    CR
  • outdoorgirl
    outdoorgirl Member Posts: 1,565
    #16
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    Kat11 said:

    Florist, thank you for the
    Florist, thank you for the info, I am pretty new to this. I may ask stupid questions sometimes.

    There are no
    stupid questions Kat!! You've never been through this before,so how could you know?!
  • ladybug22
    ladybug22 Member Posts: 646
    #17
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    Kat11 said:

    What is herceptin ? Is
    What is herceptin ? Is this chemo ? I am her2 positive and onc said something about Herciptin after surgery. Does this cause you to loose your Hair ? Does it make you sick ??

    herceptin
    i took 8 round of chemo then i took herciptin once a week for 10 weeks then i had my breeast remover then had rads after that i went back on herciptin for a year every 3 week . i worked herciptin was a walk in the park for me. my onc had me take a muga test every 3 mons.

    KAT 11 take care of your self and be for long you be old pro. at this hugs and love to my sister in pink
  • tommaseena
    tommaseena Member Posts: 1,769
    #18
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    florist said:

    yes, I'm taking herceptin
    yes, I'm taking herceptin until the first of 2010

    Welcome Florist
    I am also ES/PR negative and HER2+. I had a double mastectomy with reconstruction in Feb. 2009. I had 4 rounds of A/C chemo. I am now doing Taxol w/Herceptin 12 rounds(I have done 3 out of 12 so far) and then will be on Herceptin alone every three weeks for one year beginning in August. I did not need radiation. I am stage 1 no lymph node involvement.

    This is a wonderful site so come here anytime.
    Hugs,
    Margo
  • Bill.S
    Bill.S Member Posts: 177
    #19
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    Herceptin TCH
    I'm triple positive.Did herceptin weekly July - Dec with Taxotere and Carboplatin every 3rd week. Since then it is a triple dose of herceptin every 3 weeks for the balance of one year so I'll stop in August.
    Herceptin by itself- is a breeze- no side effects at all for me.
    I am taking Tamoxifin for 5 years and it has slowed my hair growth down some so I only have to shave every 3 or 4 days.
    Not to worry
    Bill S.
  • jgridley
    jgridley Member Posts: 169
    #20
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    info on ER/PR negative, her-2+
    Minen is
    ER Positive 10.7
    PR positive 8.7
    Her2 is negative 9.7

    Er score is based on your estrogen receptor...(i.e. if the cancer is estrogen feed)
    PR is progesterone receptor (i.e. progesterone feed)
    Her2 is immunohistochemostry.. not too sure what this one is...

    hope this helps some...

    Julie
  • Akiss4me
    Akiss4me Member Posts: 2,188
    #21
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    jgridley said:

    info on ER/PR negative, her-2+
    Minen is
    ER Positive 10.7
    PR positive 8.7
    Her2 is negative 9.7

    Er score is based on your estrogen receptor...(i.e. if the cancer is estrogen feed)
    PR is progesterone receptor (i.e. progesterone feed)
    Her2 is immunohistochemostry.. not too sure what this one is...

    hope this helps some...

    Julie

    I'm same Julie
    Julie, you are the same as me except I don't know what my numbers are. But I will be getting copy of pathology report when I go on Tuesday. The numbers don't mean anything to me but I'm sure they will to my oncologist. :) Pammy

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