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Uterine/Endometrial Cancer

Archives for August 2016

Just read this from Dana Farber
http://blog.dana-farber.org/insight/2016/08/what-is-the-latest-research-in-endometrial-cancer/ Love, Eldri
Update regarding postmenopausal bleeding + increased pain
Hello, just wanted to update that a surgery date has been set for next week on the 8th of September. I don't have access to speak with the surgeon until either the pre-anesthetic consult on Monday the 5th so will see what she says about the morcellator. I left a message with her nurse saying I just wanted to have the…
Hair and a few thoughts
Once again, I have hair and enough of it that I am going without a hat. It kind of wants to stand in a mohawk. I am also getting hair "everywhere " else. I am going to have to get used to buying shampoo again.. Today I had an check up with my Gyno-Onc/ surgeon, a doctor that I have had since the beginning of this journey.…
Newbie
Hello, I wanted to introduce myself. I just got back from my post op appt with my obgyn onc from my complete hysterectomy. What started as endometrial cancer spread to one of my ovaries, so chemo is the route we are taking to make sure that none of the bad cells escaped to other places. I will do the six sessions of chemo…
September is gynecologic cancer awareness month!
Below the belt warriors wear your peach and teal colors for yourself, each other, and all the sisters we have lost. Being on this board long enough means I, like many of you, have seen a us lose a friend or two. Multiply that by the ladies we personally know and we are a nation. God bless the warriors. God bless the…
a camp for kids with parents who have cancer
Hey last night while searching the web for some support for my kids i found this website. I was so excited to find it. It looks like they have a free week long camp for kids who has a parent that has cancer, who is a survivor of cancer, or who has lost their battle with cancer. Its looks like this camp is in alot of areas…
Daylady...Update....
So...good news (I think...). Met with my gyn-surgeon, who is incredible (amazing!) and has kept me in her practice so she is also now my ob-gyn as well as my surgeon. I completely LOVE this woman. She knew immediately I was shaken by the most recent CT/PET Scans, and told me that while I could go ahead and try Topotecan…
Genetic tests reveals 2 therapies
Hi all, I'm wondering if we can continue the discussion about targeted therapies. Last night, at 10:30 pm no less, my saint of a doctor emailed me the results of the OmniSeq testing I had done on Aug 12th from her phone - she had just gotten it in her email. It revealed 2 therapies. The first, and the one she thinks is…
abnormal vaginal discharge
Hi, sorry for the odd posting - I am using an old mobile phone at times and it doesn't work well with the site. The discharge is sometimes black and also during times of postmenopausal bleeding. I am thinking it may be some very old blood maybe?
update
I know i did the right thing to stay home and take care of myself so dont get me wrong on this post. Its been hard today. Im not used to having my kids gone. being home by myelf was hard real hard. I have said i changed chemo meds this last time and it was making me nausiated more than the other drug i was on. It was way…
Rising levels
Hi Ladies, Have any of you had rising marker levels due to a hernia. I've had a rise every test since surgery in November, chemo finished in March, the CT was clear at that time. I have a hernia, which appeared in June which is when my levels started to rise to upper limit. Is there any common link? LA
Herbs and supplements during chemo
Can you please advise what herbs and supplements you took during chemo to help with recovery and reducing the side effects? Thank you..
So nervous!
Mum's chemo starts this friday. Onco has said very little chance of it working. Her breathing airways are quite a bit blocked with tumours. High dose of steroids and continous oxygen is just keeping her going. It has been a tough 18 month journey but we never lost sight of hope. But now i dont know where hope has gone…
Just checking in
i had treatment #30 something (I have lost count) today, third of the Keytruda immunotherapy. Still no side effects. I have a cough and some congestion, but my Onc is pretty sure it is allergies. Last time my CA 125 jumped from 156 to 865. This time it fell to 460. We are not paying much attention to it because the cancers…
didnt make it through work
went to work today but told my boss i wasnt feeling well and left after a half an hour. I told her i would try tomarrow. Im feeling depressed and sad and sick. Im feeling angry that i have cancer and i have to do all this stuff. It wasnt my plan to get this. Sorry this is such a downer post. Any encouraging words would…
MMMT Stage 3C1 - 5 Year Survivor today
As of today I am five years clean from Stage 3C1 MMMT (carcinoma sarcoma) Uterine Cancer. I was 55 when I was diagnosed. Tumor in Uterus was stage 1A but I had 2 microscopic cells in 1 lymph node so it was upgrade to stage 3C1. Very brief history, I was post-menopausal in 1992 at age 36. In 2004 started spotting again went…
Silly questions to make you laugh
At our recent visit to the oncologist my mum was asked what is her goal from the treatment? I was confused so asked for clarification. The oncologist said is your goal to live longer or quality of life? I was amazed at how stupid the question was. I said why dont you work on a long life with good quality? She didnt ask any…
Natural treatments
Hi all, Last year when my mum was diagnosed with stage 4 cancer we were told its not curable. And she did not have long to live. Chemo would be too difficult for her to take and since the tumours were in lungs she could not get radiotherapy. So we were left with hormone therapy only which had very little effect. After 3…
Is not having a biopsy normal? Please help!
Hi all, I stumbled upon this forum when I started desperately researching about uterine cancer. My mother, age 65, was recently diagnosed with what could be this type of endometrial/uterine cancer. She recently did a Pap test along with a ultrasound in the pelvic and transvaginal area. Her Pap results came back abnormal…
Change in chemo meds. Its now toxotere
My oncoligist changed my chemo medicine. I was telling him about how my neropathy was now in the ball of my foot and that it didnt recover like the two times before. He changed the meds from toxal to toxotere ( i think thats how you spell it). I woke up this morning with diarea, which is day 2 of my 4th chemo. I havent…
Update on my sister
Hello ladies, I dont know if you remember me, but I used to come here and ask questions to you guys in regards to the treatement my sister was going thru. She was diagnosed in April 2015 with stage 1A uternine cancer. She had the surgery in May 2015. It was less than 30 percent thru wall when she had the surgery. Total…
What doctor do I talk to?
I am 8 weeks done with chemotherapy. Since around 2 weeks ago, I have been breaking out in hives. They haven't been itchy, until recently, last week they started to itch like crazy. They are all over my body. I think they are related to the chemotherapy. Do I contact my regular doctor, or my oncologist?
Daylady - starting all over
Hi Ladies. I am a bit discouraged. Got the results of a PET Scan back yesterday, that was done folowing a CT scan that showed a small nodule on my liver. We were hoping we could just surgically remove it. The PET scan came back showing lesions on the pelvic wall, down the left side of the mediastinum (thorasic cavity) and…
Any Military Spouses (current or former) or Anyone In these Communities?
My husband is up for orders this summer. I am in "EFMP", and was wondering if the following communities (the doc can be 60 minutes away) had gyn oncologists that take Tricare Standard: - Omaha, NE - Colorado Springs, CO - San Antonio, TX - Washington D.C.
Need advice on starting chemo
Hi ladies, So many of you have braved chemo. I can only describe it as feeding on poision to stay alive... makes you all stronger than lionesses!! I need some advice. Hoping i can get some pointers. Mum is starting chemo next week. Carboplatin only as she is quite weak. What can she expect? Is first dose really hard? What…
Another post-cancer question...
I am experiencing two things that are concerning me, and I wonder if I should call the doctor regarding it, or just figure it is because my body went through hades: 1. I had a pleural effusion before my cancer diagnosis, and had the fluid removed. In the area where they put the needle I am feeling some pressure. I wouldn't…
Second doctors appointment after chemo
Well I had my second doctors appointment after chemo. First appointment (doctor and CT scan) was 5-1/2 weeks after chemo (May 4th). That appointment went well with NED at that time. This appointment was just a doctors appointment and after checkup all is well NED again. Makes me very happy to be able to say this. Now next…
Carboplatin
Has anyone just used carboplatin for treatment without taxol etc? What were the side effects you felt? Also what sort response did you get? Appreciate any responses on this. Thanks.
Change in tumour density
Does anyone know what it means if the tumour density has changed? On the CT scan report it says tumours grew significantly but the density is less suggestive of change in narcotic. Got the oncologist appointment in 2 days but keen to know what could this be. Thanks.
accual work tomarrow
I go to work tommarow. Im not feeling that great. My hysterectomy hasent healed completely and unfortunatly my neuropathy hasnt gotten better like it did the first two treatments. By day 17- 20 my neropathy was almost nothing. It didnt do that this time. In fact it is in my toes now. Even feels like its going into my feet…

Uterine/Endometrial Cancer

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