Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Archives for June 2011

Any one here have Granulosa Cell Tumor of the Ovary?
I have GCT. It started as a "cyst" that ruptured, which in fact it was the tennis ball sized rt ovary filled with a tumor. After removal of the rt ovary and tube and upon reviewing the path report, my gyn. referred me to a gyn/onc. who 2 weeks later did a robotic total hysterectomy. The path report is back and GCT cells…
Getting ready for neighborhood yard sale
I gotta lot of books on natural healing & cancer prevention that are leaving my house. Maybe someone else can use them now. I was so focused on preventing breast cancer as I figured that disease was high risk for ALL women why should I be any different? I guess my situation could be worse as I know some people are dealing…
Ca 125
what does it mean if before chemo my mom had a ca125 of 75. I thought that was low considering she has stage 4. Now she had it checked today after two chemos and it is 10. i don't think this could be accurate. can someone explain all this to me?
Molecular Profiling/Clearity Foundation
Has anyone had experience with molecular profiling and/or the Clearity Foundation? I emailed my oncologist and here was his reply (so I think I need to get as much information about it as I can before I proceed.) His reply: There are many tests right now for ovarian cancer are not considered to be ready for general use…
Sarah, the Carcinista.....Things I Don't Have to Worry About Anymore
For all of you who do not belong to the Inspire board, or did not follow Sarah's blog, I am curring and pasting this posthumous entry, from Sarah and her husband. Sarah and I sat together on the couch looking at her computer, trying to make sense of things. At the moment, she was in a place of clarity, somewhere between…
Last vaccine trial injection
I had the last of the series yesterday, came home last night and felt great. I walked 2 1/2 miles after speinding 7 of the last 12 hours on a plane. Then about 5 AM I woke up with horrible chills and such terrible body aches, I didn't know what part hurt the most. Imagine the worst case of flu you ever had, times 10. This…
My Mother's service is today...SHAME ON MSKCC>>Her doctor never even called us to say anything. How
Hi everyone....I am sending slide show to Hissy Fitz to distribute somehow....Thanks for everything...I feel like I am going to throw up....Mom's oncologist for almost 2 years never even called to say "my condolences"....not once....nothing....this after our last visit there involved waiting 4 hours for chemo, while Mom…
Muscle issues
I had Ovarian Cancer, and had chemo for 6 months. Now I am having problems with my muscles. It makes 2 years this month since I had a treatment. I was just wondering if anyone else has had a muscle problem from the Chemo Treatments. Thank You
Primary Peritoneal Cancer (part 2)
Hi, like so many others on this board, I would like to see a separate board for PPC. If you look at the only other thread with this title, it goes on for a long time I think because those of us with PPC are immediately drawn to discussing our shared experience. I have some questions of others who have said they have PPC:…
Daughters of mums with ppc?
Hi all, looking for you who have mums with ppc which in treatment is very similar to ovarian cancer. I am looking for support, trading questions and results, thoughts, and happy hopes for the future with our mums. My mum is diagnosed with ppc in stage IV. She is hospitalized at the moment but set up for rehab soon. No…
HIPEC treatment
Hey ladies. I just went to the HIPEC treatment web site. There is a webinar on this on June 15 @ 7:00 central time. It says from a dr. and patient perstpective. It could prove to be a very interesting thing to watch. I think it said you need to register. Just wanted to let everyone know. Jackie
port
Hello beautiful teal sisters !! I had my port installed today. I was scared, but it really wasn't bad. I have a power port that can withstand the ct scans with power injectors. I don't know if thats something new or not. It actually took almost as much time to get me and the room prepped as it did for the doc to do the…
When illnesses collide
Hi, **** The following is probably more venting than anything else so it's ok to not read further if you're feeling down yourself ***** ............................. I can think of no other area to place this in, so here goes. I have peritoneal cancer, so far all is going very well. Still responding well to Carbo/Taxol…
Dear Zinaida
I read one of your responses and your bio. I am so glad that you are in some type of remission. My diagnosis was almost the same as you, except I was 2A and didn't have it spread to the breast. I also was on Carbo/Taxo the 1st time and 2nd time. Unfortunately mine came back again in 2008. I tried carbo/gemzar, but became…
Home After Hospital Stay
My mom was first diagnosed with Ovarian Cancer Stage 4 in 2009. She had the tumor debulking surgery and fluid drained off of her lungs. She has been through 2 or 3 rounds with chemo that responded for the cancer. This last illness has really taken a toll on my mom. Her lungs were filled up with fluid almost to the point of…
Back of Hand or inside elbow?
Hello everyone, I don't visit this sight too often but I have a small problem/question. As some of you may already know, my ovarian cancer came back after almost 5 years in remission! I started carbo March 25, 2011. I have small veins and it is very difficult for the nurse, not to mention the soreness and discomfort I feel…
Who knew? MSKCC has a Thrift Shop
I was poking around on the Memorial Sloan-Kettering site, trying to see if I could make a memorial donation in Nancy's memory via the internet, when I came across this: This spacious thrift shop on the Upper East Side of Manhattan is known for being the beneficiary of the highest quality donations of designer and vintage…
My Sister's Physical Pain
Hi. On May 17th my sister Karen, age 46, had suboptimal debulking surgery after 6 rounds of neoadjuvant chemo. (DX 12/10, stage 3C). They removed her omentum, ovaries and tubes. They said that they couldn't get the uterus out because the bladder is attached? Anyway, 3 weeks post-op and her abdominal pain is increasing. She…
CAAT Diet/Treatment
Hello, Has anyone been on the CAAT Diet? I am considering it for my mom who has stage iv ovarian.
newly diagnosed
Hi all! I am a newly diagnosed ovarian cancer patient stage 1c. I had a suspicious cyst that was found on a ct scan. My gyn was 90% sure it was an endometrioma but said the only way to be sure is to do surgery. On May 24th I underwent a laparoscopic hysterectomy robotic assisted. I was told everything was fine-no cancer.…
Question for Donna (RockchickSurvivor) re: your trial
I am so sorry to hear about your 3rd battle with ovarian cancer. I, too, seem to be fighting battle after battle. I'm sorry that you are in pain, because I know what pain feels like and on a scale from 1-10, mine was a 10 (although I'm not in pain now). I have heard about the cytoxan trial, I think it's with ABT-888. I…
Hi, Ho, HI, Ho it's off to chemo I go
Hi Loves, Heading out the door for my next chemo.... it's been i8 months now that I'm chemoing for my 1st reccurrance. Today it's cisplatin/gemzar and next week just the gemzar. Just wanted to say that if I'm AWOL for few days, I'm dialing up Netflix, reading and being downright b*tchy from gads of steroids........ I think…
HIPEC Testimony
Dear Friends, I have made my decision to go with HIPEC (please visit http://www.hipectreatment.com/ if you haven't studied this treatment) to treat my first recuurent OC. (Please read my profile for my desease history.) I will do it by end of July because I have booked Alaska Cruise and that is one of the "have to do with…
Dear Eileen (EWARD)
I am so sorry to hear about your mom. Since December, being on different chemos, I have been having slight progression, they can't seem to find the right combination of drugs. So, over the last 6 months they have grown but have not invaded any other organs. It's almost like they have a long list of chemo drugs and if one…
Nancy's Obituary
Here is a link to Nancy's obituary. http://www.recordonline.com/apps/pbcs.dll/article?AID=/20110605/NEWS0301/306059990/-1/NEWS03 Her family has requested that memorials in Nancy's honor be made to Memorial Sloan-Kettering Cancer Center Ovarian Cancer Unit, PO Box 27106, NY, NY 10087 Carlene
new treatment
I am getting ready to fight my 3rd battle with this awful disease that just snuck up on me again when my ca125 was 22 almost 2 months ago and now I have ascites and a golfball side tumor in my left side. I am very scared and hope the new clinical trial they put me on will work. One of the drugs will be cytoxan I think…
studies - request for help
My mom was diagnosed with stage 4 primary peritoneal/ovarian cancer 2 years and 2 months ago at the age of 62(although she turned 63 within weeks of her diagnosis). Her presenting symptom was pleural effusion - she thought she had pneumonia and it ended up to be cancer. She has been in chemo for all but 3 months of the…
The Chair
I love you ladies. The port and numbing cream worked beautifully. My fear of sitting here and hooking up to the machine was manageable. I shed a tear or two and admitted to the nurse I was scared. She said they were there to help. She was great. Right now I am finishing up the first bag of fluids. Then they start the…
Attn: kayandok
Is the IMPACT a liquid supplement that you drink? That's what I found when searching online. Thanks, Beth bcollins712@yahoo.com
Re: Getting Ducks in a Row
I am with you LQ. I am going to get started with a couple projects I've been meaning to do while I am feeling well. PS: I would appreciate prayers today as I'm having a ct scan this evening to see what's happening with a rise in my CA125 from 22.7 to 103 after a three month break from chemo. Thank you, Chris

Ovarian Cancer

Discussion List