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Ovarian Cancer

Archives for June 2009

Somewhat surprised!
I could say I am LOL but I am not. Guess I do know my body more than what I think. Long story short - aches & pains. Did pick up CA125 and it is now 113.5 up from 13.5 six weeks ago. I am scheduled to see Dr. J. Thursday, so we will see what she says. And I did pick up my report from ER with thymus gland mass. Will keep…
PRAYERS FOR SUE
As I recall, today is the day Sue is having her cytoscopy. Let's lift her up in prayer as a teal body and pray for great results!! Have a wonderful day, lady friends! In His Service, Libby ☺ ♥
remission
Hello Ladies, I have a question about remission. What determines the start of remission? Is it the first clear scan, the end of a cycle of chemo, the good CA125? I am considered in remission now, but 'am doing a maintenance chemo, so not sure if that "counts."(???) When remission is mentioned, there seems to be a…
Question about the CA125
Hi Ladies...I have seen so many posts with so many different numbers in them that I am not sure what the normal numbers are anymore. One said that anything below 30 was okay, my own doctor said anything under 20 was okay. But I see so many ladies doing chemo who have very low single digit numbers. I guess I am getting a…
What size grid is standard for the CT?
Ladies, I have another question. What is the standard CT grid size (is that what it is called?) used in the US/your doc for follow up in treatment? I know that there are different settings that will detect all the way down to several mm and then there is the 2 or 3 cm size. Maybe there is no standardized CT and it depends…
Help needed with right questions to ask - starting exploratory
I have posted on this board before as I was just told that they have found a 'node' in my right ovary and was looking for some help in it all. I am just at the exploratory stage but have a history of non hodgkins lymphoma and so this node is worrisome. I have had the pelvic ultrasound and an internal exam was done (nothing…
waiting with chemo
Hi ladies, I saw my oncologist this morning, we agreed to hold off on chemo at this time, considering the very slow rise in the CA and the clear CT scan done last month. He said there's probably microscopic cancer there, but not a reason to use a potentially important chemo drug we'll need in the future. We'll repeat the…
Question for the day
Hi teal ladies, I just have just finished 6 cycles of gemzar/cisplatin as my second line chemo. My CA125 is at 18 which is a very good number, although it is not my "normal". My Japanese doctor's opinion is that I should stop at 6 and not continue. My feeling has been that I just want to BURN IT ALL OUT OF THERE and go for…
sad and anxious abour cancer
I am full of sadness, anxiety and lots of crying. I have finished my chemo and am back at work part time, but i feel so crappy. i am afraid of the future and so sad that I have cancer. Family is far away and I am looking for support wherever i can
just getting started...very scared
Hi! I'm 39 years old. Two years ago I had my right ovary removed (borderline ovarian tumor). We have closely monitored my left ovary. I do not have any children and have been trying since the right ovary was removed. Sadly, I had surgery two weeks ago to remove the left ovary. While I was in the hospital, my doctor said…
What options with so many choices
Dear Kathleen, I found your comments to interesting to be buried amongst the posts. I think this is a topic so many can relate to. I hope you dont' mind I have copied a bit of it here so those that don't go back to long long posts will have a chance to read it too. This is what our Kathleen had to share: "Having so many…
thymus gland
Well, this morning I spent my morning in the ER. I had been having pains in my left side and had not been able to sleep. Figured it was from going to the batting cage and playing softball two weeks ago. But wanted to make sure. The short of it is, I have muscle relaxers for the muscle pain. Ruled out heart, lungs, blood…
CA125 up again
Hi Ladies, Yesterday morning my oncologist called, my CA125 is up from 17.3 to 28. I know it's still withing normal range, but he's concerned because it's the 4th month it has gone up, and it's always been a good marker for me. I'll be seeing him Monday to discuss a new plan. I haven't had chemo for a month, because my May…
posting photo
Hi gals, this is a really stupid question, but I have tried now for an hour to post my pic and can't seem to figure it out. I can't be that hard! Where do I go for that info? Thanks! kathleen:)
PARP inhibitors and ovarian cancer
Someone just posted this on the Uterine Cancer Board, and it is such hopeful news for ovarian cancer that I had to pop over and make sure you all saw it too: Here's a link to the article discussing PARP inhibitors and the recent study results reported by Robert Bazell, NBC's Chief Science and Health Correspondent:…
The Wait
In that 'wait' mode after the pelvic ultrasound which confirmed a node in my right ovary. It's very small so there is no diagnosis of what it is, have to wait for the gyno to come back from her holidays for the final verdict on our next move. The appt. is July 10th so not too far away but the waits always seem so much…
Bowl Obstruction and Ostomy Bag for Mom
My Mom got Ovarian Cancer diag in Feb 08 Stage 3C. Stopped Chemo Sept 08. Got Rhumatoid Arthritis from Chemo in Sept 08 very bad. Feb got Pnumonia from it. From March 09 to June 09 we were in out and of hopsital 4 times just saying that her pain, vomitting and abdominal swelling was from slow bowels due to low dose pain…
Port Numbing Cream & Blood Tests & Gemzar
Hello friends, Although I have had a port for almost 3 years now, I only recently was given the "Numbing Cream" (Lidocaine/Prilocaine) to use before treatments or flushes to numb the area before they insert the thumb-tack sized needle! Well, the reason I'm writing, is to tell you all that this cream works GREAT FOR BLOOD…
Pet/Ct/ Scan Update + Radiation
Hi, well I got the results of my pet/ct scan. There are no signs of cancer, just the same tumor on my vaginal cuff. It grew 1/2 inch since March. My onc. is suggesting radiation for this because that's all that showed up. I know Linda has had radiation. Has anyone else? I would be getting it every day. I don’t know for how…
appt with associate
Hi Ladies, I saw my oncologist's associate this morning, and I'm glad I did because I got a new perspective. He said that any infection or inflammation in the body could affect the CA125 level. Therefore the biopsies and pink discharge after the vaginal biopsies, may possibly be the reason for the 6 point rise in the past…
Just a friendly Hello from The Chick in the Sticks
Hi Everyone, I just wanted to make sure you all saw I was home and not in the hospital. :-) I came home Monday, started the new chemo Tuesday(abraxane) got a transfusion on Thursday and had our Relay on Friday/Saturday. I am suffering with the bone pain and even taking pain meds to help, but other than that doing well. I…
a few questions
Good morning ladies, First let me wish all the Dads and husbands a very Happy Father's Day. You are the rocks who support us, and do so much as our caregivers and we really appreciate you, although this cancer makes us a bit loopy (or feisty) at times. My questions are, and I apologize if we've covered them already. Monday…
Only 5 radiation treatments and a great deal of pain...
I began radiation treatments last Monday and have only had 5 treatments so far and the pain is incredible. Has anyone else had this kind of experience? Now in addition to the large amount of pain I began with before the radiation treatments I have a lot of additional pain all the way around my body in the areas that they…
May need to have my right ovary removed for biopsy? Anyone know how that surgery goes and length of
Just wondering about what I might expect if I have to do the removal as the title of this post shows. Any experience with this type of surgery would be appreciated for my info. Not sure if the omentum will be biopsied too or not. Thanks. Blueroses.
Comforting News
Hi, I had fluid drained off my lungs yesterday and it wasn't a big deal at all, just a little discomfort. Saw my gyn/onc today and found out the fluid contained cancer cells, which was not unexpected. I feel so much better after talking to him, just knowing what is happening. Also, he gave me hope that I can go into…
pain question
Ladies, I have a question about pain. Pain and Nausea are what sent me to the dr.in the first place and after I was daignosed with vag. wall cancer, the pain medicine the dr. gave me hydrocodone-apap 10-325 2 every 4 hours as needed worked for the most part. However, since I started radiation 2 days ago it really isn't…
Stage 4 survivor here.
How many others here? 13 years for me. So far so good.No recurrence to date. Be well, Jan in So. Calif.
Counselor
I was diagnosed fall last year. Had surgery and finished my last chemo at the end of April. I have been feeling pretty well physically, but my emotions have been haywire lately. I'm not one to take anti-depressants. I have been taking Ativan to help me sleep. Even it doesn't seem to be helping lately. I've been considering…
Short remission update
Hi, everyone. I thought a new thread might be better, easier to read. I met with my doc yesterday. The good news, very good, is that the CT scan showed no definable tumors, so no surgery will be needed. There was some thickening of the bladder wall, noted as probable cancer and consistent with my symptoms. My doc thinks…
inflamed granulation tissue
Good morning ladies, In April I saw my GYN and he thought he saw abnormal tissue in my vagina, and was concerned it might be a spread of my OVCA. He took biopsies and thankfully the report came back as inflamed granulation tissue. Since then I've had a pinkish discharge, I'm seeing him next week and will discuss how he can…

Ovarian Cancer

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