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Ascites - Stage IV Ovarian
Hello Everyone, I am a new member. My mom was diagnosed with Stage IV OVCA back in 2007. She had a total hysterectomy followed by chemo treatments. She has been in remission 3 times, and has been on 3 or 4 difference meds. Her most recent was Gezmar, with no response. She is going in today to start Topotecan. I am really…
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Getting my ducks in a row
After the recent loss of of some beloved members of the discussion board, I decided to come out of Lala Land for a while to get my "ducks in a row." I appreciated reading all the things some of the survivors have done to help their loved ones in handling their affairs when they reach their demise. I haven't done much…
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Worried it's the beginning of the end
My Mom's left foot has been swollen off and on for the last week. The swelling seems to be getting a little worse and it is travelling a little up her leg, their is no pain and no redness. My Dad has called the gyn/oncologist twice and she seems unconcerned. This really p*sses me off. I think Mom needs to have an…
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(BHRT) Bioidentical Hormone Replacement Therapy
Starting to do some research on Bioidentical Natural Hormone Replacement Therapy. Anyone have any information or use them? SO TIRED of the symptoms of being thrown into menopause at age 46. Argh... It's been almost 3 1/2yrs since dx & 2yrs since my last chemo and life is a blessing !!! BLESSINGS & GOOD HEALTH :-)
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Nancy
As many of you now know, my mother is no longer with us. As hard as it is for me to take the time to right this, but I know it's what she would have wanted. She would want everyone to know that she did not die in pain, and that she never once gave up. She left no stone unturned, in reguards of treatments to take. She tried…
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Ovarian Cancer Stage 4
I am just curious about a few things. Just because you have Ovarian Cancer stage 4, does it always mean that it is incurable? Is there anyone who has been cured from this stage who never had to do chemo again? Is there anything out here that looks promising for a cure? I also heard there is a new test called OVA1 that is…
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Seedlings, sprouts and sprays from the Greenhouse
Thank you all for your thoughts and prayers. I felt them with me every minute for the past two weeks! As I've been recovering from brain surgery, I've learned that we've lost Nancy and my own grandfather in the past few days. I am heartsick. I will write more later, I just wanted to stop by and let you all know how very…
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Anyone heard anymore about Leesa?
if anyone is in contact with Leesa or her husband would you please send along our love and hope that she'll be home, safe and sound, real soon! Miss you, Leesa! (((HUGS))) Maria
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Surgery June 15
I passed blood late April and on May 4th was diagnosed with Invasive Squamous Cell Cancer of the Anus. I had a CT scan that revealed multiple masses in the pelvic bowel. I am T2N1 anal cancer and was scheduled for chemo and radiation treatments, but had to see the GYN surgeon first. He scheduled surgery asap and said I may…
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Nancy is with the angels now
I will post something later. I just can't right now. Carlene
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Has anyone been on Taxotere only
Hi everyone, I'm starting my new chemo which is going to be Taxotere only. I'm scheduled for weekly for 3 weeks then 1 week off. If anyone has been on this, could you let me know how it was tolerated? Any bad side effects? I just got off of 6 months of Avastin and 2 months of Topotecan and my white blood cell count, and…
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Night Sweats - Menopause or Something Else?
I had not gone through menopause when diagnosed, so my menopause was surgically induced in September 2009 with my hysterectomy/debulking. I had an easy time of it...mild hot flashes, no extreme mood swings. A few months ago, I began having really heavy night sweats. If it could be a hot flash that would wake me up, I could…
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Mom and Ovarian Cancer
My mom has had the tumor debulking surgery about 2 years ago and a couple of rounds of chemo. She had fluid on lungs which I think that caused her pnemonia. She still wants to fight with chemo. A doctor at the hospital also mentioned the possibility of radiation. What are some of the things I can do to help prevent another…
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I just got some news I'm upset about
A dear friend called me to ask what the normal range for CA 125 is. Last week she went in for a biopsy for a growth or (?) in her uterus and she requested a CA 125 largely because of me. She told me tonight that her result is 29. I told her that anything less than 35 is in the normal range. She has to go back for another…
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am still NED!!!
Went for my check up yesterday, Ca-125 is 10 and exam was good .Will see Doctor in august so now I will enjoy my summer. I post this as from good advice that our teal sisters and new sisters need some hope that this disease is not going down without a fight..we all need hope and faith even when things sound so…
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Leaps of Faith
I know everyone is feeling sad right now with all the bad news being posted on this board, and rightfully so. But Linda brought up an interesting point under another topic. We all make leaps of faith, everyday. We do things or plan things from which we won't reap the benefits for a day, for a week, for a year, that we at…
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My 2 year anniversary
Hi, Today is my 2 year survivor anniversary. I was diagnosed 2C. I'm doing well! CA125 is 7. It doesn't move much. I still worry about when/if the other shoe will drop, but I guess the worry probably won't go away. I do check in to see how everyone is doing. I don't usually post because I don't know the answers to any of…
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Where did the time go?
I cannot believe tomorrow it will be one year since we first heard the big C word. I will never forget it. I was supposed to go away for the weekend with some friends and my nephew was going to take my mom/dad to the doctor. Dad is blind so he can't drive. Something told me to cancel my plans and go with them. I remember…
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Fear of dying during heart attack
Fear of Dying During Heart Attack May Make Matters Worse. High anxiety linked to greater inflammation, study finds By Amanda Gardner / HealthDay Reporter WEDNESDAY, June 1 (HealthDay News) -- People who become very afraid of dying in the moments during and days after a heart attack also seem to have more inflammation, an…
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In Recurrenc - Will try HIPEC but there's dillema
My Dear Friends, I am new to this board. I am glad to find a place with so ladies with good knowledge, and above all, with great heart and incredible courage. Brief history of the desease: I had surgery on 12/29/2009 and confirmed the diagnosis of Ovarian Cancer IIIC. After surgery, I had 8 cycles of Carbo/Toxel. CA125…
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debulking surgery
Hello ladies. I posted here about a month ago. I had my surgery on 5/9/11. I had an awful time with this surgery. I was in hospital for 12 days. Doc removed my rt. ovary and entire omentum which was where the cancer was. He told me that he got about 95% but I am going to need some type of chemo. Today I went for a f/up…
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swelling in feet
I have been ned for one year never had swelling untill now this worries me. I hope this is not cancer fluid. Has anyone had this and what was the out come. very afrid, tomcat 59
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Picture this
I took time of work to go in for the port placement. I was tickled pink that I could have it done today. I asked the anesthesia clinic about any prepatory things for last night and this morning....none...if you need some the doctor will call you tonight(last night) otherwise they will talk to you at bedside. Ok....thei…
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Doxil
Had my second Doxil infusion May 19th. After the first one my CA-125 went from 704 to 1520. I was told this it typical. No side effects the first time, but this time I have a mouthful of sores and a rash around my bra area. Just wondering if anyone here has had success with Doxil and what the side effects were. And is the…
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"Incurable" ovarian cancer
Hello Ladies:This is my 2nd recurrance and I was told almost a year ago that I have "incurable" ovarian cancer and had only a few months to live. I have a beautiful 7 year old daughter and pulled through because of her. I just finished my chemo May 11/11 and my ca-125 was in the normal range. I was in remission for a year…
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My Mother Nancy
Let me just start by saying, this site was very important to my mother, and she made me promise that I would continue to post for her incase anything happened. Most of you know about her hospitalization around mothers day. My mother finally came home on hospice about 2 weeks ago, Dr.S had told her to go home on hospice for…
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cisplatin vs carboplatin
Is there a real difference between cisplatin and carboplatin? I am getting cisplating and topotecan on Monday. I read very little difference in the description beyond maybe side effects. R34
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Leesa
Leesa's husband posted this yesterday on Facebook: "Leesa is getting kicked out of the ICU. Seems they only let sick people stay here :) " Some good news for a change. Thank goodness. I am so happy that Leesa is doing well! Carlene
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Nancy....
I haven't heard from Nancy's family but her sister posted this early yesterday morning on Facebook: "I feel the grim reaper lurking around every corner....my heart is breaking beyond repair." I don't think I will get to see Nancy again, or even hear her voice. It's been such a quick decline. It's really scary. I was pretty…
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ovarian cysts / ovarian cancer.....is there a link?
I'm interested to know how many of you have had cysts prior to diagnosis. I am asking because I have been missing periods on and for 6 months and now i am having them when i shouldn't,only had this once on my most recent cycle. I went for an ultasound about 3 cycles and they said there was a cyst, but it looked normal.I am…